Parenting experiences of cancer patients with minor children and their conversations about the possibility of death: A cross-sectional web-based survey for the online cancer community

Abstract Purpose Many cancer patients with minor children experience difficulty when talking about their illness with their children. The aim of this study is to investigate the parenting experiences of cancer patients with minor children and their conversations about the possibility of death. Methods A cross-sectional web-based survey was conducted between April and May 2019. Cancer patients with minor children were recruited from among an online peer support group called “Cancer Parents”. The participants were asked to complete a questionnaire about their experiences talking about their illness with their children. The participants were classified into those who disclosed their cancer to their children (“disclosed group”), and those who didn’t disclose (“undisclosed group”). The association between whether they talked with their children about their cancer and their conversations about the possibility of death were examined. Results A total of 370 participants were analyzed (80.8% female, median age 43.0 years). The disclosed group (n = 274, 74.1%) wanted to know what their child felt than the undisclosed group (p < 0.001). The undisclosed group didn’t want their children to see their suffering (p = 0.002) and didn’t know how to explain their disease condition ( p < 0.002). Both the disclosed (42.1%) and undisclosed (6.5%) groups told their children about the possibility of death. Conclusion This study showed the disclosed group wanted to know their children’s feelings and they tended to have a conversation about the possibility of death with their children, compared to the undisclosed group.

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Determinants of cancer patients revealing their own cancers to minor children: A cross-sectional web-based survey in an online cancer community.

Journal of Clinical Oncology ◽

10.1200/jco.2019.37.31_suppl.23 ◽

2019 ◽

Vol 37 (31_suppl) ◽

pp. 23-23

Author(s):

Tatsuto Terada ◽

Kazuhiro Kosugi ◽

Yohei Nishiguchi ◽

Tomofumi Miura ◽

Daisuke Fujisawa ◽

...

Keyword(s):

Cancer Patients ◽

Online Community ◽

Cancer Site ◽

Cross Sectional ◽

Age And Gender ◽

Web Based ◽

Primary Cancer Site ◽

Minor Children ◽

Male Patients ◽

And Gender

23 Background: It is extremely stressful and difficult for cancer patients to tell their children that they had cancer. However, few small studies have been conducted to assess the characteristics of patients who told their children of their cancer. This study aimed to explore determinants of patients who revealed to their minor children that they had cancer. Methods: This was a sub-analysis of a cross-sectional web-based survey. Cancer patients with minor children were recruited from an online community and were asked to answer a questionnaire. Subjects diagnosed with cancer and whose eldest children were aged < 18 years were enrolled. Binomial logistic regression analysis was performed to assess the determinants of patients who revealed to their minor children that they had cancer. Results: Overall, 313 subjects were eligible [19.2% male; mean age (SD), 42.1 years (5.57)]. The commonest primary cancer site was the breast (32.9%), followed by gynecological organs (12.1%) and colorectal region (11.2%). Among the patients, 218 (69.6%) revealed their cancer to their children. In a multivariate analysis, children’s age > 6 years significantly correlated with parents revealing to their children that they had cancer compared to children’s age < 6 years [children aged 12–17 years: odds ratio (OR), 27.2; 95% confidence interval (CI), 9.52–77.93; p < 0.001; children aged 6–11 years: OR, 10.39; 95% CI, 4.53–23.86; p < 0.001]. In the subgroup analysis, children’s age, male patients with children aged 0–5 years (OR, 7.11; 95% CI, 1.14–44.22; p = 0.036), and female children aged 6–11 years (OR, 3.85; 95% CI, 1.1–13.51; p = 0.035) correlated with the parents revealing to their children that they had cancer. Conclusions: The decision to reveal parent’s cancer to minor children was affected by children’s age and gender of patients and their children.

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Talking With Children About Prognosis: The Decisions and Experiences of Mothers With Metastatic Cancer

JCO Oncology Practice ◽

10.1200/op.21.00003 ◽

2021 ◽

pp. OP.21.00003

Author(s):

Eliza M. Park ◽

Caitlin Jensen ◽

Mi-Kyung Song ◽

Justin M. Yopp ◽

Allison M. Deal ◽

...

Keyword(s):

Qualitative Content Analysis ◽

Metastatic Cancer ◽

Parental Communication ◽

Cross Sectional Survey ◽

Cross Sectional ◽

Web Based ◽

Psychosocial Concerns ◽

Minor Children ◽

Communication Decisions ◽

The Right

PURPOSE: Parents with metastatic cancer report unique concerns and challenges when discussing their illness with their minor children. Greater understanding of parents’ communication experiences can facilitate these discussions. This study aimed to describe the challenges, approaches, and decisions related to discussing prognosis among a sample of mothers with metastatic cancer. METHODS: We conducted a web-based cross-sectional survey assessing the psychosocial concerns of 224 women with metastatic cancer who had minor children. This analysis focused on participant responses to structured and open-ended questions addressing communication with their children. We used descriptive statistics to summarize responses to the structured questions and qualitative content analysis for responses to open-ended questions. RESULTS: Nearly 80% (n = 176) reported they had discussed their prognosis with at least one of their children; 79% identified at least one barrier to these discussions. The most common obstacles were participants’ uncertainty about their illness trajectory (43%) and emotional distress associated with these conversations (41%). Qualitative analyses revealed three principles that guided mothers’ communication decisions: commitment to honesty and protection; child developmental readiness; and beliefs about the right time. Approaches to discussing prognosis included total honesty, using the language of chronic illness, gradual disclosure, waiting for questions, and emphasizing hope, love, and reassurance. CONCLUSION: This study provides further evidence of the complexity and challenges of parental communication with their children about metastatic cancer. There is a need for both clinicians and researchers to identify, test, and implement evidence-based strategies to assist ill parents with their communication concerns.

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Role of Peer Support in Posttraumatic Growth Among Adolescent and Young Adult (AYA) Patients and Survivors with Pediatric and AYA Cancer

10.21203/rs.3.rs-1059986/v1 ◽

2021 ◽

Author(s):

Motohiro Matsui ◽

Kanako Taku ◽

Rina Tsutsumi ◽

Midori Ueno ◽

Mayuri Seto ◽

...

Keyword(s):

Posttraumatic Growth ◽

Cancer Patients ◽

Peer Support ◽

Psychosocial Interventions ◽

Adolescent And Young Adult ◽

Cross Sectional ◽

Web Based ◽

Community Or ◽

Stress Symptoms

Abstract Purpose Adolescents and young adults (AYA) who undergo cancer treatment sometimes report posttraumatic growth (PTG) and experience posttraumatic stress symptoms (PTSS). Although the importance of peer support has been demonstrated, its association with PTG, especially in the five, distinct domains of PTG, needs to be investigated further in AYA cancer survivors. The present study examined the role of demographics, peer support, and PTSS in PTG among AYA cancer patients and survivors. MethodsThe present, multicenter, cross-sectional, prospective, web-based study enrolled AYA cancer patients and survivors (median age 28 years). Of 549 AYA patients recruited, 212 patients from 11 cancer centers and 12 cancer patient communities agreed to participate by completing a self-reported measure of PTG (PTGIX-J) and providing information about their diagnosis, treatment, peer support (affiliation with an AYA patient community or friendship with other AYA cancer patients), social status, and PTSS. Multiple regression analysis was used to identify significant correlates in the total score and five PTG domains. ResultsIn general, PTG was positively associated with male sex, years since diagnosis, having a confidant, and friendship with other AYA cancer patients. PTG was not significantly related to age, age at diagnosis, affiliation to an AYA patient community or PTSS. Friendship with other AYA cancer patients was positively associated with all five PTG subscales. PTSS was not associated with PTG but was associated with a subscale of “appreciation of life”. For the five subscale scores, “belonging to a religion” was positively associated with “spiritual change,” and “having a confidant” and “a good relationship with siblings” were positively associated with “appreciation of life.” Conclusion “Having a confidant” and “friendship with other AYA cancer patients” was positively associated with PTG. Psychosocial interventions mobilizing peer support can potentially contribute to promoting PTG in AYA cancer patients.

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Awareness of the preventive measures against Covid -19 spread among small shop owners

International Journal of Research in Pharmaceutical Sciences ◽

10.26452/ijrps.v11ispl1.3564 ◽

2020 ◽

Vol 11 (SPL1) ◽

pp. 1144-1150

Author(s):

Muralidharan V A ◽

Gheena S

Keyword(s):

Infectious Disease ◽

Data Analysis ◽

Preventive Measures ◽

Cross Sectional Study ◽

Sectional Study ◽

Positive Perception ◽

Cross Sectional ◽

Web Based ◽

Small Shop ◽

Structured Questionnaire

Covid -19 is an infectious disease caused by the newly discovered strain of coronavirus. As there is no vaccine discovered, the only way to prevent the spread is through following the practice of social isolation. But prolonged isolation may also lead to psychological stress and problems. The objective of the survey was to assess the knowledge and awareness of preventive measures against Covid 19 amongst small shop owners. A web-based cross-sectional study was conducted amongst the small shop owners. A structured questionnaire comprising 15-17 questions had been put forth to assess the Covid 19 related knowledge and perception. The shopkeepers were contacted telephonically and responses recorded. The data analysis was performed using IBM SPSS statistics. Although the majority of the population had a positive perception about the preventive measures against the Covid spread, 36% of the shopkeepers were not aware of the preventive measures against the Covid spread. This study found optimal knowledge and perception of the preventive measures against Covid spread among the shopkeepers but misinformation and misunderstanding still prevailing. The shopkeepers are crucial in the prevention of the spread of Covid 19 and educating them might aid us in the fight against Covid- 19.

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Fraud Detection Protocol for Web-Based Research Among Men Who Have Sex With Men: Development and Descriptive Evaluation (Preprint)

10.2196/preprints.12344 ◽

2018 ◽

Author(s):

April M Ballard ◽

Trey Cardwell ◽

April M Young

Keyword(s):

Survey Research ◽

Hiv Transmission ◽

Personal Information ◽

Fraud Detection ◽

Detection Algorithm ◽

Cross Sectional ◽

Web Based ◽

Young Msm ◽

Data Survey ◽

Sex With Men

BACKGROUND Internet is becoming an increasingly common tool for survey research, particularly among “hidden” or vulnerable populations, such as men who have sex with men (MSM). Web-based research has many advantages for participants and researchers, but fraud can present a significant threat to data integrity. OBJECTIVE The purpose of this analysis was to evaluate fraud detection strategies in a Web-based survey of young MSM and describe new protocols to improve fraud detection in Web-based survey research. METHODS This study involved a cross-sectional Web-based survey that examined individual- and network-level risk factors for HIV transmission and substance use among young MSM residing in 15 counties in Central Kentucky. Each survey entry, which was at least 50% complete, was evaluated by the study staff for fraud using an algorithm involving 8 criteria based on a combination of geolocation data, survey data, and personal information. Entries were classified as fraudulent, potentially fraudulent, or valid. Descriptive analyses were performed to describe each fraud detection criterion among entries. RESULTS Of the 414 survey entries, the final categorization resulted in 119 (28.7%) entries identified as fraud, 42 (10.1%) as potential fraud, and 253 (61.1%) as valid. Geolocation outside of the study area (164/414, 39.6%) was the most frequently violated criterion. However, 33.3% (82/246) of the entries that had ineligible geolocations belonged to participants who were in eligible locations (as verified by their request to mail payment to an address within the study area or participation at a local event). The second most frequently violated criterion was an invalid phone number (94/414, 22.7%), followed by mismatching names within an entry (43/414, 10.4%) and unusual email addresses (37/414, 8.9%). Less than 5% (18/414) of the entries had some combination of personal information items matching that of a previous entry. CONCLUSIONS This study suggests that researchers conducting Web-based surveys of MSM should be vigilant about the potential for fraud. Researchers should have a fraud detection algorithm in place prior to data collection and should not rely on the Internet Protocol (IP) address or geolocation alone, but should rather use a combination of indicators.

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A focus on postpartum depression among Jordanian mothers

International Journal of Social Psychiatry ◽

10.1177/00207640211000100 ◽

2021 ◽

pp. 002076402110001

Author(s):

Esra’ O Taybeh

Keyword(s):

Social Support ◽

Postpartum Depression ◽

Marital Conflict ◽

Multivariate Logistic Regression Analysis ◽

Depression Scale ◽

Negative Attitude ◽

Cross Sectional Study ◽

Cross Sectional ◽

Web Based ◽

Unplanned Pregnancies

Background: The magnitude of postpartum depression in Jordan is under documented, and little is known about its potential sociodemographic and clinical correlates. Purpose: The aim of this study was to explore the prevalence and risk factors associated with postpartum depression among Jordanian mothers in the first 18 months after delivery. Method: This descriptive cross-sectional study was carried out from April to June 2020 in Jordan. A web-based survey was used for recruiting eligible participants. An Arabic version of the validated self-administered Edinburgh Postnatal Depression Scale questionnaire was used to measure postpartum depression with a cut-off score of ⩾12 which indicates probable depression. Results: A total of 1,071 Jordanian women participated in the study. Of those, 567 women had postpartum depression (52.9%). Multivariate logistic regression analysis revealed that postpartum depression was significantly associated with marital conflict (OR: 4.91; 95% CI: 2.36–10.20), negative attitude from the pregnancy (OR: 0.67; 95% CI: 0.45–0.99), unplanned pregnancies (OR: 1.73; 95% CI: 1.16–2.60), lack of social support (OR: 1.93; 95% CI: 1.12–3.32), time from last delivery (OR: 0.99; 95% CI: 0.98–1.00), insomnia (OR: 0.53; 95% CI: 0.35–0.82), and depression during the pregnancy (OR: 0.51; 95% CI: 0.33–0.78). Most of the participants (65.7%) sought social support to avoid, reduce, or treat postpartum depression. Conclusions: Postpartum depression among Jordanian women was the highest in comparison to that of women in other countries in the region. Therefore, screening for the presence of depressive symptoms should be implemented during regular pregnancy care visits. Social support should be encouraged in order to avoid, reduce, or treat postpartum depression.

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Assessment of Knowledge, Attitudes, and Practices Regarding Dengue among Physicians: A Web-Based Cross-Sectional Survey

Behavioral Sciences ◽

10.3390/bs11080105 ◽

2021 ◽

Vol 11 (8) ◽

pp. 105

Author(s):

Kranthi Swaroop Koonisetty ◽

Ubydul Haque ◽

Rajesh Nandy ◽

Nasrin Aghamohammadi ◽

Tamanna Urmi ◽

...

Keyword(s):

Dengue Fever ◽

Viral Infections ◽

Diagnosis And Treatment ◽

Cross Sectional Survey ◽

Accurate Identification ◽

Cross Sectional ◽

Web Based ◽

Attitudes And Practices ◽

Aedes Mosquitoes ◽

Knowledge Attitudes And Practices

Dengue fever is one of the most important viral infections transmitted by Aedes mosquitoes and a major cause of morbidity and mortality globally. Accurate identification of cases and treatment of dengue patients at the early stages can reduce medical complications and dengue mortality rate. This survey aims to determine the knowledge, attitude, and practices (KAP) among physicians in dengue diagnosis and treatment. This study was conducted among physicians in Turkey as one nonendemic country and Bangladesh, India, and Malaysia as three dengue-endemic countries. The dosing frequencies, maximum doses, and contraindications in dengue fever were examined. The results found that physicians from Bangladesh, India, and Malaysia have higher KAP scores in dengue diagnosis and treatment compared to physicians in Turkey. This may be due to a lack of physician’s exposure to a dengue patient as Turkey is considered a nonendemic country. This assessment may help establish a guideline for intervention strategies among physicians to have successful treatment outcomes and reduce dengue mortality.

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