The impact of itch on dermatological patients' quality of life, emotional wellbeing and family function

Myeloproliferative neoplasms (MPNs) are associated with a high disease burden, reduced quality of life and shortened survival. The aim of this questionnaire was to gain patients' and caregivers' perspectives on the impact of living with an MPN in the Republic of Ireland. An Irish adaptation of the ‘Global MPN Landmark survey’ was conducted. Fifty-one patients and 44 caregivers completed the questionnaire. Patients reported a wide variety of symptoms at the time of questionnaire completion; fatigue, bone pain and pruritus being most frequently reported. Approximately one-third of respondents from each of the groups (patients and caregivers) reported a negative impact of MPNs on their emotional wellbeing and daily lives. The study findings revealed that, despite treatment, symptom burden remains high, and several unmet needs exist, including educational, emotional and peer group support. Interventions that focus on reducing symptom burden and addressing these unmet needs, may improve the quality of life for patients with MPNs and their caregivers.

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IMPACT OF PILGRIMAGE TOURISM TO THE SHEIKH QURO’S TOMB KARAWANG ON THE LOCAL COMMUNITY QUALITY OF LIFE

Journal of Business on Hospitality and Tourism ◽

10.22334/jbhost.v5i1.144 ◽

2019 ◽

Vol 5 (1) ◽

pp. 96

Author(s):

Nungky Puspita ◽

I Made Adhi Gunadi ◽

Lita Nuradawiah

Keyword(s):

Quality Of Life ◽

Local Community ◽

Positive Impact ◽

Health And Safety ◽

Emotional Wellbeing ◽

Tourism Impact ◽

Local Society ◽

Pilgrimage Tourism ◽

The Impact

Pilgrimage tour of Syekh Quro is the religious tour in Karawang located in Pulobata, Pulokalapa village, Lemahabang Wadas district, Karawang regency, West Java Province. This reseach is aimed to identify the impact of the religious tour activity of Syekh Quro’s Tomb toward local society quality of life. The research method used in this research is descriptiv qualitative. The finding showed that the tourism impact toward local society quality of life clarify that pilgrimage tourism give positive impact on Pulobata communities. These positive impacts are seen on the aspects of material wellbeing, community wellbeing, emotional wellbeing, and health and safety wellbeing.

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Assessment of the impact of toothache, untreated caries and its consequences on the quality of life among poor Brazilian children

Revista da Faculdade de Odontologia - UPF ◽

10.5335/rfo.v25i1.10236 ◽

2020 ◽

Vol 25 (1) ◽

pp. 88-95

Author(s):

Maria Clara Calvancati Campêlo ◽

Renata Matos Lamenha Lins ◽

Gabriela Freire Alves ◽

José Cláudio Santos Costa ◽

Valdeci Elias dos Santos-Júnior

Keyword(s):

Quality Of Life ◽

Dental Caries ◽

Dental Pain ◽

Emotional Wellbeing ◽

Cross Sectional ◽

Pufa Ratio ◽

Untreated Caries ◽

The Impact ◽

Untreated Dental Caries

Purpose: To evaluate the impact of dental pain and the consequences of untreated dental caries on the quality of life in children of low social-economic status aged from 8 to 10 years old. Materials and Methods: In this cross-sectional study, 230 children were submitted to a clinical examination in which the caries-pufa ratio was measured, afterward, they answered to two questionnaires: one about their quality of life (CPQ8-10) and the other about dental pain. Data were statistically analyzed through Chi-square, Mann-Whitney or Kruskal-Wallis tests to evaluate the association between the variables with impact on children’s OHRQoL. To establish the existence of risk factors among variables and impact on OHRQoL a Poisson Regression model was applied. Results: Dental caries (p = 0.003; PR 2.39; 95% CI 1.04–1.56), severity of untreated caries (p = 0.008; PR 2.86; 95% CI 1.13–2.00), toothache (p < 0.001; PR 2.31; 95% CI 1.64–3.27) and PUFA + pufa index (p < 0.023; PR 2.68; 95% CI 1.10–1.87) were associated with and were a predictor factor for impact on overall OHRQoL. All of these variables also had an effect over the social welfare subscale (p ≤ 0.001), whereas caries presence was also statistically linked with the emotional wellbeing subscale (p = 0.008) and dental pain with all four subscales (p ≤ 0.001). Conclusion: Untreated dental caries’ clinical consequences and dental pain exerted a negative influence on the quality of life of schoolchildren analyzed.

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Informal Caregivers’ Roles in Dementia: The Impact on Their Quality of Life

Life ◽

10.3390/life10110251 ◽

2020 ◽

Vol 10 (11) ◽

pp. 251

Author(s):

Cindy E. Frias ◽

Esther Cabrera ◽

Adelaida Zabalegui

Keyword(s):

Quality Of Life ◽

Pearson Correlation ◽

Neuropsychiatric Symptoms ◽

General Health Questionnaire ◽

Informal Caregivers ◽

Emotional Wellbeing ◽

Cross Sectional ◽

Person With Dementia ◽

The Impact

The constantly changing process of caring for a person with dementia affects the informal caregivers’ role due to its psychosocial impact. This cross-sectional study aimed to analyze the impact of the Person with Dementia informal caregiver’s role caregiver to a person with dementia on the self-perceived quality of life (QoL) of the caregiver. In total, 160 informal caregivers were recruited between January and December 2019. Informal caregivers’ quality of life was assessed using the European Quality of Life 5-Dimension scale, burden with the Zarit Burden Scale, emotional wellbeing using the General Health Questionnaire, and caregiver reactions using Caregiver Reaction Aspects. Patients’ cognitive impairment was assessed with the Mini-Mental State Examination, their quality of life using Quality of Life in Alzheimer’s Disease, and neuropsychiatric symptoms using the Neuropsychiatric Inventory. Outcomes were studied using the Pearson correlation coefficient and ANOVA test. Most informal caregivers’ outcomes were significantly associated with their quality of life. Male informal caregivers have a slightly better quality of life than female caregivers (p < 0.001). Caregiver burden (p < 0.001), psychological wellbeing (p < 0.001) and negative aspects of caregiving on health (p < 0.001) correlated moderately with informal caregivers’ quality of life. Factors associated with dementia, including the course of the illness and its severity with the presence of neuropsychiatric symptoms can negatively affect the informal caregiver’s role and produce a low self-perception of quality of life; thus, social and professional support for informal caregivers is essential.

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Parent proxy assessment of sibling quality of life following pediatric hematopoietic cell transplantation

Health and Quality of Life Outcomes ◽

10.1186/s12955-019-1231-9 ◽

2019 ◽

Vol 17 (1) ◽

Cited By ~ 1

Author(s):

David Buchbinder ◽

Sunita K. Patel ◽

Jacqueline N. Casillas ◽

Diane J. Nugent ◽

Steven Neudorf ◽

...

Keyword(s):

Quality Of Life ◽

Physical Health ◽

Cell Transplantation ◽

Hematopoietic Cell Transplantation ◽

Short Form ◽

Hematopoietic Cell ◽

Family Function ◽

The Impact ◽

Parent Proxy

Abstract Background When a child undergoes hematopoietic cell transplantation (HCT), the impact extends to the entire family, including siblings. Assessment of the quality of life (QoL) of siblings is challenged by their general lack of availability for regular assessment by clinical providers. Thus, the use of parent proxy reporting may be useful. Our aim was to describe the QoL of siblings of HCT survivors, as reported by their parents, as well as to identify parent and family factors associated with lower sibling QoL. Methods A cross-sectional study was utilized to assess parent-reported QoL of the HCT recipient’s sibling (Short Form (SF)-10 Health Survey for Children and the Pediatric Symptom Checklist (PSC)-17). Parent QoL was assessed using the SF-12. Multivariable linear regression was used to explore hypothesized predictors of sibling QoL, including parent QoL, family impact/function (Impact on Family Scale, Family Adaptability and Cohesion Evaluation Scales, IV, and a question asking about financial problems) while adjusting for demographic and HCT characteristics. Results Ninety-seven siblings (55% males) with a mean age of 12 years (standard deviation [SD] 4 years) were assessed, representing HCT survivors, who were an average of 5 years (SD 4 years) post-HCT. Neither sibling psychosocial (mean 49.84, SD 10.70, p = 0.87) nor physical health scores (mean 51.54, SD 8.42, p = 0.08) differed from norms. Parent proxies reported behavioral/emotional problems (PSC-17 total score > 15) in 24% of siblings. While parental ratings of their own physical health (SF-12 were higher than norms (mean 53.04, SD 8.17, p = 0.0005), mental health scores were lower (mean 45.48, SD 10.45, p < 0.0001). In multivariable analysis, lower parent emotional functioning and adverse family function were associated with lower sibling QoL, as reported by parents. Conclusions While proxy-reported QoL of siblings did not differ significantly from normative data, both parent QoL and family function were associated with sibling QoL. Future research is needed to understand how siblings themselves perceive their QoL following HCT.

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Impact of oral conditions on the quality of life of adolescents in a rural area of Brazil

Acta Odontológica Latinoamericana ◽

10.54589/aol.34/1/081 ◽

2021 ◽

Vol 34 (1) ◽

pp. 81-87

Author(s):

Tatiany Roque ◽

Isabela Magnani ◽

Saul Paiva ◽

Lucas Abreu

Keyword(s):

Quality Of Life ◽

Rural Area ◽

Low Income ◽

Emotional Wellbeing ◽

Social Wellbeing ◽

Oral Symptoms ◽

Low Income Families ◽

Oral Conditions ◽

The Impact

The aim of this study was to assess the impact of oral conditions on the oral health-related quality of life (OHRQoL) of early adolescents aged 11 to 14 years in the rural population of a Brazilian municipality. Adolescents attending public schools in the municipality participated in the study. OHRQoL was measured using the short Brazilian version of the Child Perceptions Questionnaire (CPQ11-14) with four domains: oral symptoms, functional limitations, emotional wellbeing and social wellbeing. A higher score indicates a more negative perception of the adolescent regarding his/her OHRQoL. Oral conditions such as dental caries, malocclusion and dental trauma were evaluated using DMTF index, Dental Aesthetics Index (DAI) and Andreasen criteria, respectively. The variables sex and age, number of siblings, parents’ schooling, family monthly income, number of times of tooth-brushing/day and visits to the dentist/year were also evaluated. Descriptive analysis and regression models were performed. Of the 202 participants, 94 (46.5%) were female and 108 (53.5%) were male. Adolescents from low-income families (p=0.042) and with more severe malocclusion (p=0.037) scored higher in the CPQ11-14. Those with severe malocclusion scored higher in the emotional wellbeing domain (p=0.009). Females scored higher than males in the oral symptoms domain (p=0.002). Adolescents from low-income families scored higher in the social wellbeing domain (p=0.006). Malocclusion negatively affected the OHRQoL of adolescents from a Brazilian rural area, mainly regarding emotional wellbeing. Negative repercussions were also observed among females and adolescents whose families had lower income.

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MELASMA;

The Professional Medical Journal ◽

10.29309/tpmj/2017.24.12.615 ◽

2017 ◽

Vol 24 (12) ◽

pp. 1899-1903

Author(s):

Wajid Ali Akhunzada ◽

Naima Luqman ◽

Asima Luqman ◽

Muhammad Khalid ◽

Sultana Jam

Keyword(s):

Quality Of Life ◽

Negative Impact ◽

Life Quality ◽

Severity Index ◽

The Body ◽

Emotional Wellbeing ◽

Dermatology Department ◽

Social And Emotional ◽

The Impact

Introduction: Melasma is an acquired, chronic, recurrent symmetricalhypermelanosis which is characterized by brown patches of variable darkness on sun exposedareas of the body primarily on the face.1,2 Melasma is more common in Asians and in peoplewho live in locations that receive high intensity UV radiation.3,4 Melasma is a skin disease thatsignificantly affects social and emotional wellbeing of the patients as well as their Quality of Life(QoL). Objectives: To find out the impact of melasmaon quality of life of the patients. StudyDesign: It is a descriptive study and the sample (patients), were selected through convenientsampling. Place and Duration of study: The study was conducted in the department ofpsychiatry & Dermatology department of Bahawal Vicortoria Hospital, Bahawalpur from July toDecember 2016. Material and Methods: Hundred patients having melasma including 11 malesand 89 females from both departments were included in the study. Two questionnaires wereapplied for measuring target variables, these were (i) Dermatology Life Quality Index to assessthe effect of melasma on quality of life (DLQI) and (ii) Melasma Area Severity Index (MASI) todetermine the severity of melasma. Results: The study included 100 patients of which 89 werefemales while 11 were males. Mean age of the patients was 27+6. Regarding the educationalstatus of patients, the majority (36%) were graduates and 16% had a Masters degree. Of thesepatients, 53% were unmarried while 47% were married. Mean DLQI was slightly higher forfemale patients (13.48) as compared to male patients (12.82). Mean MASI was also higherin females (15.26) as compared to males which was (14.39). Conclusions: Melasma causessignificant negative impact on quality of life especially in women.

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Social anxiety: predictors and outcomes

Journal of Psychologists and Counsellors in Schools ◽

10.1017/s1037291100002995 ◽

1999 ◽

Vol 9 (S1) ◽

pp. 47-59 ◽

Cited By ~ 2

Author(s):

Kathleen A Moore

Keyword(s):

Quality Of Life ◽

Social Anxiety ◽

Coping Strategies ◽

Information Transfer ◽

Well Being ◽

Emotional Wellbeing ◽

Quality Of Life Scale ◽

The Impact

Social anxiety is a debilitating problem affecting many life domains, however the aetiology of this anxiety remains unclear. Aside from biological models, learning and, more recently, information transfer have been implicated in the onset of social anxiety. These last are of particular concern to those working with children or adolescents. The primary aim of this study is to investigate the role of early parental style as a casual factor in social anxiety and then to assess the impact of social anxiety on emotional wellbeing, quality of life and relation-ships, and the use of coping strategies. Ninety-five 18-19 year old first year university students (75 females, 19 males) completed the Parental Bonding Instrument (relevant to their first 16 years), the Austin Quality of Life Scale, Personal Assessment of Intimacy in Relationships Scale - Revised, UCLA Loneliness Scale, EAS Temperament Scale, Ways of Coping Checklist-Revised, and a measure of social anxiety suitable for nonclinical samples. Childhood perceptions of reduced care and overprotection from fathers predicted social anxiety (R216 per cent) but maternal style did not. Social anxiety was related to less use of solution oriented coping; greater use of affective-based coping strategies; poorer emotional well-being, quality of relationships and quality of life; and higher levels of loneliness. The importance of the role of the family when working with young adolescents and children is discussed as is the suggestion that early information transfer from peers, siblings, and more importantly teachers are also assessed as predictors of social anxiety. While the present study revealed no association between gender and social anxiety on information transfer, it is suggested that future studies examine separate cohorts of young males and females.

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Impact of aging on the quality of life of workers with intellectual disabilities

Psychology Society & Education ◽

10.25115/psye.v12i2.2852 ◽

2020 ◽

Vol 12 (2) ◽

pp. 81

Author(s):

Jose Luis Cuesta Gómez ◽

Raquel Fuente De la Fuente Anuncibay ◽

Maria Teresa Ortega Camarero ◽

Jerónimo Javier González Bernal

Keyword(s):

Quality Of Life ◽

Intellectual Disability ◽

Social Relations ◽

Social Inclusion ◽

Healthy Aging ◽

Emotional Wellbeing ◽

Negative Impacts ◽

The Impact ◽

Spearman Test

The increased life-expectancy of people with intellectual disability is generating new needs for attention and care that can assist healthy aging. This question is accentuated among workers from Special Employment Centers, for whom aging has a twofold impact, in so far as it interferes with their professional development and their means of earning a living. A study is conducted with a sample of 49 workers from a Special Employment Center, with the objective of analyzing the impact of ageing on the quality of life of people with intellectual disability aged over 45 years old. The information was gathered with the INICO-FEAPS Integral Evaluation Scale of the Quality of Life of People with Intellectual Disability (Verdugo, Gómez, Arias, Santamaría, Clavero & Tamarit, 2013). The Mann-Whitney U test; the Spearman test and Anovas are used for data analysis. The results highlighted the importance of age on quality-of-life deterioration, evident from lower scores for emotional wellbeing, social inclusion and social relations, among others, as well as the differences according to gender and training of the group. The need is noted to establish challenges and proposals that will minimize the negative impacts of aging on the journey towards a non-active stage. One limitation of the study is the need for larger sample sizes.

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Self-Compassion and Quality of Life in Adults Who Stutter

American Journal of Speech-Language Pathology ◽

10.1044/2020_ajslp-20-00055 ◽

2020 ◽

Vol 29 (4) ◽

pp. 2097-2108

Author(s):

Robyn L. Croft ◽

Courtney T. Byrd

Keyword(s):

Quality Of Life ◽

Social Connectedness ◽

The Self ◽

Future Research ◽

Self Compassion ◽

Adults Who Stutter ◽

And Gender ◽

Relationship Of ◽

The Impact

Purpose The purpose of this study was to identify levels of self-compassion in adults who do and do not stutter and to determine whether self-compassion predicts the impact of stuttering on quality of life in adults who stutter. Method Participants included 140 adults who do and do not stutter matched for age and gender. All participants completed the Self-Compassion Scale. Adults who stutter also completed the Overall Assessment of the Speaker's Experience of Stuttering. Data were analyzed for self-compassion differences between and within adults who do and do not stutter and to predict self-compassion on quality of life in adults who stutter. Results Adults who do and do not stutter exhibited no significant differences in total self-compassion, regardless of participant gender. A simple linear regression of the total self-compassion score and total Overall Assessment of the Speaker's Experience of Stuttering score showed a significant, negative linear relationship of self-compassion predicting the impact of stuttering on quality of life. Conclusions Data suggest that higher levels of self-kindness, mindfulness, and social connectedness (i.e., self-compassion) are related to reduced negative reactions to stuttering, an increased participation in daily communication situations, and an improved overall quality of life. Future research should replicate current findings and identify moderators of the self-compassion–quality of life relationship.

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