scholarly journals Workshop: Better ask those who are concerned: co-creation in participatory epidemiology and health promotion

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
◽  
Keyword(s):  
Public Health ◽  
Health Promotion ◽  
Participatory Research ◽  
Synergistic Effects ◽  
Research Process ◽  
User Participation ◽  
Participatory Epidemiology ◽  
Community Ownership ◽  
Participatory Health Research ◽  
Research Findings

Abstract Objectives The hallmark of participatory research is the establishment of equitable research partnerships with a diverse group of stakeholders such as public health professionals, health activists and community representatives. This includes co-creation as a guiding principle that informs several aspects of the research process. Originally, co-creation is a concept from management science and software design and is focused on achieving synergistic effects through user participation in design processes. Co-creation in participatory epidemiology and health promotion aims to improve the life of those who are subjects of research by giving them a stake how studies are carried out, respectively how health promoting services, programmes or products are designed and provided. However, implementing and realizing co-creation is challenging. Participation asks for a systematic reflection of underlying power relations in the research process through dialog, recursive methods of understanding, and joint planning. This skills building seminar will present relevant co-creation concepts and methods. Additionally, illustrative examples from research practice are provided and will outline ways for implementing co-creation in the context of participatory epidemiology and health promotion. The seminar starts with a brief introduction on epistemological principles and ethical norms of participatory health research and state of the art definitions of co-creation. This presentation is followed by an introduction of how co-creation is impacting epidemiological research with regard to several aspects of the research process. Next, a project is presented in which co-creation informed the development of a virtual reality game in the field of alcohol prevention. Finally, participants will be split in two groups to have the opportunity to share thoughts on certain aspects of participatory research and co-creation in a poster discussion. More specifically, we aim to discuss: Does co-creation differ in the contexts of participatory epidemiology and health promotion? And if so how?What is needed to realize co-creation processes in practice? The seminar targets everyone working in the field of population health monitoring and health promotion. The timetable is as follows: Introduction, principles and definitions (15 min), participatory epidemiology and co-creation (15 min), co-designing in prevention and health promotion (15 min), poster discussions (30 min), plenary discussion and roundup (15 min). Main messages Co-creation is a way to improve the relevance of research findings, services and products for public health practice and the involved communities.Co-creation processes are vital to embrace the creativity of users and to ensure relevance and community ownership for health promotion programmes and services. Key messages Co-creation is a way to improve the relevance of research findings and products for various stakeholders. Co-creation is vital to embrace users’ creativity and to ensure community ownership.

scholarly journals ‘You want to deal with power while riding on power’: global perspectives on power in participatory health research and co-production approaches

2021 ◽  
Vol 6 (11) ◽  
pp. e006978
Author(s):  
Beatrice R Egid ◽  
María Roura ◽  
Bachera Aktar ◽  
Jessica Amegee Quach ◽  
Ivy Chumo ◽  
...  
Keyword(s):  
Participatory Research ◽  
Social Ecology ◽  
Research Process ◽  
Macro Level ◽  
Structural Level ◽  
Research Partnerships ◽  
Global Perspectives ◽  
Traditional Research ◽  
Participatory Health Research ◽  
The Social

IntroductionPower relations permeate research partnerships and compromise the ability of participatory research approaches to bring about transformational and sustainable change. This study aimed to explore how participatory health researchers engaged in co-production research perceive and experience ‘power’, and how it is discussed and addressed within the context of research partnerships.MethodsFive online workshops were carried out with participatory health researchers working in different global contexts. Transcripts of the workshops were analysed thematically against the ‘Social Ecology of Power’ framework and mapped at the micro (individual), meso (interpersonal) or macro (structural) level.ResultsA total of 59 participants, with participatory experience in 24 different countries, attended the workshops. At the micro level, key findings included the rarity of explicit discussions on the meaning and impact of power, the use of reflexivity for examining assumptions and power differentials, and the perceived importance of strengthening co-researcher capacity to shift power. At the meso level, participants emphasised the need to manage co-researcher expectations, create spaces for trusted dialogue, and consider the potential risks faced by empowered community partners. Participants were divided over whether gatekeeper engagement aided the research process or acted to exclude marginalised groups from participating. At the macro level, colonial and ‘traditional’ research legacies were acknowledged to have generated and maintained power inequities within research partnerships.ConclusionsThe ‘Social Ecology of Power’ framework is a useful tool for engaging with power inequities that cut across the social ecology, highlighting how they can operate at the micro, meso and macro level. This study reiterates that power is pervasive, and that while many researchers are intentional about engaging with power, actions and available tools must be used more systematically to identify and address power imbalances in participatory research partnerships, in order to contribute to improved equity and social justice outcomes.

scholarly journals Co-Creation in participatory epidemiology

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
M Bach ◽  
C Santos-Hövener ◽  
S Jordan
Keyword(s):  
Public Health ◽  
Public Health Practice ◽  
Research Process ◽  
Epidemiological Studies ◽  
Research Practice ◽  
Health Administration ◽  
Multiple Perspectives ◽  
Research Partnerships ◽  
Participatory Epidemiology ◽  
Epidemiologic Evidence

Abstract Background Participatory epidemiology aims to involve public health professionals, health activists, and community representatives in epidemiological studies. Paramount are equitable research partnerships for identifying the causes of health problems, generating data, and finding ways to address health related issues. Alongside the research process, co-creation informs various aspects of participatory epidemiology. Methods A scoping review was conducted to develop the conceptual foundations of participatory epidemiology. Workshops with staff from public health administration and public health practitioners were held to check feasibility of the concept for public health monitoring, policy making and the development of relevant public health recommendations. From this research, principles and practices of co-creation were identified. Results Co-creation is of importance for participatory epidemiology. 1) Methodologically: Co-creation asks to apply multiple perspectives (research, practice, communities) in data collection and synthesis, what may require the adaption of a given study design. 2) Research practice: Co-creation in participatory epidemiology means producing epidemiologic evidence while contributing to concrete public health interventions, two goals that have to be balanced. 3) Personal attitudes: In participatory epidemiology academic researchers, practitioners, and community representatives are requested to acknowledge each other as co-researching partners, which can be challenging for each of them. Conclusions Co-creation is a prerequisite for establishing equitable research partnerships. In participatory epidemiology, co-creation offers ways to produce meaningful knowledge for research and practice. Main messages Participatory epidemiology offers ways of producing epidemiologic evidence while contributing to public health practice. Co-creation is a prerequisite, way, and attitude to conduct meaningful research, hopefully for all of those who are involved.

scholarly journals Community-based participatory health research: principles and practice

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
H Unger
Keyword(s):  
Lived Experience ◽  
Participatory Research ◽  
Health Research ◽  
Community Based Participatory Research ◽  
Active Role ◽  
Research Process ◽  
Community Based ◽  
Research Fields ◽  
Participatory Health Research ◽  
Trust And Reciprocity

Abstract Community-based participatory research (CBPR) is a collaborative approach to research that aims to improve the health of marginalized communities and reduce health disparities. It starts with a topic of concern for the community and involves iterative cycles of action and reflection to initiate change. Community members are involved as partners and trained as peer researchers to take an active role in the research process. Processes of capacity building and empowerment play a prominent role. As a general principle, participatory research does not primarily focus on health problems, but pays at least equal attention to the resources and capacities of communities. It places a strong focus on developing trust and reciprocity in research relationships. Regarding methodology, various empirical research methods are used in CBPR study designs, including qualitative, quantitative, mixed-methods and arts-based methods. Arts-based methods such as photovoice, digital storytelling, mapping and drawings facilitate the expression of lived experience, including sensitive aspects, through creative verbal and non-verbal means. These methods expand the available means of expression and as such are highly valuable in research fields where verbal communication is challenged by language barriers and diverse cultural backgrounds as well as sensitive topics and experiences. Participatory health research has been conducted with diverse migrant and refugee groups internationally. Due to legal and other reasons, refugees may be limited in their capacities for participation. The presentation will discuss the strengths and limitations of CBPR including structural obstacles to equitable partnerships.

scholarly journals “Spirit, Safety, and a Stand-off ”: The Research-Creation Process and Its Roles in Relationality and Reconciliation among Researcher and Indigenous Co-Learners in Saskatchewan, Canada

2019 ◽  
Vol 5 (2) ◽  
pp. 37-60
Author(s):  
Myron Neapetung ◽  
Lori Bradford ◽  
Lalita Bharadwaj
Keyword(s):  
First Nations ◽  
Research Process ◽  
Lessons Learned ◽  
Research Information ◽  
Community Members ◽  
Translation Process ◽  
Community Based ◽  
Community Ownership ◽  
Research Findings ◽  
Nations Community

Provision of safe water on reserves is an ongoing problem in Canada that can be addressed by mobilizing water knowledge across diverse platforms to a variety of audiences. A participatory artistic animation video on the lived experiences of Elderswith water in Yellow Quill First Nation, Treaty Four territory, was created to mobilize knowledge beyond conventional peer-review channels. Research findings from interviews with 22 Elders were translated through a collaborative process into a video with a storytelling format that harmonized narratives, visual arts, music, and meaningful symbols. Three themes emerged which centered on the spirituality of water, the survival need for water, and standoffs in water management. The translation process, engagement and video output were evaluated using an autoethnographic approach with two members of the research team. We demonstrate how the collaborative research process and co-created video enhance community-based participatory knowledge translation and sharing. We also express how the video augments First Nations community ownership, control, access and possession (OCAP) of research information that aligns with their storytelling traditions and does so in a youth-friendly, e-compatible form. Through the evaluative process we share lessons learned about the value and effectiveness of the video as a tool for fostering partnerships, and reconciliation. The benefits and positive impacts of the video for the Yellow Quill community and for community members are discussed.

scholarly journals Applying Community-Based Participatory Research Partnership Principles to Public Health Practice-Based Research Networks

SAGE Open ◽  
2016 ◽  
Vol 6 (4) ◽  
pp. 215824401667921 ◽  
Author(s):  
Nancy L. Winterbauer ◽  
Betty Bekemeier ◽  
Lisa VanRaemdonck ◽  
Anna G. Hoover
Keyword(s):  
Public Health ◽  
Participatory Research ◽  
Real World ◽  
Public Health Practice ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Dissemination And Implementation ◽  
Research Networks ◽  
Community Based ◽  
Practice Based Research

With real-world relevance and translatability as important goals, applied methodological approaches have arisen along the participatory continuum that value context and empower stakeholders to partner actively with academics throughout the research process. Community-based participatory research (CBPR) provides the gold standard for equitable, partnered research in traditional communities. Practice-based research networks (PBRNs) also have developed, coalescing communities of practice and of academics to identify, study, and answer practice-relevant questions. To optimize PBRN potential for expanding scientific knowledge, while bridging divides across knowledge production, dissemination, and implementation, we elucidate how PBRN partnerships can be strengthened by applying CBPR principles to build and maintain research collaboratives that empower practice partners. Examining the applicability of CBPR partnership principles to public health (PH) PBRNs, we conclude that PH-PBRNs can serve as authentic, sustainable CBPR partnerships, ensuring the co-production of new knowledge, while also improving and expanding the implementation and impact of research findings in real-world settings.

scholarly journals Municipal Health Promotion as Part of Urban Health: A Policy Framework for Action

2020 ◽  
Vol 12 (16) ◽  
pp. 6685
Author(s):  
Eike Quilling ◽  
Birgit Babitsch ◽  
Kevin Dadaczynski ◽  
Stefanie Kruse ◽  
Maja Kuchler ◽  
...  
Keyword(s):  
Public Health ◽  
Health Promotion ◽  
Health Equity ◽  
Economic Status ◽  
Public Health Research ◽  
Living Environment ◽  
Policy Framework ◽  
Cross Sectional ◽  
Consensus Document ◽  
Research Findings

The link between health, socio-economic status and the living environment is increasingly moving into the focus of public health research and policy. The aim of the European Union’s Project “Joint Action Health Equity Europe (JAHEE)” is to enable countries to identify and implement needs-based measures to promote health equity. In one of JAHEE’s work packages, focusing on healthy living environments as a strategy to tackle health inequities, a Policy Framework for Action (PFA) has been developed. This article gives an insight into the core contents of the PFA, which are valid beyond the project boundaries for all actors that work at the intersection of community health promotion. The PFA was developed as a consensus document in a participatory process between the members of the work package and an interdisciplinary German team of public health experts. Results from project meetings of the partner countries as well as research findings and recommendations from field experts were incorporated. Reducing health inequalities in public health is a cross-sectional issue that needs to be addressed across all policy areas. The municipality setting is of particular importance in this context, as it offers many starting points and can coordinate between all relevant actors with an overarching strategy.

scholarly journals Impact and Lessons Learned from a National Consortium for Participatory Health Research: PartKommPlus—German Research Consortium for Healthy Communities (2015–2018)

2018 ◽  
Vol 2018 ◽  
pp. 1-8 ◽  
Author(s):  
Michael T. Wright ◽  
Susanne Hartung ◽  
Mario Bach ◽  
Sven Brandes ◽  
Birte Gebhardt ◽  
...  
Keyword(s):  
Health Promotion ◽  
Research Process ◽  
Lessons Learned ◽  
Policy And Practice ◽  
Healthy Communities ◽  
Participatory Health Research ◽  
The Social ◽  
German Research ◽  
Health Policy And Practice ◽  
Research Consortium

Integrated strategies of health promotion at the municipal level are receiving particular attention in public health policy and practice in Germany. These strategies are intended to provide a coordinated approach to health promotion during the entire lifespan, with a particular focus on vulnerable communities. They are also intended to be participatory in both their design and implementation, involving all sectors of the social welfare, educational and healthcare systems, civil society, and the general public. PartKommPlus—German Research Consortium for Healthy Communities is examining such strategies using participatory forms of research. The goal is to determine how participation can best be planned and implemented and what effects this participation has. In this article the work of PartKommPlus from the first funding phase (2015–2018) will be described with particular attention to the lessons learned and the forms of impact which are being considered as part of the participatory research process.

scholarly journals Workshop: Active participation of migrants, refugees, and ethnic minorities in public health research

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
Keyword(s):  
Public Health ◽  
Health Care ◽  
Health Promotion ◽  
Participatory Research ◽  
Health Research ◽  
Migrant Health ◽  
Public Health Research ◽  
Active Participation ◽  
Refugee Health ◽  
Participatory Approaches

Abstract To introduce the relevance, benefits and challenges of participatory approaches in public health research addressing issues of migrant and refugee health. Participation of stakeholders has a long tradition in fields of public health research, in particular in community-based research and health promotion. Today, increasing demands of grant agencies and policymakers in Europe challenge researchers to include stakeholders in all processes of health research. Active participation of migrants and refugees poses complex challenges for public health research including but, going beyond language problems and risks of stereotyping. The specific objectives of this workshop are: (1) to introduce current approaches for participation and their adaptability for the context of health research with migrants and refugees, (2) to explore participation in three projects that deal with issues like improving quality health care among chronically ill women with immigration background, introducing a health mediator model for refugees as well as ethical issues in participatory research with refugees and ethnic minority groups and (3) to discuss benefits and challenges of participatory approaches intended to improve health and health care services of specific groups. The workshop will start with an introduction providing a short overview of definitions and key concepts. Substantive presentations showcase three participatory projects in migrant health. A panel discussion, led by experienced moderators, with Prof Thomas Abel (PI of the MIWOCA project presented), Prof Antonio Chiarenza (WHO-HPH Task Force on Migration, Equity & Diversity, member of the Steering Committee of the EUPHA section on Migrant Health), Prof Luis Saboga-Nunes (EUPHA health promotion section) and Prof Sibel Sakarya (Department of Public Health Koç University) will address benefits and challenges of participation in migrant and refugee health research. The panel will open into a discussion to integrate audience’s experience and questions on participatory research. The workshop will be closed by the chair’s summary of lessons learnt and perspectives for future directions. Key messages Public health research for and with migrants and refugees poses basic and specific challenges. Experience with PR demonstrates the benefits of migrants’ and refugees’ active participation and the importance of adequate contextualizing of the problems and potential solutions.

scholarly journals Whose Voice is It Really? Ethics of Photovoice With Children in Health Promotion

2022 ◽  
Vol 21 ◽  
pp. 160940692110724
Author(s):  
Tineke Abma ◽  
Marieke Breed ◽  
Sarah Lips ◽  
Janine Schrijver
Keyword(s):  
Health Promotion ◽  
Participatory Research ◽  
Health Research ◽  
Primary Schools ◽  
Ethical Dilemmas ◽  
Data Sources ◽  
Participatory Health Research ◽  
Child Friendly ◽  
Conducting Research ◽  
Insight Into

Photovoice, a way of conducting research through pictures, is considered a child-friendly method to engage children in participatory research and social change but this practice can raise ethical dilemmas. These dilemmas have rarely been discussed in the literature. The aim of this article is to provide insight into the ethical dilemmas we faced using photovoice with children. It is grounded in a 4-year participatory health research project in two primary schools where we used photovoice alongside other creative and arts-based methods. We reflect critically on pressing ethical tensions and how we dealt with these dilemmas. Our logbooks and reflexive conversations were used as data sources. The findings reveal that everyday ethical dilemmas occurred throughout the project. These were sometimes anticipated but were often unexpected. Questions that arose included: ‘Who controls the outcome?’; ‘Photos to assess needs or to give voice?’; ‘Giving voice or aesthetics?’; ‘Who decides who is visible?’ and ‘Disrespectful and stereotypical representations?’ We conclude that ethical dilemmas in using photovoice with children deserve more attention to sensitize researchers and help them live up to the ideals of voice and empowerment.

scholarly journals Components of Responsive Health Research System in COVID-19 Crisis: Lessons Learned by Shiraz University of Medical Sciences

2021 ◽  
Author(s):  
Erfan Kharazmi ◽  
Sedigheh Ostovar
Keyword(s):  
Health Promotion ◽  
Health Systems ◽  
Health Research ◽  
Research Process ◽  
Lessons Learned ◽  
Research System ◽  
Health Research System ◽  
Content Analysis Method ◽  
Research Findings ◽  
Access To Knowledge

Abstract Background: The COVID-19 pandemic has posed a major challenge to health systems all over the world. All countries have realized that they have no choice but to apply research findings to achieve real growth and development and solve their problems.Method: A descriptive and analytical type of study was conducted with the help of experts in the field of health research. The components affecting the research system were obtained via process approach and content analysis method, and then the position of each component was identified by Mic Mac technique.Results: Seventeen influential structural components on the health research system were identified. The leadership and management component had the most direct and indirect impact among other components. The health promotion component had a greater impact than other components.Conclusion: All health systems need to provide adequate financial resources and manpower to provide a useful research system. Human resources are the most important inputs to such a system. Components of the research process, research Sustainability, quality, or innovation in researches can play a balancing role. The existence of appropriate infrastructures for the creation, transfer, development, and access to knowledge makes it possible to produce systematic science; it can be hoped that this science will be used in other outputs of the health research system, such as effectiveness or health promotion.

Sign in / Sign up

Export Citation Format

Share Document