The impact of creative engagement in museum activities on the well‐being of people living with dementia, their carers, and family members: The arts programming “Susitikime muziejuje” case in Lithuania

Abstract Extensive evidence suggests that adverse childhood experiences (ACEs) can lead to negative health effects across a lifetime. This study examines the impact of ACEs on the frequency of providing daily support (i.e., unpaid assistance, emotional support, and disability-related assistance) to family members and the moderating effects of ACEs in the association between providing daily support to family and daily negative affect. Using the National Study of Daily Experiences II, we analyzed a total of 14,912 daily interviews from 2,022 respondents aged 56 on average. Key results showed that a greater number of ACEs were associated with providing more frequent emotional support to family. We also found the significant interaction effect that adults with more ACEs showed greater negative affect on the days when they provided assistance to family members with disabilities. The findings underscore the long-term negative impact of ACEs on daily well-being in the context of family relationships.

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Understanding Burnout in Indian Housewives Amidst COVID-19 Pandemic

International Journal of Indian Psychology ◽

10.25215/0903.220 ◽

2013 ◽

Vol 1 (1) ◽

Author(s):

Charvi Pareek ◽

Nandani Agarwal ◽

Yash Jain

Keyword(s):

Mental Health ◽

Emotional Health ◽

Family Relations ◽

Family Members ◽

Personal Space ◽

Well Being ◽

Frontline Workers ◽

Work From Home ◽

The World ◽

The Impact

COVID-19 Pandemic has brought the world underwaters. All over the world, people were affected. The focus during this period was mostly on patients and frontline workers, with some attention also towards working adults. One cohort that has not gained much light during this pandemic is of housewives. Housewives had to manage household chores along with managing family relations – especially in India, where societal expectations lie on the female to provide family members with care and manage the household. Dealing with uncertainty, decreased availability of personal space, increased presence of and interaction with people in the household due to work from home scenarios, shifting to the online world and adapting to the change, economic disturbances, absence of domestic help, managing parental responsibility, increased stress about one’s own and family members’ health and lack of social interaction have contributed to their inconvenience. Existing evidence supports that housewives have been experiencing burnout in their homes. This qualitative study was conducted to see how the added pressure of COVID – 19 and social isolation has affected housewives mentally, leading to burnout. This narrative study includes participants of Indian origin, between the ages of 34 to 50 years. Participants were shortlisted on the basis of their scores obtained on the COVID-19 Burnout Scale, designed by Murat Yıldırım and Fatma Solmaz. The themes generated through this research study are related to understanding the impact of burnout on the mental health of housewives along the areas of physical health, financial well-being, digitization, uncertainty regarding COVID-19, parental responsibilities, social & emotional health, relationship management, and coping mechanisms. The findings of this study suggest that the mental health of housewives has significantly worsened during the COVID-19 pandemic due to constant exposure to certain stressors.

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Social trust and emotional health in rural older adults in China: The mediating and moderating role of subjective well-being and subjective social status

10.21203/rs.3.rs-60031/v2 ◽

2020 ◽

Author(s):

Hongsheng Chen ◽

Zhenjun Zhu

Keyword(s):

Social Status ◽

Social Trust ◽

Emotional Health ◽

Family Members ◽

Well Being ◽

The Elderly ◽

Subjective Social Status ◽

Rural Elderly ◽

Subjective Well Being ◽

The Impact

Abstract BackgroundChina is becoming an aging society. The emotional health of the elderly is gaining importance. Social trust is an important factor affecting emotional health, but existing studies have rarely considered the various effects of different types of social trust on rural elderly emotional health. Few studies have analysed the role of subjective well-being and subjective social status in the relationship between social trust and elderly emotional health.MethodsUsing the data of the China Labor-force Dynamics Survey 2016 (CLDS 2016) and regression models, this study selected 2084 rural respondents aged 60 years and above to analyse the impact of social trust on their emotional health. Social trust was divided into three categories: trust in family members, trust in friends, and trust in neighbours. This study also examined the mediating and moderating effects of subjective well-being and subjective social status on the relationship between social trust and emotional health.ResultsTrust in family members was significantly and positively associated with emotional health (coefficient=0.194, P<0.01) and subjective well-being (coefficient=0.177, P<0.01). Trust in friends was significantly and positively associated with emotional health and subjective well-being (coefficient=0.097, P<0.01; coefficient=0.174, P<0.01, respectively). Trust in neighbours was significantly and positively associated with emotional health and subjective well-being (coefficient=0.088, P<0.01; coefficient=0.177, P<0.01; respectively). Subjective well-being effectively reduced the impact of social trust in family, friends, and neighbours on the emotional health of the elderly by 0.023, 0.022, and 0.023, respectively. Trust in friends and neighbours significantly and positively affected respondents’ subjective social status (coefficient=0.120, P<0.05; coefficient=0.090, P<0.10; respectively). Subjective social status effectively reduced the impact of social trust in friends and neighbours on the emotional health of the elderly both by 0.004. The positive relationship between trust in family members and emotional health is weakened by subjective well-being.ConclusionsSocial trust, especially family relationships, play an important role in maintaining the emotional health of the rural elderly. In response to population ageing, more social policies must be introduced to care for the rural elderly and help them lead a happy and satisfactory life.

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Cognitive Decline and the Changing Self in Relationship

Advances in Psychology, Mental Health, and Behavioral Studies - Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease ◽

10.4018/978-1-4666-8478-2.ch003 ◽

2015 ◽

pp. 61-75

Author(s):

Darby Morhardt ◽

Marcia Spira

Keyword(s):

Alzheimer’S Disease ◽

Alzheimer's Disease ◽

Cognitive Decline ◽

Family Member ◽

Family Members ◽

Well Being ◽

Family Roles ◽

The Family ◽

Person With Dementia ◽

The Impact

When a member of a family is diagnosed with Alzheimer's disease, the impact of the disease reverberates throughout the relationships within the family. This paper explores the challenges and strengths within one family as members manage and cope with Alzheimer's disease. The person with dementia and his family members are individually interviewed and each person explores the consequences of the disease on personal well-being as well as the relationships within the family. The family demonstrates how dementia in one family member demands flexibility in family roles as they navigate life through the challenges of living with dementia.

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Impact on the family

Oxford Textbook of Palliative Care for Children ◽

10.1093/med/9780198821311.003.0012 ◽

2021 ◽

pp. 111-125

Author(s):

Veronica Dussel ◽

Barbara Jones

Keyword(s):

Social Care ◽

Family Members ◽

Well Being ◽

Family Unit ◽

Health And Social Care ◽

The Family ◽

Threatening Condition ◽

Life Threatening ◽

Limiting Condition ◽

The Impact

In this chapter, we will focus on the importance of caring for the family of a child with a life-limiting condition (LLC) or life-threatening condition as a unit, each of the family members being integral to the well-being and care of the others. We recognize that the family unit itself is embedded within a wider context including the health and social care system, and more broadly within its society and culture. We discuss the concept of family, exploring the impact of having a child with an LLC, and how families adjust to this. We then expand on considerations about how to offer effective and timely support and help. We have included parents’ narratives with the aim of adding depth to the discussion, and in recognition of the truth of families’ own experiences.

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Psychological well-being in Italian families: An exploratory approach to the study of mental health across the adult life span in the blue zone

Europe’s Journal of Psychology ◽

10.5964/ejop.v13i3.1416 ◽

2017 ◽

Vol 13 (3) ◽

pp. 441-454 ◽

Cited By ~ 8

Author(s):

Paul Kenneth Hitchcott ◽

Maria Chiara Fastame ◽

Jessica Ferrai ◽

Maria Pietronilla Penna

Keyword(s):

Mental Health ◽

Marital Status ◽

Hierarchical Linear Modeling ◽

Family Members ◽

Depression Scale ◽

Well Being ◽

Personal Satisfaction ◽

Psychological Well Being ◽

The Impact ◽

Blue Zone

Self-reported measures of psychological well-being and depressive symptoms were examined across differently aged family members, while controlling for the impact of marital status and personal satisfaction about family and non-family relations. Twenty-one grandchildren (i.e., ages 21-36 years) were recruited with their parents (i.e., 48-66 years old) and grandparents (i.e., 75-101 years of age) in the ‘blue zone’ of Ogliastra, an Italian area known for the longevity of its inhabitants. Each participant was individually presented a battery of questionnaires assessing their lifestyle and several perceived mental health indices, including the Warwick-Edinburgh Mental Well-Being Scale (WEMWBS, Tennant et al., 2007), and the Center for Epidemiologic Studies Depression Scale (i.e., CES-D, Radloff, 1977). After assessing the level of concordance among adults sharing the same context, the Hierarchical Linear Modeling (HLM) approach was used to assess the nested dataset. It was found that family membership (i.e., grandchildren versus parents and grandparents) predicted the WEMWBS score but not the CES-D when the impact of marital status and personal satisfaction about social (i.e., family and non-family) ties was controlled for. Moreover, two separate repeated-measure Analyses of Variance (ANOVAs) documented similar level of personal satisfaction about social relationships across the three family groups. In conclusions, satisfying social ties with friends and family members together with an active socially oriented life style seems to contribute to the promotion of mental health in adult span.

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N07 A qualitative study of the impact of inflammatory bowel disease on partners

Journal of Crohn s and Colitis ◽

10.1093/ecco-jcc/jjab074.821 ◽

2021 ◽

Vol 15 (Supplement_1) ◽

pp. S611-S612

Author(s):

P Thapwong ◽

C Norton ◽

H Terry ◽

W Czuber-Dochan

Keyword(s):

Inflammatory Bowel Disease ◽

Everyday Life ◽

Bowel Disease ◽

Social Life ◽

Negative Impact ◽

Family Members ◽

Well Being ◽

Health And Social Care ◽

Inflammatory Bowel ◽

The Impact

Abstract Background Inflammatory Bowel Disease (IBD) not only impacts the quality of life of the patient, but also affects their family members. Studies to date have provided an understanding of impact of IBD and IBD implications for people with IBD. However, little is known about the impact of IBD on their family members. Therefore, the current study aimed to explore the lived experience of people with IBD and their family members regarding the impacts of IBD on family members and their coping methods. Methods Twelve participants, including six people with IBD with their six partners, were purposively selected, no other family members (parents / children, sibling) came forward to participate in the study. The in-depth, semi-structured online interviews were conducted via Skype, Zoom, or Microsoft Teams between February-June 2020. Interviews were audio-recorded, transcribed verbatim, and analysed using inductive thematic analysis by Braun and Clarke. Results Four main themes emerged during the analysis under the central theme “our relationship with IBD, for better or worse”. IBD affected the partners in terms of their own relationship, relationship with others, everyday life, and emotional and mental well-being. The theme “our relationship” showed the impact of IBD on the relationship between a couple, including the intimate relationship, family planning, role change as partner and carer, and the importance of honest communication. IBD also affected wider relationships with family, children, and social life, but teamwork could mediate negative impact in relationships. Emotional well-being was impacted by living in constant fear and guilt. Humour and knowledge of IBD reduced negative impacts. IBD impacts on everyday life (diet, finances, and travel) for both patients and partners. Planning for uncertain situations was helpful to reduce restrictions. Conclusion The study provides an understanding of IBD impact on partners and the coping strategies from patients and partners’ perspectives. There are wide-ranging implications for health and social care professionals caring for people with IBD and their families. Social support has been recognised as a vital buffering mechanism in facilitating an individual’s adjustment to IBD. Healthcare professionals and researchers may integrate a bio-psycho-social approach into their work with IBD family members. There is a need to develop interventions to help family members of IBD patients to better cope with the illness and to have a more fulfilling life.

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How Gender Shapes the Effects of Immediate Family Members’ Deaths on Adults’ Psychological Well-Being

Innovation in Aging ◽

10.1093/geroni/igab046.352 ◽

2021 ◽

Vol 5 (Supplement_1) ◽

pp. 93-93

Author(s):

J Jill Suitor ◽

Megan Gilligan ◽

Catherine Stepniak ◽

Yifei Hou ◽

Robert Frase

Keyword(s):

Depressive Symptoms ◽

Family Members ◽

Later Life ◽

Well Being ◽

Time Since Death ◽

Multilevel Regression ◽

Psychological Well Being ◽

The Face ◽

Using Data ◽

The Impact

Abstract The deaths of family members constitute one of the most serious negative life events experienced in adulthood. The impact of these losses on psychological well-being may differ considerably by the structural relationship between the deceased and the survivors, and by the genders of both family members; however, few studies have been able to explore these variations by generation, gender, and time since death. In this paper, we use mixed-methods data to explore how depressive symptoms are affected differentially in adulthood by the deaths of mothers, fathers, and siblings, as well as by the gender of survivors. We address these questions using data collected from approximately 600 adult children nested within 250 later-life families, in which approximately 55% experienced the death of at least one parent and 15% experienced the death of a sibling in the previous decade. Preliminary multilevel regression analyses showed that deaths of siblings predicted sisters’ but not brothers’ depressive symptoms. In the case of parents, only mothers’ deaths were found to predict daughters’ depressive symptoms, whereas neither parents’ deaths predicted sons’ well-being. Further, these patterns differed little by time since death. Qualitative data revealed that women were more likely to report that both their mothers’ and siblings’ deaths had led to higher conflict within the sibling network, which previous research has shown predicts psychological well-being. Taken together, these findings demonstrate the salient role of gender in shaping well-being in the face of events of deaths of parents and siblings in adulthood.

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A study of whether individual and dyadic relations between spirituality and resilience contribute to psychological adjustment among individuals with spinal cord injuries and their family members

Clinical Rehabilitation ◽

10.1177/0269215519845034 ◽

2019 ◽

Vol 33 (9) ◽

pp. 1503-1514 ◽

Cited By ~ 4

Author(s):

Kate Fiona Jones ◽

Grahame Simpson ◽

Lynne Briggs ◽

Pat Dorsett ◽

Malcolm Anderson

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Spinal Cord Injuries ◽

Satisfaction With Life ◽

Family Members ◽

Well Being ◽

Satisfaction With Life Scale ◽

Cord Injury ◽

Spiritual Well Being ◽

The Impact

Objective: To test a model of spiritual well-being and resilience among individuals with spinal cord injuries and their family members. Design: Prospective cross-sectional observational data were analyzed by structural equation modelling. Setting: Inpatient and community services at one rehabilitation hospital. Subjects: Individual with spinal cord injury ( n = 50) and family member ( n = 50) dyads. Interventions: Standard rehabilitation, both inpatient and community. Main measure(s): Functional assessment of chronic illness therapy – spiritual well-being scale – expanded, Connor–Davidson resilience scale, positive and negative affect scale, depression anxiety and stress scale–21, satisfaction with life scale. Results: Median time post-injury was 8.95 months (IQR (interquartile range) = 14.15). Individuals with spinal cord injury and family members reported high scores for both spiritual well-being (66.06 ± 14.89; 68.42 ± 13.75) and resilience (76.68 ± 13.88; 76.64 ± 11.75), respectively. Analysis found the model had acceptable fit (e.g. chi-square goodness of fit statistic = 38.789; P = .263). For individuals with spinal cord injury, spiritual well-being was positively associated with resilience which, in turn, was associated with increasing positive affect and satisfaction with life. Among family members, spiritual well-being was positively associated with resilience. Resilience was then associated with lowered levels of depression and mediated the impact of depression on satisfaction with life. Limited evidence was found for mutual dyadic links, with the only significant pathway finding that resilience in the individual with spinal cord injury was associated with increased satisfaction with life among family members. Conclusion: Increased spirituality and resilience make a significant contribution (both independently and in combination) to positive psychological outcomes for both individuals with spinal cord injury and their family members.

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Music workshops as a pathway to community engagement for military veterans

Journal of Applied Arts and Health ◽

10.1386/jaah_00039_1 ◽

2020 ◽

Author(s):

Niyati Dhokai

Keyword(s):

Community Engagement ◽

Military Service ◽

Military Veterans ◽

Well Being ◽

Valuable Insight ◽

Civilian Life ◽

Community Members ◽

The Arts ◽

Arts Engagement ◽

The Impact

For military veterans who are integrating into civilian community settings after military service, community engagement often involves the negotiation of postinjury needs, the consideration of new roles within the family and community social structures and the transition from military to civilian life. Communitybased music programmes can provide opportunities to explore new social relationships with family, friends and community members and reinforce a sense of well-being as well as inform facilitators about the different learning and health needs, particularly those leading to social isolation, of veterans and their families that may affect adherence and retention during the workshop series. This article examines the impact of participating in community-based guitar workshops using ethnographic observation, surveys and interviews with veteran participants. Longitudinal ethnographic information offers valuable insight to plan long-term arts engagement as veterans and their families transition to new communities and continue to utilize the arts as a way to provide positive peer-to-peer support.

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