scholarly journals Pre‐loss group therapy for dementia family care partners at risk for complicated grief

Author(s):  
Katherine P. Supiano ◽  
Troy Andersen ◽  
Marilyn Luptak ◽  
Cynthia Beynon ◽  
Eli Iacob ◽  
...  
2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 43-43
Author(s):  
Katherine Supiano ◽  
Troy Andersen ◽  
Marilyn Luptak ◽  
Cynthia Beynon ◽  
Eli Iacob ◽  
...  

Abstract We developed Pre-Loss Group Therapy (PLGT) for dementia caregivers at risk for Complicated Grief (CG). PLGT is a manualized ten-session multi-modal group therapy that includes elements of cognitive behavior therapy, motivational interviewing, exposure therapy, memory revisiting, meaning-making, and self-care. We implemented and evaluated three PLGT cohorts in three long-term care facilities with family caregivers at-risk for CG whose care recipient had a life expectancy of 6 months or less and resided in a long-term care facility (NT = 24). Evaluation of participant preparedness for the death of the persons with dementia (PWD), self-care and grief outcomes showed significant improvement across multiple domains between pre and post-group, notably a statistically significant decrease in grief as measured by the Inventory of Complicated Grief score from baseline (M = 25.67, SE=1.80) to post-group (M = 14.41, SE=1.65) t(21)= 6.280, p<0.001. Clinician-rated grief severity declined (N=22, β = –0.472, SE = 0.018, p < 0.001) per week and grief improvement increased (N=22, β = 0.259, SE = 0.023, p < 0.001) per week, as assessed on the Clinician Global Impressions Scale. We subsequently trained two LCSWs to conduct PLGT, and both clinical outcomes and treatment fidelity and skills measures achieved performance levels of master clinician-trainers. Family caregivers at risk for CG may benefit from group therapy targeting preparedness and pre-loss grief experience, as we provide with PLGT. Manualized PLGT is suitable for implementation by LCSWs in the settings of hospice and long-term care.


2020 ◽  
Vol 16 (S7) ◽  
Author(s):  
Katherine P Supiano ◽  
Troy C Andersen ◽  
Cynthia Beynon ◽  
Marilyn Luptak ◽  
Eli Iacob

2014 ◽  
Vol 19 (2) ◽  
pp. 50-56 ◽  
Author(s):  
Kerry Mills ◽  
Jennifer Brush

Speech-language pathologists can play a critical role in providing education and intervention to prevent social withdrawal, prevent premature disability, and maximize cognitive functioning in persons with MCI. The purpose of this article is to describe positive, solution-focused educational program that speech-language pathologists can implement with family care partners to improve relationships and provide quality care for someone living with MCI.


2020 ◽  
Vol 7 (1) ◽  
pp. 47-55 ◽  
Author(s):  
Ranjan Kanti Panda ◽  
Lopamudra Mullick ◽  
Subhadeep Adhikari ◽  
Neepa Basu ◽  
Archana Kumari

This article reflects different programmes and resource components that may be promoted to keep children with either their own family or within alternative family care, satisfying the rights of their overall development. In India, the concept of promoting family-based care mechanisms through government systems has not been fully realised, owing to lack of synergy between resource allocation and existing government programmes, policies and plans of action for child protection. Additionally, the common public discourse is that Child Care Institutions (CCIs) offer suitable care and protection for children outside the parental care. CCIs continue to be identified as the ultimate and the most common response for children at risk. This practice nullifies the scope to explore opportunities for the child to live with their family or in any alternative family care mechanisms. Child in Need Institute (CINI), 1 1 CINI is a national level development organization working on establishing child-friendly communities through its work on health, nutrition, child protection and education for the last forty-five years in India. partnering with Hope and Homes for Children, have analysed the vulnerability factors that led children to arrive at the selected CCIs in Ranchi and Khunti districts of Jharkhand in India. While working with children in the communities, CINI endeavoured to understand the drivers and vulnerabilities leading to family/child separation and what mechanisms could address the vulnerabilities at source and prevent separation. CINI promoted a participatory governance process with the involvement of community-level institutions along with children’s and women’s groups, incubating safe spaces for children that aided in identifying, tracking and promoting multi-sectoral development plans for children at risk. 


1998 ◽  
Vol 43 (4) ◽  
pp. 375-380 ◽  
Author(s):  
Mary Jane Esplen ◽  
Brenda Toner ◽  
Jonathan Hunter ◽  
Gordon Glendon ◽  
Kate Butler ◽  
...  

Objective: To describe and illustrate elements of a group counselling approach designed to enhance the communication of risk information on breast cancer (BC) to women with a family history of this disease. Breast cancer is a leading cause of female cancer death. The most important risk factor for BC is a positive family history in at least 1 first-degree relative, and approximately one-third of women with BC have a family history of the disease. Recent evidence suggests that there is a significant psychological impact associated with having a family history of BC, and this may influence the psychological adjustment and response to being counselled for personal risk. New counselling approaches are required. Method: This paper describes a group therapy approach that incorporates principles of supportive-expressive therapy designed to address the emotional impact of being at risk for BC and to promote accuracy of perceived risk. The key elements of the intervention are described along with clinical illustrations from groups that are part of an ongoing study to develop and standardize the group therapy. Conclusion: Qualitative data from the groups suggest that this model of therapy is both feasible and effective.


2021 ◽  
pp. 1-22
Author(s):  
Katherine P. Supiano ◽  
Paula Larsen ◽  
Colin Riley ◽  
Ann Hutton ◽  
Eli Iacob ◽  
...  

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 626-626
Author(s):  
Silvia Orsulic-Jeras ◽  
Carol Whitlatch

Abstract Advances in diagnostic procedures have helped to make diagnosing Alzheimer’s disease and other dementias more accurate and to occur earlier in the disease progression. For persons living with dementia and their family care partners, finding programs that meet their needs for support post diagnosis can be challenging. Likewise, for persons with chronic conditions, few programs exist which help care dyads to create a manageable plan of care that addresses each person’s concerns and fears. SHARE, (Support, Health, Activities, Resources, and Education), originally designed for dementia care partners, has shown positive outcomes for both members of the care partnership. This presentation describes the development of the six-session SHARE intervention, its implementation in community settings, and its current standing as an evidence-based program and product that has been commercialized. Discussion will also focus on adapting SHARE for use with chronic illness families, highlighting revisions to program procedures, materials, recruitment, and evaluation.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 625-626
Author(s):  
Carol Whitlatch ◽  
Steven Zarit ◽  
Steven Zarit

Abstract Persons living with a recent diagnosis of dementia experience great uncertainty and stress as they and their families try to adjust to the new reality of their lives and futures. One fruitful strategy for intervening with these families is to include both the person living with dementia and their family care partner in the program. Although dyadic approaches are rare among early-stage programs, promising examples exist. The SHARE Program (Support, Health, Activities, Resources, and Education) is one exception where dyadic materials address: 1) current and long- term needs of care partners, and 2) how the family can develop a realistic plan of care based on their care values and preferences. This symposium describes the development and positive outcomes of the original SHARE intervention and the promising adaptations that expand how and to whom the intervention is delivered. Presentations explore: 1) the original SHARE for Dementia program and strategies for expanding its reach into chronic conditions populations (Orsulic-Jeras & Whitlatch), 2) a group version translated into Spanish (“EPIC: Early-stage Partners in Care,” Dr. Coon), and 3) the development of a remote needs assessment and unobtrusive in-home monitoring technology platform that guides care planning and helps to maintain independence (“SHARE-sense,” Dr. Miller). Discussion will focus on the challenges, unique solutions, and positive outcomes when adapting SHARE to different settings and populations (Dr. Zarit).


Psychiatry ◽  
2017 ◽  
Vol 80 (2) ◽  
pp. 125-138 ◽  
Author(s):  
David Kealy ◽  
Carlos A. Sierra-Hernandez ◽  
William E. Piper ◽  
Anthony S. Joyce ◽  
Rene Weideman ◽  
...  

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