Coproducing health and well-being in partnership with patients, families, and healthcare providers: A qualitative study exploring the role of an epilepsy patient portal

2020 ◽  
pp. 107664
Author(s):  
Zita McCrea ◽  
Kevin Power ◽  
Rachel Kiersey ◽  
Maire White ◽  
Annette Breen ◽  
...  
2016 ◽  
Vol 26 (4) ◽  
pp. 330-345 ◽  
Author(s):  
Jacqueline H. Watts ◽  
Joyce Cavaye

In the United Kingdom, policy has formalized the role of carers through the introduction of new rights and entitlements to support. However, this support is directed only at current carers with the needs of former carers being unacknowledged. Yet, when caregiving comes to an end, the transition to a life as a “former” carer can be challenging. This article reports findings from a small-scale qualitative study about the experiences of former carers conducted in the United Kingdom. Findings highlight the impact of caregiving on the health and well-being of former carers with feelings of loss and distress associated with the end of caregiving. The need for support in the post-caregiving phase emerges as a significant issue with former carers feeling abandoned, lacking purpose and motivation to move forward in their lives. Findings suggest that the needs of former carers are not being met.


2020 ◽  
Vol 3 (4) ◽  
Author(s):  
Silvana Bara

The role of healthcare providers is crucial to the health and well-being of society and the relationship between the patient and the healthcare provider is of paramount importance. The trust put in this relationship benefits not only the health and well-being of the patient, but society as a whole. Undoubtedly, in their everyday activity healthcare providers are bound by a duty of care towards their patients. However, such duty is challenged in case of infectious diseases, giving rise to many ethical dilemmas. Is this duty absolute? Does it apply at all times? Would treating a patient with an infectious disease endanger healthcare provider’s life or the life of others (his/her patients, family, colleagues, friends)? Would treating an infectious patient help the spread of the disease? Would refusal to treat jeopardize healthcare provider’s career and future? Infectious diseases put a heavy social, economic and political burden on the state. This paper aims to examine the special role of the healthcare provider in cases of infectious diseases and the importance of their profession in the general well-being of society.


Author(s):  
Elizabeth Dettori ◽  
Geeta Rao Gupta

This chapter identifies some of the most stubborn gender-based risks and vulnerabilities girls face as a cohort from preadolescence through late adolescence across the domains of personal capabilities, security, safety, economic resources, and opportunities. It reviews progress made during the Millennium Development Goal era in improving girls’ health and well-being and looks to the role of adolescent girls in advancing the Sustainable Development Goals. The chapter concludes by recommending an approach for global partnership that is linked to national and local actions and that is centered on priority interventions that can catalyze change, at scale, for adolescent girls.


2020 ◽  
Vol 39 (2) ◽  
pp. 177-206 ◽  
Author(s):  
Katrine Syppli Kohl

Abstract This qualitative study combined the approaches of Foucault and Goffman to investigate the consequences of a “roll-out” neoliberal “activation” programme on Denmark’s reception of asylum-seekers. The analysis found that the activation programme is an ambiguous technology of power intended to shape asylum-seekers into productive citizens by simultaneously disciplining them and improving their health and well-being, while using their labour to reduce costs. The strategic interactions in the job centre reflected the ambiguities created by these oft-incongruent aims, and activation caused conflicts as it amplified activities experienced as meaningless and humiliating. I argue that these consequences stem from the ambiguity, uncertainty, and trouble produced at the intersection of competing projects of rule in a “sensitive space”, and that the individualisation of responsibility for their own marginalisation, simultaneously serve to exclude asylum-seekers and to confine them to categories that license continued institutional discipline. Thereby, the intervention feeds cyclical process of failed integration and ill-fated interventions. Indeed, by individualising the responsibility for integration, such interventions depoliticise the marginalisation of citizens of immigrant decent and legitimise efforts to reduce immigration by fuelling problematisations of immigrants as expensive, deviant, and less employable.


BMJ Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. e047632
Author(s):  
Helen Humphreys ◽  
Laura Kilby ◽  
Nik Kudiersky ◽  
Robert Copeland

ObjectivesTo explore the lived experience of long COVID with particular focus on the role of physical activity.DesignQualitative study using semistructured interviews.Participants18 people living with long COVID (9 men, 9 women; aged between 18–74 years; 10 white British, 3 white Other, 3 Asian, 1 black, 1 mixed ethnicity) recruited via a UK-based research interest database for people with long COVID.SettingTelephone interviews with 17 participants living in the UK and 1 participant living in the USA.ResultsFour themes were generated. Theme 1 describes how participants struggled with drastically reduced physical function, compounded by the cognitive and psychological effects of long COVID. Theme 2 highlights challenges associated with finding and interpreting advice about physical activity that was appropriately tailored. Theme 3 describes individual approaches to managing symptoms including fatigue and ‘brain fog’ while trying to resume and maintain activities of daily living and other forms of exercise. Theme 4 illustrates the battle with self-concept to accept reduced function (even temporarily) and the fear of permanent reduction in physical and cognitive ability.ConclusionsThis study provides insight into the challenges of managing physical activity alongside the extended symptoms associated with long COVID. Findings highlight the need for greater clarity and tailoring of physical activity-related advice for people with long COVID and improved support to resume activities important to individual well-being.


BMJ Open ◽  
2015 ◽  
Vol 5 (8) ◽  
pp. e007938 ◽  
Author(s):  
Rachael Hinton ◽  
David J Kavanagh ◽  
Lesley Barclay ◽  
Richard Chenhall ◽  
Tricia Nagel

Sign in / Sign up

Export Citation Format

Share Document