Achieving Control over Sleepiness in Narcolepsy

2001 ◽  
Vol 7 (1) ◽  
pp. 16 ◽  
Author(s):  
Dorothy Bruck ◽  
Roger Broughton
Keyword(s):  
Qualitative Study ◽  
Daytime Sleepiness ◽  
Theory Approach ◽  
The Core ◽  
Quantitative Studies ◽  
Core Category ◽  
Positive Person ◽  
Adaptive Processes ◽  
Grounded Theory Approach ◽  
Behavioural Strategies

Using unstructured interviews, and informed by a grounded theory approach, this qualitative study sought to conceptualise adaptive processes that people with narcolepsy use in coping with their daytime sleepiness. From the interview data of 20 informants, two conceptual frameworks were developed. The core category that emerged was control. One conceptual framework considered factors that affect success in controlling sleep-wake behaviour in narcolepsy, while another focused on behavioural strategies. A descriptive narrative illustrated these frameworks and included quotes indicative of features relevant to coping with sleepiness. This article provides a more positive, person-orientated dimension than may be found in quantitative studies of the implications of this disorder. The findings are potentially an important resource from which professionals can draw in providing therapy to people with a disorder of daytime sleepiness.

scholarly journals An Aristotelian view of therapists' practice in multifamily therapy for young adults with severe eating disorders

2017 ◽  
Vol 26 (4) ◽  
pp. 1149-1159 ◽  
Author(s):  
Berit Støre Brinchmann ◽  
Cathrine Moe ◽  
Mildrid Elisabeth Valvik ◽  
Steven Balmbra ◽  
Siri Lyngmo ◽  
...  
Keyword(s):  
Eating Disorders ◽  
Young Adults ◽  
Participant Observation ◽  
Qualitative Interviews ◽  
Theory Approach ◽  
Ethical Considerations ◽  
Consent Forms ◽  
The Core ◽  
Core Category ◽  
Grounded Theory Approach

Background: Eating disorders are serious conditions which also impact the families of adult patients. There are few qualitative studies of multifamily therapy with adults with severe eating disorders and none concerning the practice of therapists in multifamily therapy. Objectives: The aim of the study is to explore therapists’ practice in multifamily therapy. Research design and participants: A grounded theory approach was chosen. Data were collected through participant observation in two multifamily therapy groups and qualitative interviews with the therapists in those groups. Ethical considerations: The study conforms to the principles outlined in the Declaration of Helsinki. All participants in the multifamily therapy groups received information about the research project and signed consent forms. The data are treated confidentially and anonymised. Findings: The core category was identified as ‘having many strings to one’s bow’, consisting of three subcategories: ‘planning and readjusting’, ‘developing as therapist and team’ and ‘regulating the temperature of the group’. This article discusses the empirical findings in the frame of Aristotelian virtue ethics.

scholarly journals Illness Experiences and Attitudes towards Medication in Online Communities for People with Fibromyalgia

2020 ◽  
Vol 17 (22) ◽  
pp. 8683
Author(s):  
Sabrina Cipolletta ◽  
Silvia Caterina Maria Tomaino ◽  
Eliana Lo Magno ◽  
Elena Faccio
Keyword(s):  
Online Communities ◽  
Fibromyalgia Syndrome ◽  
Qualitative Content Analysis ◽  
Reference Points ◽  
Theory Approach ◽  
The Core ◽  
Illness Experiences ◽  
Core Category ◽  
Grounded Theory Approach

Fibromyalgia is a chronic disabling syndrome, and the legitimacy of its diagnosis is still debated. Internet and online communities may become a relevant resource for affected people. This present study aims to understand the role of online communities relating to fibromyalgia syndrome (FMS) patients’ illness experiences and their attitudes towards medication. A qualitative content analysis based on the grounded theory approach was conducted on 19 conversations from an online forum, and 14 online interviews. Illness experience, lack of reference points, online communities, personal role and attitude towards medication were the five categories identified, with the search for recognition as the core category. The study highlighted that online communities represent a resource that allows users to express and share their needs, especially in terms of legitimacy and recognition.

Caring in Nursing from an Islamic Perspective: A Grounded Theory Approach

2008 ◽  
Vol 12 (1) ◽  
pp. 55-63 ◽  
Author(s):  
Rubina Barolia,
Keyword(s):  
Grounded Theory ◽  
Instrument Development ◽  
Role Modeling ◽  
Theory Approach ◽  
Human Personality ◽  
Grounded Theory Methodology ◽  
Islamic Perspective ◽  
The Core ◽  
Core Category ◽  
Grounded Theory Approach

The aim of this study was to discover the key components of caring within an Islamic context. The grounded theory methodology was utilized to discover caring processes. Seven scholars were interviewed: four were nursing scholars and three were Islamic scholars. Literature was simultaneously searched for support of emerging concepts and to fill in gaps in the emerging theory. The concepts emerging from the data are physical, ethical/moral, ideological, spiritual, and intellectual dimensions of human personality. The five antecedents emerging from the data were the five Rs: response, reflection, relationship, relatedness, and role modeling. Balancing emerged as the core category. Implications include caring instrument development, concepts to modify existing caring theories, and some recommendations for further research.

scholarly journals The experiences and strategies of parents’ of adults with anorexia nervosa or bulimia nervosa: a qualitative study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Jannike Karlstad ◽  
Cathrine Fredriksen Moe ◽  
Mari Wattum ◽  
Berit Støre Brinchmann
Keyword(s):  
Eating Disorders ◽  
Anorexia Nervosa ◽  
Qualitative Study ◽  
Health Services ◽  
Bulimia Nervosa ◽  
Professional Support ◽  
Adult Daughters ◽  
Main Concern ◽  
The Core ◽  
Core Category

Abstract Background Caring for an individual with an eating disorder involves guilt, distress and many extra burdens and unmet needs. This qualitative study explored the experiences of parents with adult daughters suffering from anorexia nervosa or bulimia nervosa and the strategies they adopted. A subsidiary aim of the study was to explore the relationship between the caregivers’ perceived need for professional support and the support they reported receiving in practice from the health services. Methods Semi-structured interviews were conducted with 11 mothers and fathers from across Norway. Data collection, coding and analysis was conducted using the principles of constructivist grounded theory in an iterative process. The main concern shared by participants was identified by this process and their “solution” to the main concern then formed the content of the core category. Results ″Wearing all the hats″ emerged as the core category, indicating that the parents have to fulfil several roles to compensate the lack of help from health services. The three subcategories: “adapting to the illness”, “struggling for understanding and help” and “continuing to stay strong” described how the participants handled their situation as parents of adult daughters with eating disorders. Conclusions In daily life, the parents of adults with eating disorders have to attend to a wide range of caregiver tasks to help their ill daughters. This study suggests that the health services that treat adults with eating disorders should be coordinated, with a professional carer in charge. The parents need easy access to information about the illness and its treatment. They also need professional support for themselves in a demanding situation.

scholarly journals Individuals' experiences of involuntary admissions and preserving control: qualitative study

BJPsych Open ◽  
2018 ◽  
Vol 4 (6) ◽  
pp. 501-509 ◽  
Author(s):  
David McGuinness ◽  
Kathy Murphy ◽  
Emma Bainbridge ◽  
Liz Brosnan ◽  
Mary Keys ◽  
...  
Keyword(s):  
Grounded Theory ◽  
Theoretical Model ◽  
Qualitative Study ◽  
Involuntary Admission ◽  
Theory Approach ◽  
Therapeutic Approaches ◽  
Admission Process ◽  
Social Lives ◽  
Theoretical Sampling ◽  
Grounded Theory Approach

BackgroundA theoretical model of individuals' experiences before, during and after involuntary admission has not yet been established.AimsTo develop an understanding of individuals' experiences over the course of the involuntary admission process.MethodFifty individuals were recruited through purposive and theoretical sampling and interviewed 3 months after their involuntary admission. Analyses were conducted using a Straussian grounded theory approach.ResultsThe ‘theory of preserving control’ (ToPC) emerged from individuals' accounts of how they adapted to the experience of involuntary admission. The ToPC explains how individuals manage to reclaim control over their emotional, personal and social lives and consists of three categories: ‘losing control’, ‘regaining control’ and ‘maintaining control’, and a number of related subcategories.ConclusionsInvoluntary admission triggers a multifaceted process of control preservation. Clinicians need to develop therapeutic approaches that enable individuals to regain and maintain control over the course of their involuntary admission.Declaration of interestNone.

scholarly journals Behavioural Changes in Dementia and their Impact on Professional Caregivers: A Grounded Theory Approach

Dementia ◽  
2017 ◽  
Vol 18 (4) ◽  
pp. 1479-1491 ◽  
Author(s):  
Katie Appleton ◽  
Antonina Pereira
Keyword(s):  
Grounded Theory ◽  
Behavioural Change ◽  
Everyday Practice ◽  
Theory Approach ◽  
Behavioural Symptoms ◽  
Core Category ◽  
Professional Caregiver ◽  
Professional Care ◽  
The Impact ◽  
Grounded Theory Approach

Aim The present study aimed to explore the impact that changes in behavioural symptoms of people living with dementia have on professional caregiver and resident relationships. Method A total of 21 interviews were carried out with professional caregivers of people living with dementia. A grounded theory approach was used to investigate everyday experiences of provision of professional care in dementia settings, focussing specifically on the effect of behavioural change on such relationships. Results A core category emerged from this analysis: ‘Developing behaviour in dementia impacts relationships on a personal and professional level’. Discussion Professionals have recognized as part of their everyday practice an eventual deterioration in relationships between themselves as professional caregivers and the residents, but also between the residents and their family members and among residents themselves. Importantly, understanding patients’ behaviour and behavioural change was identified as a crucial factor to achieve and sustain good relationships between professionals and residents suffering with dementia.

scholarly journals Coaching in design-based learning: a grounded theory approach to create a theoretical model and practical propositions

2019 ◽  
Author(s):  
M. R. van Diggelen ◽  
K. I. Doulougeri ◽  
S. M. Gomez-Puente ◽  
G. Bombaerts ◽  
K. J. H. Dirkx ◽  
...  
Keyword(s):  
Grounded Theory ◽  
Theoretical Model ◽  
Qualitative Study ◽  
Formative Assessment ◽  
Theoretical Perspective ◽  
Problem Based Learning ◽  
Theory Approach ◽  
Coaching Model ◽  
Teachers And Students ◽  
Grounded Theory Approach

Abstract The purpose of this study is to determine what good coaching during design-based learning (DBL) entails by integrating theoretical and practical perspectives on good coaching. For this purpose, a grounded theory approach was used. For the practical perspective, themes on good coaching were derived from a qualitative study on coaching by observing and interviewing teachers and students involved in a DBL project. For the theoretical perspective, we consulted and analyzed literature on scaffolding, feedback, and formative assessment and coaching in problem-based learning from the learning sciences and the studio model from arts and design literature. Synthesizing themes from both perspectives led to the development of a theoretical coaching model consisting of three main categories (and four subcategories), seventeen themes and thirteen propositions. The model and propositions might be of use for those involved in coaching students in DBL and provide relevant directions for research on coaching in DBL.

How accessible are grocery shops for people with dementia? A qualitative study using photo documentation and focus group interviews

Dementia ◽  
2018 ◽  
Vol 19 (6) ◽  
pp. 1872-1888 ◽  
Author(s):  
Anna Brorsson ◽  
Annika Öhman ◽  
Stefan Lundberg ◽  
Malcolm P Cutchin ◽  
Louise Nygård
Keyword(s):  
Grounded Theory ◽  
Focus Group ◽  
Qualitative Study ◽  
Grocery Shopping ◽  
Theory Approach ◽  
Focus Group Interviews ◽  
People With Dementia ◽  
Photo Documentation ◽  
Group Interviews ◽  
Grounded Theory Approach

Background People with dementia who live in ordinary housing need to perform activities outside the home such as visiting friends, talking walks and doing grocery shopping. This article identifies and examines characteristics that may influence accessibility in the space of a grocery shop as perceived by people with dementia. Methods This is a qualitative study with a grounded theory approach. The data collection was done with two different methods. It started with photo documentation and continued with focus group interviews in combination with photo elicitation. Data from both photo documentation and focus groups were analysed according to a grounded theory approach. Results The categories “illogical arrangement”, “overload of products, information and people”, “visual illusions” and “intrusive auditory stimuli” showed characteristics in the grocery shop that influenced how accessible and usable the informants experienced a shop to be. Furthermore, personal capacities in relation to the specific characteristics of the grocery shop space had an influence on how accessible and usable the informants experienced the grocery shop to be. Capacities to find, stay focused and concentrated, meet stress, remember, interpret and discriminate sensory impressions through hearing and sight came to the fore as important. Conclusions Characteristics of both the shop and the person need to be taken into account when supporting people with dementia in grocery shopping.

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