Stigma, burden of care, and family functioning in family caregivers of people with mental illnesses: a cross-sectional questionnaire survey

2022 ◽  
pp. 1-16
Author(s):  
Farzaneh Hoseinzadeh ◽  
Sakineh Miri ◽  
Golnaz Foroughameri ◽  
Jamileh Farokhzadian ◽  
Mahin Eslami Shahrbabaki
Keyword(s):  
Family Functioning ◽  
Family Caregivers ◽  
Questionnaire Survey ◽  
Mental Illnesses ◽  
Burden Of Care ◽  
Cross Sectional

scholarly journals A cross-sectional study on spouse and parent differences in caregiving experiences of people living with schizophrenia in rural China

2020 ◽  
Author(s):  
Yu Yu ◽  
Tong-xin Li ◽  
Yi-lu Li ◽  
Dan Qiu ◽  
Shi-jun Xi ◽  
...  
Keyword(s):  
Family Functioning ◽  
Cultural Values ◽  
Family Caregivers ◽  
Cross Sectional Study ◽  
Community Dwelling ◽  
Sectional Study ◽  
Subjective Burden ◽  
Cross Sectional ◽  
Spouse Caregivers ◽  
Parent Caregivers

Abstract Background: Conflicting evidence exists on whether parent or spouse caregivers experience better outcomes when caring for family members with schizophrenia. The current study aims to examine relative caregiving experiences and impacts of spouse and parent caregivers for people living with schizophrenia (PLS) in China.Methods: A cross-sectional study was conducted in a sample of 264 community-dwelling primary family caregivers of PLS. Face-to-face interviews were conducted to collect information on family caregiving activities; objective and subjective burden; caregiver psychological distress, such as depression and anxiety; positive caregiving impact, such as caregiving rewarding feelings; and family functioning for spouse and parent caregivers.Results: Both types of caregivers report engaging in similar caregiving activities and report comparable levels of objective burden. However, parent caregivers report significantly higher subjective burden than spouse caregivers (b=7.94, 95%CI:2.08, 13.80, P<0.01), which is also reflected in significantly higher depression (b =3.88, 95%CI:1.35, 6.41, P<0.01) and anxiety (b=2.53, 95%CI: 0.22, 4.84, P<0.05), and lower family functioning (b =-1.71, 95%CI: -2.73, -0.49, P<0.01). Despite these differences, both groups of caregivers report comparable rewarding feelings about caregiving. Conclusions: Our findings have implications for family caregivers globally, but especially for countries that adhere to Confucian cultural values and provide guidance for future family intervention programs. Such programs may do well to incorporate cultural values and beliefs in understanding caregiving and kinship family dynamics so as to support family caregivers, and in particular, the specific vulnerabilities of parent caregivers.

scholarly journals Spouse and parent differences in caregiving experiences of people living with schizophrenia in rural China

2020 ◽  
Author(s):  
Yu Yu ◽  
Tong-xin Li ◽  
Yi-lu Li ◽  
Dan Qiu ◽  
Shi-jun Xi ◽  
...  
Keyword(s):  
Family Functioning ◽  
Family Caregivers ◽  
Rural China ◽  
Community Dwelling ◽  
Social Characteristics ◽  
Subjective Burden ◽  
Cross Sectional ◽  
Objective Burden ◽  
Parent Caregivers ◽  
Positive Caregiving

Abstract Background: To comprehensively examine and carefully compare caregiving experiences and impacts between spouse and parent caregivers for people living with schizophrenia in China. Methods: A cross-sectional study was conducted in a sample of 264 community-dwelling primary family caregivers of people living with schizophrenia. Face-to-face interviews were conducted to collect information on caregiving activities, both objective and subjective burden, caregiver psychological distress including depression and anxiety, positive caregiving impact including caregiving rewarding feelings and family functioning between spouse and parent caregivers. Results: Both types of caregivers report engaging in similar caregiving activities and report comparable levels of objective burden. However, parent caregivers report significantly higher subjective burden than spouse caregivers (β=7.93, 95%CI:2.13, 13.73), which is also reflected in significantly higher depression (β =3.60, 95%CI:1.09, 6.12) and anxiety scores (β=2.37, 95%CI: 0.08, 4.65), and reports of lower family functioning (β =-1.61, 95%CI: -2.73, -0.49). Despite these differences, both groups of caregivers report comparable rewarding feelings about caregiving. Conclusions: The findings may be explained by the difference between subjective burden and objective burden, as well as the unique cultural and social characteristics of family caregivers in China. The study discusses implications for future intervention, particularly for parents as family caregivers. Keywords: Schizophrenia; family caregivers; caregiver burden; caregiving, parent, spouse

scholarly journals A cross-sectional study on spouse and parent differences in caregiving experiences of people living with schizophrenia in rural China

2020 ◽  
Author(s):  
Yu Yu ◽  
Tong-xin Li ◽  
Yi-lu Li ◽  
Dan Qiu ◽  
Shi-jun Xi ◽  
...  
Keyword(s):  
Family Functioning ◽  
Cultural Values ◽  
Family Caregivers ◽  
Cross Sectional Study ◽  
Community Dwelling ◽  
Sectional Study ◽  
Subjective Burden ◽  
Cross Sectional ◽  
Spouse Caregivers ◽  
Parent Caregivers

Abstract Background: Conflicting evidence exists on whether parent or spouse caregivers experience better outcomes when caring for family members with schizophrenia. The current study aims to examine relative caregiving experiences and impacts of spouse and parent caregivers for people living with schizophrenia (PLS) in China. Methods: A cross-sectional study was conducted in a sample of 264 community-dwelling primary family caregivers of PLS. Face-to-face interviews were conducted to collect information on family caregiving activities; objective and subjective burden; caregiver psychological distress, such as depression and anxiety; positive caregiving impact, such as caregiving rewarding feelings; and family functioning for spouse and parent caregivers. Results: Both types of caregivers report engaging in similar caregiving activities and report comparable levels of objective burden. However, parent caregivers report significantly higher subjective burden than spouse caregivers ( b =7.94, 95% CI :2.08, 13.80, P <0.01), which is also reflected in significantly higher depression ( b =3.88, 95% CI :1.35, 6.41, P <0.01) and anxiety ( b =2.53, 95% CI : 0.22, 4.84, P <0.05), and lower family functioning ( b =-1.71, 95% CI : -2.73, -0.49, P <0.01). Despite these differences, both groups of caregivers report comparable rewarding feelings about caregiving. Conclusions: Our findings have implications for family caregivers globally, but especially for countries that adhere to Confusion cultural values, and provide guidance for future family intervention programs. Such programs may do well to incorporate cultural values and beliefs in understanding caregiving and kinship family dynamics so as support family caregivers, and in particular, the specific vulnerabilities of parent caregivers. Keywords: Schizophrenia; family caregivers; caregiver burden; caregiving, parent, spouse

scholarly journals Caregiver burden and stress in psychiatric hospital admission

2019 ◽  
Vol 72 (6) ◽  
pp. 1699-1706
Author(s):  
Tássia Ghissoni Pedroso ◽  
Angélica da Silva Araújo ◽  
Maria Tereza Signorini Santos ◽  
Sueli Aparecida Frari Galera ◽  
Lucilene Cardoso
Keyword(s):  
Hospital Admission ◽  
Family Caregivers ◽  
Psychiatric Hospital ◽  
Caregiver Burden ◽  
Quantitative Study ◽  
Psychological Symptoms ◽  
Burden Of Care ◽  
Cross Sectional ◽  
Stress Symptom ◽  
Correlation Design

ABSTRACT Objective: to evaluate the relation between sociodemographics factors, stress and burden of care of family caregivers of patients at a psychiatric hospital admission. Method: quantitative study, with a cross-sectional correlation design. A total of 112 family caregivers participated, older than 18, in a Brazilian psychiatric hospital. A sociodemographic questionnaire was used to collect data, the Zarit Burden Interview and LIPP Adult Stress Symptom Inventory. Results: burden of care in family caregivers at a psychiatric hospital admission was significantly associated with stress (p=0.000). The psychological symptoms of stress predicted severe burden. Most caregivers presented a moderate or severe burden, with 52.7% in the resistance phase of stress; 66.1% presented psychological symptoms. Conclusion: results show the alarming situation of caregivers of patients from a psychiatric hospital, evidencing their own vulnerability to illness. Indeed, the during admission in a psychiatric hospital, not only patients need care, but also their caregivers.

Perceived social support and burden of care of male and female caregivers of patient with schizophrenia

2017 ◽  
Vol 8 (1) ◽  
pp. 10
Author(s):  
Narendra Kumar Singh ◽  
Nishant Goyal
Keyword(s):  
Social Support ◽  
Perceived Social Support ◽  
Family Members ◽  
Well Being ◽  
Cross Sectional Study ◽  
Burden Of Care ◽  
Cross Sectional ◽  
Male And Female ◽  
The Social ◽  
The Difference

Background: Schizophrenia is associated with a high familial, social and economic burden. Schizophrenia is also associated with a high level of disability which may create impediments on the social and economic areas of the patients as well as on their respective family networks. Families with schizophrenia may encounter problems such as impairment of health and well being of other family members, restriction of social activities of the family members and shrinking of support from the social network. Aims: The present study examined the difference in perceived social support and burden of care between the male and female caregivers of patients with schizophrenia. Methods: This was a cross-sectional study examining the difference in perceived social support and burden of care between the male and female caregivers of patients with schizophrenia. The sample consisted of 60 (30 male and 30 female) caregivers of the patients with the diagnosis of schizophrenia as per ICD-10-DCR. Results and Conclusion: This study revealed that male caregivers perceived more social support and less burden of care as compared to female caregivers. Key words: Gender, social support, burden

Burden of Care Among Mothers Having Children with Congenital Heart Diseases

2020 ◽  
Vol 40 (2) ◽  
pp. 72-77
Author(s):  
Nita Sharma ◽  
Pratima Sharma ◽  
Tulashi Adhikari Mishra
Keyword(s):  
Heart Disease ◽  
Congenital Heart ◽  
Heart Diseases ◽  
Sampling Technique ◽  
Structured Interview ◽  
Health Condition ◽  
P Value ◽  
Burden Of Care ◽  
Cross Sectional ◽  
Significance Level

Introduction: Congenital Heart Disease (CHD) is a problem with structure and function of the heart that is present at birth.  Children with CHD require special care, treatment and follow up for a number of common conditions which may be quite straining to the care givers. The objective of the study was to find out the burden of care among mothers having children with CHD. Methods: This descriptive cross-sectional study was carried out in a cardiac centre of Nepal. A total of 95 mothers having children with CHD attending outpatient department of our institute were selected as the sample for the study using non-probability purposive sampling technique. A semi structured interview questionnaire consisting of the Modified Caregiver Strain Index was used to assess the burden of care among mothers having children with CHD. Frequency and percent were used to describe the variables and chi- square test at 0.05 significance level was used to analyse associations. Results: Most (77.9%) of the mothers were regularly strained to find that their children’s health condition was deteriorating due to CHD. Nearly half (44.2%) of the mothers always had financial constrain while giving care to the child, nearly half (40%) of the mothers had done emotional adjustments to take care of their children with CHD, another two-fifths (28.4%) of the mothers sometimes had disturbed sleep and almost half (46.3%) of the mothers were always upset due to some behaviour of their child with CHD. Half (50.5%) of the mothers had high level of burden of care. Statistically significant association were found between age of the mother and level of burden of care (p value = 0.05). Similarly, the type of family (p value = 0.005), age of the children (p value = 0.000) and type of CHD (p value = 0.002) were significantly associated with the level of burden of care among the mothers. Conclusion: The study concluded that mothers tend to feel less burden of care as the child grows older, mothers having children with cyanotic heart disease tend to experience more burden of care. Mothers of less than thirty years of age and living in a joint family also experience more burden of care.  

scholarly journals A cross-sectional survey of stigma towards people with a mental illness in the general public. The role of employment, domestic noise disturbance and age

2021 ◽  
Author(s):  
S. C. C. Oudejans ◽  
M. E. Spits ◽  
J. van Weeghel
Keyword(s):  
Depressive Disorder ◽  
Social Services ◽  
Psychotic Disorder ◽  
Social Distance ◽  
Community Integration ◽  
Mental Illnesses ◽  
Public Stigma ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Noise Disturbance

Abstract Introduction Stigmatization impedes the social integration of persons recovering from mental illnesses. Little is known about characteristics of the stigmatized person that lessen or aggravate public stigma. Purpose This study investigates which characteristics of persons with mental illnesses (i.e. with a depression or a psychotic disorder) might increase or decrease the likelihood of public stigma. Methods Over 2,000 adults read one of sixteen vignettes describing a person with a depressive disorder or a psychotic disorder and answered a set of items measuring social distance. Results The person who was employed (vs. unemployed), or whose neighbors did not experience domestic noise disturbance (vs. disturbance) elicited significantly less social distance. Also persons with a depressive disorder elicited less social distance, vs. persons with a psychotic disorder. Conclusion Employment and good housing circumstances may destigmatize persons coping with mental illnesses. Mental health and social services should encourage paid employment, quality housing and other paths to community integration.

scholarly journals Zellweger spectrum disorder: A cross-sectional study of symptom prevalence using input from family caregivers

2020 ◽  
Vol 25 ◽  
pp. 100694
Author(s):  
Mousumi Bose ◽  
David D. Cuthbertson ◽  
Marsha A. Fraser ◽  
Jean-Baptiste Roullet ◽  
K. Michael Gibson ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Cross Sectional Study ◽  
Spectrum Disorder ◽  
Sectional Study ◽  
Cross Sectional ◽  
Symptom Prevalence ◽  
Zellweger Spectrum Disorder
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