A Questionnaire for Parents of Children Who Stutter Attending a Self-Help Convention

2015 ◽  
Vol 25 (1) ◽  
pp. 10-21
Author(s):  
Joseph F. Klein ◽  
Eric S. Jackson ◽  
Lee Caggiano
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Likert Scale ◽  
Annual Convention ◽  
Demographic Information ◽  
Self Help ◽  
The Impact

Purpose To examine the attitudes and feelings of parents of children who stutter attending an annual convention for children who stutter. Method A survey consisting of demographic information, 30 questions regarding parents' feelings and attitudes using a 5-point Likert scale, and 3 open-ended questions was created by the authors and completed by 45 parents of children who stutter attending a convention for children who stutter. Results Parents attending the support group convention were comfortable with and knowledgeable about stuttering. Parents reported that they attended the convention to support their children and themselves and to gain information regarding stuttering. Parents were most concerned that stuttering would impact their children's future and hoped that their children would become happy, confident, and effective communicators. New attendees were less comfortable answering a question regarding the cause of stuttering than were returning parents, and fathers were less likely than mothers to work on therapy homework with their child. Conclusions This is the first study of parents who attend stuttering support groups. The results indicated these parents were comfortable and knowledgeable about stuttering. More research regarding feelings and attitudes of parents of children who stutter, and the impact of support groups on parents, is needed.

Group Experiences and Individual Differences in Stuttering

2019 ◽  
Vol 62 (12) ◽  
pp. 4335-4350 ◽  
Author(s):  
Seth E. Tichenor ◽  
J. Scott Yaruss
Keyword(s):  
Individual Differences ◽  
Support Groups ◽  
Support Group ◽  
Affective States ◽  
Life Outcomes ◽  
Self Help ◽  
Wide Range ◽  
Group Experiences ◽  
History Of ◽  
Adults Who Stutter

Purpose This study explored group experiences and individual differences in the behaviors, thoughts, and feelings perceived by adults who stutter. Respondents' goals when speaking and prior participation in self-help/support groups were used to predict individual differences in reported behaviors, thoughts, and feelings. Method In this study, 502 adults who stutter completed a survey examining their behaviors, thoughts, and feelings in and around moments of stuttering. Data were analyzed to determine distributions of group and individual experiences. Results Speakers reported experiencing a wide range of both overt behaviors (e.g., repetitions) and covert behaviors (e.g., remaining silent, choosing not to speak). Having the goal of not stuttering when speaking was significantly associated with more covert behaviors and more negative cognitive and affective states, whereas a history of self-help/support group participation was significantly associated with a decreased probability of these behaviors and states. Conclusion Data from this survey suggest that participating in self-help/support groups and having a goal of communicating freely (as opposed to trying not to stutter) are associated with less negative life outcomes due to stuttering. Results further indicate that the behaviors, thoughts, and experiences most commonly reported by speakers may not be those that are most readily observed by listeners.

Stuttering-Related Podcasts: Audio-Based Self-Help for People Who Stutter

2020 ◽  
Vol 5 (5) ◽  
pp. 1131-1138
Author(s):  
Lauren E. Dignazio ◽  
Megan M. Kenny ◽  
Erik X. Raj ◽  
Kyle D. Pelkey
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Online Survey ◽  
Multiple Choice ◽  
Speech Language Pathologists ◽  
Group Leaders ◽  
Self Help ◽  
Group Members

Purpose It is known that people who stutter (PWS) benefit from self-help experiences, such as attending support groups or conferences. However, limited research has been done to explore the listening of stuttering-related podcasts as a form of self-help for PWS. This study seeks to understand the reasons why PWS listen to stuttering-related podcasts and provide descriptions of their listening experiences. Method Thirty-three PWS who have listened to stuttering-related podcasts were recruited to participate in an online survey that included multiple-choice and open-ended questions. Responses were analyzed and grouped into descriptive themes. Results Participants reported listening to stuttering-related podcasts as a way to gain information and perspective. They also reported experiences that fit themes of empowerment and camaraderie, as a result of listening. Conclusions Stuttering-related podcasts seem to be a positive self-help tool for PWS. Stuttering support group leaders and/or speech-language pathologists may consider introducing their group members or clients who stutter to this type of audio-based self-help experience.

scholarly journals Delivering an efficient and effective support group for patients with implantable cardioverter-defibrillators (ICDs): patient perspectives of key concerns and predictors of inclination to attend

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Kathryn Murray ◽  
Kelly Buttigieg ◽  
Michelle Todd ◽  
Vicky McKechnie
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Qualitative Data ◽  
Implantable Cardioverter Defibrillators ◽  
Cardioverter Defibrillator ◽  
And Coping ◽  
Patients Experience ◽  
The Impact ◽  
Cardioverter Defibrillators ◽  
Patient Concerns

Abstract Background A subset of patients experience psychological distress following insertion of an implantable cardioverter-defibrillator (ICD) and ICD support groups are recommended, however access to these groups is limited. This study aimed: to gauge a better understanding of patients’ key ICD-related concerns; to determine patient interest in a support group and topics deemed helpful to address in a support group; and to examine factors which affect patient inclination to attend. Methods One hundred and thirty nine patients completed the ICD Patient Concerns Questionnaire – Brief (ICDC-B) and a semi-structured survey. Non-parametric tests were used to examine associations and differences in the quantitative data. Qualitative data were analysed using thematic analysis. Results 42% of respondents said they would attend a support group and inclination to attend was associated with higher ICD concerns and a shorter time since implant. Topics considered important to address in a group were information about heart conditions and devices, the impact of an ICD on daily life and coping with fear of shocks. Conclusion We concluded that there is interest in further support amongst many patients and that ICD support groups may be delivered efficiently by targeting patients who have higher levels of ICD concerns and within the first few years after implant.

scholarly journals An evaluation of Cognitive Stimulation Therapy sessions for people with dementia and a concomitant support group for their carers

Dementia ◽  
2016 ◽  
Vol 16 (8) ◽  
pp. 985-1003 ◽  
Author(s):  
Jan Bailey ◽  
Paul Kingston ◽  
Simon Alford ◽  
Louise Taylor ◽  
Edward Tolhurst
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Qualitative Data ◽  
Cognitive Stimulation ◽  
Structured Interviews ◽  
Post Intervention ◽  
Cognitive Stimulation Therapy ◽  
People With Dementia ◽  
Quasi Experimental ◽  
The Impact

This research aimed to ascertain the impact of a pragmatic Cognitive Stimulation Therapy course of 10 sessions on the cognitive function of people living with dementia and whether attending a concomitant carers support group was beneficial to carers. A mixed method quasi-experimental approach was adopted; data were collected pre- and post-intervention. The quantitative arm utilised three validated questionnaires rated by the carers. Qualitative data were collected via semi-structured interviews with carers regarding their perceptions of the impact of Cognitive Stimulation Therapy and the carers support group. Quantitative data analysis found no statistically significant differences within or between groups. The qualitative data demonstrated that carers perceived Cognitive Stimulation Therapy had some benefits for the people living with dementia, especially social benefits. Carers also perceived that attending the carers support group was beneficial for them in terms of gaining a better understanding of dementia, developing coping skills and having peer support. The study was limited in scale and further research with a larger sample, using direct measures of the impact of Cognitive Stimulation Therapy with people living with dementia and supplementary research exploring which characteristic of carers support groups are effective would be worthwhile.

Effects of Support Groups on Post Traumatic Stress Responses in Women Experiencing Stillbirth

2007 ◽  
Vol 55 (1) ◽  
pp. 71-90 ◽  
Author(s):  
Joanne Cacciatore
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Stress Responses ◽  
Traumatic Stress ◽  
Post Traumatic Stress ◽  
Impact Of Event Scale ◽  
Event Scale ◽  
Quantitative Results ◽  
Post Traumatic ◽  
The Impact

This research study explores the effects of support groups on traumatic stress responses of women experiencing stillbirth. Women ( N = 47) responded to a mixed method questionnaire. Quantitative results utilizing the Impact of Event Scale Revised demonstrate that women who attend support group, when controlling for time, had fewer post traumatic stress symptoms than did the women who did not attend support group. Qualitative results elucidate the role of support groups in managing grief, suggesting that connectivity with other like women may be a useful strategy in reducing problematic psychological outcomes.

A Qualitative Evaluation of the Impact of the First Love Yourself (FLY) Women’s Support Group

2016 ◽  
Vol 5 (2) ◽  
pp. 123
Author(s):  
Valerie Blackmon ◽  
Chalenna Cassell ◽  
Cathy Gilbert McElderry ◽  
Olawunmi Obisesan
Keyword(s):  
Social Support ◽  
Focus Group ◽  
Qualitative Analysis ◽  
Support Groups ◽  
Support Group ◽  
Qualitative Evaluation ◽  
Physical And Mental Health ◽  
Focus Group Study ◽  
And Coping ◽  
The Impact

Research has shown that social support groups not only have significant effects on the physical and mental health of individuals, but can also be used as predictors of health outcomes. It is, therefore, important that social workers and other public health professionals are aware of the social support groups that exist in communities so as to find ways to utilize these to meet health needs. The study aims to explore the First Love Yourself (FLY) group, an empowerment-based support group specifically designed to meet the needs of Healthy Start consumers, parents and consortium members. A qualitative analysis of the data gathered from this focus group study yielded several key themes. While participants described finding other community resources helpful, they reported having no other outlet for confidential self-expression and connection to peers other than the FLY group. Group members also reported having improved self-esteem, relationships with their children, partners, and family, and ability to cope as a result of participation in the group. Participants further described gaining knowledge and learning skills that were helpful. This included learning parenting, communication, stress and anger management, budgeting, goal-setting and coping skills and techniques. Finally, qualitative analysis of the data gained from the focus group with participants and the group leader revealed the presence of all 11 curative factors described by Yalom (2005). The primary areas for improvement noted by the group and its leader were related to the frequency of group meetings. Both audiences indicated that additional sessions would be beneficial.

scholarly journals Assessing the impact of HIV support groups on antiretroviral therapy adherence and viral suppression in the African cohort study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Prudence Mbah ◽  
Michael Iroezindu ◽  
Allahna L. Esber ◽  
Nicole Dear ◽  
Domonique Reed ◽  
...  
Keyword(s):  
Cohort Study ◽  
Antiretroviral Therapy ◽  
Support Groups ◽  
Support Group ◽  
Viral Suppression ◽  
Hiv Care ◽  
People Living With Hiv ◽  
Art Adherence ◽  
African Countries ◽  
The Impact

Abstract Background Support groups for people living with HIV (PLWH) may improve HIV care adherence and outcomes. We assessed the impact of support group attendance on antiretroviral therapy (ART) adherence and viral suppression in four African countries. Methods The ongoing African Cohort Study (AFRICOS) enrolls participants at 12 clinics in Kenya, Uganda, Tanzania, and Nigeria. Self-reported attendance of any support group meetings, self-reported ART adherence, and HIV RNA are assessed every 6 months. Logistic regression models with generalized estimating equations were used to estimate adjusted odds ratios (aORs) and 95% confidence intervals (95% CIs) for support group attendance and other factors potentially associated with ART adherence and viral suppression. Results From January 2013 to December 1, 2019, 1959 ART-experienced PLWH were enrolled and 320 (16.3%) reported any support group attendance prior to enrollment. Complete ART adherence, with no missed doses in the last 30 days, was reported by 87.8% while 92.4% had viral suppression <1000copies/mL across all available visits. There was no association between support group attendance and ART adherence in unadjusted (OR 1.01, 95% CI 0.99–1.03) or adjusted analyses (aOR 1.00, 95% CI 0.98–1.02). Compared to PLWH who did not report support group attendance, those who did had similar odds of viral suppression in unadjusted (OR 0.99, 95% CI 0.978–1.01) and adjusted analyses (aOR 0.99, 95% CI 0.97–1.01). Conclusion Support group attendance was not associated with significantly improved ART adherence or viral suppression, although low support group uptake may have limited our ability to detect a statistically significant impact.

scholarly journals The Perceived Impact of Diabetes Support Groups

2011 ◽  
Author(s):  
Rebecca Garofalo
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Subjective Experience ◽  
Well Being ◽  
Lifestyle Behaviors ◽  
Positive Health ◽  
Practice Nurses ◽  
Group Problem Solving ◽  
Perceived Impact ◽  
The Impact

<p>A dearth o f research exists describing the perceived impact o f diabetes support groups from the perspective o f support group participants. This study examined the subjective experience of being a participant in a diabetes support group upon a person's physical and emotional well being. Participants were recruited from a diabetes support group and interviewed individually through a series of open ended interview questions. The participants reported various physical and emotional challenges related to their diabetes. The support group was a source of information, hope, shared experience and group problem solving as individuals strived to maintain lifestyle behaviors required to manage their diabetes. This support group was a positive source of support for these participants. More studies, with larger sample sizes, examining support group interventions or strategies would be beneficial in order to gain an understanding of which aspects of a support group promote positive client outcomes. Advanced practice nurses play a pivotal role in designing further studies that examine the impact of support groups. This will enhance our understanding of a support group's role in sustaining and promoting positive health behaviors and well being. In order to continue this form of support in the community, health policy needs to address the funding of this resource to sustain it as a tertiary intervention in the future.</p>

3. Learning Modules in a Support Group Context for Caregivers of Individuals with Alzheimer’s Disease and Related Dementias

2017 ◽  
Author(s):  
Wafa Nurdin ◽  
Aicha Wane
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Support Groups ◽  
Support Group ◽  
Well Being ◽  
Community Dwelling ◽  
Daily Activities ◽  
Caregiver Support ◽  
Learning Modules ◽  
The Impact

The majority of community dwelling individuals with dementia have informal caregivers. With the risk of developing care related stress, it is important for community agencies, like the Alzheimer Society of Kingston (ASK), to provide support, resources, and information. The goal of this intervention was that caregivers of individuals with Alzheimer’s disease and related dementias (ADRD) would improve physical, social, and mental well-being. A search of the literature, as well as surveys of support group facilitators, forty caregivers, and consultation with ASK helped determine information relevant to the caregivers. The purpose of this project was to develop learning modules on: a) using a problem-based strategy to assist with daily activities of the person they are caring for; b) self-care strategies; c) positive coping strategies; d) assertive communication skills, and e) home environment safety to be delivered during caregiver support groups. The module on a problem-based strategy to assist with daily activities was pilot tested, utilizing five caregivers. It was found that the learning module was approximately 30 minutes over the stated timeframe and the case study component of the module was ineffective. Recommendations include implementing the module as two parts. Furthermore, additional research is needed on the impact of the modules on caregiver stress and burden.

scholarly journals Close knit: using consumption communities to overcome loneliness

2020 ◽  
Vol 54 (11) ◽  
pp. 2825-2848
Author(s):  
Máire O Sullivan ◽  
Brendan Richardson
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Participant Observation ◽  
The Self ◽  
Critical Examination ◽  
Content Type ◽  
Community Membership ◽  
Brand Building ◽  
Self Help ◽  
Consumption Community

Purpose This paper aims to highlight the role of consumption communities as a self-help support group to ameliorate loneliness. The authors suggest that the self-help element of consumption communities has been overlooked because of a focus on communities pursuing hegemonic masculinity. Instead, the authors focus on a female-led and – dominated consumption community. Design/methodology/approach A longitudinal ethnography was undertaken with the aim of understanding consumer behaviour in a “hyper-feminine” environment. Participant observation, depth interviews and netnography were carried out over five years within the Knitting community, focussing on an Irish Stitch ‘n’ Bitch group. Findings A dimension of consumption communities has been overlooked in the extant literature; this female-led and -dominated community functions as a self-help support group used as a “treatment” for loneliness. It also demonstrates all the characteristics of a support group. Research limitations/implications This study offers a framework with which new studies of community consumption can be examined or existing studies can be re-examined, through rather than cases of loneliness and self-help support groups. Practical implications Marketers have an opportunity to build supportive consumption communities that provide a safe space for support where commerce and brand-building can also occur. Groups aimed at ameliorating loneliness may wish to consider integration of the consumption community model. Originality/value Calls have been made for a reconceptualisation of consumption communities as current typologies seem inadequate. This paper responds with a critical examination through the lens of the self-help support group, while also taking steps towards resolving the gender imbalance in the consumption community literature. The paper explores loneliness, a previously underexamined motivator for consumption community membership.

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