Disparities in healthcare utilization and access by length of cancer survivorship among population-based female cancer survivors

2021 ◽  
Author(s):  
Kate E. Dibble ◽  
Maneet Kaur ◽  
Avonne E. Connor
Keyword(s):  
Cancer Survivors ◽  
Healthcare Utilization ◽  
Cancer Survivorship ◽  
Population Based ◽  
Female Cancer Survivors

scholarly journals Development of a Core Set of Patient-Reported Outcomes for Population-Based Cancer Survivorship Research: Protocol for an Australian Consensus Study

10.2196/14544 ◽  
2020 ◽  
Vol 9 (1) ◽  
pp. e14544 ◽  
Author(s):  
Imogen Ramsey ◽  
Nadia Corsini ◽  
Amanda D Hutchinson ◽  
Julie Marker ◽  
Marion Eckert
Keyword(s):  
Cancer Survivors ◽  
Cancer Survivorship ◽  
Phase Ii ◽  
Core Outcome Set ◽  
Population Based ◽  
Core Outcome ◽  
The Core ◽  
Outcome Set ◽  
Core Set

Background Core outcome sets seek to improve the consistency and quality of research by providing agreed-upon recommendations regarding what outcomes should be measured as a minimum for a population and setting. The problems arising from a lack of outcome standardization in population-based cancer survivorship research indicate the need for agreement on a core set of patient-reported outcomes (PROs) to enhance data quality, consistency, and comparability. Objective This study aims to identify a core set of PROs, representing the most important issues impacting on cancer survivors' long-term health, functioning and quality of life, to inform population-based research on cancer survivorship. Methods In Phase I, a list of all potentially important outcomes will be generated through focus group discussions with cancer survivors and a review of measures for assessing quality of life in cancer survivorship. The consolidated list will be advanced to Phase II, where a stakeholder consensus process will be conducted with national experts in cancer survivorship to refine and prioritize the outcomes into a core outcome set. The process will consist of a two-round Delphi survey and a consensus meeting. Cancer survivors, oncology health care professionals, and potential end users of the core outcome set with expertise in cancer survivorship research or policy will be invited to participate. In Phase III, recommended measures for assessment of the core outcome set will be selected with advice from experts on the assessment, analysis, and interpretation of PROs. Results As of April 2019, data collection for Phase I is complete and data analysis is underway. These data will inform the list of outcomes to be advanced into Phase II. Recruitment for Phase II will commence in June 2019, and it is anticipated that it will take 6 months to complete the three-step consensus process and identify a provisional core outcome set. The study results are expected to be published in early 2020. Conclusions Expert consensus-driven recommendations on outcome measurement will facilitate the inclusion of survivorship outcomes considered important by cancer survivors and health professionals in future research. Adoption of the core outcome set will enable comparison and synthesis of evidence across studies and enhance the quality of PRO data collected in cancer survivorship research, particularly when applied to address macro-level questions. International Registered Report Identifier (IRRID) DERR1-10.2196/14544

scholarly journals Evaluation of Health Perceptions And Healthcare Utilization Among Population-Based Female Cancer Survivors And Cancer-Free Women

2021 ◽  
Author(s):  
Kate E Dibble ◽  
Maneet Kaur ◽  
Junrui Lyu ◽  
Avonne E Connor
Keyword(s):  
Health Status ◽  
Cancer Survivors ◽  
Healthcare Utilization ◽  
Perceived Health ◽  
Mental Health Provider ◽  
Perceived Health Status ◽  
History Of ◽  
Race Ethnicity ◽  
Female Cancer Survivors ◽  
History Of Cancer

Abstract Purpose. Cancer survivors are more likely to report having a poor health status when compared to the general population; however, few studies have focused on the impact of cancer on perceived health status, in combination with other healthcare utilization and access outcomes, among women from disadvantaged health populations.Methods. 25,741 women with and without a history of cancer from the National Health and Nutrition Examination Survey (NHANES) from 1999 to 2016 contributed data. Adjusted odds ratios (aORs) and 95% confidence intervals (CIs) were estimated using multivariable logistic regression models for the associations between cancer status and healthcare utilization and access outcomes. Models were stratified by race/ethnicity, federal poverty level (FPL), education, and comorbidities. Results. A total of 2,415 (9.4%) women had a history of cancer with breast cancer as the most common site (n=704, 29.2%). While most survivors were non-Hispanic white (68.4%), 15.2% were Hispanic, 12.1% were non-Hispanic Black, and 4.3% were additional racial/ethnic groups. Survivors were 1.28 times more likely to report fair/poor perceived health status (95% CI, 1.09-1.50), 1.61 times more likely to report hospitalizations in the last year (95% CI, 1.40-1.86), and 1.37 times more likely to see a mental health provider within the last year (95% CI, 1.12-1.66) compared to controls. Race/ethnicity and FPL were the only significant effect modifiers.Conclusion. Our study identifies disparities in health status and healthcare utilization among female cancer survivors and recognizes the importance of evaluating these associations among disadvantaged health populations. These findings could inform future cancer survivorship care.

scholarly journals Successful Return to Work for Cancer Survivors

AAOHN Journal ◽  
2007 ◽  
Vol 55 (7) ◽  
pp. 290-295 ◽  
Author(s):  
Nancy M. Nachreiner ◽  
Rada K. Dagher ◽  
Patricia M. McGovern ◽  
Beth A. Baker ◽  
Bruce H. Alexander ◽  
...  
Keyword(s):  
Return To Work ◽  
Cancer Survivors ◽  
Cancer Diagnosis ◽  
Critical Role ◽  
Recovery Process ◽  
Population Based ◽  
Related Factors ◽  
Returning To Work ◽  
Female Cancer Survivors

This study investigated factors associated with successful return to work for cancer survivors in accordance with the Americans with Disabilities Act. A focus group was held with seven female cancer survivors. Participants discussed return-to-work issues following a cancer diagnosis. Factors such as coworker support and job flexibility improved their experiences, whereas coworker and supervisor ignorance about cancer and lack of support made returning to work more stressful. Participants discussed personal, environmental, and cancer-related factors that influenced their experiences with returning to work following a cancer diagnosis. Knowledge of factors that support employees helps occupational health nurses ease their transition, and may improve quality of life for employees. Physicians and health care provider teams may play a critical role in the employees' positive evaluation of their recovery process. This pilot study serves as a basis for a larger, population-based study.

The female self-advocacy in cancer survivorship scale: Validating a new measure to support patient voice and engagement.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 96-96 ◽  
Author(s):  
Teresa Hagan ◽  
Susan M. Cohen ◽  
Margaret Quinn Rosenzweig ◽  
Kristin Kelley Zorn ◽  
Clement Stone ◽  
...  
Keyword(s):  
Factor Analysis ◽  
Construct Validity ◽  
Cancer Survivors ◽  
Cancer Survivorship ◽  
Measurement Tool ◽  
Patient Registries ◽  
Cross Sectional Survey ◽  
Self Advocacy ◽  
Female Self ◽  
Female Cancer Survivors

96 Background: The Female Self-Advocacy in Cancer Survivorship (FSACS) Scale is a new measurement tool designed to address the increasing need for cancer survivors to lead their care in face of barriers. Based on previous input from female cancer survivors and other stakeholders, the purpose of this study is to evaluate the construct validity of the FSACS Scale. Construct validity is supported by evidence from: (I) Internal structure consistent with the underlying model of self-advocacy; (II) Sensitivity to differences between known groups; (III) Relationships between self-advocacy and key predictors (openness and conscientiousness; information engagement; social support) and outcomes (symptom distress and healthcare utilization); (IV) Relationships between self-advocacy and related concepts (patient activation; self-advocacy within the HIV/AIDS population); and (V) Relationships between self-advocacy and criterion measures. Methods: A mixed-mode cross-sectional survey design was used. Women with a history of an adult diagnosis of invasive cancer were recruited from two patient registries and seven advocacy organizations. Analyses included an exploratory factor analysis, t-tests, and bivariate correlations. Results: 315 adult female cancer survivors completed the survey. Evidence from all five construct validity hypotheses supports the construct validity of the FSACS Scale. The factor analysis confirmed the three underlying dimensions of self-advocacy resulting in a 20-item measure explaining 45.87% of the variance in responses with subscales’ Cronbach’s alphas between 0.791 and 0.850. Conclusions: Results support that the FSACS Scale is a theoretically-grounded measure of self-advocacy that can be used by clinicians and researchers to identify women at-risk for poor outcomes associated with low self-advocacy.

Effect of the European Organization for Research and Treatment of Cancer (EORTC) on social life for cancer survivors in Europe.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 218-218
Author(s):  
Lifang Liu ◽  
Lotte Mosser ◽  
Jaap C. Reijneveld ◽  
Francoise Meunier
Keyword(s):  
Cancer Survivors ◽  
Cancer Patients ◽  
Cancer Survivorship ◽  
Social Life ◽  
Cancer Registries ◽  
Population Based ◽  
Research Infrastructure ◽  
Ageing Population ◽  
Joint Research ◽  
European Organization

218 Background: Cure is not a dream but a reality for a large group of cancer patients nowadays. In Europe around 4 million patients successfully lived beyond the 5th year after cancer diagnosis. With improved survival rate and an ageing population, there will be more survivors in the near future. They wish to enter or maintain in the job market, and to finance desired house and insurance. However, the lack of sufficient data and knowledge on the ability to perform gets in the way on their path to normal social life. Methods: From 2013 the EORTC set the scene addressing societal issues faced by cancer patients involving key stakeholders including cancer patients themselves, care givers, bankers, insurers, employers and policy makers. These efforts have matured into an innovative research infrastructure in Europe integrating existing patients’ cohorts, including data from clinical trials, (population-based) cancer registries, surveys and social media. The research scope covers from quantifying the magnitude of the problem, assessing the economic burden, to formulating evidence-based EU recommendations for rehabilitation of cancer survivors. Particularly, variation and inequality across member states will be extensively investigated. Results: EORTC has a long tradition of collection data and follow-up patients since 50 years. Currently he is forming a consortium with the European Commission Joint Research Center (EC-JRC), European Network of Cancer Registry (ENCR), and other key experts in EU on the project. Several nation-wide research models are being built to address country-specific questions that cancer survivors face. Conclusions: A sustainable research infrastructure with dedicated partners and network address cancer survivorship is being built in Europe. This joint effort saves repetition in collecting data that already exist, synergizes expertise and methodology in addressing cancer survivorship questions.

scholarly journals Adverse birth outcomes in adolescent and young adult female cancer survivors: a nationwide population-based study

2020 ◽  
Vol 122 (6) ◽  
pp. 918-924
Author(s):  
Wei-Heng Kao ◽  
Chang-Fu Kuo ◽  
Meng-Jiun Chiou ◽  
Yu-Cheng Liu ◽  
Chun-Chieh Wang ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Birth Outcomes ◽  
Adult Female ◽  
Population Based ◽  
Adolescent And Young Adult ◽  
Adverse Birth Outcomes ◽  
Population Based Study ◽  
Female Cancer Survivors

scholarly journals Relation between platelet coagulant and vascular function, sex-specific analysis in adult survivors of childhood cancer compared to a population-based sample

2019 ◽  
Vol 9 (1) ◽  
Author(s):  
Marina Panova-Noeva ◽  
Bianca Wagner ◽  
Markus Nagler ◽  
Natalie Arnold ◽  
Jürgen H. Prochaska ◽  
...  
Keyword(s):  
Arterial Hypertension ◽  
Cancer Survivors ◽  
Childhood Cancer ◽  
Vascular Function ◽  
Adult Survivors ◽  
Population Based ◽  
Peak Height ◽  
Stiffness Index ◽  
Increased Risk ◽  
Female Cancer Survivors

AbstractFemale sex is a risk factor for long-term adverse outcome in cancer survivors, however very little is known for the underlying pathophysiological mechanisms rendering the increased risk. This study investigated sex-specifically the relation between thrombin generation (TG) with and without presence of platelets and vascular function in 200 adult survivors of a childhood cancer compared to 335 population-based control individuals. TG lag time, peak height and endogenous thrombin potential (ETP) measured in presence and absence of platelets were correlated to reflection index (RI) and stiffness index (SI). A sex-specific correlation analysis showed a negative relation in female survivors for platelet-dependent peak height and/or ETP and RI only. An age adjusted linear regression model confirmed the negative association between RI and platelet-dependent ETP (beta estimate: −6.85, 95% confidence interval: −12.19,−1.51) in females. Adjustment for cardiovascular risk factors resulted in loss of the association, whereby arterial hypertension and obesity showed the largest effects on the observed association. No other relevant associations were found in male and female cancer survivors and all population-based controls. This study demonstrates a link between platelet coagulant and vascular function of resistance vessels, found in female cancer survivors, potentially mediated by the presence of arterial hypertension and obesity.

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