Students’ Attitudes Towards Personal Data Sharing in the Context of e-Assessment: Informed Consent or Privacy Paradox?

2019 ◽  
pp. 16-26
Author(s):  
Ekaterina Muravyeva ◽  
José Janssen ◽  
Kim Dirkx ◽  
Marcus Specht
Keyword(s):  
Informed Consent ◽  
Data Sharing ◽  
Personal Data ◽  
Privacy Paradox ◽  
Students Attitudes

scholarly journals Assessment of Nursing Students’ Attitudes Towards Recording and Protecting Patients’ Personal Health Data: A Descriptive Study

2021 ◽  
Vol 28 (3) ◽  
pp. E202133
Author(s):  
Sebahat Atalıkoğlu Başkan ◽  
Papatya Karakurt ◽  
Necla Kasımoğlu
Keyword(s):  
Nursing Students ◽  
Data Sharing ◽  
Sample Selection ◽  
Personal Data ◽  
Attitude Scale ◽  
Health Data ◽  
Personal Health ◽  
Academic Level ◽  
Significant Difference ◽  
Students Attitudes

Introduction. Since health information is considered as sensitive personal data and requires more careful protection, healthcare professionals need to be careful about this issue. The objective of this research was to determine nursing students’ attitudes towards recording and protecting patients’ personal health data. Materials and Methods. The population of this descriptive research consisted of 450 students who studied at the Department of Nursing, Faculty of Health Sciences, Erzincan Binali Yildirim University. Sample selection was not used, and the research was completed with 374 students who were continuing education and who were accepted to participate in the research. Descriptive Information template and Attitude Scale for Recording and Protecting Personal Health Data for nursing students were used as data-collection instruments. The numbers, percentage, mean, standard deviation, non-parametric tests (the Mann-Whitney U test and the Kruskal-Wallis test) were used in data analysis. Results. Among our research participants, 68.4% of the students were females; 28.1% of the students were freshmen; 69% of the students were graduates of Anatolian high schools. Approximately 72.5% and 52.9% of the participants stated that they were aware of the concept of “personal data” and “personal health data” , respectively. The mean score of nursing students on the Attitude Scale for Recording and Protecting Personal Health Data was 3.97±0.71. The means scores obtained from subscales were as follows: 3.91±0.72 for Personal Health Data Information, 4.15±0.80 for Legal Information, 4.05±0.94 for Legal Data Sharing, 3.90±0.80 for Personal Health Data Sharing, and 3.77±0.33 for Recording of Personal Health Data, respectively. A statistically significant difference was found between the total scale and subscale scores of the students regarding their academic level. Conclusions. Students were found to have a positive attitude towards recording and protecting personal data. Increasing the responsibilities and raising awareness of the students for the protection of personal health data during their study is suggested to be important.

INFLUENCE OF OFFICE BLEACHING SYSTEMS ON THE RESISTANCE OF HARD TOOTH TISSUES

2020 ◽  
pp. 119-125
Author(s):  
Magsumova O.A. ◽  
Postnikov M.A. ◽  
Ryskina E.A. ◽  
Tkach T.M. ◽  
Polkanova V.A.
Keyword(s):  
Informed Consent ◽  
Oral Fluid ◽  
Personal Data ◽  
Acid Resistance ◽  
Non Invasive ◽  
Hard Tissues ◽  
Voluntary Informed Consent

One of the non-invasive methods for treating discoloration of hard tooth tissues is teeth whitening. The aim of this work is to assess the dynamics of changes in the acid resistance of enamel and hard tissues of teeth and the rate of its remineralization after the procedure of office teeth whitening. The study involved 123 patients aged 18 to 35 years with discoloration of various origins, with the color of hard tooth tissues on the Vita Classic A2 scale and darker. Before performing the office, teeth whitening procedure, all patients gave their written voluntary informed consent to participate in this study, as well as consent to the processing of personal data. Depending on the chosen method of office teeth whitening, patients were divided into 3 groups. The resistance of hard tooth tissues was judged based on the determination of TOER and CASRE tests. These indicators were determined at various times (5 days before the office teeth whitening procedure, 5 days after it, after 14, 30 days and 6 months). Regardless of the chosen whitening system, the office teeth whitening procedure is accompanied by a decrease in the enamel's resistance to acids and a decrease in the rate of its remineralization. The remineralizing function of oral fluid promotes the positive dynamics of the studied parameters after 14 days and after 30 days values increased due to the appointment of remineralizing therapy to all patients in 2 weeks after the teeth whitening procedure. After 6 months, all patients had high enamel resistance and the rate of its remineralization.

DISORDERS OF PERIPHERAL CIRCULATION AMID CHRONIC OSTEOCHONDROSIS OF THE LUMBAR SPINE

Vestnik ◽  
2021 ◽  
pp. 24-28
Author(s):  
Р.С. Бегимбетова ◽  
Н.О. Бейсембинова ◽  
А.К. Кадырали ◽  
Г.М. Жолдасова ◽  
А. Бауржанкызы ◽  
...  
Keyword(s):  
Lumbar Spine ◽  
Informed Consent ◽  
Clinical Symptoms ◽  
Personal Data ◽  
Pain Syndrome ◽  
Peripheral Circulation ◽  
Research Protocol ◽  
Initial Visit ◽  
Continue Research ◽  
Inhibitory Reflex

Проведен анализ состояния периферического кровообращения у 28 мужчин, больных остеохондрозом поясничного отдела позвоночника, сопровождающегося люмбалгией с клинической симптоматикой нарушения периферического кровообращения нижних конечностей. Все больные, принимавшие участие в нашем исследовании, подписали информированное согласие на участие в программе и соглашение о неразглашении личных данных и протокола исследований. Критериями для анализа являлись изменения клинической симптоматики остеохондроза поясничного отдела позвоночника, обусловленной им люмбалгии и показателей оксиметрического исследования, которые были зафиксированы при первичном обращении и через 7 суток на фоне проводимого лечения и регрессии болевого синдрома. Таким образом, полученные результаты свидетельствовали о рефлекторном нарушении периферического кровообращения за счет развития патологического спинально-вазального тормозного рефлекса, обусловленного люмбалгией, которые восстанавливаются на фоне регрессии патологической импульсации в поясничном отделе позвоночника. Целесообразно продолжить исследования в этом направлении. The state of peripheral circulation in 28 men were analyzed, patients with osteochondrosis of the lumbar spine, accompanied by lumbodynia with clinical symptoms of impaired peripheral circulation of the lower extremities was carried out. All patients who took part in our study signed an informed consent to participate in the program and a non-disclosure agreement of personal data and research protocol. The criteria for the analysis were clinical symptoms of osteochondrosis of the lumbar spine caused by lumbodynia and indicators of oximetry studies, which were recorded during the initial visit and after 7 days amid treatment and regression of pain syndrome. Thus, the results indicated a reflex disorder of the peripheral circulation due to the development of a pathological spinal-vasal inhibitory reflex caused by lumbodynia, which is restored amid regression of pathological impulses in the lumbar spine. It is advisable to continue research in this direction.

scholarly journals Communicating on the Worldwide Web – Dental Practice Websites

2015 ◽  
Vol 6 (2) ◽  
pp. 90-95
Author(s):  
Nigel Knott
Keyword(s):  
Informed Consent ◽  
News Media ◽  
Personal Data ◽  
The Internet ◽  
Dental Practice ◽  
Electronic Communications ◽  
Worldwide Web ◽  
Dental Practices

The news media are presently filled with headline stories concerning the security of electronic communications and the internet. The Financial Times’ weekend supplement FT Money devoted three pages under the title ‘Hack attack’ and asked whether companies are doing enough to protect data online. 1 Substitute dental practices for companies and we have an unhappy picture of the reasons why so much sensitive personal data is going missing or being accessed without properly informed consent.

scholarly journals Use of Existing Health Data in Epidemiologic Research–Issues of Informed Consent Under Normal Circumstances and at a Time of Health Crises

2020 ◽  
pp. 1-4
Author(s):  
Carsten Obel ◽  
Carsten Obel ◽  
Jørn Olsen ◽  
Uffe Juul Jensen
Keyword(s):  
Informed Consent ◽  
Personal Data ◽  
Health Data ◽  
Epidemiologic Research ◽  
Health Crisis ◽  
Research Issues ◽  
Data Analyses ◽  
Computer Scientists ◽  
Patient Groups ◽  
Access To Data

In epidemiologic research we study why we get sick and how we get better. To do this we frequently need large datasets on exposure, diagnoses, treatment and more. We need data often classified as sensitive and regulated by law stating a need for informed consent. We argue that modern epidemiologic research often can be done on existing data without having informed consent and without violating basic ethic principles. We also argue for a timely and fair access to data in approved project. Modern encryption technics and methods of data analyses can reduce the risk of disclosure of personal data to a level close to what we have for anonymous data. If we allow open use of administrative health data and existing research data, we will be able to produce much more information to advance disease prevention, health promotion and treatment. Epidemiologists should collaborate more with computer scientists and patient groups in developing/implementing principles for ‘modern methods of data analyses’. Under a severe health crisis data are in high demand to provide the information needed to prevent deaths and diseases and often time does not permit requiring ‘informed consent’. Such a situation in now plying out worldwide under the Covid-19 pandemic.

scholarly journals The posthumous privacy paradox: Privacy preferences and behavior regarding digital remains

2020 ◽  
pp. 146144482097495
Author(s):  
Tal Morse ◽  
Michael Birnhack
Keyword(s):  
Representative Sample ◽  
Personal Data ◽  
Stated Preferences ◽  
Actual Behavior ◽  
Privacy Preferences ◽  
Internet Users ◽  
Privacy Paradox ◽  
And Behavior

Scholars have observed a gap between users’ stated preferences to protect their privacy and their actual behavior. This is the privacy paradox. This article queries the persistence of the privacy paradox after death. A survey of a representative sample of Israeli Internet users inquired of perceptions, preferences, and actions taken by users regarding their digital remains. The analysis yielded three distinct groups: (1) users interested in preserving privacy posthumously but do not act accordingly; for these users, the privacy paradox persists posthumously; (2) users who match their behavior to their preferences; for these users, the privacy paradox is resolved; and (3) users interested in sharing their personal data posthumously but do not make the appropriate provisions. This scenario is the inverted privacy paradox. This new category has yet to be addressed in the literature. We present some explanations for the persistence of the posthumous privacy paradox and for the inverted privacy paradox.

Personal Data Sharing and Legal Issues of Human Rights in the Era of Artificial Intelligence

2019 ◽  
Vol 15 (3) ◽  
pp. 21-36
Author(s):  
Sheshadri Chatterjee ◽  
Sreenivasulu N.S.
Keyword(s):  
Artificial Intelligence ◽  
Human Rights ◽  
Data Sharing ◽  
Personal Data ◽  
Security And Privacy ◽  
Human Right ◽  
Public And Private ◽  
Analyse Data ◽  
Regulatory Controls ◽  
The Impact

Personal data sharing has become an important issue in public and private sectors of our society. However, data subjects are perceived to be always unwilling to share their data on security and privacy reasons. They apprehend that those data will be misused at the cost of their privacy jeopardising their human rights. Thus, personal data sharing is closely associated with human right issues. This concern of data subjects has increased manifolds owing to the interference of Artificial Intelligence (AI) since AI can analyse data without human intervention. In this background, this article has taken an attempt to investigate how applications of AI and imposition of regulatory controls with appropriate governance can influence the impact of personal data sharing on the issues of human right abuses.

scholarly journals Automating Privacy Compliance Using Policy Integrated Blockchain

Cryptography ◽  
2019 ◽  
Vol 3 (1) ◽  
pp. 7 ◽  
Author(s):  
Karuna Pande Joshi ◽  
Agniva Banerjee
Keyword(s):  
Data Sharing ◽  
Data Privacy ◽  
Personal Data ◽  
Data Access ◽  
Information Management System ◽  
Knowledge Graph ◽  
Efficient System ◽  
Essential Requirement ◽  
Blockchain Technology ◽  
Rich Data

An essential requirement of any information management system is to protect data and resources against breach or improper modifications, while at the same time ensuring data access to legitimate users. Systems handling personal data are mandated to track its flow to comply with data protection regulations. We have built a novel framework that integrates semantically rich data privacy knowledge graph with Hyperledger Fabric blockchain technology, to develop an automated access-control and audit mechanism that enforces users' data privacy policies while sharing their data with third parties. Our blockchain based data-sharing solution addresses two of the most critical challenges: transaction verification and permissioned data obfuscation. Our solution ensures accountability for data sharing in the cloud by incorporating a secure and efficient system for End-to-End provenance. In this paper, we describe this framework along with the comprehensive semantically rich knowledge graph that we have developed to capture rules embedded in data privacy policy documents. Our framework can be used by organizations to automate compliance of their Cloud datasets.

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