Development and validation of a multidimensional health literacy questionnaire for multiple sclerosis patients

Abstract Background We have built a six-week free online course to improve multiple sclerosis (MS)-related knowledge, health literacy (HL), and resilience among members of the MS community and interested laypeople, entitled Understanding MS. To evaluate the effectiveness of the course, we require an appropriate tool to measure HL in this cohort. Objective To evaluate the psychometric properties of the multidimensional Health Literacy Questionnaire (HLQ) in a cohort of Understanding MS online course enrolees. Methods Participants who enrolled in the first two open enrolments of the Understanding MS online course completed the HLQ (n = 1182) in an online survey prior to beginning course materials. We used Rasch analysis to assess the measurement properties of the HLQ. Results The nine subscales of the HLQ each had a good fit with the Rasch model; they were unidimensional, had good internal consistency and reliability and no item bias or local dependency measurement gaps were identified for participants with low or high scores in each of the nine subscales, creating a ceiling effect, meaning that the HLQ cannot reliably measure change in HL over time for these participants. The HLQ is a reliable measurement tool to assess change in HL for people with low to moderate HL levels who have room to improve, which is our target group. Conclusion The HLQ is useful for assessing HL in this and similar cohorts, but the assessment of HL change should consider the limitations described above. Key messages The HLQ has excellent measurement properties and is appropriate for assessing HL

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Health Literacy in Multiple Sclerosis patients: A Concept Analysis Using the Evolutionary Method

Journal of Caring Sciences ◽

10.34172/jcs.2021.010 ◽

2021 ◽

Vol 10 (1) ◽

pp. 49-56

Author(s):

Ali Dehghani

Keyword(s):

Multiple Sclerosis ◽

Health Care ◽

Health Promotion ◽

Health Literacy ◽

Health Care Professionals ◽

Concept Analysis ◽

Functional Health ◽

Evolutionary Method ◽

Concept Of Health ◽

Multiple Sclerosis Patients

Abstract Introduction:Health literacy is one of the effective factors in health promotion of chronic patients. However, little attention has been paid to it; no exact and clear definition of health literacy has ever been accessible in chronic diseases. This study was conducted with aim of defining and clarifying attributes, antecedents, and consequences of health literacy in multiple sclerosis (MS) patients. Methods: Rodgers’ evolutionary method of concept analysis was used to clarify the concept of health literacy in MS patients. A literature review was conducted with key terms "multiple sclerosis", "health literacy", "information literacy", "functional health", "health education", "health promotion" and "health behavior". Eight hundred and sixty papers for the period 1980– 2019 were found and finally 23 articles and texts were selected for the analysis. Data analysis was carried out using a thematic analysis. Results: Health literacy in MS patients is a multidimensional concept with forth attributes: health information evaluation, understand disease and its related issues, reading skills and capacity to use knowledge. Ability to read and comprehend, interacting with health personnel, and interacting with peers as an antecedents and improved self-care, health promotion, medication adherence, and decreased use of health care services to be the consequences of these attributes were found. Conclusion: The findings can add knowledge about the concept of health literacy in MS patients. Also, health care professionals can use a deeper understanding of the concept of health literacy in providing care plan for MS patients.

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Development and validation of a patient self-assessed questionnaire on satisfaction with communication of the multiple sclerosis diagnosis

Multiple Sclerosis Journal ◽

10.1177/1352458510376178 ◽

2010 ◽

Vol 16 (10) ◽

pp. 1237-1247 ◽

Cited By ~ 20

Author(s):

A. Solari ◽

K. Mattarozzi ◽

L. Vignatelli ◽

A. Giordano ◽

PM Russo ◽

...

Keyword(s):

Multiple Sclerosis ◽

Intraclass Correlation ◽

Newly Diagnosed ◽

Care Indicator ◽

Sclerosi Multipla ◽

Multiple Sclerosis Patients ◽

Test Retest Reliability ◽

Development And Validation ◽

Multiple Sclerosis Diagnosis

Background: We describe the development and clinical validation of a patient self-administered tool assessing the quality of multiple sclerosis diagnosis disclosure. Method: A multiple sclerosis expert panel generated questionnaire items from the Doctor’s Interpersonal Skills Questionnaire, literature review, and interviews with neurology inpatients. The resulting 19-item Comunicazione medico-paziente nella Sclerosi Multipla (COSM) was pilot tested/debriefed on seven patients with multiple sclerosis and administered to 80 patients newly diagnosed with multiple sclerosis. The resulting revised 20-item version (COSM-R) was debriefed on five patients with multiple sclerosis, field tested/debriefed on multiple sclerosis patients, and field tested on 105 patients newly diagnosed with multiple sclerosis participating in a clinical trial on an information aid. The hypothesized monofactorial structure of COSM-R section 2 was tested on the latter two groups. Results: The questionnaire was well accepted. Scaling assumptions were satisfactory in terms of score distributions, item—total correlations and internal consistency. Factor analysis confirmed section 2’s monofactorial structure, which was also test—retest reliable (intraclass correlation coefficient [ICC] 0.73; 95% CI 0.54—0.85). Section 1 had only fair test—retest reliability (ICC 0.45; 95% CI 0.12—0.69), and three items had 8—21% missed responses. Conclusions: COSM-R is a brief, easy-to-interpret MS-specific questionnaire for use as a health care indicator.

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Health Problems Questionnaire in Multiple Sclerosis Patients: Development and Validation

10.21203/rs.3.rs-403888/v1 ◽

2021 ◽

Author(s):

Ali Dehghani

Keyword(s):

Multiple Sclerosis ◽

Psychometric Properties ◽

Health Problems ◽

Self Report ◽

Second Phase ◽

Validity And Reliability ◽

Five Factors ◽

Final Questionnaire ◽

Multiple Sclerosis Patients ◽

Development And Validation

Abstract Background Multiple sclerosis patients are faced with numerous problems during their illness. Development of a self-report measure of health problems in multiple sclerosis patients is required based on cultural factors, `which can advance our understanding of the level of health problems for care planning and improvement of coping and quality of life. The current study aimed to develop and validate the scale of health problems of Multiple Sclerosis. Methods This present study is an exploratory sequential mixed method study that was conducted in three phases. In the first phase, the concept of health problems in MS patients was defined using the content analysis approach. In the second phase, the item pool was generated from findings of the first phase. In the third phase, psychometric properties of the scale were evaluated including face, content and construct validity as well as reliability. Results After examining the psychometric properties of validity and reliability, 33 items were designed in the final questionnaire. Factor analyses revealed five factors: physical problems, psychological problems, emotional problems, family problems, and socio-economic problems. Internal consistency and stability of the developed questionnaire confirmed with 0.93 and 0.95 respectively that indicated excellent reliability. Conclusion The 33-item developed questionnaire is valid and reliable for measurement of levels of health problems in Iranian people with MS.

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