scholarly journals Kesejahteraan Spiritual Keluarga Pasien Stroke dan Kaitannya dengan Depresi

2016 ◽  
Vol 3 (3) ◽  
pp. 129
Author(s):  
Muhamad Zulfatul A’la ◽  
Komarudin Komarudin ◽  
Defi Efendi
Keyword(s):  
Palliative Care ◽  
Family Caregiver ◽  
Depression Scale ◽  
Well Being ◽  
Future Research ◽  
Cross Sectional ◽  
The Family ◽  
Spiritual Well Being ◽  
Depression Assessment ◽  
Cross Sectional Design

<p>Stroke is a one of major problem in palliative care. Spiritual and depression assessment of the family is an important element in the process of palliative care for stroke survivors. The purpose of this study was to know the description of the spiritual well-being among stroke family caregiver family and its relationship with depression. This study used cross-sectional design. Spiritual well-being scale (SWBS) was used to see the spiritual well-being of the family and the Center for Epidemiologycal Studies Depression Scale (CES-D) to measure depression and was filled in by 44 Stroke families. The results of the study reported that the spiritual well-being of stroke family caregiver was in the high category and depression in the medium category. There was a relationship between the spiritual well-being of the family and depression in stroke patients (p=0.000). This study suggest a comprehensive assessment of the spiritual well-being and depression in stroke family and the need for future research about family interventions to decrease depression and increase spiritual well-being.</p>

Translation, cultural adaptation, and validation of the mindful self-care scale among Brazilian palliative care providers

2021 ◽  
pp. 1-7
Author(s):  
Ana Cláudia Mesquita Garcia ◽  
Laura Soares Rodrigues Silva ◽  
Ana Cristina Gonçalves Ferreira ◽  
Vander Monteiro da Conceição ◽  
Everson Meireles ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cultural Adaptation ◽  
Self Care ◽  
Well Being ◽  
Future Research ◽  
Care Providers ◽  
Cross Sectional ◽  
Reliability Indices ◽  
Self Compassion ◽  
Hospice And Palliative Care

Abstract Objective This study aimed to translate, culturally adapt, and validate the Mindful Self-Care Scale (MSCS, 33-item) in a Brazilian hospice and palliative care context. Method This was a cross-sectional study with a sample of 336 Brazilian hospice and palliative care providers. The European Organisation for Research and Treatment of Cancer — Quality of Life Group Translation Procedure protocol was used for the translation and the cultural adaptation process. Psychometric properties supporting the use of the MSCS were examined through confirmatory factor analysis (CFA) and correlation analysis with other instruments to assess congruence to related constructs (resilience and self-compassion). The reliability of the Brazilian-Portuguese version of the MSCS was assessed using Cronbach's α and composite reliability coefficients. Results The six-factor (33-item) model showed a good fit to the data, with satisfactory reliability indices and adequate representation of the scale's internal structure. Further validity is evidenced in the significant, positive correlations found between the MSCS, and similar well-being constructs, namely the Self-Compassion and Resilience scales. Significance of results The findings reveal that the MSCS (33-item) is a valid, reliable, and culturally appropriate instrument to examine the practice of mindful self-care by hospice and palliative care providers in Brazil. More broadly, it represents a promising instrument for future research into self-care practices and well-being among Brazilian healthcare providers.

The Short Demoralization Scale (SDS): A new tool to appraise demoralization in palliative care patients

2017 ◽  
Vol 15 (5) ◽  
pp. 516-523 ◽  
Author(s):  
Laura Galiana ◽  
David Rudilla ◽  
Amparo Oliver ◽  
Pilar Barreto
Keyword(s):  
Palliative Care ◽  
Depression Scale ◽  
Cost Effective ◽  
Assessment Tools ◽  
Cross Sectional ◽  
Brief Assessment ◽  
Palliative Care Setting ◽  
Cross Sectional Design ◽  
The One ◽  
Demoralization Scale

ABSTRACTObjective:The Demoralization Scale (DS) is the most widely used measure for assessing demoralization. Following the recent clamor for brief assessment tools, and taking into account that demoralization has proved to be a symptom that needs to be controlled and treated in the palliative care setting, a shorter scale is needed. The aim of the present research is to introduce and evaluate the Short Demoralization Scale (SDS).Method:We employed a cross-sectional design that included a survey of 226 Spanish palliative care patients from the Hospital General Universitario de Valencia. We employed the SDS, the DS, and the Hospital Anxiety and Depression Scale (HADS).Results:The confirmatory factor analysis supported the one-factor structure of the SDS (χ2(5) = 12.915; p = 0.024; CFI = 0.999; RMSEA = 0.084; CI95% = [0.028, 0.141]). The reliability was found to be appropriate, with a value of Cronbach's alpha (α) equal to 0.920. A cutoff criterion of 10 was established, which favored the interpretability of the instrument.Significance of results:The SDS corrects previous limitations, has a simple scoring system, is cost-effective, and is widely and fully available. In addition, our findings demonstrate that the SDS can be employed effectively in the clinical context.

scholarly journals Attitudes and Associated Factors towards Care for Dying Patients among Non-Palliative Care Nurses, Yogyakarta, Indonesia

2021 ◽  
Vol 5 (1) ◽  
pp. 9-16
Author(s):  
Titih Huriah ◽  
Nurul Hidayah ◽  
Akichika Mikami
Keyword(s):  
Palliative Care ◽  
Informal Education ◽  
Death And Dying ◽  
Terminally Ill ◽  
Chi Square ◽  
Cross Sectional ◽  
Dying Patients ◽  
Demographic Questionnaire ◽  
The Family ◽  
Cross Sectional Design

Background: The increment of terminal health problems causes the demand for palliative care to increase. Nurses’ attitudes toward palliative care have critical implications on the quality of care for terminally ill patients. This study aimed to investigate non-palliative care nurses’ attitudes towards death and dying patients in palliative care in Indonesia.Method: A cross-sectional design was performed in four general hospitals, five primary health centers, and three nursing homes in Yogyakarta. Systematic random sampling was the method employed. The research instrument used Frommelt Attitudes towards Care of the Dying (FATCOD). FATCOD is a 30-item tool using a five-point Likert scale to indicate respondents' attitudes toward caring for dying patients. Attitudes had two categories, namely favorable (≥ mean score of the total score of (FATCOD) Scale) and unfavorable ( mean score of the total score of (FATCOD) Scale). Two hundred seventeen (217) non-palliative care nurses completed the FATCOD and a ten-item demographic questionnaire. The data analysis used descriptive statistics, chi-square, and linear regression.Results: The total FATCOD score achieved in this study was 111.29±9.44 (range 30–150). Concerning nurses’ attitudes towards the family members of terminally ill dying patients, the score was 39.85 (±4.12) out of a possible 50. Besides attitudes towards patient care provision, the score was 71.43 (±6.39) out of a possible 100. The nurses' attitudes towards the dying patients showed that the favorable and unfavorable attitudes had almost the same percentage. Of significance, working experience variables were associated with attitudes in the total FATCOD and patient FATCOD. Working experience and level of education were related to attitudes towards the family FATCOD.Conclusion: Non-palliative care nurses had a favorable attitude towards palliative care. The ministry of health should give awareness by providing various training, workshop, formal and informal education about PC for nurses.

Correlates of the positive psychological byproducts of cancer: Role of family caregivers and informational support

2017 ◽  
Vol 15 (6) ◽  
pp. 693-703 ◽  
Author(s):  
Kristin Litzelman ◽  
Danielle Blanch-Hartigan ◽  
Chun Cheih Lin ◽  
Xuesong Han
Keyword(s):  
Cancer Survivors ◽  
Family Caregiver ◽  
Healthcare Providers ◽  
Well Being ◽  
Cross Sectional Study ◽  
Future Research ◽  
Informational Support ◽  
Cross Sectional ◽  
Life Threatening Illness ◽  
Independent Association

ABSTRACTObjective:Experiencing a life-threatening illness such as cancer can elicit both negative (e.g., distress) and positive (e.g., growth) psychological responses. The present study sought to determine the correlates of four positive psychological byproducts in cancer survivors: becoming a stronger person, coping better with life's challenges, making positive changes in life, and adopting healthier habits.Method:Data for this cross-sectional study were taken from the Medical Expenditures Panel Survey (MEPS) Experiences with Cancer Survivorship Supplement (Yabroff et al., 2012). Cancer survivors (N = 785) reported their sociodemographic and cancer-related characteristics. Descriptive statistics were utilized to summarize cancer survivor characteristics, including demographic factors, cancer factors, and stressors and resources related to cancer. Multivariable logistic regressions were employed to assess the independent association of the stressors and resources with each psychological response, controlling for covariates. All analyses were weighted to account for the complex sampling design of the MEPS.Results:In multivariable analyses, those with a family caregiver were 50% more likely to report better coping with challenges, and around 70% were more likely to report making positive changes in life or adopting healthier habits because of their cancer. Receiving informational support from healthcare providers was also consistently associated with positive byproducts (odds ratios ranging from 1.6 to 2.0). Few of the stressors were associated with positive byproducts: having insurance problems due to cancer was positively associated with becoming a stronger person, and work limitations were associated with making positive changes in life; those who reported high perceived chances of recurrence were less likely to report becoming a stronger person.Significance of Results:Having a family caregiver and receiving detailed informational support from healthcare providers were associated with reporting positive experiences with cancer. The hypotheses and future research stimulated by these findings may improve our understanding of the process by which positive byproducts develop and may ultimately help improve psychological well-being among cancer survivors.

scholarly journals Sadness and Other Health Complaints among Swedish Adolescents: A Cross-Sectional Study

2021 ◽  
Vol 18 (8) ◽  
pp. 3999
Author(s):  
Tide Garnow ◽  
Eva-Lena Einberg ◽  
Anna-Karin Edberg ◽  
Pernilla Garmy
Keyword(s):  
Well Being ◽  
Cross Sectional Study ◽  
The Body ◽  
Public Health Issue ◽  
Future Research ◽  
Health Complaints ◽  
Global Public Health ◽  
Cross Sectional ◽  
Cross Sectional Design ◽  
The Relationship

Health complaints are increasing among adolescents and are recognized as a global public health issue. Health complaints are an indicator for subjective ill-being, but little is known about the relationship between sadness and other health complaints. The aim of this study was to investigate sadness and other health complaints among Swedish adolescents. A survey with a cross-sectional design was completed by adolescents (n = 1489, 15–17 years old) in the south of Sweden. A logistic regression analysis was used to analyze the relationship between sadness and other health complaints. The result show that sadness and other health complaints were common among adolescents, and sadness was related to health complaints (headache (OR: 1.58), sleeping difficulties (OR: 2.00), reduced appetite (OR: 1.43), tension (OR: 2.44), and concentration difficulties (OR: 2.75)). When adolescents express sadness or other health complaints it is important to reflect on what these complaints are an expression of, and take into account the body as physical and psychological intertwined. This might entail person-centered support that hopefully leads to an improvement in adolescents’ well-being. Future research that profoundly highlights adolescents’ existential health is needed.

scholarly journals Kesejahteraan Spiritual Dan Depresi Pada Keluarga Pasien Yang Dirawat Di Ruang ICU RSUD Banyumas

2021 ◽  
Vol 6 (2) ◽  
pp. 112
Author(s):  
Agus Subarkah ◽  
Nur Isnaini
Keyword(s):  
Pearson Correlation ◽  
Sampling Technique ◽  
Well Being ◽  
Correlation Study ◽  
P Value ◽  
Cross Sectional ◽  
Spiritual Well Being ◽  
Pearson Correlation Test ◽  
Cross Sectional Design ◽  
The Relationship

The Intensive Care Unit (ICU) is one of the inpatient rooms in a hospital the purpose of observing, treating and treating patients who are in danger of life due to organ failure. Changes that occur in patients can cause pressure and become a burden for the family as caregivers and can have an impact on family psychology such as depression. The purpose of this study was to determine the relationship between spiritual well-being and depression in the families of patients who were treated in the ICU Banyumas Hospital. This study is a correlation study with a cross sectional design. The sample in this study were the families of patients who were treated at the ICU at Banyumas Hospital as many as 32 respondents with purposive sampling technique. The analysis in this study used the Pearson correlation test. The results showed that there was no relationship between spiritual well-being and depression in the families of patients treated in the ICU room at Banyumas Hospital (p value 0.088 < 0.05). The better the spiritual welfare of the patient's family, the less the risk of experiencing depression when the patient is admitted to the ICU. Keywords: spiritual well-being, depression, ICU

scholarly journals Remote Proctored Exam for Proficiency-Testing: A Cross-Sectional Study

2021 ◽  
Author(s):  
Vasiliki Andreou ◽  
Sanne Peters ◽  
Jan Eggermont ◽  
Johan Wens ◽  
Birgitte Schoenmakers
Keyword(s):  
Cost Benefit ◽  
Well Being ◽  
Cross Sectional Study ◽  
Future Research ◽  
Assessment Practice ◽  
Cross Sectional ◽  
Live Supervision ◽  
Two Factors ◽  
Post Test ◽  
Cross Sectional Design

Abstract Background: The COVID-19 pandemic has profoundly affected assessment practice in higher education including a complex planning of supervision. To organise safely and reliably a remote proficiency-test for admission to the Advanced Master of General Practice (AMGP), we developed a supervisor app tracking and tracing candidates’ behaviour. Methods: A cross-sectional design was adopted with candidates applying for admission to the AMGP. The supervisor app operated on three levels to register events: recording actions, analysing behaviour, and live supervision. Each suspicious event was given a score. The outcome measures were the number of suspicious events and the exam outcome compared to the past year. To get more insight into candidates’ perceptions about the app, a post-test questionnaire was administered. An exploratory factor analysis was performed to explore quantitative data, while qualitative data were thematically analysed. Results: In total, 472 (79%) candidates used the app in an off campus setting and 121 (20%) were on campus with live supervision. Test results of both groups were comparable. The app detected 22 candidates with a suspicious level >1, mainly due to background noise. All events occurred without fraud purpose. Out of 472 candidates, 304 filled in the post-test questionnaire. Two factors were extracted from the analysis and identified as candidates’ appreciation of the app and as emotional distress because of the app. Four themes were identified in the thematic analysis providing more insight on candidates’ emotional well-being. Conclusions: A supervisor app registering and recording behaviour to prevent fraud during off-campus exams is efficient without influencing the exam outcome. Although candidates’ perceptions were mixed, increased anxiety was due to the lack of clear guidelines about the app. Future research should compare in a controlled design the cost-benefit balance between the supervisor app and candidates’ awareness of being monitored combined with a safe exam browsing plug in.

scholarly journals Informal and formal care among persons with dementia immediately before nursing home admission

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Arnt Egil Ydstebø ◽  
Jurate Šaltytė Benth ◽  
Sverre Bergh ◽  
Geir Selbæk ◽  
Corinna Vossius
Keyword(s):  
Nursing Home ◽  
Social Network ◽  
Informal Care ◽  
Family Caregiver ◽  
Cross Sectional Study ◽  
Nursing Home Admission ◽  
Future Research ◽  
Formal Care ◽  
Cross Sectional ◽  
The Family

Abstract Background Dementia is a care intensive disease, especially in the later stages, implying in many cases a substantial carer burden. This study assesses the use of formal and informal care resources among persons with dementia during the last month before nursing home admission. It also describes main providers of informal care and assesses the extent of informal care rendered by the extended social network. Methods In this cross-sectional study, we collected data about persons with dementia that were newly admitted to a nursing home in Norway. Information about the amount of formal and informal care during the last 4 weeks preceding nursing home admission was collected from the primary caregivers. Clinical data were collected by examining the patients, while sociodemographic data was collected from the patients’ files. Results A total of 395 persons with dementia were included. The amount of informal care provided by the family caregiver was 141.9 h per month SD = 227.4. Co-resident patients received five times more informal care than non-co-residents. Informal care from the extended social network was provided to 212 patients (53.7%) with a mean of 5.6 (SD = 11.2) hours per month and represented 3.8% of the total informal care rendered to the patients. Formal care was provided to 52.7% of the patients with a mean of 18.0 (SD = 50.1) hours per month. Co-residency was significantly associated with more informal care, and the associations varied with respect to age, relation to the caregiver, and the caregiver’s working situation. Good/excellent general health was associated with less formal care. Conclusion Persons with dementia on the verge of admission to a nursing home are mainly supported by the family caregiver, and the use of informal care is particularly high among co-residents. In order to delay nursing home admission, future research should explore the unrealized care potential in extended social networks, as well as the potential for increasing the number of recipients of formal care services.

scholarly journals Do Chronic Pain Patients Wish Spiritual Aspects to Be Integrated in Their Medical Treatment? A Cross-Sectional Study of Multiple Facilities

2021 ◽  
Vol 12 ◽  
Author(s):  
Karin Hasenfratz ◽  
Hanspeter Moergeli ◽  
Haiko Sprott ◽  
André Ljutow ◽  
René Hefti ◽  
...  
Keyword(s):  
Chronic Pain ◽  
Depression Scale ◽  
Well Being ◽  
Cross Sectional Study ◽  
Patient Centered ◽  
Cross Sectional ◽  
Chronic Pain Patients ◽  
Spiritual Well Being ◽  
Spiritual Resources ◽  
Pain Patients

Background: Chronic pain is a complex, multidimensional experience. Spirituality is hypothesized to impact pain experience in various ways. Nevertheless, the role that spirituality plays in multimodal pain therapy remains controversial and, to date, quantitative data on whether and for which patients spiritual aspects should be considered in the treatment of chronic pain is lacking. The aim of this study was thus to investigate the proportion and characteristics of patients with chronic pain who wish spiritual aspects to be integrated in their treatment.Methods: Two hundred nine patients with chronic pain were recruited from five inpatient departments and outpatient clinics in the German-speaking part of Switzerland. Patients filled out validated questionnaires, such as the Hospital Anxiety and Depression Scale (HADS), the Resilience Scale (RS-11), the Spiritual and Religious Attitudes in Dealing with Illness (SpREUK), and the 12-item Spiritual Well-Being Scale (FACIT-Sp-12).Results: More than 60% (CI95%: 55.5–67.9%) of the patients wanted to address spiritual aspects in their treatment. These patients were significantly younger, had higher levels of education, and suffered from more frequent and more severe pain than patients who did not wish to address spiritual aspects. Furthermore, there were high correlations with existing spiritual resources and higher scores of spirituality.Conclusions: These results confirm that the majority of chronic pain patients wish spiritual aspects to be considered in their treatment. Additionally, the finding that these patients had more spiritual resources underlines the importance of integrating spiritual aspects in a resource-oriented, patient-centered care approach for this condition.

Spirituality, Spiritual Well-Being, and Spiritual Coping in Advanced Heart Failure: Review of the Literature

2018 ◽  
Vol 37 (1) ◽  
pp. 56-73 ◽  
Author(s):  
Clayton C. Clark ◽  
Jennifer Hunter
Keyword(s):  
Heart Failure ◽  
Palliative Care ◽  
Spiritual Care ◽  
Theoretical Models ◽  
Well Being ◽  
Spiritual Coping ◽  
Future Research ◽  
Review Of The Literature ◽  
Qualitative Approaches ◽  
Spiritual Well Being

Heart failure is a chronic and terminal disease that affects a significant portion of the U.S. population. It is marked by considerable suffering, for which palliative care has been recommended. Palliative care standards require the inclusion of spiritual care, but there is a paucity of literature supporting effective spiritual interventions for the heart failure population. A literature search resulted in 30 articles meeting the criteria for review of spirituality and spiritual coping in the heart failure population. Findings within this body of literature include descriptive evidence of the uniqueness of spirituality in this population, quantitative and qualitative approaches to inquiry, theoretical models of spiritual coping, and proposed interventions. The article concludes with implications for future research and practice.

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