scholarly journals Impact of family history assessment on communication with family members and health care providers: A report from the Family Healthware™ Impact Trial (FHITr)

2015 ◽  
Vol 77 ◽  
pp. 28-34 ◽  
Author(s):  
Catharine Wang ◽  
Ananda Sen ◽  
Melissa Plegue ◽  
Mack T. Ruffin ◽  
Suzanne M. O'Neill ◽  
...  
2017 ◽  
Vol 37 (6) ◽  
pp. 48-57 ◽  
Author(s):  
Pamela L. Smithburger ◽  
Amanda S. Korenoski ◽  
Sandra L. Kane-Gill ◽  
Sheila A. Alexander

BACKGROUND Delirium occurs in up to 80% of patients admitted to an intensive care unit. Nonpharmacologic delirium-prevention strategies, which are commonly used by the bedside nurse, have reduced the incidence and duration of delirium in patients in the intensive care unit. With increasing demands on the nurse, strategies such as including the patient’s family in delirium prevention activities should be investigated. OBJECTIVE To determine opinions and willingness of health care providers to involve patients’ families in nonpharmacologic delirium-prevention activities in the intensive care unit, and of patients’ families to be involved. METHODS Two surveys, one for intensive care unit nurses and physicians and one for patients’ families, were developed and administered. The provider survey focused on current delirium-prevention practices and opinions about family involvement. The family survey concentrated on barriers and willingness to participate in prevention activities. RESULTS Sixty nurses and 58 physicians completed the survey. Most physicians (93%) and all nurses believed families could assist with delirium prevention. Only 50% reported speaking with family members about delirium and delirium prevention. The family survey was completed by 60 family members; 38% reported a provider spoke with them about delirium. Family members reported high levels of comfort in participating in delirium-prevention activities. CONCLUSIONS Health care providers and family members are supportive of the latter performing delirium-prevention activities. Family of patients in the intensive care unit may work collaboratively with nurses to reduce the incidence and duration of delirium in these patients.


2016 ◽  
Vol 5 (1) ◽  
pp. 24
Author(s):  
Maria Tegelela Iiyambo ◽  
Louis Small ◽  
Agnes Van Dyk ◽  
Esther Kamenye

The aim of this study was to understand what the family members of a person with a head injury go through during the pre-hospitalization, hospitalization and rehabilitation period. The objective set for this study was to explore and describe the experiences of family members of a person with a head injury.A purposive sample was selected from the records of the Intensive Care Unit at the Intermediate Hospital Oshakati where the addresses of the head injury patients were identified. A qualitative explorative, descriptive and contextual research design was conducted utilizing individual in-depth face-to-face interview to gather data from family members of a person with a head injury. Data was analyzed using Tech’s method for content analysis.The results of this study showed that family members of a person with head injury had varied and different experiences varying from different feelings, challenges and support to them.Recommendations based on the findings were made for both health care providers and family members of a person with a head injury.


1994 ◽  
Vol 5 (3) ◽  
pp. 289-295 ◽  
Author(s):  
Nancy E. Page ◽  
Nancy M. Boeing

Much controversy has arisen in the last few decades regarding parental and family visitation in the intensive care setting. The greatest needs of parents while their child is in an intensive care unit include: to be near their child, to receive honest information, and to believe their child is receiving the best care possible. The barriers that exist to the implementation of open visitation mostly are staff attitudes and misconceptions of parental needs. Open visitation has been found in some studies to make the health-care providers’ job easier, decrease parental anxiety, and increase a child’s cooperativeness with procedures. To provide family-centered care in the pediatric intensive care unit, the family must be involved in their child’s care from the day of admission. As health-care providers, the goal is to empower the family to be able to advocate and care for their child throughout and beyond the life crisis of a pediatric intensive care unit admission


2018 ◽  
Vol 38 (3) ◽  
pp. 18-26 ◽  
Author(s):  
Shawn E. Cody ◽  
Susan Sullivan-Bolyai ◽  
Patricia Reid-Ponte

Background The hospitalization of a family member in an intensive care unit can be stressful for the family. Family bedside rounds is a way for the care team to inform family members, answer questions, and involve them in care decisions. The experiences of family members with intensive care unit bedside rounds have been examined in few studies. Objectives To describe (1) the experiences of family members of patients in the intensive care unit who participated in family bedside rounds (ie, view of the illness, role in future management, and long-term consequences on individual and family functioning) and (2) the experiences of families who chose not to participate in family bedside rounds and their perspectives regarding its value, their illness view, and future involvement in care. Methods A qualitative descriptive study was done, undergirded by the Family Management Style Framework, examining families that participated and those that did not. Results Most families that participated (80%) found the process helpful. One overarching theme, Making a Connection: Comfort and Confidence, emerged from participating families. Two major factors influenced how that connection was made: consistency and preparing families for the future. Three types of consistency were identified: consistency in information being shared, in when rounds were being held, and in informing families of rounding delays. In terms of preparing families for the future, families appeared to feel comfortable with the situation when a connection was present. When any of the factors were missing, families described feelings of anger, frustration, and fear. Family members who did not participate described similar feelings and fear of the unknown because of not having participated. Conclusion What health care providers say to patients’ families matters. Families may need to be included in decision-making with honest, consistent, easy-to-understand information.


2017 ◽  
Vol 6 (1) ◽  
pp. 61
Author(s):  
Philippe Groux ◽  
Sandro Anchisi ◽  
Thomas Szucs

Objective: Many patients describe travel to cancer treatment as inconvenient and a practical hardship and it may be perceived or experienced as a barrier to treatment. We investigated which impact cancer treatments has on the family of the patients, especially for the most frequent cancer type prostate, breast, colon and lung cancer.The aim was to identify groups of patients with an increased burden for the family.Method: All patients coming in February 2012 for chemotherapy to one of the four centres of the hospital or to the unique private practice were asked to answer a survey. The questionnaire covered items as gender, date of birth, living place, kind of cancer, kind of treatment and questions covering different aspects of the travel: how the patient travelled to the centre, how long the travel lasted, which kind of support was necessary to travel and who provided this support, whether the accompanying person had to absent herself from her workplace, whether the patient lives alone or not and how many journeys to health care providers the patients had in the last month were included in the analysisResults: 298 patients answered to all required questions (73%). 186 came accompanied, a vast majority by a member of the family and one out of four of the accompanying person had to leave the workplace. Help at home is almost exclusively provided by family members. Patients have several journeys to health care providers per month.Conclusions: The type of cancer has an impact on the support needed and must added to the previously published factors as age, gender and distance. The journey to the cancer treatment is not the unique journey to health care providers the patients have and increase the burden for the patient and the family.


PLoS ONE ◽  
2019 ◽  
Vol 14 (8) ◽  
pp. e0220769 ◽  
Author(s):  
Alem Gebremariam ◽  
Adamu Addissie ◽  
Alemayehu Worku ◽  
Mathewos Assefa ◽  
Eva Johanna Kantelhardt ◽  
...  

2001 ◽  
Vol 7 (4) ◽  
pp. 371-390 ◽  
Author(s):  
Päivi Åstedt-Kurki ◽  
Eija Paavilainen ◽  
Tarja Tammentie ◽  
Marita Paunonen-Ilmonen

2020 ◽  
Vol 7 (2) ◽  
pp. 103-108
Author(s):  
Nasrin Matinnia ◽  
Saeid Yazdi-Ravandi

Background: Childbirth is one of the essential goals of the family, so that infertility can cause many problems for the family. Therefore, the aims of the current study were the frequency of postpartum depression and evaluate the relationship between postpartum depression, socio-demographic factors, and quality of marital satisfaction in postpartum women with a history of infertility referring to health centers in Hamadan. Methods: This study was a cross-sectional study. The study population consisted of all primiparous women with a history of infertility referring to Hamadan health care centers in 2018, of which 240 randomly selected according to the inclusion criteria for one year. Subjects assessed by demographic and clinical information checklist, Edinburgh Postnatal Depression Scale (EPDS), and marital relationship quality scale (Revised Dyadic Adjustment Scale; RDAS). All statistical calculations performed by busing chi-square with SPSS-17. Results: 152 out of 240 participants (63.3%) had a degree of depression, of which 57 (23.7%) had mild depression, 63 (26.3%) had moderate depression, and 32 (13.3%) had severe depression. According to the result of the study, marital satisfaction in 23.3% (56), 37.1% (89), and 39.6% (95) were excellent, moderate, and low, respectively — the quality of marital relationships associated significantly with and postpartum depression (χ2=19.3, P<0.001). The results of the study showed that there was a significant relationship between age, occupation, educational level, duration of infertility, and depression (P<0.05), but there was no significant relationship between ethnicity, insurance, and depression (P<0.05). Conclusion: Regarding the results obtained in this study and comparison with existing studies, the infertility problem can cause mental and psychological disorders in women. It seems that marital satisfaction and its relationship with different factors and the proper interventions by health care providers are necessary to prevent postpartum depression in these women.


2018 ◽  
Author(s):  
Junfang Xu ◽  
Jonathan Bricker ◽  
Xiaoxing Fu ◽  
Chunyan Su ◽  
Peicheng Wang ◽  
...  

BACKGROUND Although there are more than 60 smartphone apps for smoking cessation in China, many of them do not include the content and features that health care professionals and smokers prefer—which may make them impractical, unengaging, and ineffective. Therefore, we investigated both health care providers’ and smokers’ preferences for features of future smoking cessation apps. OBJECTIVE This study aimed to investigate Chinese health care providers’ and smokers’ desired features of a smoking cessation app, with the goal of providing design recommendations for app designers and researchers. METHODS Both Chinese smokers who own smartphones (n=357) and Chinese health care providers (n=224) responded to a survey collecting data on their sociodemographic characteristics and opinions on the importance of 20 smoking cessation app design features studied in previous US research. RESULTS Chinese health care providers expressed strong support of smoking cessation apps on a number of attitude indicators (range 153/224, 68.3% to 204/224, 91.1%). They rated nearly all (18/20) features as very or extremely important (range 52.2%-83.4%) and rated nearly all features (17/20) as more important than the smokers did. More than 60% of smokers rated the following 4 features as very or extremely important: allow sharing the process of smoking cessation with family members and friends (216/319, 67.7%), helping smokers track their progress (such as the amount of smoking per day; 213/319, 66.8%), helping with the side effects of medications and nicotine withdrawal symptoms (201/319, 63.0%), and adapting to ongoing needs and interests of smokers (194/319, 60.8%). Contrary to a similar study of US smokers and health care providers, Chinese smokers and providers rated reputation and ability to communicate with family members and friends as important features, whereas Chinese smokers rated privacy and security as less important. CONCLUSIONS The design of future smoking cessation and health behavior change apps should consider perspectives of both providers and smokers as well as the role of culture.


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