Medical Informatics: Once More Towards Systematization

1996 ◽  
Vol 35 (03) ◽  
pp. 189-192
Author(s):  
R. Haux

Abstract:Commenting on a paper by Van Bemmel (Medical Informatics, Art or Science? [1]), the following questions are raised: What is the meaning of medical informatics?, How to systematize medical informatics?, Is medical informatics an art, a science or a technology?. It is argued that medical informatics is concerned with the systematic processing of data, information and knowledge in medicine and health care, and that medical informatics is not just the application of computers in these fields. Three classifications for medical informatics research and education are presented. It is concluded that medical informatics is a scientific medical discipline, similar to surgery, internal medicine, epidemiology, or microbiology; and that medical informatics has a strong relationship with the health sciences concerning its field of application, and to informatics concerning its methods and tools. It is a cross-sectional discipline, with relevance for virtually all other specialties of medicine and the health sciences. This is the reason for its impact on research and education in these specialties. It also causes that the quality of the processing of data, information and knowledge has a direct and considerable effect upon the quality of health care in practically all these specialties.

2006 ◽  
Vol 45 (06) ◽  
pp. 638-642 ◽  
Author(s):  
A. Hasman ◽  
R. Haux

Summary Objectives: Modeling is a significant part of research, education and practice in biomedical and health informatics. Our objective was to explore, which types of models of processes are used in current biomedical/ health informatics research, as reflected in publications of scientific journals in this field. Also the implications for medical informatics curricula were investigated. Methods: Retrospective, prolective observational study on recent publications of the two official journals of the International Medical Informatics Association (IMIA), the International Journal of Medical Informatics (IJMI) and Methods of Information in Medicine (MIM). Results: 384 publications have been analyzed, 190 of IJMI and 194 of MIM. In regular papers (69 in IJMI, 62 in MIM), analyzed here in part 1, all of these model types could be found. In many publications we observed a mixture of models, being used to solve the ‘core’ research questions and also to systematically evaluate the research done. Knowledge of (and models for) software engineering and project management are also often needed. IJMI seems to have a closer focus on research concerning health information systems and electronic patient records, with a strong emphasis on evaluation. MIM seems to have a broader range of research approaches, including also statistical modeling and computational intensive approaches. The aim to provide solutions for problems related to data, information and knowledge processing and to study the general principles of processing data, information and knowledge in medicine and health care in order to contribute to improve the quality of health care, and of research and education in medicine and the health sciences was given in all publications. Conclusions: Modeling continues to be a major task in research, education and practice in biomedical and health informatics. Knowledge and skills concerning a broad range of model types is needed.


2003 ◽  
Vol 42 (02) ◽  
pp. 185-189 ◽  
Author(s):  
R. Haux ◽  
C. Kulikowski ◽  
A. Bohne ◽  
R. Brandner ◽  
B. Brigl ◽  
...  

Summary Objectives: The Yearbook of Medical Informatics is published annually by the International Medical Informatics Association (IMIA) and contains a selection of excellent papers on medical informatics research which have been recently published (www.yearbook.uni-hd.de). The 2003 Yearbook of Medical Informatics took as its theme the role of medical informatics for the quality of health care. In this paper, we will discuss challenges for health care, and the lessons learned from editing IMIA Yearbook 2003. Results and Conclusions: Modern information processing methodology and information and communication technology have strongly influenced our societies and health care. As a consequence of this, medical informatics as a discipline has taken a leading role in the further development of health care. This involves developing information systems that enhance opportunities for global access to health services and medical knowledge. Informatics methodology and technology will facilitate high quality of care in aging societies, and will decrease the possibilities of health care errors. It will also enable the dissemination of the latest medical and health information on the web to consumers and health care providers alike. The selected papers of the IMIA Yearbook 2003 present clear examples and future challenges, and they highlight how various sub-disciplines of medical informatics can contribute to this.


Author(s):  
Lauren Russo ◽  
Karen Willis ◽  
Natasha Smallwood

Objectives: Interstitial lung disease (ILD) is a debilitating and life-limiting condition, requiring multi-disciplinary care. While guidelines recommend early specialist palliative care referral to improve symptoms and quality of life, few patients access such care towards the end-of-life. This study aimed to explore clinicians’ perspectives regarding specialist palliative care and opioids to understand barriers to optimal care and guide clinical practice improvement initiatives. Methods: A cross-sectional, exploratory, qualitative study was undertaken with Australian respiratory clinicians caring for people with ILD (n = 17). In-depth, semi-structured interviews were audio-recorded, transcribed verbatim and coded. Thematic analysis was undertaken to extrapolate recurring ideas from the data. Results: Four themes were identified: 1) understanding how to improve patient care and support, 2) the need to dispel stigmatized beliefs and misconceptions, 3) the importance of trusted relationships and good communication and 4) the challenges of navigating the health-care system. Participants discussed the need to implement early specialist palliative care and symptom palliation to alleviate symptoms, provide emotional support and augment quality of life. Participants described challenges accessing palliative care and opioids due to stigmatized beliefs amongst patients and clinicians and difficulties navigating the health-care system. Trusted therapeutic relationships with patients and strong inter-disciplinary partnerships with collaborative education and communication were perceived to improve patients’ access to symptom palliation. Conclusion: Specialist palliative care and opioids were believed to improve patients’ quality of life, however, many barriers can make accessing such care challenging. To address these issues, multi-disciplinary collaboration, high-quality communication and trusted therapeutic relationships are crucial throughout the ILD illness journey.


2018 ◽  
Vol 27 (01) ◽  
pp. 156-162 ◽  
Author(s):  
Harshana Liyanage ◽  
Siaw-Teng Liaw ◽  
Emmanouela Konstantara ◽  
Freda Mold ◽  
Richard Schreiber ◽  
...  

Background: Patients' access to their computerised medical records (CMRs) is a legal right in many countries. However, little is reported about the benefit-risk associated with patients' online access to their CMRs. Objective: To conduct a consensus exercise to assess the impact of patients' online access to their CMRs on the quality of care as defined in six domains by the Institute of Medicine (IoM), now the National Academy of Medicine (NAM). Method: A five-round Delphi study was conducted. Round One explored experts' (n = 37) viewpoints on providing patients with access to their CMRs. Round Two rated the appropriateness of statements arising from Round One (n = 16). The third round was an online panel discussion of findings (n = 13) with the members of both the International Medical Informatics Association and the European Federation of Medical Informatics Primary Health Care Informatics Working Groups. Two additional rounds, a survey of the revised consensus statements and an online workshop, were carried out to further refine consensus statements. Results: Thirty-seven responses from Round One were used as a basis to initially develop 15 statements which were categorised using IoM's domains of care quality. The experts agreed that providing patients online access to their CMRs for bookings, results, and prescriptions increased efficiency and improved the quality of medical records. Experts also anticipated that patients would proactively use their online access to share data with different health care providers, including emergencies. However, experts differed on whether access to limited or summary data was more useful to patients than accessing their complete records. They thought online access would change recording practice, but they were unclear about the benefit-risk of high and onerous levels of security. The 5-round process, finally, produced 16 consensus statements. Conclusion: Patients' online access to their CMRs should be part of all CMR systems. It improves the process of health care, but further evidence is required about outcomes. Online access improves efficiency of bookings and other services. However, there is scope to improve many of the processes of care it purports to support, particularly the provision of a more effective interface and the protection of the vulnerable.


2018 ◽  
Vol 4 (1) ◽  
Author(s):  
Ardhiles Wahyu Kurniawan

Abstract : The complex IGD work environment will affect the quality of care, health care, including inaccurate or incomplete documentation. Incomplete nursing documentation indicates that the nursing care process is not working properly and continuously. Intentionin documenting can predict the appearance of person behavior including the behavior of nurses, especially in documenting nursing care. The purpose of this study was to analyze correlation intention with nurse behavior in documenting nursing care in Emergency Installation. The research design used correlational analysis with cross sectional approach. The sample in this research is part of nurse of executing at IGD Rumkit TK II dr Soepraoen, IGD RS Panti Waluya Sawahan and IGD RS Islam Malang. The sample of 45 nurses IGD and 341 documents were selected according to inclusion and exclusion criteria. The result of statistical analysis of gamma that there is a significant correlation between intention and nursing documentation behavior evidenced by value of p = 0,000, positive correlation direction and strong correlation value is proved by r = 0,739. Hospital and nurse IGD is expected to develop a good intention then formed good nursing documenting behavior as well.Keywords : Nurse IGD, Intention, Nursing Documentation. Abstrak: Lingkungan kerja IGD yang kompleks akan mempengaruhi kualitas perawatan, pelayanan kesehatan, termasuk dokumentasi yang dilakukan tidak tepat atau tidak lengkap. Dokumentasi keperawatan yang tidak lengkap menunjukkan proses asuhan keperawatan tidak berjalan dengan baik dan berkesinambungan. Intensi dalam pendokumentasian dapat memprediksi munculnya perilaku seseorang termasuk perilaku perawat khususnya dalam pendokumentasian asuhan keperawatan. Tujuan penelitian ini untuk menganalis hubungan intensi dengan perilaku perawat dalam pendokumentasian asuhan keperawatan di Instalasi Gawat Darurat. Desain penelitian menggunakan analysis correlationaldengan pendekatan cross sectional. Sampel dalam penelitian ini adalah sebagian perawat pelaksana di IGD Rumkit TK II dr Soepraoen, IGD RS Panti Waluya Sawahan Malang dan IGD RS Islam Malang. Sampel berjumlah 45 perawat IGD dan 341 dokumen dipilih sesuai dengan kriteria inklusi dan ekslusi. Hasil analisis statistik uji gammamenunjukkan terdapat hubungan signifikan antara intensi dengan perilaku pendokumentasian keperawatan dibuktikan dengan nilai p = 0,000, arah korelasi positif, dan nilai korelasi kuat dibuktikan dengan nilai r = 0,739. Rumah Sakit dan perawat IGD diharapkan mengembangkan intensi yang baik sehingga diharapkan terbentuk perilaku pendokumentasian keperawatan yang baik pula. Kata Kunci : Perawat IGD, Intensi, Dokumentasi Keperawatan.


2019 ◽  
Author(s):  
Miguel Ángel Amor-García ◽  
Roberto Collado-Borrell ◽  
Vicente Escudero-Vilaplana ◽  
Alejandra Melgarejo-Ortuño ◽  
Ana Herranz-Alonso ◽  
...  

BACKGROUND The large number of available cancer apps and their impact on the population necessitates a transparent, objective, and comprehensive evaluation by app experts, health care professionals, and users. To date, there have been no analyses or classifications of apps for patients with genitourinary cancers, which are among the most prevalent types of cancer. OBJECTIVE The objective of our study was to analyze the quality of apps for patients diagnosed with genitourinary cancers using the Mobile Application Rating Scale (MARS) and identify high-quality apps. METHODS We performed an observational cross-sectional descriptive study of all smartphone apps for patients diagnosed with genitourinary cancers available on iOS and Android platforms. In July 2019, we searched for all available apps for patients with genitourinary cancers (bladder, prostate, cervical, uterine, endometrial, kidney, testicular, and vulvar) or their caregivers. Apps were downloaded and evaluated, and the general characteristics were entered into a database. The evaluation was performed by 2 independent researchers using the MARS questionnaire, which rates 23 evaluation criteria clustered in 5 domains (Engagement, Functionality, Esthetics, Information, and Subjective Quality) on a scale from 1 to 5. RESULTS In total, 46 apps were analyzed. Of these, 31 (67%) were available on Android, 6 (13%) on iOS, and 9 (20%) on both platforms. The apps were free in 89% of cases (41/46), and 61% (28/46) had been updated in the previous year. The apps were intended for prostate cancer in 30% of cases (14/46) and cervical cancer in 17% (8/46). The apps were mainly informative (63%, 29/46), preventive (24%, 11/46), and diagnostic (13%, 6/46). Only 7/46 apps (15%) were developed by health care organizations. The mean MARS score for the overall quality of the 46 apps was 2.98 (SD 0.77), with a maximum of 4.63 and a minimum of 1.95. Functionality scores were quite similar for most of the apps, with the greatest differences in Engagement and Esthetics, which showed acceptable scores in one-third of the apps. The 5 apps with the highest MARS score were the following: “Bladder cancer manager,” “Kidney cancer manager,” “My prostate cancer manager,” “Target Ovarian Cancer Symptoms Diary,” and “My Cancer Coach.” We observed statistically significant differences in the MARS score between the operating systems and the developer types (<i>P</i>&lt;.001 and <i>P</i>=.01, respectively), but not for cost (<i>P</i>=.62). CONCLUSIONS MARS is a helpful methodology to decide which apps can be prescribed to patients and to identify which features should be addressed to improve these tools. Most of the apps designed for patients with genitourinary cancers only try to provide data about the disease, without coherent interactivity. The participation of health professionals in the development of these apps is low; nevertheless, we observed that both the participation of health professionals and regular updates were correlated with quality.


2018 ◽  
Vol 71 (suppl 4) ◽  
pp. 1642-1649
Author(s):  
Daniela Galdino Costa ◽  
Cíntia Tavares Carleto ◽  
Virgínia Souza Santos ◽  
Vanderlei José Haas ◽  
Rejane Maria Dias de Abreu Gonçalves ◽  
...  

ABSTRACT Objective: To assess the quality of life and eating attitudes of health care students of the undergraduate programs of a public university. Method: Observational, cross-sectional, and quantitative study performed in a federal university. Three questionnaires were used for data collection: a socio-demographic and academic, the WHOQOL-BREF and the Eating Attitudes Test (EAT-26). Result: 399 students participated in this study, most women, average age of 22 years, average scores of EAT-26 of 15.12 and quality-of-life averages above 60 points in all domains. The students of the undergraduate program in Nutrition presented more inappropriate eating attitudes than other health care students; as the age evolves, vulnerability to inadequate eating attitudes increases; and the family income influenced negatively the quality of life in Physical and Social domains. Conclusions: Inadequate eating attitude diminishes the quality of life of health care students in all domains of the WHOOQOL-BREF.


2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
R Pinchas-Mizrachi ◽  
N Daoud

Abstract Background The objective of this study was to examine the level of trust towards Israel’s health care services (HCS) among Palestinian-Arab minority, Jewish immigrant, and non-immigrant Jewish citizens. Previous studies have shown that minorities and immigrants have less trust in health care system (HCSys), which might represent a barrier in access to, and utilization of HCS. Methods We obtained cross-sectional nationwide census data from the 2017 Social Survey of the Israel Central Bureau of Statistics. We studied levels of trust in the HCSys based on a survey question: ’Do you have trust in the healthcare system?” We conducted logistic regression analysis within and between the study groups to compare levels of trust, after adjustment for different relevant covariates in different models. Results Compared to non-immigrant Jews, Arabs had higher trust in the HCS (odds ratio (OR)=3.08, 95% confidence intervals (CI)=3.06,3.10) and compared to non-immigrant Jews, immigrant Jews had more trust (OR = 1.96, 95% CI = 1.94,1.98), even after adjusting for gender, age, education level, religiosity level, perceived discrimination, self-rated health status, HCS use, and having private health insurance. The variables that predicted trust in the HCSys were different in each ethnic group. Conclusions Contrary to our hypothesis and to previous research, Arab and immigrant Jewish respondents in our study had greater trust in the HCS compared to non-immigrant Jews. This might relate to different expectations among our study groupsof the patient-caregiver relations which might affect the access to and utilization of HCS and finally might affect the quality of care. Key messages Exceptionally, in Israel, the Arab minority and Jewish immigrants have more trust in the health care system compared with non-immigrant Jews. More research is needed to understand how trust among minority groups relates to the patterns of utilization of HCS and raises question regarding the quality of care.


2019 ◽  
Vol 54 (3) ◽  
pp. 334-344 ◽  
Author(s):  
Emma A Nye ◽  
Ashley Crossway ◽  
Sean M. Rogers ◽  
Kenneth E. Games ◽  
Lindsey E. Eberman

Context Research suggests that patients who identify as lesbian, gay, bisexual, transgender, or queer (LGBTQ) are at risk for certain conditions and denied equal access to health care in physician offices compared with their heterosexual counterparts. However, little evidence exists regarding the treatment of LGBTQ student-athlete patients in the athletic training clinic and the role the athletic trainer (AT) plays in these health care experiences. Objective To explore the perceptions of ATs treating LGBTQ student-athlete patients. Design Cross-sectional study. Setting Web-based survey. Patients or Other Participants A total of 1077 collegiate and university ATs completed the survey (5685 e-mails distributed, 1214 surveys started, access rate = 21.4%, completion rate = 88.7%). Main Outcome Measure(s) Demographic information and level of agreement in 3 areas (approach, quality of care, and comfort) were obtained on a 5-point Likert scale. We asked ATs their likeliness of providing guidance to student-athletes about navigating their sexuality generally and as it related to athletic participation, if they thought they provided equal health care to a student-athlete who identified as LGBTQ, how comfortable they were treating LGBTQ student-athlete patients, and how comfortable they thought student-athlete patients would be seeking care from them or from providers in their clinic. Results Overall, we found differences among groups for sexual orientation, gender, religion, and the existence of interpersonal contact with LGBTQ friends or family for approach, quality of care, and comfort. We also identified 2 main themes indicating ATs' desire for more training and education, specifically in caring for transgender student-athletes and providing patient-centered care with professionalism, regardless of gender identity or sexual orientation. Conclusions Although differences existed among demographic groups, ATs had a generally positive view of treating LGBTQ student-athlete patients and wanted more training and education on the specific needs of this population.


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