scholarly journals A Review of Psychosocial Factors of Marfan Syndrome: Adolescents, Adults, Families, and Providers

2019 ◽  
Vol 08 (03) ◽  
pp. 109-122 ◽  
Author(s):  
Cory Nielsen ◽  
Ileana Ratiu ◽  
Mitra Esfandiarei ◽  
Angela Chen ◽  
Elif Seda Selamet Tierney
Keyword(s):  
Psychosocial Factors ◽  
Marfan Syndrome ◽  
Satisfaction With Life ◽  
Negative Impact ◽  
Multidisciplinary Teams ◽  
Exclusion Criteria ◽  
Current Review ◽  
Reproductive Decision Making ◽  
Academic Search

AbstractThe purpose of this article was to review the current literature on psychosocial implications of Marfan syndrome (MFS) and its impact on adolescents, adults, their families and to provide important considerations for providers. Since the previous reviews in 2015, numerous studies have been published that are included in the current review. This literature review was conducted using PubMed, Medline, PsychINFO, ERIC, Web of Science, and Academic Search Premier databases and only articles that studied psychosocial factors that influence MFS patients as adolescents, adults, family members, or their interactions with providers were included in this review. Of the 522 articles reviewed, 41 were selected based on the inclusion and exclusion criteria. All articles were peer-reviewed. MFS has various implications that can impact one's life; studies have shown that MFS causes a negative impact on an individual's formative years, quality of life, reproductive decision-making, work participation, and satisfaction with life. Clinicians and multidisciplinary teams should be aware of these factors to provide support focusing on coping strategies for the patient and their family.

scholarly journals Quality of life of people living with HIV/AIDS treated by the specialized service in Vitória-ES, Brazil

2015 ◽  
Vol 20 (4) ◽  
pp. 1075-1084 ◽  
Author(s):  
Gabriella Barreto Soares ◽  
Cléa Adas Saliba Garbin ◽  
Tânia Adas Saliba Rovida ◽  
Artênio José Ísper Garbin
Keyword(s):  
Quality Of Life ◽  
Sexual Activity ◽  
Satisfaction With Life ◽  
Negative Impact ◽  
People Living With Hiv ◽  
Health Concerns ◽  
Life Issues ◽  
Living With Hiv ◽  
Hiv Aids

The aim of this study is to establish the factors that influence the quality of life of people living with HIV/AIDS being treated at a specialized public service. The participants answered the questionnaire on sociodemographic conditions, issues related to HIV and daily habits. The quality of life was analyzed using the HIV/AIDS-targeted quality of life (HAT-QoL) instrument with 42 items divided into 9 fields: General Activity, Sexual Activity, Confidentiality Concerns, Health Concerns, Financial Concerns, HIV Awareness, Satisfaction with Life, Issues related to Medication and Trust in the Physician. Bivariate and multiple linear regressions were performed. Of the participants, 53.1% were women and had a mean age of 42 years. In analyzing the quality of life, the HAT-QoL domain with the lowest average was Financial Concerns (39.4), followed by Confidentiality Concerns (43.2), Sexual Activity (55.2) and Health Concerns (62. 88). There was an association between the variables: not being gainfully employed (p < 0.001), being mulatto or black (p = 0.045) and alcohol consumption (p = 0.041) with the worst quality of life scores. Inadequate socioeconomic and health conditions had a negative impact on the quality of life of people with HIV/AIDS.

scholarly journals Psychosocial Factors Associated with Longevity in the United States: Age Differences between the Old and Oldest-Old in the Health and Retirement Study

2011 ◽  
Vol 2011 ◽  
pp. 1-10 ◽  
Author(s):  
Jennifer A. Ailshire ◽  
Eileen M. Crimmins
Keyword(s):  
Quality Of Life ◽  
Psychosocial Factors ◽  
Social Relationships ◽  
Satisfaction With Life ◽  
Oldest Old ◽  
The United States ◽  
Negative Perceptions ◽  
Nationally Representative ◽  
Retirement Study

Recent growth in the number of adults surviving to advanced ages raises questions about the quality of life associated with increased longevity. Psychosocial factors have received relatively little attention in research on quality of life among the oldest-old. This study uses nationally representative data on older US adults to examine how social relationships, feelings of loneliness, and satisfaction with life and the aging experience differ between the oldest-old, those who have survived to age 90 or older, and older adults in their 70s. We find that the oldest-old are able to maintain social relationships with family and friends and receive more social support than younger elderly adults. Yet, the oldest-old are more likely to feel lonely due to their greater rates of widowhood. Satisfaction with life was higher among the oldest-old, but the oldest-old had more negative perceptions of the aging experience. Psychosocial dimensions of longevity should be considered in research on quality of life among the oldest-old.

scholarly journals Post-operative hypothalamic lesions and obesity in childhood craniopharyngioma: results of the multinational prospective trial KRANIOPHARYNGEOM 2000 after 3-year follow-up

2011 ◽  
Vol 165 (1) ◽  
pp. 17-24 ◽  
Author(s):  
Hermann L Müller ◽  
Ursel Gebhardt ◽  
Carmen Teske ◽  
Andreas Faldum ◽  
Isabella Zwiener ◽  
...  
Keyword(s):  
Negative Impact ◽  
Prospective Trial ◽  
Multivariable Analysis ◽  
Multidisciplinary Teams ◽  
Hypothalamic Obesity ◽  
Surgical Strategies ◽  
Hypothalamic Lesions ◽  
Patient Load

BackgroundHypothalamic obesity has major impact on prognosis and quality of life (QoL) in childhood craniopharyngioma.Patients and methodsFor this study, 120 patients were prospectively recruited during 2001 and 2007 and evaluated after 3 years of follow-up (KRANIOPHARYNGEOM 2000). Body mass index (BMI) and QoL at diagnosis and 36 months after diagnosis were analysed based on the reference assessment of tumour localisation and post-surgical hypothalamic lesions. Treatment was analysed based on the neurosurgical strategy of 50 participating neurosurgical centres, the centre size based on the patient load.ResultsBMI SDS at diagnosis was similar in patients with or without hypothalamic involvement. Surgical lesions of anterior and posterior hypothalamic areas were associated with higher increase in BMI SDS during 36 months post-diagnosis compared with patients without or only anterior lesion (+1.8 BMISD, P=0.033, +2.1 BMISD; P=0.011), negative impact on QoL in patients with posterior hypothalamic lesions. Surgical strategies varied among the 50 neurosurgical centres (three large-sized, 24 middle-sized and 23 small-sized centres). Patients treated in small-sized centres presented with a higher rate of hypothalamic involvement compared with those treated in the middle- and large-sized centres. Treatment in large-sized centres was less radical, and the rates of complete resection and hypothalamic surgical lesions were lower in large-sized centres than those of the middle- and small-sized centres. However, a multivariable analysis showed that pre-operative hypothalamic involvement was the only independent risk factor for severe obesity (P=0.002).ConclusionsRadical neurosurgical strategies leading to posterior hypothalamic lesions are not recommended due to the potential to exacerbate hypothalamic obesity and impaired QoL. Treatment should be confined to experienced multidisciplinary teams.

scholarly journals Nervus Olfaktorius: Dasar, Klinis Medis, dan Psikologis

2021 ◽  
Vol 9 (1) ◽  
Author(s):  
Pingkan M. Ruru ◽  
Taufiq F. Pasiak ◽  
Martha M. Kaseke
Keyword(s):  
Quality Of Life ◽  
Literature Review ◽  
Cranial Nerve ◽  
Negative Impact ◽  
Olfactory Nerve ◽  
Review Literature ◽  
Exclusion Criteria ◽  
Psychological Issues ◽  
Clinical Disorders

Abstract: The olfactory nerve is the first cranial nerve. Olfactory disorders can have a negative impact on health and quality of life and affect human psychology. The aim of this study is to determine the basic anatomical, clinical medical and psychological picture of the olfactory nerve. This study was in the form of a literature review. Literature is taken from one database, namely PubMed. The keywords used were olfactory nerve anatomy AND clinical AND psychology. After being selected with inclusion and exclusion criteria, 11 literature will be reviewed. Research from 11 literature reviewed found the basic anatomy of the olfactory nerve. Clinical disorders such as anosmia, hyposmia, phantosmia can occur in several non-neurodegenerative and neurodegenerative events or diseases, namely head injury trauma, Alzheimer's, Parkinson's and COVID-19. Psychological issues related to emotional and psychiatric disorders are also related to smell. In conclusion, the first cranial nerve is the olfactory nerve or the olfactory nerve, which clinically can occur in neurogenerative and non-neurodegenerative diseases. Smell and its disturbances can have a psychological impact.Keywords: olfactory nerve, anatomy, clinical, psychology.  Abstrak: Nervus olfaktorius merupakan saraf kranial pertama. Gangguan olfaktorius dapat berdampak buruk pada kesehatan dan kualitas hidup serta memengaruhi psikologis manusia. Tujuan penelitian untuk mengetahui gambaran dasar anatomi, klinis medis dan psikologis dari nervus olfaktorius. Penelitian ini dalam bentuk literature review. Literatur diambil dari  satu database yaitu PubMed. Kata kunci yang digunakan yaitu olfactory nerve anatomy AND clinical AND psychology. Setelah diseleksi dengan kriteria inklusi dan eksklusi didapatkan 11 literatur yang akan di review. Hasil penelitian dari 11 literatur yang di review didapatkan anatomi dasar nervus olfaktorius. Gangguan klinis seperti anosmia, hiposmia, phantosmia dapat terjadi pada beberapa kejadian atau penyakit non-neurodegeneratif dan neurodegeneratif yaitu Trauma cedera kepala, Alzheimer, Parkinson dan COVID-19. Psikologis yang berkaitan dengan emosional dan gangguan psikiatri juga berhubungan dengan penciuman. Sebagai simpulan, saraf kranial pertama adalah nervus olfaktorius atau disebut saraf penciuman, secara klinis bisa terjadi pada penyakit neurogeneratif dan non-neurodegeneratif. Penciuman dan gangguannya dapat memengaruhi psikologis.Kata kunci: Saraf olfaktori, anatomi, klinis, psikologi.

scholarly journals The Impact Of Malocclusion On Quality Of Life And Life Satisfaction

10.3823/2492 ◽  
2017 ◽  
Vol 10 ◽  
Author(s):  
Antonio Franklin Cordeiro Neto ◽  
Roberto Carlos Mourão Pinho ◽  
Raulison Vieira de Sousa ◽  
Bruna De Carvalho Farias Vajgel ◽  
Renata Cimões
Keyword(s):  
Quality Of Life ◽  
Satisfaction With Life ◽  
Negative Impact ◽  
Class Ii ◽  
Class I ◽  
Satisfaction With Life Scale ◽  
Class Iii ◽  
Level Of Satisfaction ◽  
The Impact

Objective: The aim of this study was to evaluate whether the type of malocclusion affects the perception of quality and satisfaction with people's lives. Material and Methods: Three questionnaires were applied: the first one assessed the social and economic factors and the diagnosis of malocclusion through Angle´s classification, the second was the OHIP-14, and the third was the Satisfaction With Life Scale (SWLS). Results: This study involved 444 patients aged 18 to 72 years. According to the classification of malocclusion 48.65% was Class I, 22.75% was Class II division 1, 12.16% was Class II division 2 and Class III 16.44%. The malocclusion did not have negative impact on the level of satisfaction with life, but in all dimensions analyzed by OHIP-14, malocclusion had negative impact on quality of life and was statistically significant. The most severe malocclusions such as Class II and Class III represent a more negative impact when compared to Class I malocclusion. Moreover, for the dimensions assessed by the OHIP-14, physical pain and psychological discomfort were those who showed a greater negative impact on quality of life. Conclusions: Malocclusions do not interfere with the judgment of the level of satisfaction with life, but they produce a negative impact on quality of life.

scholarly journals Impact of temporomandibular disorders on quality of life

2020 ◽  
Vol 33 ◽  
Author(s):  
Debora Foger ◽  
Mariela Peralta-Mamani ◽  
Paulo Sérgio da Silva Santos
Keyword(s):  
Quality Of Life ◽  
Temporomandibular Disorders ◽  
Negative Impact ◽  
Temporomandibular Joint Disorders ◽  
Exclusion Criteria ◽  
Temporomandibular Dysfunction ◽  
Manual Search ◽  
Sf 36 ◽  
The Impact

Abstract Introduction: Temporomandibular dysfunction (TMD) may have a major impact on quality of life. Objective: Thus, this integrative review assessed the impact of TMD on quality of life. Method: An electronic and manual search was conducted to identify studies that evaluated the impact of TMD on an individual’s quality of life. After the inclusion and exclusion criteria were met, seven articles were included and evaluated according to the quality of evidence using the Newcastle-Ottawa assessment. Results: The selected studies used different instruments to diagnose temporomandibular joint disorders and measure the quality of life. Only three studies used the RDC/TMD. As for quality of life, the most used instrument was the SF-36, followed by Br-MPQ and WHOQOL-Bref. Conclusion: The findings show that there is a negative impact of temporomandibular dysfunction on quality of life, especially regarding its severity. However, further studies are needed to confirm these results.

scholarly journals Effects of Structured Exercise Program on Tenderness and Cyclic Mastalgia in Obese Women: An Experimental Study

2021 ◽  
pp. 213-219
Author(s):  
Muskan Bhojwani ◽  
Shubhangi Patil ◽  
Shruti Deshpande
Keyword(s):  
Negative Impact ◽  
Exercise Program ◽  
Mcgill Pain Questionnaire ◽  
Obese Women ◽  
Common Condition ◽  
Exclusion Criteria ◽  
Exercise Routine ◽  
Common Ailment ◽  
Cyclical Mastalgia

Background: Cyclic Mastalgia affects women who are menstruating in their 20s, 30s, or 40s. This pain starts about a week before commencing menstruation. During this period, the breasts become sore, tender, and swollen, though symptoms improve later in the cycle or it may be so severe that the patients cannot wear tight fitting clothes or they becomes irritable. The discomfort usually occurs outside and upper portions of both breasts, and it may even affect underarms. Cyclical Mastalgia is a common condition associated with a higher risk of breast cancer. Mastalgia is common ailment that affects about 70% of women and has negative impact on their quality of life. Many scientists believe that the cause of cyclic mastalgia lies in a mix of hormonal activity and something in the breast that reacts to it. Mastalgia is a term used to describe women's discomfort with their breasts, although doctors usually neglect it. Methods: Based on the inclusion and exclusion criteria, a total of 30 women will be selected for the study. A questionnaire of breast pain based on the McGill Pain Questionnaire, and a Cardiff chart, will all be employed as outcome measures. The individuals' pre-intervention scores will be collected, and they will be given an exercise routine to follow for four weeks, three times per week. The outcomes of the intervention will be measured afterwards. Our protocol will cover weeks of treatment. Reqular assessment will be carried out. Discussion: This study was done to find out effectivness of exercise program in obese womens with breast mastalgia and tenderness.

A Futures Study on the Quality Of Life from the Point Of View of Iranian Youth

2017 ◽  
Vol 14 (2) ◽  
pp. 1
Author(s):  
Sina Saeedy ◽  
Mojtaba Amiri ◽  
Mohammad Mahdi Zolfagharzadeh ◽  
Mohammad Rahim Eyvazi
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Mixed Model ◽  
Satisfaction With Life ◽  
Point Of View ◽  
Human Society ◽  
Futures Studies ◽  
The Social ◽  
The University

Quality of life and satisfaction with life as tightly interconnected concepts have become of much importance in the urbanism era. No doubt, it is one of the most important goals of every human society to enhance a citizen’s quality of life and to increase their satisfaction with life. However, there are many signs which demonstrate the low level of life satisfaction of Iranian citizens especially among the youth. Thus, considering the temporal concept of life satisfaction, this research aims to make a futures study in this field. Therefore, using a mixed model and employing research methods from futures studies, life satisfaction among the students of the University of Tehran were measured and their views on this subject investigated. Both quantitative and qualitative data were analysed together in order to test the hypotheses and to address the research questions on the youth discontentment with quality of life. Findings showed that the level of life satisfaction among students is relatively low and their image of the future is not positive and not optimistic. These views were elicited and discussed in the social, economic, political, environmental and technological perspectives. Keywords:  futures studies, quality of life, satisfaction with life, youth

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