Health and quality of life in patients with primary and secondary lymphedema of the lower extremity

VASA ◽  
2015 ◽  
Vol 44 (2) ◽  
pp. 129-137 ◽  
Author(s):  
Kai Huggenberger ◽  
Stephan Wagner ◽  
Susanne Lehmann ◽  
André Aeschlimann ◽  
Beatrice Amann-Vesti ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Population Based ◽  
Cross Sectional Study ◽  
Normative Values ◽  
Negative Effects ◽  
Cross Sectional ◽  
Secondary Lymphedema ◽  
Sf 36

Background: Little is known about comprehensively measured health and quality of life of lower limb lymphedema (LLL). The aim of this study was to determine health and quality of life of LLL patients stratified by primary and secondary lymphedema compared to a normative population-based data stratified by age, sex and comorbidity. Patients and methods: A cross-sectional study of patients after treatment at the department of angiology of a rehabilitation clinic was conducted. Self-assessment was performed by the Short Form 36 (SF-36) and two condition-specific measures. Results: Primary LLL (n = 52) 75 % female, mean age 47.1 years) reported health comparable to normative values, e. g. SF-36 physical functioning 80.4 (norm 84.1, p = 0.512) and SF-36 vitality 62.7 (59.7, p = 0.117) (mean scores, 100 = best). Secondary LLL (n = 60, 68 % female, mean age 60.6 years) scored 68.1 (73.9, p = 0.049) and 55.2 (56.2, p = 0.800) on the corresponding scales. Mean symptoms and function scores on the specific measures ranged from 70.0 to 83.1 for primary LLL (100 = best) and from 63.3 to 80.6 for secondary LLL. Function, vitality and both SF-36 role dimensions were higher in primary LLL than in secondary LLL, (mean SF-36 vitality 62.7 versus 55.2, p = 0.035). Conclusions: Overall health and quality of life was high and comparable to the general population norms in primary LLL. The same was true for most psycho-social scales in secondary LLL whereas functionally some deficits were recorded. Cancer as the most frequent cause for secondary LLL may affect health in these dimensions. Reported negative effects of LLL seem to be well compensated, especially in primary LLL and under optimal treatment.

scholarly journals Quality of Life among Patients with Glaucoma in Gaza Governorates

2020 ◽  
Vol 28 (1) ◽  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Bodily Pain ◽  
Cross Sectional Study ◽  
Negative Effects ◽  
Cross Sectional ◽  
Sf 36 ◽  
Medium Level ◽  
Ophthalmic Hospital

Background: Glaucoma is the second leading cause of blindness worldwide. Quality of Life (QOL) has emerged as an important parameter for assessing the quality of health care of patients with Glaucoma disease. This study assessed QOL among Glaucoma patients in Gaza Governorates and the factors influencing their life conditions. Methods: This is a descriptive, analytical, cross-sectional study included 265 eligible glaucoma patients from Al Nasser Ophthalmic Hospital and European Gaza Hospital. Socio-demographic and disease-related characteristics in addition to QOL data were collected using the Glaucoma Quality of Life-15 (GQL-15) and Short-Form 36 Health Survey (SF-36) questionnaires. Results: Study participants had a medium level of QOL scores. The mean score for GQL-15 was 59.2 ± 17.6. The greatest difficulty was in activities involving glare and dark adaptation (48.5±18.0), while least difficulty for outdoor mobility (66.6±25.4). The overall mean percentage of SF-36 domain scores was 61.7±13.5. The bodily pain domain got the highest score (79.4); the social function domain was (72.22); and the lowest domain was General Health (48.58). Findings also showed that participants without ocular diseases and comorbidities had better QOL. Moreover, patients with higher educational level, higher income and disease duration less than 5 years had better QOL scores. Conclusion: Glaucoma has moderately negative effects on people’s ability to function independently in every field of their lives. Glaucoma patients should be educated to understand the prognosis of the disease and importance of the adherence to the daily treatment to improve their QOL.

scholarly journals Predictors of quality of life among patients on dialysis in southern Brazil

2008 ◽  
Vol 126 (5) ◽  
pp. 252-256 ◽  
Author(s):  
Maristela Bohlke ◽  
Diego Leite Nunes ◽  
Stela Scaglioni Marini ◽  
Cleison Kitamura ◽  
Marcia Andrade ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Peritoneal Dialysis ◽  
Short Form ◽  
Outcome Measurement ◽  
Cross Sectional Study ◽  
Southern Brazil ◽  
Cross Sectional ◽  
Sf 36 ◽  
Dialysis Facilities

CONTEXT AND OBJECTIVE: Quality of life (QoL) is considered important as an outcome measurement, especially for long-term diseases such as chronic renal failure. The present study searched for predictors of QoL in a sample of patients undergoing dialysis in southern Brazil. DESIGN AND SETTING: This was a cross-sectional study developed in three southern Brazilian dialysis facilities. METHODS: Health-related QoL of patients on hemodialysis or peritoneal dialysis was measured using the generic Short Form-36 (SF-36) health survey questionnaire. The results were correlated with sociodemographic, clinical and laboratory variables. The analysis was adjusted through multiple linear regression. RESULTS: A total of 140 patients were assessed: 94 on hemodialysis and 46 on peritoneal dialysis. The mean age was 54.2 ± 15.4 years, 48% were men and 76% were white. The predictors of higher (better) physical component summary in SF-36 were: younger age (β-0.16; 95% confidence interval, CI: -0.27 to -0.05), shorter time on dialysis (β-0.06; 95% CI: -0.09 to -0.02) and lower Khan comorbidity-age index (β 5.16; 95% CI: 1.7-8.6). The predictors of higher mental component summary were: being employed (β 8.4; 95% CI: 1.7-15.1), being married or having a marriage-like relationship (β 4.56; 95% CI: 0.9-8.2), being on peritoneal dialysis (β 4.9; 95% CI: 0.9-8.8) and not having high blood pressure (β 3.9; 95% CI: 0.3-7.6). CONCLUSIONS: Age, comorbidity and length of time on dialysis were the main predictors of physical QoL, whereas socioeconomic issues especially determined mental QoL.

scholarly journals Assessment of quality of life of stroke survivors in a rural area of North Kerala, India

2017 ◽  
Vol 4 (3) ◽  
pp. 841 ◽  
Author(s):  
Priya Chandran ◽  
Dhanya Shenoy ◽  
Jayakrishnan Thavody ◽  
Lilabi M. P.
Keyword(s):  
Quality Of Life ◽  
Rural Area ◽  
Short Form ◽  
Significant Proportion ◽  
Population Based ◽  
Stroke Survivors ◽  
Cross Sectional ◽  
Sf 36 ◽  
Role Limitation

Background: With increase in prevalence of stroke and life expectancy the quality of life of stroke survivors assumes importance. Despite advances in diagnosis and treatment of cerebrovascular accidents the survivors continue to experience low Quality of life (QoL) especially in developing countries. The objective of this study was to assess the quality of life among stroke survivors and the prevalence of depression among them.  Methods: Cross-sectional population based study was conducted in a rural area of North Kerala. Stoke survivors were interviewed at home to assess the quality of life and depression status. QOL was assessed using the Medical Outcomes 36-Item Short-Form Health Survey (SF-36), functional status using the modified barthel index (MBI), and mood using the Beck’s Depression Inventory (BDI).Results: A total of 40 patients (65.5% men, mean age 70.58±10.7 years) were interviewed.  The mean MBI was 55.25±2.79, and the prevalence of unrecognized depression was 90%. 95 percent of patients needed varying degrees of care for their activities of daily living. The SF-36 scores of the patients were considerably lower than that to that of the general population especially in the areas of role limitation and physical functioning. Depression was more among older subjects and Depressed patients had lower MBI scoresConclusions: A significant proportion of stroke survivors continue to face limitations in their physical activities. In addition, majority have unrecognised depression that affects their QOL adversely.

scholarly journals Comparing the SF-36 and SF-12 in Psychometric Properties as Measuring Quality of Life among Adolescent in China: a Large Sample Cross-sectional Study

2020 ◽  
Author(s):  
Yanwei Lin ◽  
Yulan Yu ◽  
Jiayong Zeng ◽  
Xudong Zhao ◽  
Chonghua Wan
Keyword(s):  
Quality Of Life ◽  
Psychometric Properties ◽  
Item Difficulty ◽  
Short Form ◽  
Pearson Correlation ◽  
Cross Sectional Study ◽  
Load Factor ◽  
Cross Sectional ◽  
Sf 36

Abstract Objective: By comparing psychometric properties of the SF-36 and the SF-12, supplied evidence for the election of instruments of the quality of life (QOL) and decision-making processes to promote the Quality of Life of adolescent. Methods: Stratified cluster random sampling was adopted. The Short-Form 36 (SF-36) was used to assess QOL. Pearson Correlation Coefficient was used to show correlation. Cronbach’s Alpha and Construct Reliability (CR) were used to evaluate reliability of SF-36 and the Short-Form 12 (SF-12), Criterion Validity and Average Variance Extracted (AVE, Convergence Validity) for validity. Confirmatory factor analysis was used to calculate load factor for each item, then obtained CR and AVE. The Semejima grade response model (Logistic two-parameter module) in the item response theory was used to estimate the Item Discrimination, Item Difficulty and Item Average Information of each item. Results: 19,428 samples were included in the study. The mean age was 14.78 years (SD=1.77). High correlations between corresponding domains and components of both scales were found. Reliability of sf-36 each domain was better than that corresponding domain of sf-12. Domains of PF, RP, BP, and GH in SF-36 had good construct reliability (CR,>0.6). The Criterion Validities of SF-36 were little higher in some corresponding dimensions except PCS. Convergence validities of SF-12 were higher than SF-36 in PF, RP, BP and PCS. The items of BP, SF, RP and VT in SF-12 had acceptable discriminations of items and higher than in SF-36. The items Average Amounts of Information of BP, VT, SF, RE and MH in SF-36 and SF-12 were poor. Conclusion: Two components (PCS and MCS) measurements of SF-12 appeared to perform at least as well as the SF-36 in cross-sectional settings in adolescence. Some domains, for instance SF and BP, were suitable for adolescents or not need study further.

scholarly journals Factors associated with quality of life of adult patients with acute leukemia and their family caregivers in China: a cross-sectional study

2020 ◽  
Vol 18 (1) ◽  
Author(s):  
Chunfeng Wang ◽  
Jie Yan ◽  
Jingyi Chen ◽  
Ying Wang ◽  
Ying Chun Lin ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Acute Leukemia ◽  
Family Caregivers ◽  
Short Form ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Factors Associated ◽  
Sf 36

Abstract Background Acute leukemia (AL) not only impairs the quality of life (QOL) of patients, but also affects that of their family caregivers (FCs). Studies on QOL of AL patients and their FCs are limited. This study aimed to evaluate the QOL of AL patients and their FCs, and to explore the factors associated with QOL of patients and of FCs. Methods A multicenter cross-sectional study was conducted. The QOL of 196 patient–FC dyads was assessed. The Functional Assessment of Cancer Therapy-Leukemia (FACT-Leu) was used for patients, and the 36-item Short-Form Health Survey (SF-36) was used for FCs. Independent-samples t-tests or one-way analysis of variance were used to compare QOL subscale scores between groups with different sociodemographic/clinical characteristics. Multiple regression analysis was conducted to identify the factors associated with QOL of AL patients and their FCs. Results The total FACT-Leu score for AL patients was 76.80 ± 16.44, and the physical component summary (PCS) and mental component summary (MCS) scores for FCs were 64.67 ± 15.44 and 52.50 ± 13.49, respectively. All QOL subscales for patients (t = 12.96–34.73, p < 0.001) and FCs (t = 2.55–14.36, p < 0.05), except role emotional (t = − 0.01, p = 0.993), were lower than those reported in previous studies. Sex, employment, and chemotherapy were significantly associated with total FACT-Leu score in AL patients (p < 0.05). Age, sex, marital status, education, employment, and relationship to patients were significantly associated with SF-36 PCS or MCS (p < 0.05). Conclusions AL patients and their FCs both have lower QOL than the population in previous studies. These findings suggest that not only AL patients’ physical and mental health but also overall family QOL should be assessed. Interventions supporting patient–FC dyads should be developed to improve their QOL.

Epidemiological, clinical and endoscopic features of epistaxis severity and quality of life in Hereditary haemorrhagic telangiectasia: a cross-sectional study

2021 ◽  
Vol 0 (0) ◽  
pp. 0-0
Author(s):  
F. Pagella ◽  
E. Maiorano ◽  
S. Ugolini ◽  
R. Lizzio ◽  
F. Sovardi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Univariate Analysis ◽  
Cross Sectional Study ◽  
Hereditary Haemorrhagic Telangiectasia ◽  
Sectional Study ◽  
Clinical Factors ◽  
Cross Sectional ◽  
Sf 36

Background: Epistaxis is the main complaint in patients with Hereditary haemorrhagic telangiectasia (HHT). Even though the role of epistaxis in affecting the quality of life (QoL) is well-known, little is known about epidemiological and clinical factors contributing to epistaxis severity and QoL. Methodology: This is a cross-sectional study, including adult patients with HHT with epistaxis. All patients underwent an otolaryngological evaluation with nasal endoscopy. Epistaxis severity was graded using the FID score, and QoL was evaluated with the Short-Form Health Survey (SF-36). Descriptive statistics were produced for demographic characteristics; the Shapiro-Wilk test was used to test the normal distribution of quantitative variables. Correlation between the quantitative variables was evaluated with Pearson’s correlation coefficient. Both univariate and multivariate linear regression models were fitted to find associations between demographic or clinical factors and the FID score or SF-36. Results: A total of 234 patients with HHT were included in the study. The univariate analysis highlighted the association between high blood pressure, septal perforation, nocturnal epistaxis, surgery, blood transfusion, hormonal therapy and both FID score and QoL. Sex, allergic rhinitis and nasal polyposis were neither related to epistaxis severity nor perceived health. Conclusions: Epistaxis severity and QoL in patients with HHT are influenced by several clinical factors both dependent and independent from HHT. Some of the results are consistent with those already published, but for the first time, we extended the analysis to different clinical parameters, such as endoscopic findings, never assessed before.

scholarly journals Migration, Quality of Life And Health of Brazilian Immigrants in Portugal

10.3823/2428 ◽  
2017 ◽  
Vol 10 ◽  
Author(s):  
Eliany Nazaré Oliveira ◽  
Francisco Rosemiro Guimarães Ximenes Neto ◽  
Paulo César De Almeida ◽  
Félix Neto
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Cross Sectional Study ◽  
Emigrants And Immigrants ◽  
Medical Outcomes ◽  
Cross Sectional ◽  
Sf 36 ◽  
Brazilian Immigrants ◽  
Number Of Individuals

Background: Immigrants face many challenges when settling in a foreign country, numerous factors influence this immigrant experience including the resources they bring with them and those they find in the host society. The literature has indicated that a significant number of individuals migrate in search of a better quality of life. In this context, the objective of the study was to analyze the quality of life and health of Brazilian immigrants living in Portugal, using the "Medical Outcomes Study: 36-Item Short Form Survey" (SF-36). Methods and Results: A cross-sectional study with a quantitative approach developed under the project titled: Health status and quality of life of Brazilian immigrants in Portugal conducted in the first half of 2016, with 682 Brazilian immigrant women over 18 living in Portugal. This study adopted as reference SF-36, a generic instrument for the evaluation of Quality of Life. It can be affirmed that the quality of life and health of Brazilian immigrants living in Portugal is good, since all dimensions presented values above 50%. It was evidenced that Brazilian immigrants who live alone have lower levels of quality of life and health than those who live with someone and, that Brazilian immigrants who are unemployed, have low levels of quality of life and health compared to those who are in another employment situation, and Brazilian immigrants entering the labor market with a workload of more than 40 hours per week present similar levels of quality of life and health compared to those who work fewer hours. Conclusion: In general, one can affirm that the quality of life and health of Brazilian immigrants living in Portugal is good, but due to the particularities of the migration process in the current political and international context, a systematic monitoring of living conditions and health of this population is necessary. Keywords: Emigrants and Immigrants; Quality of life; Women, Mental health  

scholarly journals The impact of tendonitis and RSI/WMSD on HRQoL according to gender: a population based study

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
D B O Souza ◽  
L P Barbosa ◽  
P A Santini ◽  
M B A Barros ◽  
M G Lima
Keyword(s):  
Quality Of Life ◽  
Adult Population ◽  
Population Based ◽  
Cross Sectional Study ◽  
Occupational Activity ◽  
Cross Sectional ◽  
Men And Women ◽  
Sf 36 ◽  
The Impact

Abstract Background Repetitive Strain Injury (RSI)/Work-related Musculoskeletal Disorders (WMSD) and tendonitis are considered a serious problem in the area of Occupational Health. The present study aims to estimate the prevalence of these disorders on the adult population of a metropolis in the state of São Paulo and to analyze their impact on Health-Related Quality of Life (HRQoL), according to gender. Methods A population-based cross-sectional study was conducted using data from the “Campinas City Health Survey (ISACamp 2014/15)”. The sample consisted of 2,166 individuals aged 18 years or older and the SF-36 instrument was used for HRQoL analysis. The association between the variables was verified by the chi-square test and the Poisson simple and multiple regression models were used to estimate the prevalence ratios (PR). In HRQoL estimates, the average SF-36 scores were calculated according to the independent variables. Results The prevalence of tendonitis and RSI/WMSD was 8.5%, with 6.7% tendonitis and 2.7% RSI/WMSD. The prevalence was higher among women (11%; 1.34-2.56), on individuals aged between 40-59 years (PR = 3.63; 2.28-5.80), who were on occupational activity (PR = 2.04; 1.12-3.68) or on work leave (PR = 7.07; 2.77-18.03) and on the most educated (PR = 2.45; 1.28-4.70). Subjects with these morbidities decreased in 6 of the 8 HRQoL domains and on stratification by gender, we observed that women had greater decreases in mental component scores in the presence of RSI/WMSD and men in physical component (p &lt; 0.05). Conclusions The diseases analyzed can affect men and women differently, and it is essential to consider the peculiarity of the impact between the sexes in the elaboration of interventions and preventive measures aimed at improving the quality of life. Key messages No population-based studies were found that assess the impact of RSI/WMSD on HRQoL, according to gender differences, showing the relevance of this study. It is very important to understand how these diseases affect men and women differently so that specific and more effective preventive and rehabilitative measures can be carried out.

scholarly journals QUALITY OF LIFE AFTER PRIMARY PCI IN PAKISTANI POPULATION – DOES IT REALLY CHANGE?

2021 ◽  
Vol 54 (3) ◽  
pp. 224-229
Author(s):  
Rajesh Kumar ◽  
Ali Ammar ◽  
Jehangir Ali Shah ◽  
Tahir Saghir ◽  
Ashok Kumar ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Tertiary Care ◽  
Bodily Pain ◽  
Coronary Intervention ◽  
Cross Sectional Study ◽  
Care Hospital ◽  
Cross Sectional ◽  
Sf 36

Objectives: To evaluate the quality of life (QOL) after percutaneous coronary intervention (PCI) using short-form health survey (SF-36) questionnaire at a tertiary care hospital in Pakistan. Methodology: It was a cross-sectional study conducted at a tertiary care cardiac center in Pakistan. A total of 433 adult patients who undergone PCI at least six months before were included. The QOL was assessed using Urdu translated version of SF-36 questionnaire. QOL scores were computed on eight domains role physical (RP), role emotional (RE), bodily pain (BP), physical function (PF), mental health (MH), vitality, general health perception (GHP), and social function (SF) along with two summary scores for mental (MCS) and physical component (PPS). Results: The highest mean score was reported for BP (73.8±19.7) followed by PF (61.7±24.3). In comparison to a year before, 52.9% and 24.7% rated their QOL somewhat better and much better respectively. Score for PF, RE, and RF were significantly higher in male, while, vitality was higher for female. Score of PPS was significantly higher for male whereas MCS score was higher for female. An increasing trend, with respect to patients’ perception of QOL compared to an year ago, was observed on five out of eight domains namely GHP, PF, RP, RE, and BP. Conclusion: Improved QOL, compared to a year ago, is reported by most of the patients. An acceptable (>50) mean score was observed on most of the QOL domains of SF-36 and it was found to be positively related to the patient stated degrees of QOL.

scholarly journals Patients with surgically cured primary hyperparathyroidism have a reduced quality of life compared with population-based healthy sex-, age-, and season-matched controls

2011 ◽  
Vol 165 (5) ◽  
pp. 753-760 ◽  
Author(s):  
Anne Kristine Amstrup ◽  
Lars Rejnmark ◽  
Leif Mosekilde
Keyword(s):  
Quality Of Life ◽  
Primary Hyperparathyroidism ◽  
Short Form ◽  
Well Being ◽  
Population Based ◽  
Cross Sectional Study ◽  
Healthy Controls ◽  
Physical And Mental Health ◽  
Cross Sectional

ObjectivePrimary hyperparathyroidism (PHPT) is associated with feelings of fatigue and depression, as well as limitation to physical and mental functioning. These quality of life (QoL) characteristics improve after parathyroidectomy. However, whether former patients fully regain QoL compared with healthy controls is largely unknown.Design and patientsCross-sectional study. Fifty-one former PHPT patients, successfully treated by surgery (mean time since parathyroidectomy 7.4 (range 5–15) years), and 51 sex- and age-matched healthy controls.MethodsThe 36-item Short-Form Health Survey version 2 and the WHO-Five Well-being Index. The surveys included questions on overall physical and mental health, functioning, and limitation in daily life activities.ResultsFormer patients scored significantly lower compared with controls in physical functioning (P=0.01), role limitation caused by emotional problems (P=0.01), vitality (P<0.001), and general health (P=0.01). Compared with the controls, cases had a lower median (interquartile range) score of physical component summary (PCS; 54.9 (47.9–58.7) vs 49.6 (45.2–55.9),P=0.03) and mental component summary (MCS; 55.4 (49.7–58.1) vs 52.5 (44.7–55.5),P=0.04). There was no association between time since operation and PCS or MCS. Compared with controls, cases had higher body mass index (BMI; 26.0±4.7 vs 28.8±6.0 kg/m2,P<0.001) and a higher frequency of cardiovascular diseases (CVD; 41.2 vs 62.7%,P=0.03). After adjustment for differences in BMI and CVD, PCS did no longer differ between groups. However, adjustments did not change the finding of a lower MCS in cases compared with controls.ConclusionEven though QoL may improve substantially after surgery, former PHPT patients still have reduced QoL compared with healthy controls.

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