The challenge of time in community-based participatory design

2016 ◽  
Vol 22 (2) ◽  
pp. 113-126 ◽  
Author(s):  
Chiara Del Gaudio ◽  
Carlo Franzato ◽  
Alfredo Jefferson de Oliveira
10.2196/12618 ◽  
2020 ◽  
Vol 4 (1) ◽  
pp. e12618
Author(s):  
Jennifer L Doty ◽  
Sonya S Brady ◽  
Javiera Monardez Popelka ◽  
Laura Rietveld ◽  
Diego Garcia-Huidobro ◽  
...  

Background Latinx families are among the highest users of smartphones, yet few health-focused Web programs have been developed for this audience. Parent-based smartphone apps designed for Latinx families may help increase access to evidence-informed parenting programming and ultimately reduce health disparities among children and adolescents. To maximize uptake of such apps, the Center for eHealth Research and Disease Management (CeHRes) Roadmap for electronic health (eHealth) development recommends 5 phases of development: (1) contextual inquiry, (2) value specification, (3) design, (4) operationalization, and (5) evaluation. Objective Guided by the CeHRes Roadmap, our objective was to apply a community-based participatory research (CBPR) approach to mobile app development. We present a formative evaluation to inform the design of an eHealth mobile app for Latinx parents of adolescents based on a face-to-face parenting program, Padres Informados/Jovenes Preparados (PIJP). Methods Community participants in the process included Latinx parents and stakeholders. We conducted a parent survey (N=115) and interviews (N=20) to understand the context and obtain feedback on a mockup and prototype of the app, facilitator workshops to streamline content, and stakeholder interviews (N=4) to discuss values and app requirements. Results We report results from the first 3 phases of the CeHRes Roadmap. In the survey, 96.5% (111/115) of parents reported they had access to a cell phone, 85.6% (89/104) reported they would use a parenting app in the next month if they had access, and 80.2% (89/111) reported intentions to use a stress reduction app. Parents reported that setting goals about parenting and tracking those goals were important potential features of an app. In logistic regression analyses, technology attitudes and barriers were not related to parent’s intentions to use a parenting mobile app (95% CI 0.51-1.17 and 95% CI 0.28-2.12, respectively). Qualitative interviews confirmed Latinx parents’ technology engagement and desire for education and child development information online. Stakeholder interviews identified 3 community values: familism, the promotion of adolescent health, and delivery of economic value. Community stakeholders participated in defining the mobile app requirements. On the basis of community and parent input, the mobile app prototype was designed with 3 sections: (1) 8 modules of video-based parenting skills instruction with content from the face-to-face PIJP program, (2) breath rate information from a wearable device to support awareness of stress levels that could affect parenting, and (3) goal setting and tracking capacities. Conclusions The findings of this study highlight the utility of an iterative, participatory design process. The CBPR approach and community collaboration enhanced the CeHRes Roadmap by promoting power sharing, facilitating recruitment, and building trust among community members. Experiences applying community research to the initial 3 phases of the CeHRes Roadmap in a Latinx community are discussed, along with plans for the 2 final phases.


2018 ◽  
Author(s):  
Jennifer L Doty ◽  
Sonya S Brady ◽  
Javiera Monardez Popelka ◽  
Laura Rietveld ◽  
Diego Garcia-Huidobro ◽  
...  

BACKGROUND Latinx families are among the highest users of smartphones, yet few health-focused Web programs have been developed for this audience. Parent-based smartphone apps designed for Latinx families may help increase access to evidence-informed parenting programming and ultimately reduce health disparities among children and adolescents. To maximize uptake of such apps, the Center for eHealth Research and Disease Management (CeHRes) Roadmap for electronic health (eHealth) development recommends 5 phases of development: (1) contextual inquiry, (2) value specification, (3) design, (4) operationalization, and (5) evaluation. OBJECTIVE Guided by the CeHRes Roadmap, our objective was to apply a community-based participatory research (CBPR) approach to mobile app development. We present a formative evaluation to inform the design of an eHealth mobile app for Latinx parents of adolescents based on a face-to-face parenting program, Padres Informados/Jovenes Preparados (PIJP). METHODS Community participants in the process included Latinx parents and stakeholders. We conducted a parent survey (N=115) and interviews (N=20) to understand the context and obtain feedback on a mockup and prototype of the app, facilitator workshops to streamline content, and stakeholder interviews (N=4) to discuss values and app requirements. RESULTS We report results from the first 3 phases of the CeHRes Roadmap. In the survey, 96.5% (111/115) of parents reported they had access to a cell phone, 85.6% (89/104) reported they would use a parenting app in the next month if they had access, and 80.2% (89/111) reported intentions to use a stress reduction app. Parents reported that setting goals about parenting and tracking those goals were important potential features of an app. In logistic regression analyses, technology attitudes and barriers were not related to parent’s intentions to use a parenting mobile app (95% CI 0.51-1.17 and 95% CI 0.28-2.12, respectively). Qualitative interviews confirmed Latinx parents’ technology engagement and desire for education and child development information online. Stakeholder interviews identified 3 community values: familism, the promotion of adolescent health, and delivery of economic value. Community stakeholders participated in defining the mobile app requirements. On the basis of community and parent input, the mobile app prototype was designed with 3 sections: (1) 8 modules of video-based parenting skills instruction with content from the face-to-face PIJP program, (2) breath rate information from a wearable device to support awareness of stress levels that could affect parenting, and (3) goal setting and tracking capacities. CONCLUSIONS The findings of this study highlight the utility of an iterative, participatory design process. The CBPR approach and community collaboration enhanced the CeHRes Roadmap by promoting power sharing, facilitating recruitment, and building trust among community members. Experiences applying community research to the initial 3 phases of the CeHRes Roadmap in a Latinx community are discussed, along with plans for the 2 final phases.


2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Job Taiwo Gbadegesin ◽  
Samson Ojekalu ◽  
Taiwo Frances Gbadegesin ◽  
Markson Opeyemi Komolafe

PurposeThis paper empirically provides information on community-driven infrastructure provision through the collective efforts of community-based organizations (CBOs). It offers an insight into emerging events on community-based infrastructure procurement, scholarship and, creating gaps for new frontiers of knowledge on community development research agenda in the emerging economies.Design/methodology/approachIt is drawn upon community-based associations, herein referred to as landlords-landladies community association (LLCAs) – representatives of households in the communities. After interviewing the key members of the groups, we administered copies of the semi-structured questionnaire randomly on the enumerated regular members of sampled seventeen LLCAs. Data were analyzed using descriptive and inferential statistics.FindingsPlanning for a sustainable community, protection and security necessity and Government inadequate attention on emerging communities over the years are the main reasons for the joint decision. Electrification, drainage and road top the lists of the projects executed. Major challenges included diversity and inclusiveness. Development projects' design, execution and commission contribute to performance. Also, LLCAs' clarity of duties and purposes and tenure/duration of officials contribute to the overall membership satisfaction on governance structure and leadership.Research limitations/implicationsIt is limited to the specific reasons for collective efforts, challenges of the participatory movement, membership satisfaction on governance and infrastructure recently procured in the communities. Frontier of studies should be extended to enabling factors.Practical implicationsFindings from this study indicate that community-driven governance with the support of the government enhances community-based infrastructure.Social implicationsPotential values of collective action embellished in the concepts of a social movement, active engagement, communalism, grassroots efforts, social cohesion and planning in bringing peoples of diversities together for common goals with less rigorous formalization.Originality/valueThe novelty of the research is the exposition on the evidence-based innovative concept of integrating the social practice of participatory design, representing a bottom-up model into infrastructure procurement in community settings.


2012 ◽  
Vol 127 (2) ◽  
pp. 186-194 ◽  
Author(s):  
Frank Y. Wong ◽  
Eric J. Nehl ◽  
Jennifer J. Han ◽  
Z. Jennifer Huang ◽  
Yu Wu ◽  
...  

Objectives. We examined reasons for and barriers to participating in HIV voluntary counseling and testing for Asian/Pacific Islander (A/PI) men who have sex with men (MSM) in the U.S. Methods. We collected data between June 2007 and September 2009 in a study known as Men of Asia Testing for HIV, using a cross-sectional community-based participatory design. This national study was conducted in seven U.S. metropolitan cities through a coalition of seven community-based organizations. Results. Participants included 445 self-identified A/PI MSM aged ≥18 years. Perception of being at risk was the number one reason for testing behaviors. For first-time testers, structural barriers (e.g., language barriers with health professionals) and fear of disclosure (e.g., sexual orientation not known to parents) were deterrents for nontesting in the past. Among previously known HIV-positive men, 22% were not seeing a doctor and 19% were not taking any HIV medications. Conclusions. HIV testing, care, and treatment policies would be less than optimal without addressing barriers to testing, including stigma related to sexual orientation, among A/PI MSM.


2020 ◽  
Vol 12 (14) ◽  
pp. 5539 ◽  
Author(s):  
Paola Rizzi ◽  
Anna Porębska

Community participation is widely acknowledged to be crucial in both mitigation and reconstruction planning, as well as in community-based disaster risk reduction (CBDRR) and community-based disaster mitigation (CBDM) processes. However, despite decades of experience, an efficient framework that is acceptable for all actors and suitable for all different phases of the process—ranging from planning to post-disaster recovery—is lacking. The examples presented in this paper shed light on the different dynamics of participatory design processes and compare situations in which participatory design and community planning were introduced before, during, or after a disastrous or potentially disastrous event. Others emphasize the consequences of participation not being introduced at all. Analysis of these processes allows the authors to speculate on a revised, universal model for participatory planning in vulnerable territories and in the context of risk. By emphasizing intrinsic relations of different elements of the process, particularly the responsibility that different actors are prepared—or forced—to take, this article offers insight towards a framework for post-2020 participatory planning.


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