Relationship of caregiver burden with coping strategies, social support, psychological morbidity, and quality of life in the caregivers of schizophrenia

2013 ◽  
Vol 6 (5) ◽  
pp. 380-388 ◽  
Author(s):  
Natasha Kate ◽  
Sandeep Grover ◽  
Parmanand Kulhara ◽  
Ritu Nehra
Author(s):  
Naresh Nebhinani ◽  
Surendra Kumar Mattoo ◽  
Ajay Wanchu

Abstract Background and Objectives Patients with rheumatoid arthritis (RA) have greater psychological morbidity, despite that research in this area is scarce from developing countries. This study was aimed to assess the association of quality of life, social support, coping strategies, and psychological morbidity in patients with RA. Materials and Methods In this cross-sectional study, 40 patients with RA, who were not receiving steroids or disease modifying antirheumatic drugs, were recruited through purposive sampling. Social support questionnaire, coping strategy check list, and World Health Organization quality of life-BREF (WHOQOL-BREF) were administered to assess social support, coping, and quality of life, respectively. Results More than half of the patients had psychiatric disorders (60%), with depression being the commonest disorder (52.5%). Internalization coping and disease severity indicators like tender joints counts, swollen joints counts, pain, and disease activity were found as significant predictors for psychiatric disorders, while externalization coping, quality of life (all domains), and physical functions were found to protect against psychiatric morbidity. Conclusions Coping, quality of life, disease severity, and physical functions predicted the psychiatric disorders in RA. Multipronged interventions to enhance quality of life with promoting adaptive coping and timely treatment may further improve their mental health and overall disease course.


Author(s):  
Christina N. Marsack-Topolewski

This study sought to explore the mediating effect of informal social support on the relationship between caregiver burden and quality of life among compound and noncompound caregivers. Parents ( N = 320) completed a web-based survey aimed to examine effects of caring for an adult child with autism spectrum disorder. Results of the mediation analysis suggested that informal social support partially mediated the relationship between caregiver burden and quality of life for both groups. Informal social support appears to be more impactful for noncompound caregivers compared with compound caregivers based on a greater reduction in explained variance. These results highlight the importance of informal social support as caregivers juggle ongoing challenges to provide care to one or more care recipients.


2018 ◽  
Vol 6 (2) ◽  
Author(s):  
Ahmad Yamin ◽  
Citra Windani Mambang Sari

DM disease will be suffered for life, so the patient is expected to establish self-management behavior in managing the disease. Self-management behavior in patient tends to decline with increasing complications perceived by patients. The presence of social support one of important factors to improve adherence of self-management Diabetes patients. The purpose of this study was to assess the relationship of social support towards self-management and the quality of life in DM patients in Bandung. This research used correlational approach with purposive technique sampling. Numbers of respondent were taken from the region of 10 Puskesmas with highest DM in Bandung on 92 patients who came to Puskesmas. The questionnaires used were Hensarling Diabetes Family Support Scale (HDFSS), Summary of Diabetes Self-management Activities Measure (SDSCA) and SF-36. The analysis used analysis using frequency distribution, and Spearman-rho. Most respondents (51.1%) had social support below the group median. Most respondents (50%) had a quality of life below the group median. Most respondents (52.2%) had DM self-management behavior below the group median. Bivariate results showed no relationship between social support support and self-management and quality of life of respondents (p value = 0.801). There is no significant relationship between social support and self-management and quality of life. Therefore, the studies are expected to be recommendations of this study was integrate nursing care to improve self-management and quality of life of DM patients.


2019 ◽  
Author(s):  
Sophie Mirabell Lehnerer ◽  
Benjamin Hotter ◽  
Inken Padberg ◽  
Petra Knispel ◽  
Dike Remstedt ◽  
...  

Abstract Background: Stroke patients are often affected by long-term disabilities with needs concerning social issues. There is relatively little consideration of social recovery of patients and the support required to return to work, receive social benefits, participate in daily life activities, maintain contact with family and friends and to organize financial affairs. In our study we aimed to investigate if existing tools record social needs adequately. We analyzed the current provision of social support provided in long-term care after stroke and whether unmet social needs were associated with quality of life, caregiver burden, overall function and degree of disability. Methods: Our analysis is part of the Managing Aftercare of Stroke study (MAS-I), a cross-sectional observational study of patient needs 2-3 years after initial stroke. Assessment tools included the Nikolaus-score (social situation), the EuroQoL (quality of life), the German Burden Scale for Family Caregivers (caregiver burden), the modified Rankin Scale (disability / dependence), Stroke Impact Scale (function and degree of disability) and the Stroke Survivor Needs Questionnaire (unmet needs). Results: Overall 57 patients were included in MAS-I, with ten patients classified in urgent need of socio-economic support according to the Nikolaus-score. Patients with lower than normal Nikolaus-score had a higher degree of disability. Thirty percent of all patients had never received professional social support. Social worker contact happened mostly during the stay in acute hospital or rehabilitation institution. Only four patients (11%) reported long-term support after discharge. Apart from social worker contact during acute care, 43% of patients had unmet needs in the long-term aftercare. Forty percent of all patients included in MAS-I were recommended for social work intervention after an in-depth analysis of their situation. Finally, we saw that unmet social needs were associated with lower quality of life and higher caregiver burden. Conclusions: Our data suggest significant unmet needs in social care in long-term stroke patients. Screening tools for unmet social needs such as the Nikolaus-score do not holistically report patients’ needs.


2021 ◽  
Vol 10 (24) ◽  
pp. 5953
Author(s):  
Maria Grazia Maggio ◽  
Gianluca La Rosa ◽  
Patrizia Calatozzo ◽  
Adriana Andaloro ◽  
Marilena Foti Cuzzola ◽  
...  

COVID-19 has caused a public and international health emergency, leading to isolation and social distancing. These restrictions have had a significant impact on the caregivers of people with dementia, increasing the burden of patient management. The purpose of this study was to investigate the stress perceived by caregivers of patients with Alzheimer’s disease (AD) during the pandemic. We used a cross-sectional survey design to evaluate the caregivers’ psychological responses and coping strategies. Eighty-four caregivers of patients with a diagnosis of AD were involved in this study by completing an online questionnaire. They presented a high perception of stress (the Perceived Stress Scale mean ± DS: 33.5 ± 4.5), and their high burden in caring was mainly related to physical difficulties (Caregiver Burden Inventory–Physical Burden mean ± DS: 15.0 ± 2.1) and perception of loss of time (Caregiver Burden Inventory–Time-dependence Burden mean ± DS: 16.5 ± 1,4). Moreover, caregivers perceived their quality of life as very low (Short Form-12 Health Survey Physical mean ± DS: 13.5 ± 2.7; Short Form-12 Health Survey Mental Health mean ± DS: 16.4 ± 4.2). Finally, we found that participants mostly used dysfunctional coping strategies, such as avoidance strategies (Coping Orientation to Problem Experiences–Avoidance Strategies mean ± DS: 39.5 ± 7.1), but these strategies did not affect the stress level of caregivers. Given that caregivers present a high burden and stress, innovative tools could be a valuable solution to investigate and support their emotional and behavioral status during difficult periods, such as the COVID-19 pandemic.


Author(s):  
Doris Y. P. Leung ◽  
Helen Y. L. Chan ◽  
Patrick K. C. Chiu ◽  
Raymond S. K. Lo ◽  
Larry L. Y. Lee

Few studies have explored the inter-relationships of sources of social support and caregiving self-efficacy with caregiver burden and patient’s quality of life among patients with palliative care needs and their caregivers. This study tested the associations of two sources of social support (family and friends) and the mediating role of caregiving self-efficacy on caregiver burden and patient’s quality of life. A convenience sample of 225 patient–caregiver dyads recruited between September 2016 and May 2017 from three hospitals in Hong Kong was included in the current analysis. Results showed that the final model provided a satisfactory fit (SRMR = 0.070, R-RMSEA = 0.055 and R-CFI = 0.926) with the data, as good as the hypothesized model did (p = 0.326). Significant associations were detected. Family support had a significant negative indirect effect on caregiver burden and a significant positive indirect effect on patient’s quality of life through caregiving self-efficacy, whereas friend support had a significant positive direct effect on caregiver burden but a minimal effect, if any, on patient’s quality of life. These findings emphasized (1) the importance of caregiving self-efficacy in improving caregiver burden and patient’s quality of life and that (2) sources of social support may be an important dimension moderating the associations of caregiving self-efficacy with caregiver burden and patient’s quality of life.


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