The quality of life benefits of pimecrolimus cream 1% in the long-term management of mild to severe pediatric atopic dermatitis

2004 ◽  
Vol 50 (3) ◽  
pp. P62
Author(s):  
Susan D Mathias ◽  
Kristijan H. Kahler ◽  
Farid Kianifard ◽  
Ken H. Abrams
Keyword(s):  
Quality Of Life ◽  
Atopic Dermatitis ◽  
Term Management

scholarly journals Adrenal Insufficiency - Aetiology, Diagnosis and Treatment

2015 ◽  
Vol 3 (1) ◽  
pp. 36-47
Author(s):  
Nazma Akter ◽  
Nazmul Kabir Qureshi
Keyword(s):  
Quality Of Life ◽  
Adrenal Insufficiency ◽  
Presenting Symptoms ◽  
Life Saving ◽  
Life Threatening ◽  
Diagnostic Work ◽  
Work Up ◽  
Term Management

Adrenal insufficiency is caused by either primary adrenal failure or by hypothalamic-pituitary impairment of the corticotropic axis. Adrenal insufficiency, first codified in 1855 by Thomas Addison, remains relevant in 2014 because of its lethal nature. Though, it is a rare disease but is life threatening when overlooked. Main presenting symptoms such as fatigue, anorexia and weight loss are nonspecific, thus diagnosis is often delayed. The diagnostic work-up is well established but some pitfalls remain. The diagnosis is adequately established by the 250 ?g ACTH (adrenocorticotropic hormone) stimulation test in most cases. Glucocorticoids provide life saving treatment but long-term quality of life is impaired, perhaps because therapy is not given in a physiologic way. Dehydroepiandrosterone-replacement therapy has been introduced that could help to restore quality of life. It may be useful in pubertal girls, but not in adults. Monitoring of glucocorticoid-replacement is difficult due to lack of objective methods of assessment and is therefore largely based on clinical grounds. Thus, long-term management of patients with adrenal insufficiency remains a challenge, requiring an experienced specialist. DOI: http://dx.doi.org/10.3329/dmcj.v3i1.22238 Delta Med Col J. Jan 2015; 3(1): 36-47

Levocetirizine improves quality of life and reduces costs in long-term management of persistent allergic rhinitis

2004 ◽  
Vol 114 (4) ◽  
pp. 838-844 ◽  
Author(s):  
Claus Bachert ◽  
Jean Bousquet ◽  
G. Walter Canonica ◽  
Stephen R. Durham ◽  
Ludger Klimek ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Allergic Rhinitis ◽  
Persistent Allergic Rhinitis ◽  
Term Management

scholarly journals The role of the nurse in the care and management of patients with atopic dermatitis

BMC Nursing ◽  
2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Harmieke van Os-Medendorp ◽  
Elfie Deprez ◽  
Nele Maes ◽  
Sheila Ryan ◽  
Karina Jackson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Atopic Dermatitis ◽  
Treatment Adherence ◽  
Self Management ◽  
Severe Atopic Dermatitis ◽  
Main Body ◽  
Wide Range

Abstract Background The purpose of this paper is to provide an overview of key aspects of specialised dermatology nursing practice in the management of patients with moderate to severe atopic dermatitis. The role of dermatology nurse specialists in supporting patients and promoting disease understanding, education and treatment adherence continues to evolve. As features of specialised nursing care can also inform other nursing staff in a wide range of care settings, an overview of key components is examined. Observations presented are from a pan-European perspective and represent the collected view of a group of dermatology nurse specialists, dermatologists and patient advocates following two round-table discussions. Main body Atopic dermatitis is a common, chronic, inflammatory disease characterised by erythematous/scaling skin lesions, with often intense pruritus. Disease course is cyclic with periodic disease flares of varying intensity, presenting management challenges to patients and families. Dermatology nurse specialists play a key role in providing education and substantial patient support to improve treatment outcomes and quality of life to patients and their family, delivered within a multidisciplinary team framework. Nurse-led education and 'eczema schools’ are of benefit in reducing disease severity and improving quality of life by enhancing self-management, adherence and patient engagement. eHealth tools, such as patient portals or online training platforms, can provide online learning, individualised education, and help to improve engagement. These and other initiatives, such as written action plans, are all essential to improve or maintain treatment adherence, self-management and quality of life. Conclusions Dermatology nurse specialists play a central role in the assessment and management of moderate to severe atopic dermatitis patients and families. This places them in an ideal position to build strong and often long-term relationships with patients and parents. Such engagement promotes trust, assists in setting realistic expectations of treatment and outcomes, and enhances self-management and engagement in their own care. Providing emotional support, as well as formal and systematic education (including individualised practical advice) all contribute to improved treatment adherence and can enhance the quality of life of patients and their families throughout the course of this long-term condition.

scholarly journals Skin Disease in Children: Effects on Quality of Life, Stigmatization, Bullying, and Suicide Risk in Pediatric Acne, Atopic Dermatitis, and Psoriasis Patients

Children ◽  
2021 ◽  
Vol 8 (11) ◽  
pp. 1057
Author(s):  
Katherine A. Kelly ◽  
Esther A. Balogh ◽  
Sebastian G. Kaplan ◽  
Steven R. Feldman
Keyword(s):  
Quality Of Life ◽  
Atopic Dermatitis ◽  
Family Relationships ◽  
Pediatric Patients ◽  
Skin Diseases ◽  
Management Options ◽  
Self Image ◽  
Chronic Skin

Acne, atopic dermatitis (AD), and psoriasis are all chronic dermatologic conditions that greatly impact the lives of pediatric patients and their caregivers. The visible nature of these diseases negatively affects the self-image of children early in life as well as their relationships with their families and peers. Physicians recognize the importance of addressing both the physical and mental symptoms of their patients but are currently not equipped with clear guidelines to manage long-term psychosocial comorbidities in pediatric dermatologic patients. A PubMed and Google Scholar search of key words was conducted to explore self-image in pediatric patients with acne, AD, and psoriasis. Chronic skin diseases put pediatric patients at risk for strained family relationships, poor self-image, psychiatric comorbidities, stigmatization, and eventual suicidal behavior. A limitation of this study is a lack of a validated measure of quality of life in the pediatric population that fulfills enough criteria to evaluate long term quality of life in children and adults. Possible management options, including connecting patients with the same diagnosis and allocating resources to parents and teachers to better understand these chronic skin conditions, may provide pediatric patients with the support they need to develop resilience in the face of these challenges.

scholarly journals Long term management of obstructive sleep apnea and its comorbidities

2019 ◽  
Vol 14 ◽  
Author(s):  
Marta Marin-Oto ◽  
Eugenio E. Vicente ◽  
Jose M. Marin
Keyword(s):  
Quality Of Life ◽  
Obstructive Sleep Apnea ◽  
Sleep Apnea ◽  
Premature Death ◽  
Driving Ability ◽  
Obstructive Sleep ◽  
Long Term Treatment ◽  
Term Management

Obstructive sleep apnea (OSA) is a worldwide highly prevalent disease associated with systemic consequences, including excessive sleepiness, impairment of neurocognitive function and daytime performance, including driving ability. The long-term sequelae of OSA include and increase risk for cardiovascular, cerebrovascular and metabolic syndrome disorders that ultimately lead to premature death if untreated. To ensure optimal long-term outcomes, the assessment and management of OSA should be personalized with the involvement of the appropriate specialist. Most studies have demonstrated inmediate improvement in daytime somnolence and quality of life with CPAP and other therapies, but the effect of long-term treatment on mortality is still under debate. Currently, the long-term management of OSA should be based on a) identifying physiological or structural abnormalities that are treatable at the time of patient evaluation and b) comprehensive lifestyle interventions, especially weight-loss interventions, which are associated with improvements in OSA severity, cardiometabolic comorbidities, and quality of life. In long-term management, attention should be paid to the clinical changes related to a potential reoccurrence of OSA symptoms and it is also necessary to monitor throughout the follow up how the main associated comorbidities evolve.

scholarly journals Assessment of the Influence Systemic Cryotherapy Exerts on Chosen Skin Scores of Patients with Atopic Dermatitis: Pilot Study

2020 ◽  
Vol 2020 ◽  
pp. 1-7
Author(s):  
Magdalena Kepinska-Szyszkowska ◽  
Anna Misiorek ◽  
Monika Kapinska-Mrowiecka ◽  
Jan Tabak ◽  
Karolina Malina
Keyword(s):  
Quality Of Life ◽  
Nervous System ◽  
Atopic Dermatitis ◽  
Positive Influence ◽  
Intensity Level ◽  
Hydration Level ◽  
New Form ◽  
Ph Level

Background. One of the most important tasks in the treatment of atopic dermatitis (AD) is alleviation of racking skin dryness and persistent pruritus, because these factors exert a significant influence on worsening patients’ quality of life. Cryotherapy being a new form of rehabilitation in AD may supplement and support a long-term process of AD treatment, because it has anti-inflammatory and antipruritic effects and exerts a positive influence on the nervous system. Methods. 14 adults (mean age 32±10.8) with mild to moderate AD were enrolled. WBC (15 treatments in total) took place in winter 2018/2019. Patient skin parameters (hydration of the epidermis, sebum level, and skin pH level) were measured with probes produced by Courage + Khazaka Electronic GmbH. Results. Changes were observed in the hydration level of the epidermis. The SCORAD index evaluating the AD intensity level also changed (decreased). Conclusion. Due to these properties, hypothesis has been put forward that WBC can be an effective, supporting method in the treatment of AD.

Epilepsy: Workup and Management in Adults

2020 ◽  
Vol 40 (06) ◽  
pp. 624-637
Author(s):  
Rebecca O'Dwyer
Keyword(s):  
Quality Of Life ◽  
Chronic Condition ◽  
Chronically Ill ◽  
Psychological Effects ◽  
Family Function ◽  
Chronic Epilepsy ◽  
Patients With Epilepsy ◽  
Term Management

AbstractWhen managing epilepsy, there is a temptation to focus care with respect to the last and the next seizure. However, epilepsy is a multifaceted chronic condition and should be treated as such. Epilepsy comes with many physical risks, psychological effects, and socioeconomic ramifications, demanding a long-term commitment from the treating physician. Patients with epilepsy, compared to other chronically ill patient populations, have a worse quality of life, family function, and less social support. The majority of patients are well controlled on antiseizure drugs. However, approximately one-third will continue to have seizures despite optimized medical management. The primary aim of this article is to explore the long-term management of chronic epilepsy, and to address some of the particular needs of patients with chronic epilepsy.

scholarly journals Prader-Willi Syndrome: Clinical Aspects

2012 ◽  
Vol 2012 ◽  
pp. 1-13 ◽  
Author(s):  
Grechi Elena ◽  
Cammarata Bruna ◽  
Mariani Benedetta ◽  
Di Candia Stefania ◽  
Chiumello Giuseppe
Keyword(s):  
Quality Of Life ◽  
Genetic Disorder ◽  
Clinical Aspects ◽  
Chromosome 15 ◽  
Prader Willi Syndrome ◽  
Initial Stage ◽  
Prolong Life Expectancy ◽  
Term Management

Prader-Willi Syndrome (PWS) is a complex multisystem genetic disorder that shows great variability, with changing clinical features during a patient’s life. The syndrome is due to the loss of expression of several genes encoded on the proximal long arm of chromosome 15 (15q11.2–q13). The complex phenotype is most probably caused by a hypothalamic dysfunction that is responsible for hormonal dysfunctions and for absence of the sense of satiety. For this reason a Prader-Willi (PW) child develops hyperphagia during the initial stage of infancy that can lead to obesity and its complications. During infancy many PW child display a range of behavioural problems that become more noticeable in adolescence and adulthood and interfere mostly with quality of life. Early diagnosis of PWS is important for effective long-term management, and a precocious multidisciplinary approach is fundamental to improve quality of life, prevent complications, and prolong life expectancy.

Dry mouth

Dental Update ◽  
2021 ◽  
Vol 48 (9) ◽  
pp. 761-768
Author(s):  
Shalini Nayee ◽  
Cameron Herbert ◽  
Pepe Shirlaw ◽  
Richard Cook
Keyword(s):  
Quality Of Life ◽  
General Population ◽  
Dental Health ◽  
Dry Mouth ◽  
Common Causes ◽  
The Common ◽  
Term Management ◽  
Dental Professionals

Dry mouth has numerous causes, including medications, radiotherapy and rheumatological conditions, such as Sjögren's syndrome. This article presents the common causes of dry mouth, and details the assessment, investigations and management required for patients with dry mouth within primary dental care, in addition to outlining secondary care investigations and management. CPD/Clinical Relevance: Dry mouth is common in the general population, with widespread implications for dental health and patients' quality of life. Dental professionals have a key role in both its identification and long-term management.

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