University-Engagement Research: Application of a Mixed Method Design of Community-Based Participatory Research for Communities’ Well-Being

2020 ◽  
pp. 97-118
Author(s):  
Antigoni Papadimitriou ◽  
Rosalyn W. Stewart ◽  
Constantine Frangakis
Keyword(s):  
Participatory Research ◽  
Mixed Method ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Community Based ◽  
Research Application ◽  
Mixed Method Design ◽  
University Engagement

scholarly journals 3572 The Flint Community’s Action Plan to Rebuild Trust and Encourage Resiliency During the Post Water Crisis Phase

2019 ◽  
Vol 3 (s1) ◽  
pp. 96-96
Author(s):  
Karen D. Calhoun ◽  
Kent Key ◽  
E. Yvonne Lewis ◽  
Susan J Woolford ◽  
E. Hill DeLoney ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Focus Group ◽  
Qualitative Analysis ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Water Crisis ◽  
Community Based ◽  
Community Engaged Research ◽  
Study Population

OBJECTIVES/SPECIFIC AIMS: o To review the community’s recommendations on how to rebuild trust in the Flint community. o To review effective community engagement strategies utilized with the Flint Special Projects for project conceptualization, participant recruitment, data analysis, project oversight, and dissemination. METHODS/STUDY POPULATION: The study population includes nearly two hundred residents representing seniors, youth and diverse ethnicities recruited to participate in eleven focus group meetings. The population also represents the general public who attended informational meetings in Flint, Michigan to learn about the crisis and allow residents to voice their opinions and concerns during the onset of the crisis. The project is a mixed methods community based participatory research effort that utilized community decision making in all phases of the effort such as pre-conception, implementation, dissemination and advocacy to encourage the community’s recommendations are adopted at policy and institutional responsiveness levels. It includes three community engaged research efforts: (project 1) A qualitative analysis of community sentiment provided during 17 recorded legislative, media and community events, and (projects 2-3) two mixed methods efforts utilizing purposive sampling of stakeholders whose voice may not have been heard. RESULTS/ANTICIPATED RESULTS: The project presents a qualitative analysis of the community’s voice during the onset of the man-made disaster when the community first became aware of the emergency manager’s plans to switch the water source. It also reflects current perspectives of community voice since the projects are scheduled to end late February 2019. Findings from a trust measure administered to nearly two hundred residents will be presented, along with a qualitative analysis of focus group findings among segments of the population (seniors, youth, and diverse ethnicities) who may have been left out of narratives on the water crisis. Finally, the project will compare empowerment and resiliency approaches being utilized in Flint, Michigan to recover from the disaster with other approaches grounded in literature and theory. DISCUSSION/SIGNIFICANCE OF IMPACT: Communities of color often experience social determinants of health which negatively impact their health, well-being and human rights. Some Flint citizens are experiencing negative health consequences (i.e., rashes, brain and behavioral sequelle, fertility, etc.) as a result of the disaster, and are uncertain of health outcomes in the future. This is the first project to rigorously document and analyze levels of trust and mistrust in the city of Flint since the water disaster occurred. The qualitative research will guide future clinical research that will benefit this traumatized community experiencing high levels of mistrust (i.e., government, elected officials, etc.). The community engaged methodology involved residents and study participants in all phases of the project including project oversight, validating and analyzing data, and dissemination. This methodology will contribute to existing literature and theory on community based participatory research, community engaged research, team science and citizen science. The approaches empowered a call to action among residents, for example, seniors who attended two senior focus group sessions shared “they are hopeful and have a purpose,” resulting in the creation of a council (with officers) at their housing complex to advocate for the well-being of seniors during the recovery process. Recruitment methodologies were extremely successful due to resident level trust in community leaders and community partner organizations. Finally, the project’s examination of approaches encouraging empowerment and resiliency will provide lessons learned for other communities challenged with crisis.

scholarly journals A Review of Mixed Methods Community-Based Participatory Research Applications in Mental Health

2020 ◽  
Vol 14 (1) ◽  
Author(s):  
David E. Jones ◽  
Robin Lindquist-Grantz ◽  
Melissa DeJonckheere
Keyword(s):  
Mental Health ◽  
Mixed Methods ◽  
Participatory Research ◽  
Mental Health Professionals ◽  
English Language ◽  
Community Based Participatory Research ◽  
Final Analysis ◽  
Well Being ◽  
Empirical Literature ◽  
Community Based

The aim of the paper was to methodologically review the intersection of mixed methods research (MMR) and community-based participatory research (CBPR) in the field of mental health research. We classify this intersecting approach as MMCBPR. The methodological review of empirical literature was conducted between October 2017 and March 2020 of full-text articles in Scopus, Pubmed, ProQuest Central, Web of Science, and EBSCOhost search engine databases in the English language. Twenty-nine studies meeting the inclusion criteria were included in the final analysis. We found some evidence of MMCBPR but it was limited by factors such as a lack of explicit rationales for the use of MMR and CBPR, limited evidence of long-term commitment to a community, and an ad hoc approach to the application of MMR and CBPR. These findings informed the development of practical recommendations for psychologists, mental health professionals, and researchers in the application of MMCBPR. In particular, our MMCBPR recommendations aim to advance the social justice agenda in counseling psychology, increase the rigor of MMCBPR approaches in mental health studies, and inform how advanced mixed methods applications can be used to address the complexities associated with mental health and well-being.

scholarly journals (Un)Healthy Lifestyles, Environment, Well-being and Health Capability in Rural Neighbourhoods: A Community-based Cross-sectional Study

2020 ◽  
Author(s):  
Anabela Marisa Azul ◽  
Ricardo Almendra ◽  
Marta Quatorze ◽  
Adriana Loureiro ◽  
Flávio Reis ◽  
...  
Keyword(s):  
Mixed Method ◽  
Rural Areas ◽  
Well Being ◽  
Cross Sectional Study ◽  
P Value ◽  
Community Based ◽  
Cross Sectional ◽  
Health Loss ◽  
Mixed Method Design ◽  
Health And Well Being

Abstract Background: Non-communicable diseases (NCDs) are a leading cause of health loss worldwide, in part due to unhealthy lifestyles. Metabolic-based diseases are rising with an unhealthy body-mass index (BMI) in rural areas as the main risk factor in adults. Health loss risks in rural areas may be amplified by wider determinants such as socio-demography and surrounding environments. We assessed weather (un)healthy lifestyles and environment in rural neighbourhoods are reflected into metabolic risks and health capability, and how community circumstances may impact the self-ability for making balanced decisions.Methods: We conducted a community-based cross-sectional study in fifteen Portuguese rural neighbourhoods (with high ageing index and high illiteracy) to describe individuals’ health functioning condition and to characterize the community environment. We followed a qualitatively driven mixed-method design, using a healthy lifestyle assessment toolkit, to gather evidence-based data and lifestyles (incorporated in eVida technology), within a random sample of 270 individuals; and 107 in-depth interviews to determine whether environment influence the capability for improving or pursuing heath and well-being.Results: Men showed to have a 75% higher probability of being overweight than women (p-value=0.0954); and the reporting of health loss risks was higher in women (RR: 1.48; p-value=0.122), individuals with larger waist circumference (RR: 2.21; IC: 1.19; 4.27), overweight and obesity (RR: 1.38; p-value=0.293) and participants aged over 75 years (RR: 1.78; p-value= 0.235; when compared with participants under 40 years old). Metabolic risks were more associated to BMI and physical activity than diet (or sleeping habits); participants strongly evidenced the adherence to a Mediterranean dietary pattern. From the interviews, we identified seven environmental circumstances reflecting health needs, health expectations and health capability: economic development, built environment, social network, health care, demography, active lifestyles, and mobility. And, while the starting point of the interview addressed community needs, participants expressed the value of natural environment in their neighbourhood as the main positive effect to pursuing health and well-being, with particular emphasis to lower exposure to air / noise pollution, daily routines linked to nature or land use, and diversity of nature experiences.Conclusions: Our qualitatively driven mixed-method design, involving the community, uncovers environment contextual-dependent circumstances influencing the ability of individuals to pursue healthy habits. The active participation of local representatives, with its degrees of negotiation and flexibility, contributed to adapt the health-related messages. The co-benefits from this co-designing community program advance the evidence to support academy-community driven interventions for pushing health and well-being at a broader social, health care and (natural) environment agenda in rural neighbourhoods.

Promotoras Voice Their Challenges in Fulfilling Their Role as Community Health Workers

2020 ◽  
pp. 152483992092118
Author(s):  
Pamela Orpinas ◽  
Rebecca A. Matthew ◽  
Luis R. Alvarez-Hernandez ◽  
Alejandra Calva ◽  
J. Maria Bermúdez
Keyword(s):  
Community Health ◽  
Community Health Workers ◽  
Participatory Research ◽  
English Language ◽  
Health Workers ◽  
Cultural Beliefs ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Emotional Impact ◽  
Community Based

Promotoras de salud (Spanish for female community health workers) are integral to efforts to enhance the health and well-being of Latinx individuals, families, and communities. The purpose of this study was to describe the challenges that promotoras face and the proposed solutions from the perspective of the promotoras themselves. Five promotoras who worked for a year as volunteers in a community-based participatory research study, Lazos Hispanos, participated in two group interviews. Eight challenges emerged—balancing their new work with their family commitments, handling their perceived imbalance of power with men, managing the emotional impact of hearing participants’ problems, facing and handling the barriers imposed by having limited English language skills, feeling discouraged by the perception of ethnocentric beliefs and discrimination from some providers, feeling disheartened by the cultural beliefs of some Latinx participants, handling the lack of transportation for themselves and for the participants, and managing the burden of data collection for the research aspect of the program. The explanation of these challenges and the practical solutions they proposed are embedded in their intersecting identities. The solutions are a valuable addition to the practice of health promotion and community-based participatory research, particularly within Latinx communities.

Overcoming Barriers: Practical Strategies to Assess Latinos Living in Low-Income Communities

2019 ◽  
Vol 21 (3) ◽  
pp. 355-362 ◽  
Author(s):  
Alejandra Calva ◽  
Rebecca A. Matthew ◽  
Pamela Orpinas
Keyword(s):  
Data Collection ◽  
Participatory Research ◽  
Low Income ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Community Members ◽  
Community Based ◽  
Leverage Points ◽  
Communities Of Interest ◽  
Health And Well Being

The value of community assessments depends on the researchers’ ability to reach a diverse and representative sample of participants. This process is particularly challenging when assessing the health and well-being of vulnerable populations that are reticent to participate in research because of demographic and sociopolitical factors. One such group is Latinxs (the gender-neutral version of Latinos or Latinas) of mixed immigration status who live in low-income, socially and geographically isolated enclaves in the Southeast. Framed by community-based participatory research and social marketing theories, this study describes practical strategies for health researchers, practitioners, and advocates seeking to engage and build trusting relationship within U.S. Latinx communities. First, identify and leverage points of entry to different segments of the communities of interest by engaging meaningful gatekeepers from different sections of the population and searching for places where potential participants gather. Second, reduce the burden of assessments by using incentives and creating intentional reciprocity. Third, establish critical, long-lasting trust with community members, leaders, and allies by adapting data collection procedures, ensuring confidentiality, engaging bilingual facilitators, and most important, being present with and for the community. Finally, presenting the findings back to the community can increase the ownership of the process.

Lessons from a community-based participatory research study with transgender and gender nonconforming youth and their families

2018 ◽  
Vol 17 (2) ◽  
pp. 186-207 ◽  
Author(s):  
Sabra L Katz-Wise ◽  
Annie Pullen Sansfaçon ◽  
Laura M Bogart ◽  
Milagros C Rosal ◽  
Diane Ehrensaft ◽  
...  
Keyword(s):  
Participatory Research ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Research Process ◽  
Lessons Learned ◽  
Community Partner ◽  
Community Members ◽  
Community Based ◽  
Gender Nonconforming ◽  
And Gender

Community-based participatory research (CBPR) involves community members collaborating with academic investigators in each step of the research process. CBPR may be especially useful for research involving marginalized populations with unique perspectives and needs. In this paper, we discuss successes and challenges of using a CBPR approach for the Trans Teen and Family Narratives Project, a longitudinal mixed-methods study to examine how the family environment affects the health and well-being of transgender and gender nonconforming youth. We describe considerations for using a CBPR approach with this population, including defining the community of transgender and gender nonconforming youth and families, engaging the community in the research process, managing conflicting agendas for community partner meetings, addressing insider/outsider status of the researchers, resolving researcher/community tensions regarding data collection tools, integrating academic and community members into a cohesive research team, developing safety plans to address participant suicidality disclosures, and differentiating the role of academics as researchers vs. advocates. We conclude by sharing lessons learned, which can inform future research to address the needs of transgender and gender nonconforming youth and families.

scholarly journals Little hearts changing lives no processo de cocriação

2021 ◽  
Vol 12 (01) ◽  
pp. 43-51
Author(s):  
Camila Maciel Oliveira ◽  
Rebeca Simoes Brito ◽  
Mercedes Balcells ◽  
Doris Sommer ◽  
Carlos Eduardo Siqueira ◽  
...  
Keyword(s):  
Participatory Research ◽  
Preventive Medicine ◽  
Community Based Participatory Research ◽  
Well Being ◽  
The United States ◽  
Minas Gerais ◽  
Second Phase ◽  
Community Based ◽  
Heart Study ◽  
Community Environments

O programa Little Hearts Changing Lives (LHCL) é o braço extensionista do primeiro estudo genético e familiar relacionado a doenças cardiovasculares no Brasil - Baependi Heart Study. Traz em seu bojo a pesquisa participativa comunitária, garantindo que a comunidade seja o centro no processo de cocriação de subprojetos desenvolvidos por este programa. O termo cocriação do cuidado, por sua vez, está relacionado à qualidade de interação produtiva entre paciente-profissionais de saúde, e é caracterizado por manter um canal aberto de comunicação, cooperação, apoio à tomada de decisão e aumento do bem-estar social. O programa LHCL, iniciado entre 2014 e 2015, une o lúdico às atividades práticas, com ações em Medicina Preventiva, ampliando o espectro para a reflexão sobre as relações entre discentes, docentes e comunidade. Este programa é constituído por conceitos relacionados à Aprendizagem Criativa. A primeira fase do programa aconteceu nas escolas regulares de Baependi e Juiz de Fora, Minas Gerais, com a participação de 14 discentes e respectivos docentes, alcançando 9.341 espectadores. A segunda fase ocorreu em formato de oficina para professores e educadores, em Curitiba, Paraná, e colaboração com a UFPR no formato à distância. Atualmente, em nova fase (terceira fase) nos Estados Unidos, o programa foi adaptado para a comunidade imigrante brasileira. Observou-se que a ludicidade, como estímulo à aprendizagem em assuntos específicos em sala de aula ou ambientes comunitários, se mostrou significativa e relevante. Palavras-chave: Medicina preventiva; Pesquisa Participativa; Comunidade; Relações Comunidade-Instituição Little hearts changing lives in the co-creation process Abstract: The Little Hearts Changing Lives (LHCL) program is the extension arm of the first genetic and family study related to cardiovascular diseases in Brazil - Baependi Heart Study. It brings with it the community-based participatory research, ensuring that the community is the center in the process of co-creating sub projects developed by this program. The term co-creation of care, in turn, is related to the quality of productive interaction between patient-health professionals and is characterized by maintaining an open channel of communication, cooperation, support for decision-making and increased social well-being. The LHCL program, initiated between 2014 and 2015, joins play with practical activities, with actions in Preventive Medicine, expanding the spectrum for reflection on the relationships between students, teachers and the community. This program consists of concepts related to Creative Learning. The first phase of the program took place in the regular schools of Baependi and Juiz de Fora, Minas Gerais State, Brazil, with the participation of 14 students and their professor, reaching 9,341 spectators. The second phase took place in a workshop format for teachers and educators, in Curitiba, Paraná State and collaboration with UFPR in the distance format. Currently, in a new phase (third phase), the program has been adapted for the Brazilian immigrant community in the United States. It was observed that playfulness, as a stimulus to learning on specific subjects in the classroom or community environments, has proven to be significant and relevant. Keywords: Preventive Medicine; Community-Based Participatory Research; Community-Institutional Relations

scholarly journals A chair at the table: a scoping review of the participation of refugees in community-based participatory research in healthcare

2021 ◽  
Vol 17 (1) ◽  
Author(s):  
Tali Filler ◽  
Pardeep Kaur Benipal ◽  
Nazi Torabi ◽  
Ripudaman Singh Minhas
Keyword(s):  
Participatory Research ◽  
Scoping Review ◽  
Scale Up ◽  
Community Based Participatory Research ◽  
Final Analysis ◽  
Well Being ◽  
Research Process ◽  
Healthcare Research ◽  
Community Based ◽  
Healthcare Needs

Abstract Background Refugees often face psychosocial complexity and multi-dimensional healthcare needs. Community-Based Participatory Research (CBPR) methods have been previously employed in designing health programs for refugee communities and in building strong research partnerships in refugee communities. However, the extent to which these communities are involved remains unknown. Objective To review the evidence on the involvement of refugees in CBPR processes to inform healthcare research. Methods A scoping review was performed, using Arksey & O’Malley’s methodological framework. A literature search in Medline, PubMed, PsycINFO, CINAHL, Embase, Global Health, Scopus, and Policy File Index for articles published until August 2020 was conducted. Articles were included if they focused on CBPR, had refugee involvement, and discussed healthcare/health policy. Results 4125 articles were identified in the database searches. After removal of duplicates, 2077 articles underwent title and abstract review by two authors, yielding an inter-reviewer kappa-statistic of 0.85. 14 studies were included in the final analysis. The purpose of CBPR use for 6 (42.9%) of the articles was developing and implementing mental health/social support interventions, 5 (35.7%) focused on sexual and reproductive health interventions, 1 (7.1%) focused on domestic violence interventions, 1 (7.1%) focused on cardiovascular disease prevention and 1 (7.1%) focused on parenting interventions. In terms of refugee involvement in the various stages in the research process, 9 (64.3%) articles reported refugees having a role in the inception of the research, no articles reported including refugees in obtaining funding, all articles included refugees in the design of the research study, 10 (71.4%) articles reported having refugees involved in community engagement/recruitment, 8 (57.1%) articles reported involvement throughout the data collection process, 4 (28.6%) articles reported involvement in data analysis, 6 (42.9%) articles reported having refugees involved in knowledge translation/dissemination and 1 article (7.1%) reported having refugees contribute to scale up initiatives. Conclusions CBPR has been identified as a methodology with the potential to make substantial contributions to improving health and well-being in traditionally disenfranchised populations. As the needs of refugee communities are so diverse, efforts should be made to include refugees as partners in all stages of the research process.

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