Considerations for purposeful HIV status disclosure among women living with HIV in Ghana

AIDS Care ◽  
2016 ◽  
Vol 29 (5) ◽  
pp. 541-544 ◽  
Author(s):  
Rebecca A. Poku ◽  
Adobea Yaa Owusu ◽  
Patricia Dolan Mullen ◽  
Christine Markham ◽  
Sheryl A. McCurdy
Keyword(s):  
Hiv Status ◽  
Women Living With Hiv ◽  
Hiv Status Disclosure ◽  
Living With Hiv ◽  
Status Disclosure

scholarly journals Exploring pathways from violence and HIV disclosure without consent to depression, social support, and HIV medication self-efficacy among women living with HIV in Metro Vancouver, Canada

2020 ◽  
Vol 7 (1) ◽  
pp. 205510291989738
Author(s):  
Kathleen N Deering ◽  
Melissa Braschel ◽  
Carmen Logie ◽  
Flo Ranville ◽  
Andrea Krüsi ◽  
...  
Keyword(s):  
Self Efficacy ◽  
Internalized Stigma ◽  
Hiv Status ◽  
Women Living With Hiv ◽  
Enacted Stigma ◽  
Verbal Violence ◽  
Hiv Status Disclosure ◽  
Living With Hiv ◽  
Status Disclosure ◽  
The Relationship

We used path analysis to investigate complex pathways from HIV status disclosure without consent, physical/verbal violence and depression, social support, and HIV medication self-efficacy through mediators of HIV stigma among women living with HIV in Canada. In the final model, internalized stigma fully mediated the relationship between physical/verbal violence and reduced medication self-efficacy. Enacted stigma fully mediated the relationship between HIV status disclosure without consent and depression. Internalized stigma (β = 0.252; p < 0.001) had a significant negative direct effect on medication self-efficacy. Enacted stigma had a significant direct effect on depression (β = 0.162; p = 0.037). Findings will help improve services and interventions to promote quality of life and well-being of women living with HIV.

scholarly journals Social concerns related to HIV status disclosure and participation in the prevention of mother-to-child transmission of HIV care among pregnant women in Kenya

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Björn Nordberg ◽  
Erin E. Gabriel ◽  
Edwin Were ◽  
Eunice Kaguiri ◽  
Anna Mia Ekström ◽  
...  
Keyword(s):  
Pregnant Women ◽  
Hiv Disclosure ◽  
Hiv Status ◽  
Lower Odds ◽  
Women Living With Hiv ◽  
Social Concerns ◽  
Hiv Status Disclosure ◽  
Living With Hiv ◽  
Status Disclosure ◽  
Mother To Child

Abstract Background Social concerns about unintentional HIV status disclosure and HIV-related stigma are barriers to pregnant women’s access to prevention of mother-to-child transmission of HIV (PMTCT) care. There is limited quantitative evidence of women’s social and emotional barriers to PMTCT care and HIV disclosure. We aimed to investigate how social concerns related to participation in PMTCT care are associated with HIV status disclosure to partners and relatives among pregnant women living with HIV in western Kenya. Methods A cross-sectional study, including 437 pregnant women living with HIV, was carried out at enrolment in a multicentre mobile phone intervention trial (WelTel PMTCT) in western Kenya. Women diagnosed with HIV on the day of enrolment were excluded. To investigate social concerns and their association with HIV disclosure we used multivariable-adjusted logistic regression, adjusted for sociodemographic and HIV-related characteristics, to estimate odds ratios (OR) and 95% confidence intervals (CI). Results The majority (80%) had disclosed their HIV status to a current partner and 46% to a relative. Older women (35–44 years) had lower odds of disclosure to a partner (OR = 0.15; 95% CI: 0.05–0.44) compared to women 18–24 years. The most common social concern was involuntary HIV status disclosure (reported by 21%). Concern about isolation or lack of support from family or friends was reported by 9%, and was associated with lower odds of disclosure to partners (OR = 0.33; 95% CI: 0.12–0.85) and relatives (OR = 0.37; 95% CI: 0.16–0.85). Concern about separation (reported by 5%; OR = 0.17; 95% CI: 0.05–0.57), and concern about conflict with a partner (reported by 5%; OR = 0.18; 95% CI: 0.05–0.67), was associated with lower odds of disclosure to a partner. Conclusions Compared to previous reports from Kenya, our estimated disclosure rate to a partner is higher, suggesting a possible improvement over time in disclosure. Younger pregnant women appear to be more likely to disclose, suggesting a possible decreased stigma and more openness about HIV among younger couples. Healthcare providers and future interventional studies seeking to increase partner disclosure should consider supporting women regarding their concerns about isolation, lack of support, separation, and conflict with a partner. PMTCT care should be organized to ensure women’s privacy and confidentiality.

scholarly journals The Lived Experiences of Stigmatization in the Process of HIV Status Disclosure among People Living with HIV in Taiwan

2021 ◽  
Vol 18 (10) ◽  
pp. 5089
Author(s):  
Chia-Hui Yu ◽  
Chu-Yu Huang ◽  
Nai-Ying Ko ◽  
Heng-Hsin Tung ◽  
Hui-Man Huang ◽  
...  
Keyword(s):  
Lived Experiences ◽  
Healthcare Professionals ◽  
Social Stigma ◽  
People Living With Hiv ◽  
Hiv Status ◽  
Structured Interviews ◽  
Two Phases ◽  
Hiv Status Disclosure ◽  
Living With Hiv ◽  
Status Disclosure

People living with HIV (PLWH) face social stigma which makes disclosure of HIV status difficult. The purpose of this descriptive qualitative study was to understand the lived experiences of stigmatization in the process of disease disclosure among PLWH in Taiwan. Analysis of the semi-structured interviews from 19 PLWH in Taiwan revealed two phases and six themes. Phase one “experiences before disclosure” involved three themes: “Struggles under the pressure of concealing the HIV Status,” “Torn between fear of unemployment/isolation and desire to protect closed ones,” and “Being forced to disclose the HIV status.” Phase two “experiences after disclosure” included three themes: “Receiving special considerations and requirements from school or work,” “Receiving differential treatments in life and when seeking medical care,” and “Stress relief and restart.” Healthcare professionals need to assess stigmatization in PLWH and develop individualized approaches to assist with the disease disclosure process.

scholarly journals Factors Associated with HIV Status Disclosure and Its Effect on Treatment Adherence and Quality of Life among Children 6–17 Years on Antiretroviral Therapy in Southern Highlands Zone, Tanzania: Unmatched Case Control Study

2018 ◽  
Vol 2018 ◽  
pp. 1-10 ◽  
Author(s):  
Regina Edward Bulali ◽  
Stephen Matthew Kibusi ◽  
Bonaventura C. T. Mpondo
Keyword(s):  
Quality Of Life ◽  
Treatment Adherence ◽  
Case Control Study ◽  
Hiv Status ◽  
Factors Associated ◽  
Hiv Status Disclosure ◽  
Living With Hiv ◽  
Status Disclosure ◽  
Control Study

Background. The World Health Organization (WHO) recommends that children should be informed of their HIV status at ages 6 to 12 years and full disclosure of HIV and AIDS be offered in a caring and supportive manner at about 8 to 10 years. The objective of this study was to determine factors associated with HIV status disclosure and its effect on treatment adherence and health-related quality of life among children between 6 and 17 years of age living with HIV/AIDS in the Southern Highlands Zone, Tanzania, 2017. Methods. A hospital based unmatched case control study was conducted between April and September 2017. A total of 309 children between 6 and 17 years on ART for at least six months were enrolled in this study. Simple random sampling was employed in selecting the children from existing treatment registers. Data were collected using a structured questionnaire which included the WHO Quality of Life standard tool (WHOQOL-BREF 2012 tool) and treatment adherence manual. Multiple logistic regression was used to test for the independent effect of HIV status disclosure on treatment adherence and quality of life at p value less than 0.05. Results. Out of 309 children, only 102 (33%) had their HIV status disclosed to them. The mean age at HIV status disclosure was 12.39 (SD=3.015). HIV status disclosure was high among girls (51%), children aged 10-13 years (48.3%), and those living with their biological parents (59.8%). After adjusting for confounders, being aged between 10-13 and 14-17 years was associated with HIV status disclosure (AOR 19.178, p<0.05 and AOR=65.755, p<0.001, respectively). HIV status disclosure was associated with ART adherence (AOR=8.173, p<0.05) and increased the odds of having good quality of life (AOR=3.283, p<0.001). Conclusions. HIV status disclosure significantly improved adherence to treatment and quality of life among children living with HIV/AIDS.

scholarly journals HIV Disclosure and Quality of Life in People Living with HIV/AIDS in Yogyakarta

2020 ◽  
Vol 4 (2) ◽  
pp. 50-58
Author(s):  
Tutur Irfantoro ◽  
Dwi Kartika Rukmi
Keyword(s):  
Quality Of Life ◽  
Hiv Disclosure ◽  
People Living With Hiv ◽  
Hiv Status ◽  
Cross Sectional ◽  
Hiv Status Disclosure ◽  
Living With Hiv ◽  
Status Disclosure ◽  
Hiv Aids

Background: Victory Plus Foundation is a Non-Government Organization that helps the population directly affected by HIV/AIDS in Yogyakarta. Status disclosure’s research on People Living with HIV/AIDS (PLWHA) in Victory Plus Foundation is scarce. Even though the status disclosure is one of HIV spreading prevention, it has two-sided effects, both negative and positive, so its result can affect the quality of life despite PLWHA having tried to find a support system. Therefore, it is essential to know how the quality of life of PLWHA has opened up their status.Purpose: This study aimed to determine the relationship between HIV status disclosure and the quality of life of PLWHA in the Victory Plus Foundation, Yogyakarta.Method: This descriptive-analytic correlation study with a cross-sectional approach was conducted in June-July 2019 on 68 PLWHA at the Victory Plus Foundation. Purposively, samples were asked to fill out a disclosure questionnaire and WHOQOL-BREF. Univariate data presented in descriptions and Chi-Square tested bivariate data.Result: Most of the HIV status disclosure of PLWHA in the Victory Plus foundation was classified into a moderate category (77.9%) and low quality of life (64 %). The bivariate test result found a significant relationship between the HIV status disclosures with the quality of life in general (p = 0.001) with a moderate relationship closeness (r=0.403).Conclusion: Consequently, there is a relationship between the HIV status disclosures with the quality of life of PLWHA in the Victory Plus Foundation in Yogyakarta.

scholarly journals PROSES DISCLOSURE DAN KONDISI PSIKOSOSIAL ANAK DENGAN HIV/AIDS

2016 ◽  
Vol 17 (2) ◽  
Author(s):  
Arini Dwi Deswanti ◽  
Johanna Debora Imelda
Keyword(s):  
Group Discussion ◽  
Hiv Status ◽  
Psychosocial Condition ◽  
Psychosocial Conditions ◽  
Delayed Disclosure ◽  
Hiv Status Disclosure ◽  
Living With Hiv ◽  
Status Disclosure ◽  
Hiv Aids

<br /><table class="data" width="100%"><tbody><tr valign="top"><td class="value"><p>HIV-infected children have a longer life expectancy after the invention of antiretroviral treatment. Therefore, a well-prepared HIV status disclosure become a significant issue for children living with HIV/AIDS (CLWHA). Previous studies have shown that disclosing a status of children with chronic illness helps them to cope with the illness. However, delayed disclosure for various reasons which often influenced by parents or caregivers consideration affect children’s psychosocial condition. This paper will illustrate the psychosocial condition of CLWHA in relation to the preparation of their disclosure process.This descriptive study used a qualitative approach with observations, indepth interviews, and Focus Group Discussion on CLWHA and their parents/caregivers.Not all disclosed CLWHA has a good psychosocial function. The disclosure are affected by the process and the disclosure level. A HIV disclosed child of HIV positive parents has better psychosocial conditions than a child whose disclose are prepared by a pediatrician or than those who partially disclosed by themselves.Disclosing HIV/AIDS status has significantly affected the psychosocial condition of CLWHA. Therefore, it needs to be carefully well planned and well prepared by taking into account the condition of ADHAs and their caregivers to avoid involuntary disclosure.The government needs to formulate policies on disclosure process for CLWHA to maintain the psychosocial condition of the children so that their quality of life can be better increased.</p></td></tr></tbody></table>

scholarly journals The act of telling: South African women’s narratives of HIV status disclosure to intimate partners in the HPTN 071 (PopART) HIV prevention trial

2021 ◽  
Vol 17 ◽  
pp. 174550652199820
Author(s):  
Lario Viljoen ◽  
Dillon Wademan ◽  
Graeme Hoddinott ◽  
Virginia Bond ◽  
Janet Seeley ◽  
...  
Keyword(s):  
Public Health ◽  
Hiv Prevention ◽  
Hiv Testing ◽  
Hiv Treatment ◽  
Treatment As Prevention ◽  
Hiv Status ◽  
Women Living With Hiv ◽  
Adherence Support ◽  
Hiv Status Disclosure ◽  
Status Disclosure

Background: Public health programming often frames HIV status disclosure as a means to negotiate condom- and abstinence-based prevention or to involve intimate partners in HIV care to garner treatment adherence support. HIV treatment can be used to ensure viral suppression and prevent onward transmission, which provides strong evidence to encourage disclosure. The ideological shift towards HIV treatment as prevention is expected to facilitate disclosure. Purpose: There is a lack of research on how the scale-up of universal HIV testing and treatment influences disclosure practices in high burden settings. In this manuscript, we aim to address this gap. Methods: To this end, we conducted a two-phased narrative performative analysis of the disclosure scripts of 15 women living with HIV in three communities of Western Cape, South Africa where the HPTN 071 (PopART) HIV prevention trial implemented a universal HIV testing and treatment model as part of the intervention. The women were part of a larger cohort nested in the trial. We use Goffman’s dramaturgical metaphor, which understands social interactions as ‘performances’ by ‘actors’ (people) guided by ‘scripts’ (anticipated dialogues/interactions), to explore how women living with HIV manage their status disclosure. Conclusion: We describe how these women perform HIV status disclosure (or deliberate non-disclosure) to retain, reaffirm or redefine existing social scripts with partners. Their performances reveal priorities other than those imagined by public health programmes driving HIV disclosure (or non-disclosure): establishing trust, resenting betrayal and ensuring self-preservation while simultaneously (re)constructing self-identity. None of the women engaged with the concept of treatment as prevention in their disclosure narratives, either to facilitate disclosure or to ‘justify’ non-disclosure. HIV prevention, in general, and treatment adherence support were rarely mentioned as a reason for disclosure. To date, there has been a missed opportunity to ease and support disclosure in health programmes by tapping into existing social scripts, impeding potential patient and public health benefits of universal HIV testing and treatment.

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