The mediating roles of caregiver social support and self-efficacy on caregiver burden in Parkinson's disease

Background: While research has demonstrated associations between Parkinson’s disease (PD) severity and caregiver burden and emotional functioning, less is known about the associations between specific PD symptom patterns and caregiver functioning. Objective: The purpose of the current study was to explore symptomatology subtypes in PD from the caregiver perspective in the U.S. and Mexico and to determine whether caregiver burden, depression, or anxiety differed by PD symptomatology subtype. Methods: Two hundred fifty-three caregivers ( M age = 59.9) completed Parts I and II of the Movement Disorder Society-Unified Parkinson’s Disease Rating Scale (MDS-UPDRS), the Zarit Burden Interview, Patient Health Questionnaire-9, and Generalized Anxiety Disorder-7 scales. Results: Cluster analysis using domains from the MDS-UPDRS revealed 5 symptomatology subtypes: pain/motor predominant, low symptoms, severe diffuse symptoms, moderate restricted symptoms with speech/oral predominant, and mood predominant. Caregiver burden was greatest for caregivers of individuals in the severe diffuse symptom and moderate restricted symptoms with speech/oral predominant clusters. High caregiver depression and caregiver anxiety were observed in all clusters other than the low symptoms cluster. There were no site by cluster interactions, suggesting that symptom patterns contribute to caregiver functioning in similar ways in the U.S. and Mexico. Conclusions: This data-driven analysis revealed 5 symptomatology subtypes of PD from caregivers’ perspectives and highlighted the need for treatments and interventions based on predominant PD symptom expression. Importance of caregiver support across various symptomatology expressions, and particularly on specialist treatment for predominant speech/oral difficulties was recommended.

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The Impact of an Application of TelerehabilitationTechnology on Caregiver Burden

International Journal of Telerehabilitation ◽

10.5195/ijt.2009.5559 ◽

2009 ◽

Vol 1 (1) ◽

pp. 3-8 ◽

Cited By ~ 24

Author(s):

Lyn R. Tindall ◽

Ruth A. Huebner

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease ◽

Caregiver Burden ◽

Speech Therapy ◽

Structured Interview ◽

Elderly Persons ◽

Work Time ◽

Financial Obligation ◽

The Impact ◽

Therapy Protocol

The objective of this research was to assess the effects of an application of telerehabilitation reducing time and financial obligation on caregiver burden among eleven caregivers of elderly persons with Parkinson’s disease. Clients (care receivers) participated in speech therapy delivered via videophones in their homes; the protocol required 16 treatments delivered four times a week for four weeks. At the conclusion of treatment, caregivers completed a structured interview about the impact of telerehabilitation on time and financial aspects of the burden of care. On average, this speech therapy protocol delivered by videophones saved 48 hours of time, more than 92 hours of work time, and $1024 for each caregiver. Savings were significant and previous research demonstrated nearly equal outcomes using the videophone delivery method. Implications for practice and research are discussed. Keywords: Telerehabilitation, Speech Therapy, Parkinson’s Disease.

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Perceived Self-efficacy in Parkinson’s Disease Through Mobile Health Monitoring

HCI International 2020 – Late Breaking Papers: Universal Access and Inclusive Design - Lecture Notes in Computer Science ◽

10.1007/978-3-030-60149-2_57 ◽

2020 ◽

pp. 749-762

Author(s):

Sabine Theis ◽

Dajana Schäfer ◽

Christina Haubrich ◽

Christopher Brandl ◽

Matthias Wille ◽

...

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease ◽

Mobile Health ◽

Health Monitoring ◽

Self Efficacy ◽

Mobile Health Monitoring

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Caregiver Burden for Patients Diagnosed with Parkinson’s Disease: A Cross-sectional Study from Southern India

JOURNAL FOR CLINICAL AND DIAGNOSTIC RESEARCH ◽

10.7860/jcdr/2020/46176.14384 ◽

2020 ◽

Author(s):

Arun Kurupath ◽

Praveen Arathil ◽

Rahul Bansal

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease ◽

Caregiver Burden ◽

Significant Positive Correlation ◽

Mmse Score ◽

Cross Sectional Study ◽

Sectional Study ◽

Cross Sectional ◽

Positive Correlation ◽

Updrs Score

Introduction: Parkinson’s Disease (PD) is a progressive neurodegenerative disorder where the individual over time needs more and more assistance from their caregivers to carry on their life and that causes increasing burden on the caregiver. The burden for the caregiver is affecting them physically, mentally and also on a socioeconomic level. Aim: To examine the factors related to caregiver burden in caregivers of Parkinson’s patients. Materials and Methods: This was a cross-sectional study conducted in Parkinson’s clinic of a Tertiary Care Hospital of Kochi, on 100 Parkinsonism patients and their respective caregivers. Patients were assessed using the Unified PD Rating Scale (UPDRS), Hoehn and Yahr Scale (H&Y) and Mini-Mental State Examination (MMSE). Caregivers were assessed using Zerit’s Caregiver Burden inventory (CBI). Semi structured questionnaire was administered for socio-demographic details. Non parametric tests were done to examine the correlation among various variables. Results: Among the patients and caregivers, mean age was 70.65±7.30 and 67.31±8.56, respectively. Among the patient’s majority were males (n=74) while among caregivers, majority were females (n=73). Mean duration of disease was 6.79±2.68 years, mean caregiver burden score was 65.05±21.79, mean UPDRS score was 21.89±8.74 and had significant positive correlation with caregiver burden. Mean MMSE score was 17.19±4.91. The disease duration and UPDRS score had a significant positive correlation with caregiver burden score. MMSE score had significant negative correlation with caregiver burden score. Conclusion: This study concludes that a patient’s Parkinsonism related disability accounts for majority of caregiver burden. An early identification of factors contributing to stress in caregivers will help to avoid its persistency leading to a better insight in the caregiving role and thus in-patient care.

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Assessment of fall-related self-efficacy and activity avoidance in people with Parkinson's disease

BMC Geriatrics ◽

10.1186/1471-2318-10-78 ◽

2010 ◽

Vol 10 (1) ◽

Cited By ~ 48

Author(s):

Maria H Nilsson ◽

Anna-Maria Drake ◽

Peter Hagell

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease ◽

Self Efficacy ◽

Activity Avoidance

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Validating the Parkinson’s disease caregiver burden questionnaire (PDCB) in German caregivers of advanced Parkinson’s disease patients

International Psychogeriatrics ◽

10.1017/s1041610219000206 ◽

2019 ◽

Vol 31 (12) ◽

pp. 1791-1800 ◽

Cited By ~ 7

Author(s):

M. Klietz ◽

L. Rippena ◽

F. Lange ◽

A. Tulke ◽

L. Paracka ◽

...

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease ◽

Caregiver Burden ◽

Short Form ◽

Assessment Tools ◽

Life Questionnaire ◽

German Version ◽

Advanced Parkinson’S Disease ◽

Adequate Measure ◽

Sf 36

ABSTRACTBackground:Advanced Parkinson’s disease (PD) may place a high burden on patients and their caregivers. Understanding the determinants of caregiver burden is of critical importance. This understanding requires the availability of adequate assessment tools. Recently, the Parkinson’s disease caregiver burden questionnaire (PDCB) has been developed as a PD-specific measure of caregiver burden. However, the PDCB has only been evaluated in a sample of Australian caregivers of patients at a less advanced stage of the disease.Objective:We tested whether a German translation of the PDCB qualifies as an adequate measure of caregiver burden in a German sample of caregivers of advanced patients with PD.Methods:We collected PDCB data from 65 caregivers of advanced patients with PD. Reliability of the scale was assessed and compared against the original version. To validate the German version of the PDCB, we examined the correlations with the caregiver burden inventory (CBI), the short form 36 health survey (SF-36), the Parkinson’s disease quality of life questionnaire 39 (PDQ-39), disease duration, and the amount of caregiving time.Results:The total PDCB score proved to be reliable and to be significantly related to CBI and SF-36 scores. PDCB scores also increased with increasing amounts of caregiving time.Conclusions:The German version of the PDCB appears to be an adequate measure of caregiver burden in caregivers of advanced PD patients.

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