scholarly journals The Memory Box Project: Ethical Considerations of Memory Work Amongst AIDS Orphans in South Africa

2018 ◽  
Vol 30 (2) ◽  
pp. 182-195 ◽  
Author(s):  
Judith Lütge Coullie
Author(s):  
Ronel Sanet Davids ◽  
Mariana De Jager

An estimated 90 per cent of children with a hearing loss are born to hearing parents. Most parents are unprepared for the diagnosis, leaving them shocked, confused, sad and bewildered. This article reports on a study aimed at exploring and describing the experiences of hearing parents regarding their child’s hearing loss. The study was conducted in Cape Town, South Africa. The study applied a qualitative methodology with a phenomenological design. Purposive sampling was implemented and data were collected by means of unstructured in-depth interviews. Data were analysed using thematic analysis. Ethical considerations were adhered to. The main findings of the study indicated that hearing parents experience a myriad of emotions when their child is diagnosed with a hearing loss. This study advocates for various stakeholders in the helping profession to collaborate in the best interest of hearing parents and a child with hearing loss. Furthermore, these findings serve as guidelines for professionals working with these families.


Author(s):  
Philippe Denis

This article focuses on working with children affected by HIV/AIDS in South Arica. In the early years of the AIDS epidemic, relief organizations focused their efforts on the material needs of children, but their psychological and emotional needs are no less important. Recognizing this, the Sinomlando Centre for Oral History and Memory Work in Africa, a research and community development center located at the University of KwaZulu-Natal, in Pietermaritzburg South Africa, has pioneered a model of psychosocial intervention for children in grief—particularly but not exclusively in the context of HIV/AIDS. This model uses the methodology of oral history in a novel manner, combined with other techniques such as life story work and narrative therapy. During the early years of the project, the model followed for the family visits was the oral history interview. A discussion on caregiver as the narrator and skills required in memory work especially in these cases concludes this article.


Author(s):  
Mogege David Mosimege

Research in Indigenous Knowledge Systems (IKS) in South Africa has grown at a very high pace in a relatively short period of time. The growth thereof has presented researchers and the knowledge holders with challenges that have never faced them in the same way before. It has necessitated a review of how researchers interact with those who hold the knowledge and has required that protection mechanisms be implemented to safeguard the misuse and misappropriation of the indigenous knowledge. This Chapter outlines the focus on IKS in South Africa since 1995 and reflects on the challenges related to this focus. Specifically the Chapter looks at the challenges related to the recognition of knowledge holders, the ethical issues facing both researchers and knowledge holders, and the protocols that have been designed and used in South Africa and other places. It concludes by indicating the challenges that still remain and how these can be explored further by the research community.


2020 ◽  
Vol 13 (1) ◽  
pp. 144-151
Author(s):  
Ephodia Sebola ◽  
Busisiwe Ntuli ◽  
Sphiwe Madiba

The increasing number of AIDS orphans has led to an increase in child and youth headed households. Adjusting to the parenting role with no support from their extended family is a source of distress for orphans heading households. This study explored the parenting experiences of orphaned youth heading households in resource constraints environments. Methods: The participants were purposely selected from Youth-Headed Households (YHHs) located in informal settlements in the City of Tshwane, South Africa. The data analysis was inductive and followed the thematic approach. Results: Thirteen females and five males aged between 15-24 years were interviewed. The phenomenon of YHHs occured in impoverished informal settlements partly due to orphans being forcefully removed from their parents’ homes after the death of their mothers. The household heads felt morally obliged to care for their siblings, experienced parenting as burdensome, and the role adjustment from being a child to a parent difficult and demanding. The inability to provide adequate food to feed their siblings was a source of emotional stress. In an attempt to fulfil their parenting roles, they dropped out of school to find employment. Conclusion: Although the child support and foster grant are widely recognised for improving children's access to food, education, and basic services in South Africa, the lack thereof contributed to the economic hardships and vulnerability to food insecurity and hunger among orphans in YHHs. There is a need for multi-sectoral interventions to address food insecurity and, in so doing, improve the psychosocial wellbeing of orphans in YHHs.


Author(s):  
Mogege David Mosimege

Research in Indigenous Knowledge Systems (IKS) in South Africa has grown at a very high pace in a relatively short period of time. The growth thereof has presented researchers and the knowledge holders with challenges that have never faced them in the same way before. It has necessitated a review of how researchers interact with those who hold the knowledge and has required that protection mechanisms be implemented to safeguard the misuse and misappropriation of the indigenous knowledge. This Chapter outlines the focus on IKS in South Africa since 1995 and reflects on the challenges related to this focus. Specifically the Chapter looks at the challenges related to the recognition of knowledge holders, the ethical issues facing both researchers and knowledge holders, and the protocols that have been designed and used in South Africa and other places. It concludes by indicating the challenges that still remain and how these can be explored further by the research community.


Africa ◽  
2011 ◽  
Vol 81 (3) ◽  
pp. 351-372 ◽  
Author(s):  
Shireen Ally

ABSTRACTDespite its manifest, if largely undocumented, histories of menacing violence and perilous politics, the thrust of popular memory in the former apartheid bantustan of KaNgwane insists that it was a peaceful, even apolitical, place. In a contemporary South African memorial culture that idealizes memories of victimization by (and resistance to) apartheid and its political violence, why would some in KaNgwane persistently narrate the past through tropes of peaceful order and disavowals of the political? Are these mnemonic effacements in KaNgwane best conceived of as forms of forgetting? This article challenges such a proposition. First, it recovers the hitherto unrecognized politics and violence in KaNgwane, in part (and paradoxically) out of the very same narratives that deny such histories. Second, it explores the dialectical co-implication of remembering and forgetting, and of memory and history, in KaNgwane's supposed anamnesis. And third, it proposes that the occlusions and assurances of memory in KaNgwane are structured by a localized semiotics in which politics is retrospectively signified by order and restraint, and negated by disorder and revolt. In this ‘memory work’, KaNgwane's past is anaesthetized of violence, and heroism is recovered not from rehearsals of victimization and resistance, but from memories of pacified civility instead.


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