P2-542: LOCAL COMMUNITY ACTIVITIES: DEMENTIA CARE CLASSES AND COMMUNITY SALON PREVENT THE ISOLATION OF PEOPLE WITH DEMENTIA AND FAMILY CAREGIVERS

2006 ◽  
Vol 14 (7S_Part_17) ◽  
pp. P944-P945
Author(s):  
Sayaka Takeuchi ◽  
Aya Seike ◽  
Naoki Ohkubo ◽  
Nobue Mizuno ◽  
Naoki Saji ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Local Community ◽  
Dementia Care ◽  
Community Activities ◽  
People With Dementia

[P2-502]: LOCAL COMMUNITY ACTIVITIES: DEMENTIA CARE CLASSES AND COMMUNITY SALONS PREVENT THE ISOLATION OF PEOPLE WITH DEMENTIA AND FAMILY CAREGIVERS

2017 ◽  
Vol 13 (7S_Part_17) ◽  
pp. P833-P833
Author(s):  
Sayaka Takeuchi ◽  
Aya Seike ◽  
Naoki Ohkubo ◽  
Akari Fujisaki ◽  
Nobue Mizuno ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Local Community ◽  
Dementia Care ◽  
Community Activities ◽  
People With Dementia

scholarly journals The practice and ethics of dementia care

2015 ◽  
Vol 27 (10) ◽  
pp. 1579-1581
Author(s):  
Henry Brodaty
Keyword(s):  
Quality Of Life ◽  
Service Delivery ◽  
End Of Life ◽  
Family Caregivers ◽  
Dementia Care ◽  
Policy Makers ◽  
People With Dementia ◽  
Dementia Research

The focus in dementia research on discovery of cause and cure often leaves the care part of the triad hidden from the spotlight. While clinicians, caregivers, and policy makers eagerly await these scientific developments, daily they face challenges in striving best for quality of life for people with dementia and their family caregivers. This issue of the Journal addresses six topics: three relate to service delivery – at assessment, in the community and at end of life; and one each focus on ethics, driving and suicidality.

scholarly journals Dementia Care Apps for People with Dementia and Informal Caregivers: A Systematic Review Protocol

Gerontology ◽  
2021 ◽  
pp. 1-6
Author(s):  
Bing Ye ◽  
Tuck-Voon How ◽  
Charlene H. Chu ◽  
Alex Mihailidis
Keyword(s):  
Systematic Review ◽  
Older Adults ◽  
Family Caregivers ◽  
End Users ◽  
Dementia Care ◽  
Cochrane Central Register ◽  
Health Providers ◽  
Care Needs ◽  
Privacy And Security ◽  
People With Dementia

Dementia drastically impacts the quality of life (QOL) of both people living with dementia (PLwD) and their family caregivers. As dementia progresses and care needs escalate, the likelihood of institutionalization is increased, which is counter to the wishes of the majority of older adults and their family members. Dementia care apps can provide critical support and have the potential to improve the QOL of both PLwD and their family caregivers and reduce perceived caregivers’ burden. However, there is a lack of understanding of the needs of both PLwD and their family caregivers related to dementia care apps. There is also a gap in understanding the privacy concerns in relation to the apps among older adults with dementia and their caregivers. As such, the main aims of this systematic review are to understand the landscape of dementia mobile apps targeting PLwD and their caregivers with respect to the features of the apps, usability testing, and the privacy and security aspects of the app from the perspective of both app developers/researchers and the end users (PLwD and family caregivers who provide care of PLwD). Extensive databases, including ACM Digital Library, Cochrane Central Register of Controlled Trials, Compendex, Embase, Inspec, Ovid MEDLINE(R) Daily, Proquest Dissertations and These Global, PsycINFO, and Scopus, have been searched. All searches are from the inception of the databases. All peer-reviewed studies and articles written in the English language are included. Two reviewers will independently screen and select the studies with the involvement of a third reviewer for disagreements. Data will be abstracted using a custom data extraction form that is made based on the research questions. Critical Appraisal Skills Programme (CASP) checklists will be used to assess the study quality. As the first review of its kind, the findings from this review will provide valuable insights related to the needs of the dementia care apps for both PLwD and their family caregivers. The review will be relevant to health providers who are interested in using technologies to promote the independence of PLwD and reduce the stress experienced from caregivers of PLwD. The review will also serve as a guide to app developers and researchers to design usable and acceptable apps. In addition, the review will provide critical knowledge of the privacy and security features of the app to reveal the valid concerns from the end users and thus help with the uptake and adoption of the dementia care apps.

Communication skills training in dementia care: a systematic review of effectiveness, training content, and didactic methods in different care settings

2012 ◽  
Vol 25 (3) ◽  
pp. 345-358 ◽  
Author(s):  
Eva Eggenberger ◽  
Katharina Heimerl ◽  
Michael I. Bennett
Keyword(s):  
Family Caregivers ◽  
Communication Skills ◽  
Care Setting ◽  
Skills Training ◽  
Dementia Care ◽  
Cochrane Library ◽  
Communication Skills Training ◽  
People With Dementia ◽  
Training Content ◽  
Organizational Features

ABSTRACTBackground: Caring for and caring about people with dementia require specific communication skills. Healthcare professionals and family caregivers usually receive little training to enable them to meet the communicative needs of people with dementia. This review identifies existent interventions to enhance communication in dementia care in various care settings.Methods: We searched MEDLINE, AMED, EMBASE, PsychINFO, CINAHL, The Cochrane Library, Gerolit, and Web of Science for scientific articles reporting interventions in both English and German. An intervention was defined as communication skills training by means of face-to-face interaction with the aim of improving basic communicative skills. Both professional and family caregivers were included. The effectiveness of such training was analyzed. Different types of training were defined. Didactic methods, training content, and additional organizational features were qualitatively examined.Results: This review included 12 trials totaling 831 persons with dementia, 519 professional caregivers, and 162 family caregivers. Most studies were carried out in the USA, the UK, and Germany. Eight studies took place in nursing homes; four studies were located in a home-care setting. No studies could be found in an acute-care setting. We provide a list of basic communicative principles for good communication in dementia care. Didactic methods included lectures, hands-on training, group discussions, and role-play.Conclusion: This review shows that communication skills training in dementia care significantly improves the quality of life and wellbeing of people with dementia and increases positive interactions in various care settings. Communication skills training shows significant impact on professional and family caregivers’ communication skills, competencies, and knowledge. Additional organizational features improve the sustainability of communication interventions.

United Arab Emirates

2019 ◽  
pp. 101-106
Author(s):  
Amir IA Ahmed ◽  
Salwa Alsuwaidi ◽  
Abdullah Al Ali
Keyword(s):  
Family Caregivers ◽  
United Arab Emirates ◽  
Strong Influence ◽  
Extended Family ◽  
Epidemiological Data ◽  
Dementia Care ◽  
Comprehensive System ◽  
Ageing Population ◽  
People With Dementia ◽  
Care Facilities

In the United Arab Emirates (UAE), members of the extended family play a key role in caring for people with dementia. Culture has a strong influence on family caregivers’ motivation, and Emirati people believe strongly that it is their (religious) duty to provide care for their parents and other family members, including those with dementia. This setup contributes positively to keeping elderly people living at home. However, maintaining health and independence in old age will become increasingly challenging in the future, with the increasing ageing population in the UAE, which is expected to reach up to 11% by 2032. Currently, the UAE has no National Dementia Care Strategy, and epidemiological data on dementia in the country are scarce. However, Dubai is known to have a more or less comprehensive system of care for geriatric patients, including dementia care facilities. These dementia care facilities are available free of charge to Emirati citizens.

scholarly journals Telegerontology as a Novel Approach to Address Health and Safety by Supporting Community-Based Rural Dementia Care Triads: Randomized Controlled Trial Protocol (Preprint)

2017 ◽  
Author(s):  
Elizabeth M. Wallack ◽  
Chelsea Harris ◽  
Michelle Ploughman ◽  
Roger Butler
Keyword(s):  
Family Caregivers ◽  
Controlled Trial ◽  
Dementia Care ◽  
Community Dwelling ◽  
Feasibility Trial ◽  
Post Intervention ◽  
Community Based ◽  
Term Care ◽  
People With Dementia ◽  
Novel Approach

BACKGROUND Telegerontology is an approach using videoconferencing to connect an interdisciplinary team in a regional specialty center to patients in rural communities, which is becoming increasingly practical for addressing current limitations in rural community-based dementia care. OBJECTIVE Using the remotely-delivered expertise of the Telegerontology dementia care team, we aim to enhance the caregiver/patient/physician triad and thereby provide the necessary support for the person with dementia to “age in place.” METHODS This is a cluster randomized feasibility trial with four rural regions in the province of Newfoundland and Labrador, Canada (2 regions randomly assigned to “intervention” and 2 to “control”). The study population includes 22 “dementia triads” that consist of a community-dwelling older Canadian with moderate to late dementia, their family caregivers, and their Primary Care Physician (PCP). Over the 6-month active study period, all participants will be provided an iPad. The intervention is intended as an adjunct to existing PCP care, consisting of weekly Skype-based videoconferencing calls with the Telegerontology physician, and other team members as needed (occupational therapist, physical therapist etc). Control participants receive usual community-based dementia care with their PCP. A baseline (pre-) assessment will be performed during a home visit with the study team. Post intervention, 6- and 12-month follow-up assessments will be collected remotely using specialized dementia monitoring applications and Skype calls. Primary outcomes include admission to long-term care, falls, emergency room visits, hospital stays, and caregiver burden. RESULTS Results will be available in March of 2018. CONCLUSIONS Results from this study will demonstrate a novel approach to dementia care that has the potential to impact both rural PCPs, family caregivers, and people with dementia, as well as provide evidence for the utility of Telegerontology in models of eHealth-based care.

scholarly journals Self-management-support in dementia care: A mixed methods study among nursing staff

Dementia ◽  
2016 ◽  
Vol 16 (8) ◽  
pp. 1032-1044 ◽  
Author(s):  
Renate Verkaik ◽  
Paulien van Antwerpen-Hoogenraad ◽  
Anke de Veer ◽  
Anneke Francke ◽  
Judith Huis in het Veld
Keyword(s):  
Mixed Methods ◽  
Home Care ◽  
Family Caregivers ◽  
Nursing Staff ◽  
Elderly Care ◽  
Dementia Care ◽  
Self Management ◽  
Practice Research ◽  
Management Support ◽  
People With Dementia

Background Self-management in patients and family caregivers confronted with dementia is not self-evident. Self-management skills may be limited because of the progressive cognitive decline of the patient and because family caregivers are often also very aged. Self-management support by nursing staff is therefore of paramount importance. Objectives To gain insight into how nursing staff perceive their self-management support tasks, and how they put them into practice. Research questions are: ‘What are the opinions and experiences of Dutch nursing staff working in home care or residential elderly care regarding self-management support for people with dementia and their family caregivers?' and ‘Do nursing staff feel sufficiently trained and skilled for self-management support?’. Methods A mixed methods approach was used, combining cross-sectional quantitative survey data from 206 Dutch nursing professionals with qualitative interviews among 12 nursing staff working in home care or residential elderly care in The Netherlands. Results Nursing staff working in home care experienced self-management support of people with dementia as a part of their job and as an attractive task. They consider ‘helping people with dementia to maintain control over their lives by involving them in decisions in daily care’ the essence of self-management support. Nursing staff saw family caregivers as their main partners in providing self-management support to the patient. They were less aware that family caregivers themselves might also need self-management support. Nursing staff often felt insufficiently trained to give adequate self-management support. RN’s and CNA’s did not differ in their opinions, experiences and training needs. Conclusions Nursing staff in home care do consider self-management support an important and attractive task in dementia care. Their skills for providing self-management support to patients with dementia and family caregivers need improvement. Recommendations Nursing staff need sufficient training to enable the proper provision of self-management support for people with dementia. More attention should also be given to the support of self-management for family caregivers.

scholarly journals Improving Dementia Clinical Research Participation: Strategies From a Portland, Oregon, Pilot Study

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 57-58
Author(s):  
Nicole Bouranis ◽  
Sherril Gelmon ◽  
Elizabeth Needham Waddell ◽  
Dawn Richardson ◽  
Hyeyoung Woo ◽  
...  
Keyword(s):  
Clinical Research ◽  
Family Caregivers ◽  
Local Community ◽  
Research Participation ◽  
Healthcare Research ◽  
Community Advisory Board ◽  
Community Collaboration ◽  
People With Dementia ◽  
Dementia Research ◽  
Health Action

Abstract The NIA’s strategy to improve ADRD clinical research participation emphasizes local community collaboration. Literature that focuses on a person with dementia’s decision to participate in research does not speak to specific state or local factors nor the effects of local efforts. This study aimed to develop strategies to improve dementia research participation in the Portland, OR metropolitan area. A community advisory board comprised of clinicians, researchers, advocates, people with dementia, family caregivers, and older African Americans was established for this project. Thirty-three interviews were conducted with clinicians, researchers, advocates, people with ADRD, and family caregivers. The Robert Wood Johnson Foundation’s Culture of Health Action Framework was used to conceptualize motivation strategies and reflect elements that describe research participation among people with dementia. Strategies were identified to improve dementia clinical research participation: 1) Identify and promote local champions for ADRD clinical research participation; 2) Promote policies and processes that incentive cross-sector collaboration; 3) Recognize caregivers as full research participants; 4) Include people with ADRD and caregivers in the research design process; 5) Offer alternative options to reduce participation burden; 6) Evaluate and improve relationships between healthcare/research staff and patients/participants. These strategies can be used in conjunction with the Culture of Health Action Framework as a roadmap to form organization-community partnerships, facilitate motivation and empowerment, give decision-making power to people with ADRD and promote a local culture of research. Studies should be conducted in a larger context or as pilots in other communities to determine contextual relevance and generalizability for other areas.

Health Professionals’ Recommendations for a Dementia Plan for China

2021 ◽  
pp. 073346482110220
Author(s):  
Wenhong Zhao ◽  
Min-Lin Wu ◽  
Helen Petsky ◽  
Wendy Moyle
Keyword(s):  
Nursing Homes ◽  
Family Caregivers ◽  
Thematic Analysis ◽  
Health Professionals ◽  
Dementia Care ◽  
Policy Recommendations ◽  
Structured Interviews ◽  
Daycare Centers ◽  
People With Dementia ◽  
Support Family

There is no specific national dementia plan concerning people with dementia in China. The purpose of this study was to explore health professionals’ recommendations for a dementia plan for China to meet the needs of people with dementia. Semi-structured interviews were conducted with 24 doctors and nurses using purposive maximum variation sampling. Data were interpreted inductively using thematic analysis. Four themes were identified. Themes on policy recommendations emphasized a need to support people with dementia and those who care for them, including the development of community daycare centers, specialized dementia care units in hospitals, and specialized nursing homes. Improvement in dementia care in China is needed, including services across all care settings. Programs to train and support family caregivers and help health professionals to detect, diagnose and treat dementia are crucial. Further support for the families of people with dementia is required.

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