scholarly journals Developing dimensions for a new preference-based quality of life instrument for older people receiving aged care services in the community

2020 ◽  
Author(s):  
Jenny Cleland ◽  
Claire Hutchinson ◽  
Candice McBain ◽  
Ruth Walker ◽  
Rachel Milte ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Older People ◽  
Well Being ◽  
Aged Care ◽  
Face Validity ◽  
Framework Analysis ◽  
Care Services ◽  
Life Instrument ◽  
Community Aged Care

Abstract Purpose To identify the salient quality of life characteristics relevant to older people in receipt of community aged care services in order to develop dimensions for a draft descriptive system for a new preference-based quality of life instrument. Methods Forty-one in-depth semi-structured interviews were undertaken with older people (65 years and over) receiving community aged care services across three Australian states to explore quality of life characteristics of importance to them. The data were analysed using framework analysis to extract broader themes which were organised into a conceptual framework. The data were then summarised into a thematic chart to develop a framework matrix which was used to interpret and synthesise the data. Care was taken throughout to retain the language that older people had adopted during the interviews to ensure that appropriate language was used when identifying and developing the quality of life dimensions. Results The analysis resulted in the identification of five salient quality of life dimensions: independence, social connections, emotional well-being, mobility, and activities. Conclusion This research finds that quality of life for older people accessing aged care services goes beyond health-related quality of life and incorporates broader aspects that transcend health. The findings represent the first stage in a multiphase project working in partnership with older people to develop a new preference-based instrument of quality of life for informing quality assessment and economic evaluation in community aged care. In future work, draft items will be developed from these dimensions and tested in face validity interviews before progressing to further psychometric testing.

scholarly journals Developing a new quality of life instrument with older people for economic evaluation in aged care: study protocol

BMJ Open ◽  
2019 ◽  
Vol 9 (5) ◽  
pp. e028647 ◽  
Author(s):  
Julie Ratcliffe ◽  
Ian Cameron ◽  
Emily Lancsar ◽  
Ruth Walker ◽  
Rachel Milte ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Economic Evaluation ◽  
Older People ◽  
Quality Assessment ◽  
Aged Care ◽  
Economic Evaluations ◽  
Care Services ◽  
Life Instrument ◽  
Descriptive System

IntroductionThe ageing of the population represents a significant challenge for aged care in Australia and in many other countries internationally. In an environment of increasing resource constraints, new methods, techniques and evaluative frameworks are needed to support resource allocation decisions that maximise the quality of life and well-being of older people. Economic evaluation offers a rigorous, systematical and transparent framework for measuring quality and efficiency, but there is currently no composite mechanism for incorporating older people’s values into the measurement and valuation of quality of life for quality assessment and economic evaluation. In addition, to date relatively few economic evaluations have been conducted in aged care despite the large potential benefits associated with their application in this sector. This study will generate a new preference based older person-specific quality of life instrument designed for application in economic evaluation and co-created from its inception with older people.Methods and analysisA candidate descriptive system for the new instrument will be developed by synthesising the findings from a series of in-depth qualitative interviews with 40 older people currently in receipt of aged care services about the salient factors which make up their quality of life. The candidate descriptive system will be tested for construct validity, practicality and reliability with a new independent sample of older people (n=100). Quality of life state valuation tasks using best worst scaling (a form of discrete choice experiment) will then be undertaken with a representative sample of older people currently receiving aged care services across five Australian states (n=500). A multinomial (conditional) logistical framework will be used to analyse responses and generate a scoring algorithm for the new preference-based instrument.Ethics and disseminationThe new quality of life instrument will have wide potential applicability in assessing the cost effectiveness of new service innovations and for quality assessment across the spectrum of ageing and aged care. Results will be disseminated in ageing, quality of life research and health economics journals and through professional conferences and policy forums. This study has been reviewed by the Human Research Ethics Committee of the University of South Australia and has ethics approval (Application ID: 201644).

scholarly journals Understanding the Link between Family Caregiver Quality of Life and the Care Provided to Older People With Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 153-154
Author(s):  
Afeez Hazzan
Keyword(s):  
Quality Of Life ◽  
Quality Of Care ◽  
Older People ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Well Being ◽  
The United States ◽  
People With Dementia ◽  
The Impact

Abstract Dementia is one of the most rapidly growing diseases in the United States. In 2018, the direct costs to American society of caring for older people with dementia was approximately $277 billion. Primary informal caregivers are mainly responsible for the care of older people with dementia including Alzheimer’s disease. Caregivers perform a myriad of duties ranging from shopping for their loved ones’ groceries, helping with medications, and managing finances. The caregiving role becomes more demanding as the disease progresses over time, and studies have shown that the quality-of-life (QoL) experienced by caregivers of older adults who have dementia is lower than the QoL of caregivers for older people who do not have dementia. To the best of our knowledge, there has been no research conducted to investigate whether lower caregiver QoL affects the level or quality of care that caregivers provide to persons with dementia. In the current study, we interviewed family caregivers living in Rochester, New York to inquire about their quality of life and the care provided to older people living with dementia. Further, caregivers completed the 36-item Short Form Health Survey (SF-36) as well as a draft questionnaire for measuring the quality of care provided to older people living with dementia. Both quantitative and qualitative findings from this study reveals important relationships between family caregiver QoL and the care provided, including the impact of social support and financial well-being. The study findings could have significant impact, particularly for the provision of much needed support for family caregivers.

scholarly journals Community ageing research 75+ study (CARE75+): an experimental ageing and frailty research cohort

BMJ Open ◽  
2019 ◽  
Vol 9 (3) ◽  
pp. e026744 ◽  
Author(s):  
Anne Heaven ◽  
Lesley Brown ◽  
John Young ◽  
Elizabeth Teale ◽  
Rebecca Hawkins ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cohort Study ◽  
Older People ◽  
Science Studies ◽  
Nursing Home Residents ◽  
Well Being ◽  
Community Dwelling ◽  
Ageing Research ◽  
Study Results

IntroductionThe Community Ageing Research 75+ Study (CARE75+) is a longitudinal cohort study collecting an extensive range of health, social and economic data, with a focus on frailty, independence and quality of life in older age. CARE75+ is the first international experimental frailty research cohort designed using Trial within Cohorts (TwiCs) methodology, to align applied epidemiological research with clinical trial evaluation of interventions to improve the health and well-being of older people living with frailty.Methods and analysisProspective cohort study using a TwiCs design. One thousand community-dwelling older people (≥75 years) will be recruited from UK general practices. Nursing home residents, those with an estimated life expectancy of 3 months or less and people receiving palliative care will be excluded. Data collection assessments will be face to face in the person’s home at baseline, 6 months, 12 months, 24 months and 48 months, including assessments of frailty, cognition, mood, health-related quality of life, comorbidity, medications, resilience, loneliness, pain and self-efficacy. A modified protocol for follow-up by telephone or web based will be offered at 6 months. Consent will be sought for data linkage and invitations to additional studies, including intervention studies using the TwiCs design. A blood sample biobank will be established for future basic science studies.Ethics and disseminationCARE75+ was approved by the NRES Committee Yorkshire and the Humber—Bradford Leeds 10 October 2014 (14/YH/1120). Formal written consent is sought if an individual is willing to participate and has capacity to provide informed consent. Consultee assent is sought if an individual lacks capacity.Study results will be disseminated in peer-reviewed scientific journals and scientific conferences. Key study results will be summarised and disseminated to all study participants via newsletters, local older people’s publications and local engagement events. Results will be reported on a bespoke CARE75+ website.Trial registration numberISRCTN16588124;Results stage

scholarly journals Well Being of Older Gay and Bisexual Men and Women in England: Results of a Cross-Sectional Population Based Study

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
I Grabovac ◽  
L Smith ◽  
D T McDermott ◽  
S Stefanac ◽  
L Yang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Depressive Symptoms ◽  
Older People ◽  
Sexual Satisfaction ◽  
Well Being ◽  
Satisfaction With Life Scale ◽  
Cross Sectional ◽  
And Bisexual

Abstract Background Lesbian, gay, and bisexual (LGB) older people are an under-represented population in research, with limited research noting more depression, loneliness, rejection, overall poorer health and well-being outcomes. Our study compared well-being, defined as quality of life (QOL), life satisfaction, sexual satisfaction, and depression, among LGB people with their heterosexual peers’. Methods Cross-sectional data from the English Longitudinal Study of Aging, collected 2012-2013. A total of 5691 participants were included in the analysis, with 326 (5.7%) self-identifying as LGB. We used CASP-19 questionnaire for well-being; the Satisfaction with Life Scale for life satisfaction; and the Center for Epidemiologic Studies Depression Scale for depressive symptoms. The question “During the past three months, how satisfied have you been with your overall sex life?” was used for sexual satisfaction. T-test and chi-square tests were used for differences in sociodemographic characteristics between LGB and heterosexual participants. Regression models were used to test associations between sexual orientation and well-being outcomes. Results LGB participants reported significantly lower mean quality of life and life satisfaction, and had significantly lower odds of reporting satisfaction with their overall sex life and higher odds of reporting depressive symptoms in unadjusted models. After adjustment for sociodemographic and health-related covariates, there remained significant differences between groups in mean QOL scores (B= -0.96, 95% [CI] -1.87 to -0.06) and odds of sexual satisfaction (OR = 0.56, 95% CI 0.38-0.82). Conclusions LGB older people report lower quality of life and lower sexual satisfaction than their heterosexual counterparts, possibly associated with experiencing lifelong social discrimination. Main message: Older lesbian, gay and bisexual people in England report significantly lower QOL and sexual satisfaction in comparison to heterosexual counterparts.

Growing Older with an Intellectual Disability

2000 ◽  
Vol 6 (2) ◽  
pp. 57-66
Author(s):  
Lindsay Gething
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Service Provision ◽  
Service Providers ◽  
Family Care ◽  
Well Being ◽  
The United States ◽  
Aged Care ◽  
Policy And Practice

Both the life expectancy and numbers of older people with intellectual disabilities are growing. Until recently, ageing with a disability had not been a major consideration for Australian policy makers and service providers. The situation was similar in countries such as the United States of America and United Kingdom where, unlike aged care, disability policy and practice had not evolved to meet needs. Ageing with long standing disability has now been specified by the Australian government as a priority area. This paper reports results of consultations held with consumers, their organisations, service providers and government in order to explore quality of life and service provision issues for people with long standing disabilities. It reports these issues and uses themes emerging from consultations to structure previously published information specifically related to ageing with an intellectual disability. Seven broad themes are discussed which relate to: life experiences; attitudes, skills and knowledge of consumers; attitudes skills and knowledge of community and service providers, the nature of service provision; the ageing of family care givers; financial security; and ageing in place. It is concluded that disadvantages and barriers experienced throughout life influence well being and quality of life in old age.

scholarly journals THE IMPACT OF A PARO INTERVENTION ON DEPRESSION AND WELL-BEING IN OLDER ADULTS WITH DEPRESSION

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S341-S341
Author(s):  
Shu-Chuan Chen ◽  
Wendy Moyle ◽  
Cindy Jones
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Older People ◽  
Long Term Care ◽  
Well Being ◽  
World Health ◽  
Term Care ◽  
Care Facilities

Abstract Aim: This study aimed to explore the effect of a social robot Paro intervention on depression and well-being in older adults with depression living in long-term care facilities in Taiwan. Methods: This study was adopted a single group and quasi-experimental with repeated measures design. Each participant participated in two stages: observation and Paro intervention stages. Stage 1 was an 8-week observation stage in long-term care facilities where the purpose was to observe the normal mood, behaviour and activities of older adults with depression. In stage 2, each participant was given a Paro by the researcher to keep for 24 hours for 7 days in for 8 weeks. Outcome measurements were obtained 4 times: a week before the intervention (T1), immediately the end of 8-week observation (T2), mid-point of Paro intervention (T3), and immediately the end of 8-week Paro intervention (T4). Instruments included the Geriatric Depression Scale, the UCLA Loneliness Scale version 3, and the World Health Organization Quality of Life Questionnaire-OLD. Results: There were 20 participants completed the study. The mean age of participants was 81.1years (SD = 8.2). After 8-week Paro intervention, statistically significant differences in changes were found on depression, loneliness, and quality of life from pre-intervention to post-intervention. Conclusion: This study was found that Paro intervention has beneficial effects on depression and mental well-being for older people with depression in long-term care facilities. Paro Intervention might be a suitable psychosocial intervention for older people with depression and should be considered as a useful tool in clinical practice.

Impact of multiple impairments on quality of life, hospitalisations and use of aged‐care services

2006 ◽  
Vol 184 (9) ◽  
pp. 478-479 ◽  
Author(s):  
Ee‐Munn Chia ◽  
Jie Jin Wang ◽  
Elena Rochtchina ◽  
Paul Mitchell
Keyword(s):  
Quality Of Life ◽  
Aged Care ◽  
Care Services

scholarly journals Strengths in the elderly as a factor that increases wellbeing

2015 ◽  
Vol 5 (2) ◽  
pp. 187-195
Author(s):  
Encarnación Ramírez ◽  
Ana R. Ortega ◽  
Rafael Martos
Keyword(s):  
Quality Of Life ◽  
Older People ◽  
Emotional Functioning ◽  
Well Being ◽  
The Elderly ◽  
Moral Value ◽  
Traditional Therapy ◽  
Psychological Strengths

In the last decades there has been increased the study of the psychological strengths as factor that concerns the well-being. They are considered as a subset of features of personality to which a moral value is added, being defined as natural qualities that the persons are intrinsically motivated to use as they increase the quality of life. The investigations demonstrate that they act as factors of protection and prevention of the psychopathology and of the problems of behavior in the different stages of life. There are strengths that are more relevant in older people and their training would try to influence the behavior and the emotional functioning to increase the satisfaction with the life. In the present work we analyze the strengths that predominate in older and we propose a program of intervention to promote the improve their health and quality of life. This is a new proposal because, until now, interventions in this area have been aimed at palliate various problems or as a complement to traditional therapy but not to prevent the onset of common disorders in the elderly.

scholarly journals Effects of Dementia Care Mapping on well‐being and quality of life of older people with intellectual disability: A quasi‐experimental study

2019 ◽  
Vol 32 (4) ◽  
pp. 849-860 ◽  
Author(s):  
Feija D. Schaap ◽  
Geke J. Dijkstra ◽  
Roy E. Stewart ◽  
Evelyn J. Finnema ◽  
Sijmen A. Reijneveld
Keyword(s):  
Quality Of Life ◽  
Experimental Study ◽  
Intellectual Disability ◽  
Older People ◽  
Well Being ◽  
Dementia Care ◽  
Quasi Experimental ◽  
Care Mapping ◽  
Dementia Care Mapping
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