Your Morality, My Mortality

2015 ◽  
Vol 24 (2) ◽  
pp. 214-230 ◽  
Author(s):  
BEN A. RICH

Abstract:Recently the scope of protections afforded those healthcare professionals and institutions that refuse to provide certain interventions on the grounds of conscience have expanded, in some instances insulating providers (institutional and individual) from any liability or sanction for harms that patients experience as a result. With the exponential increase in the penetration of Catholic-affiliated healthcare across the country, physicians and nurses who are not practicing Catholics are nevertheless required to execute documents pledging to conform their patient care to the Ethical and Religious Directives for Health Care Services as a condition of employment or medical staff privileges. In some instances, doing so may result in patient morbidity or mortality or violate professional standards for respecting advance directives or surrogate decisionmaking. This article challenges the ethical propriety of such institutional mandates and argues that legal protections for conscientious refusal must provide redress for patients who are harmed by care that falls below the prevailing clinical standards.

2020 ◽  
Vol 85 ◽  
pp. 02009
Author(s):  
Daiga Behmane ◽  
Anda Batraga ◽  
Mara Greve ◽  
Didzis Rutitis

The study evaluates foreign patients' experience and satisfaction in relation to the health care received in Latvia. By applying the gap model of service evaluation, the study reveals the difference between expected and received service outcome in Latvia, and draws conclusions about the importance of individual and patient experience factors related to the overall patient satisfaction. The study concludes that in all groups of factors matrix proposed in the study: (1) general travel or destination factors; (2) communication factors; (3) factors related to the choice of service and (4) factors related to the choice of health care institution, patients evaluated the perceived health care outcome higher than the expected outcome. The results of the study lead to the conclusion that there is a significant gap in foreign patients' knowledge regarding the possibilities of receiving a high-level health care service in Latvia. The results also reveal the most important determinants of patient experience and related satisfaction.


2020 ◽  
Vol 5 (1) ◽  
pp. 39
Author(s):  
Do Thi Nhuong ◽  
Chu Tuan Anh

Medical staff holds a pivotal role in the Vietnamese health system, and is crucial to the efficiency and quality of health care services in Vietnam. It is their professional and dedicated work that is a permanent basis to guarantee protection of and care for people’s health in the provision of health care services to people in all regions, including remote areas, borders and islands. The continuous growth in the quantity and quality of health workers in Vietnam has affirmed the right leadership of the Communist Party of Vietnam in building this health workforce over the years.


2021 ◽  
Vol 17 (1) ◽  
Author(s):  
Trude Fløystad Eines ◽  
Ingunn Pernille Mundal ◽  
Cecilie Katrine Utheim Grønvik

Pasient – og brukermedvirkning er en lovfestet rettighet som skal sikre pasienter og brukere økt innflytelse i helse og omsorgstjenesten. Forskning viser imidlertid at helsepersonell anvender en paternalistisk tilnærming i sin yrkesutøvelse, noe som truer pasienters rettigheter. Helsepersonell anbefales derfor å ta i bruk tjenestedesign som metodikk for å øke den reelle medvirkningen og involveringen av pasienter og brukere. Formålet med økt bruker- og pasientmedvirkning og involvering er å utvikle tjenester av høy kvalitet med utgangspunkt i brukernes behov. Behovsdrevne tjenester vil oppleves som nyttige og meningsfulle for brukerne. Det er derfor viktig at helsepersonell forstår verdien av brukermedvirkning i kvalitetsarbeid og tilegner seg kunnskap om tjenestedesign. Can service design promote expanding user participation and user involvement in health care services? Patient- and user participation is a legislative right intending to ensure service users involvement in health care services. However, research shows that healthcare professionals employ a paternalistic approach in their professional practice, which may threaten patients' rights. Healthcare professionals are recommended to use service design as a methodology to increase the genuine user participation and user involvement, aiming to develop high-quality services based on users' needs. Demand-driven services may be perceived as beneficial and meaningful for the patients. Therefore, the health professionals’ knowledge and comprehension of the value of user participation and service design are of importance.


2020 ◽  
Author(s):  
Gorgeous Sarah Chinkonono ◽  
Vivian Namuli ◽  
Catherine Atuhaire ◽  
Hamida Massaquoi ◽  
Sourav Mukhopadhyay ◽  
...  

Abstract Background: Individuals who are Deaf or hard of hearing (DHH) face a lot of challenges when accessing health care services. The main barrier that they face is communication. Despite this, not much research had been carried out in Africa to understand how individuals who are DHH access healthcare services. This study sought to explore experiences of individuals who are DHH in Botswana when accessing healthcare services to propose recommendations towards improving their situation.Methods: This is a qualitative research study using phenomenological approach. Participants were observed at one point in time. Face-to-face in-depth interviews were conducted with 22 DHH individuals living in Francistown and Tati, using a semi-structured interview guide and an interpreter. Participants age range was between 18years to 40years. Purposive sampling and snowballing sampling techniques were used to select the participants.Results: The main challenge that individuals who are DHH in Botswana face is communication barrier which has culminated in their reception of poor healthcare services as the healthcare professionals fail to effectively attain to their health needs. This is evident through wrong prescriptions and treatment; poor counselling services, lack of confidentiality; poor maternal health services especially during child delivery; and limited health information. However, individuals who are DHH in Botswana continues to utilise healthcare services.Conclusion: Poor communication between healthcare professionals and individuals who are DHH act as an impediment to acquiring proper healthcare services by individuals who are DHH. This can lead to poor health outcomes for the DHH population as they are not well informed about health issues that they are at risk of and at times do not know where to seek specific healthcare services pertaining to the health problems they are experiencing. Therefore, there is a need to provide sign language interpreters in the healthcare centres to reduce the impact of this problem.


2021 ◽  
Vol 20 (Supplement_1) ◽  
Author(s):  
K Olsen ◽  
NF Falun ◽  
HK Keilegavlen

Abstract Funding Acknowledgements Type of funding sources: None. Background  Heart failure (HF) requires follow-up over time and by several different health services. The positive effects of follow-up care in secondary care services is well known. However, there is a lack of knowledge in how HF patients experience continuity of care a through various health care services in secondary and primary care. Purpose To explore how HF patients experience continuity of care through secondary and primary health care services. Methods The study used an inductive design by performing four semi-structured focus group interviews. Overall, 17 patients, mean age of 71 years (range 42-95), 11 men and 6 women, All patients were receiving regular and individual follow-up by cardiac nurses in primary care after hospital discharge The interviews were analysed through qualitative content analysis. Results Gaps in continuity of care were described as challenging. Information about HF at the time of discharge from hospital were not always fully comprehended. Patients experienced physical strain of being lost and abandoned after discharge from hospital. They did not know whom to contact for follow-up.  Appointments with the GP was not agreed or scheduled weeks ahead. Patients appreciated home visit by a cardiac nurse in primary care who provided the patients with knowledge in self-care administration. When experiencing deterioration they could call the cardiac nurse, who could facilitate fast track to the hospital. Self-care was difficult to comprehend, especially for those experiencing comorbidities. Patients also  described the importance of sharing knowledge and experience of living with HF with other patients in a secondary care setting, organized by specialised cardiac nurses. Conclusions There are gaps in continuity in patients’ pathways, throughout both secondary and primary healthcare. Even though patients receive information at discharge from hospital, they felt insecure when returning home. Health care services in the primary care provided the patients with both knowledge and confidence as they regularly met the patients, both at home and in organized primary care meetings.


Dementia ◽  
2018 ◽  
Vol 18 (7-8) ◽  
pp. 2526-2542 ◽  
Author(s):  
Despina Laparidou ◽  
Jo Middlemass ◽  
Terence Karran ◽  
A Niroshan Siriwardena

Background There are an estimated 46.8 million people worldwide living with dementia in 2015, being cared for usually by family members or friends (informal caregivers). The challenges faced by informal caregivers often lead to increased levels of stress, burden and risk of care-recipient institutionalisation. Aim The overarching aim of this study was to explore the experiences and perceptions of informal caregivers of people with dementia when interacting with the health care system, and whether the support received acted as a mediator of caregiver stress. The secondary aim was to investigate healthcare professionals’ views and current practice regarding people with dementia and their interactions with informal caregivers. Method We employed a qualitative research design, using focus groups and one face-to-face interview with a purposive sample of informal caregivers and healthcare professionals in Lincolnshire, UK. Data were collected between March and July 2015. We used the stress-process model of stress in caregivers as a theoretical framework. Results We interviewed 18 caregivers and 17 healthcare professionals. Five themes, mapped to the stress-process in caregivers’ model, captured the main challenges faced by caregivers and the type of support they wanted from health care services. Primary stressors included the challenge of diagnosing dementia; caregivers’ needs and expectations of an in-depth knowledge and understanding of dementia from healthcare professionals; and need for carer education. Secondary role strain included lack of support and mismatch of communication and expectations. Caregiver involvement in monitoring care and disease was a potential mediator tool. Conclusions Fragmentation of dementia care services, lack of training for healthcare professionals and the dearth of information for caregivers means health care services are only partially fulfilling a support role. In turn, lack of support may be intensifying caregiver stress leading to worsening in their health and well-being; thus, potentially increasing the risk of institutionalisation of their care-recipient.


2011 ◽  
Vol 108 (3) ◽  
pp. 883-892 ◽  
Author(s):  
Hussein H. Soliman ◽  
Manal M. Abd Almotgly

Caring for individuals with AIDS in developing countries represents a major crisis to families and natural caregivers. This study presents the psychosocial profiles of people with AIDS and their caregivers in Egypt to assess the effects of HIV/AIDS on patients, their caregivers, and the factors that influence caregiving and support. Various stressors and challenges for patients as well as hardships the caregiver faces were explored. The literature documents difficulties such as inadequate health care services, lack of resources, and stigma that patients experience in developing countries. Findings indicate an association between the psychosocial effects of AIDS on patients and their caregivers.


2015 ◽  
Vol 72 (6) ◽  
pp. 756-774 ◽  
Author(s):  
Laura M. Smith ◽  
Wayne L. Anderson ◽  
Anne Kenyon ◽  
Elizabeth Kinyara ◽  
Sarah K. With ◽  
...  

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