From well‐known to changed everyday family life in families with childhood cancer: A grounded theory of disrupted family dynamic

Abstract Purpose It is important to support families in dealing with the distress that comes along with the diagnosis and treatment of childhood cancer. Therefore, we developed a playful tool that families can use at home to support their family functioning and safeguard their normal family life. We pilot tested this new tool called Mr.V and describe how families used and evaluated the tool, and how it could be further improved. Methods Mr.V is an interactive dispenser that looks like a spaceman and proposes family activities. These activities are suggested by family members themselves and dispensed by the machine at unexpected moments. Mr.V produced data on how it was used, and a questionnaire and a semi-structured interview were used to evaluate the experiences of families and the potential of this tool. Results Ten families with a child with cancer between 5 and 9 years old (Mage = 6.7 years) who were in active treatment (mixed diagnoses) participated (n = 47; npatients = 10, nsiblings = 9, nparents = 16). All families used Mr.V for multiple days and were very satisfied with the tool regarding its acceptability, feasibility, and potential effectiveness. They also had suggestions on how the tool could be further improved. Conclusion Mr.V is an acceptable and feasible tool that can be implemented by families independently at home, regardless of their level of need for support. Mr.V promoted family activities and therefore has the potential to support family functioning and normal family life at home. Future research should further investigate the effectiveness of this tool.

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Transitioning to Postdivorce Family Life: A Grounded Theory Investigation of Resilience in Coparenting

Family Relations ◽

10.1111/fare.12074 ◽

2014 ◽

Vol 63 (3) ◽

pp. 411-423 ◽

Cited By ~ 20

Author(s):

Tyler B. Jamison ◽

Marilyn Coleman ◽

Lawrence H. Ganong ◽

Richard E. Feistman

Keyword(s):

Grounded Theory ◽

Family Life

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Care delivery for the child to grow up despite the pain: the family's experience

Revista Latino-Americana de Enfermagem ◽

10.1590/s0104-11692007000400006 ◽

2007 ◽

Vol 15 (4) ◽

pp. 556-562 ◽

Cited By ~ 2

Author(s):

Lisabelle Mariano Rossato ◽

Margareth Angelo ◽

Clovis Artur Almeida Silva

Keyword(s):

Rheumatoid Arthritis ◽

Grounded Theory ◽

Data Analysis ◽

Theoretical Model ◽

Care Delivery ◽

Methodological Framework ◽

Family Dynamic ◽

Nursing Knowledge ◽

Semistructured Interviews ◽

The Family

This study aimed to understand the meaning of the experience of families having a child experiencing pain due to Juvenile Rheumatoid Arthritis and to construct a theoretical model representing this experience. Grounded Theory and Symbolic Interactionism were used as methodological framework and theoretical framework, respectively. Data were collected by semistructured interviews with 12 families. Data analysis allowed for the construction of the theoretical model Caring for the child to grow despite the pain, which describes an experience based on motivational elements: wanting to see the child without pain and wanting to see the child live a normal life, reviewing how the family lives the transition in its development cycles, retaking and integrating them in the family dynamic with the appearance of the disease and pain in the child. This theoretical model provides a framework for teaching, research and care, permitting advances in terms of theoretical nursing knowledge.

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IDENTITY AND THE SENSE OF SUBJECTIVITY IN PARENTS OF CHILDREN WITH INTELLECTUAL DISABILITIES IN THE CONTEXT OF FAMILY LIFE DESTABILIZATION

Studia Humanistyczne AGH ◽

10.7494/human.2020.19.3.157 ◽

2020 ◽

Vol 19 (3) ◽

pp. 157-175

Author(s):

Jakub Niedbalski

Keyword(s):

Grounded Theory ◽

Intellectual Disabilities ◽

Family Life ◽

People With Disabilities ◽

Theoretical Framework ◽

Disabled Children ◽

Intellectually Disabled ◽

Unexpected Events ◽

Research Material ◽

Personal Experiences

The lives of families who take care of people with disabilities are full of unexpected events, unwanted situations, and difficulties that accumulate at every step. Therefore, bearing in mind the purpose of this paper, I focused on determining those conditions which are a source of destabilization in the lives of families with intellectually disabled children. I attemptto reconstruct the sources of threats to the sense of subjectivity and the shaping of the identity of parents who have children with disabilities. The theoretical framework of the analysis is symbolic interactionism. The research material used in the presented article is composed of personal experiences of parents of disabled individuals, and unstructured interviews were performed with these people. Analysis of the research material was performed in accordance with the procedures of grounded theory methodology.

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Interrelated Processes toward Quality of Life in Survivors of Childhood Cancer: A Grounded Theory

The Qualitative Report ◽

10.46743/2160-3715/2012.1709 ◽

2015 ◽

Author(s):

Miranda Tsonis ◽

Janette McDougall ◽

Angela Mandich ◽

Jennifer Irwin

Keyword(s):

Quality Of Life ◽

Grounded Theory ◽

Cancer Survivors ◽

Childhood Cancer ◽

Past Research ◽

Childhood Cancer Survivors ◽

Action Strategies ◽

Survivors Of Childhood Cancer ◽

Emergent Theory

Past research has not adequately addressed the quality of life (QOL) of survivors of childhood cancer. The purpose of this study was to understand how QOL is experienced for individuals who have survived childhood cancer. Specific research questions included: (a) How do childhood cancer survivors define the concept of QOL and (b) What processes do childhood cancer survivors go through regarding their QOL? Researchers used grounded theory to analyze in-depth interviews conducted with eight survivors. Survivors use a process of specific action strategies and intervening conditions to manage impacts and effects, resulting in life enjoyment, or good QOL. The identification of this process has led to an emergent theory titled Interrelated Processes toward Quality of Life Theory.

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Pregnant with possibility: The importance of visual data in (re)presenting queer women’s experiences of reproduction

Methodological Innovations ◽

10.1177/2059799119829429 ◽

2019 ◽

Vol 12 (1) ◽

pp. 205979911982942

Author(s):

Sierra Holland

Keyword(s):

Grounded Theory ◽

Research Methods ◽

Research Design ◽

Family Life ◽

Constructivist Grounded Theory ◽

Visual Sociology ◽

Visual Data ◽

Doctoral Research ◽

Controlling Images ◽

First Time

In this article, I discuss a queer method for uniting visual sociology, digital sociology, and constructivist grounded theory to conduct innovative research into how lesbian couples experience the transition to first-time parenthood, based on my longitudinal doctoral research in sociology. I first attend to the complex and unexpected unfolding of the research design, which evolved with the needs of the population to move from adapted photovoice interviews to the use of textual–visual online pregnancy journal data in a process emblematic of queer methodology. I then consider the contributions that visual data can make to the study of reproduction, especially where marginalized populations are concerned, by using my data to demonstrate how visuals create what is possible, rework oppressive versions of time, and challenge controlling images imposed on reproducing bodies. I argue here not just for the significance of images but for the significance of taking seriously the products and processes that communities find meaningful, and for evolving our research methods and methodologies to centralize marginalized ways of existing, knowing, and archiving experiences of reproduction and family life.

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A mise-en-scène do “comer em évora”: narrativa, visualidade e storytelling em torno do consumo enogastronómico

Revista Pesquisa Qualitativa ◽

10.33361/rpq.2018.v.6.n.12.171 ◽

2018 ◽

Vol 6 (12) ◽

pp. 611

Author(s):

Rosalina Pisco Costa

Keyword(s):

Grounded Theory ◽

Qualitative Analysis ◽

Family Life ◽

Visual Methods ◽

Wine Tourism ◽

Discursive Strategies ◽

The Social ◽

Tourism Studies ◽

Mise En Scene ◽

The Family

Resumo: Analisam-se neste texto as estratégias discursivas mobilizadas para a (re)construção social de lugares e identidades tendo em vista os fins da promoção e consumo turístico enogastronómico. Foi elaborada uma análise qualitativa de conteúdo de base indutiva, alinhada com os pressupostos da grounded-theory e inspirada pelos princípios da análise de narrativas visuais e storytelling à obra Comer em Évora: os restaurantes e as suas receitas, do fotógrafo português J. H. Coelho (2014). A ênfase na história, tradição, autenticidade e personalização, seja pela via familiar, seja pela figura do chef e cozinha de autor, são as estratégias discursivas que ora reforçam o estereótipo cultural da tradicional cozinha alentejana; ora afirmam uma cozinha diferente, criativa, inovadora e exótica.Palavras-chave: Consumo; Escrita Enogastronómica; Estudos de Turismo; Métodos Visuais; Turismo Enogastronómico. The mise-en-scène of “eating in évora”: narrative, visuality and storytelling on food and wine consumptionAbstract: This text analyses the discursive strategies used in the social (re)construction of places and identities aiming the promotion and consumption, from a food and wine tourism perspective. Empirically, it draws on a qualitative analysis, carried out from an inductive perspective, in line with the assumptions of grounded-theory and inspired by visual and storytelling narratives over the book “Comer em Évora: the restaurants and its recipes”, authored by the Portuguese photographer J. H. Coelho (2014). The emphasis on history, tradition, authenticity and personalization, either by the family life or the figure of the chef and author cuisine, constitute the discursive strategies used to reinforce both the cultural stereotype on the traditional Alentejo cuisine and a different, creative, innovative and exotic cuisine.Keywords: Consumption; Food Writing; Tourism Studies, Visual Methods; Food and Wine Tourism.

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