scholarly journals Whose Voice is It Really? Ethics of Photovoice With Children in Health Promotion

2022 ◽  
Vol 21 ◽  
pp. 160940692110724
Author(s):  
Tineke Abma ◽  
Marieke Breed ◽  
Sarah Lips ◽  
Janine Schrijver
Keyword(s):  
Health Promotion ◽  
Participatory Research ◽  
Health Research ◽  
Primary Schools ◽  
Ethical Dilemmas ◽  
Data Sources ◽  
Participatory Health Research ◽  
Child Friendly ◽  
Conducting Research ◽  
Insight Into

Photovoice, a way of conducting research through pictures, is considered a child-friendly method to engage children in participatory research and social change but this practice can raise ethical dilemmas. These dilemmas have rarely been discussed in the literature. The aim of this article is to provide insight into the ethical dilemmas we faced using photovoice with children. It is grounded in a 4-year participatory health research project in two primary schools where we used photovoice alongside other creative and arts-based methods. We reflect critically on pressing ethical tensions and how we dealt with these dilemmas. Our logbooks and reflexive conversations were used as data sources. The findings reveal that everyday ethical dilemmas occurred throughout the project. These were sometimes anticipated but were often unexpected. Questions that arose included: ‘Who controls the outcome?’; ‘Photos to assess needs or to give voice?’; ‘Giving voice or aesthetics?’; ‘Who decides who is visible?’ and ‘Disrespectful and stereotypical representations?’ We conclude that ethical dilemmas in using photovoice with children deserve more attention to sensitize researchers and help them live up to the ideals of voice and empowerment.

scholarly journals Workshop: Better ask those who are concerned: co-creation in participatory epidemiology and health promotion

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
◽  
Keyword(s):  
Public Health ◽  
Health Promotion ◽  
Participatory Research ◽  
Synergistic Effects ◽  
Research Process ◽  
User Participation ◽  
Participatory Epidemiology ◽  
Community Ownership ◽  
Participatory Health Research ◽  
Research Findings

Abstract Objectives The hallmark of participatory research is the establishment of equitable research partnerships with a diverse group of stakeholders such as public health professionals, health activists and community representatives. This includes co-creation as a guiding principle that informs several aspects of the research process. Originally, co-creation is a concept from management science and software design and is focused on achieving synergistic effects through user participation in design processes. Co-creation in participatory epidemiology and health promotion aims to improve the life of those who are subjects of research by giving them a stake how studies are carried out, respectively how health promoting services, programmes or products are designed and provided. However, implementing and realizing co-creation is challenging. Participation asks for a systematic reflection of underlying power relations in the research process through dialog, recursive methods of understanding, and joint planning. This skills building seminar will present relevant co-creation concepts and methods. Additionally, illustrative examples from research practice are provided and will outline ways for implementing co-creation in the context of participatory epidemiology and health promotion. The seminar starts with a brief introduction on epistemological principles and ethical norms of participatory health research and state of the art definitions of co-creation. This presentation is followed by an introduction of how co-creation is impacting epidemiological research with regard to several aspects of the research process. Next, a project is presented in which co-creation informed the development of a virtual reality game in the field of alcohol prevention. Finally, participants will be split in two groups to have the opportunity to share thoughts on certain aspects of participatory research and co-creation in a poster discussion. More specifically, we aim to discuss: Does co-creation differ in the contexts of participatory epidemiology and health promotion? And if so how?What is needed to realize co-creation processes in practice? The seminar targets everyone working in the field of population health monitoring and health promotion. The timetable is as follows: Introduction, principles and definitions (15 min), participatory epidemiology and co-creation (15 min), co-designing in prevention and health promotion (15 min), poster discussions (30 min), plenary discussion and roundup (15 min). Main messages Co-creation is a way to improve the relevance of research findings, services and products for public health practice and the involved communities.Co-creation processes are vital to embrace the creativity of users and to ensure relevance and community ownership for health promotion programmes and services. Key messages Co-creation is a way to improve the relevance of research findings and products for various stakeholders. Co-creation is vital to embrace users’ creativity and to ensure community ownership.

scholarly journals Community-based participatory health research: principles and practice

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
H Unger
Keyword(s):  
Lived Experience ◽  
Participatory Research ◽  
Health Research ◽  
Community Based Participatory Research ◽  
Active Role ◽  
Research Process ◽  
Community Based ◽  
Research Fields ◽  
Participatory Health Research ◽  
Trust And Reciprocity

Abstract Community-based participatory research (CBPR) is a collaborative approach to research that aims to improve the health of marginalized communities and reduce health disparities. It starts with a topic of concern for the community and involves iterative cycles of action and reflection to initiate change. Community members are involved as partners and trained as peer researchers to take an active role in the research process. Processes of capacity building and empowerment play a prominent role. As a general principle, participatory research does not primarily focus on health problems, but pays at least equal attention to the resources and capacities of communities. It places a strong focus on developing trust and reciprocity in research relationships. Regarding methodology, various empirical research methods are used in CBPR study designs, including qualitative, quantitative, mixed-methods and arts-based methods. Arts-based methods such as photovoice, digital storytelling, mapping and drawings facilitate the expression of lived experience, including sensitive aspects, through creative verbal and non-verbal means. These methods expand the available means of expression and as such are highly valuable in research fields where verbal communication is challenged by language barriers and diverse cultural backgrounds as well as sensitive topics and experiences. Participatory health research has been conducted with diverse migrant and refugee groups internationally. Due to legal and other reasons, refugees may be limited in their capacities for participation. The presentation will discuss the strengths and limitations of CBPR including structural obstacles to equitable partnerships.

scholarly journals Sowing Seeds to Harvest Healthier Adults: The Working Principles and Impact of Participatory Health Research with Children in a Primary School Context

2020 ◽  
Vol 17 (2) ◽  
pp. 451 ◽  
Author(s):  
Tineke Abma ◽  
Sarah Lips ◽  
Janine Schrijver
Keyword(s):  
Health Research ◽  
Primary Schools ◽  
Quantitative Methods ◽  
School Context ◽  
Subjective Health ◽  
Community Partners ◽  
Qualitative And Quantitative Methods ◽  
Research With Children ◽  
Participatory Health Research ◽  
The Impact

Participatory research on health-related topics with children is promising but current literature offers limited guidance on how to involve children and falls short on the reporting impact. The purpose of this article is to heighten our understanding of the working principles and impact of participatory health research (PHR) with children. We completed a PHR project in two primary schools, which included children from a multiethnic, deprived neighborhood in the second largest city in The Netherlands over a period of three school years (2016–2019). The impact on the children’s subjective health has been measured via process evaluation using qualitative and quantitative methods from the perspectives of all involved (children, their teachers, parents, and community partners). The main working principles included: Experiential learning; addressing uncomfortable issues; stepping outside your environment; and keeping it simple. Participatory actions valued most by the children included: Walking tours, photovoice, foodlabs, sportlabs, and to a lesser extent: Making a newspaper, mindfulness, and Capoeira. The project reached and engaged many children, parents, teachers, and community partners into healthy lifestyles and broadened and deepened the children’s awareness and understanding of health behavior. ‘Sowing seeds’ is the metaphor that captures the broader impact of this project: Planting seeds to harvest healthier adults.

scholarly journals Implementation of Anti-Bullying Module Through Child-Friendly Schools in Primary School

2021 ◽  
Vol 1 ◽  
pp. 1-5
Author(s):  
M. Shodiq ◽  
Machmudah Machmudah
Keyword(s):  
Primary School ◽  
Human Dignity ◽  
Child Protection ◽  
Primary Schools ◽  
Children's Rights ◽  
Adolescents And Adults ◽  
Bullying Behavior ◽  
Child Friendly ◽  
Conducting Research ◽  
The Right

Child Friendly Schools are schools that are responsible for fulfilling and guaranteeing children's rights in a planned manner in life aspects. Based on child protection law article 4 of Law No.23 of 2002 states that children have the right to live, grow, develop, and participate appropriately according to human dignity, standards and values to get protection from violence and discrimination or bullying. Bullying is increasingly happening in the community, foe example in children, adolescents and adults. Bullying behavior involves power and power that is not balanced so that the victim is in a state of helplessness to oppose the act of bullying that he receives. Therefore, researchers are interested in conducting research on bullying cases that occur in primary schools. This study uses the Anti-bullying module which aims to prevent, reduce, introduce and teach the occurrence of bullying through child-friendly schools in SD Wonokromo District, Surabaya.

scholarly journals Workshop: Active participation of migrants, refugees, and ethnic minorities in public health research

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
Keyword(s):  
Public Health ◽  
Health Care ◽  
Health Promotion ◽  
Participatory Research ◽  
Health Research ◽  
Migrant Health ◽  
Public Health Research ◽  
Active Participation ◽  
Refugee Health ◽  
Participatory Approaches

Abstract To introduce the relevance, benefits and challenges of participatory approaches in public health research addressing issues of migrant and refugee health. Participation of stakeholders has a long tradition in fields of public health research, in particular in community-based research and health promotion. Today, increasing demands of grant agencies and policymakers in Europe challenge researchers to include stakeholders in all processes of health research. Active participation of migrants and refugees poses complex challenges for public health research including but, going beyond language problems and risks of stereotyping. The specific objectives of this workshop are: (1) to introduce current approaches for participation and their adaptability for the context of health research with migrants and refugees, (2) to explore participation in three projects that deal with issues like improving quality health care among chronically ill women with immigration background, introducing a health mediator model for refugees as well as ethical issues in participatory research with refugees and ethnic minority groups and (3) to discuss benefits and challenges of participatory approaches intended to improve health and health care services of specific groups. The workshop will start with an introduction providing a short overview of definitions and key concepts. Substantive presentations showcase three participatory projects in migrant health. A panel discussion, led by experienced moderators, with Prof Thomas Abel (PI of the MIWOCA project presented), Prof Antonio Chiarenza (WHO-HPH Task Force on Migration, Equity & Diversity, member of the Steering Committee of the EUPHA section on Migrant Health), Prof Luis Saboga-Nunes (EUPHA health promotion section) and Prof Sibel Sakarya (Department of Public Health Koç University) will address benefits and challenges of participation in migrant and refugee health research. The panel will open into a discussion to integrate audience’s experience and questions on participatory research. The workshop will be closed by the chair’s summary of lessons learnt and perspectives for future directions. Key messages Public health research for and with migrants and refugees poses basic and specific challenges. Experience with PR demonstrates the benefits of migrants’ and refugees’ active participation and the importance of adequate contextualizing of the problems and potential solutions.

Mobile-Friendly Dashboards to Display Associations Between Cited-by and Similar Journals on Mobile Health Research: A Bibliometric Study (Preprint)

2018 ◽  
Author(s):  
Tsair-Wei Chien ◽  
Hsien-Yi Wang ◽  
Yang Shao ◽  
Willy Chou
Keyword(s):  
Social Network ◽  
Mobile Health ◽  
Health Research ◽  
Similarity Criteria ◽  
Network Density ◽  
Deep Insight ◽  
Density Indices ◽  
The Subject ◽  
The Given ◽  
Insight Into

BACKGROUND Researchers often spend a great deal of time and effort retrieving related journals for their studies and submissions. Authors often designate one article and then retrieve other articles that are related to the given one using PubMed’s service for finding cited-by or similar articles. However, to date, none present the association between cited-by and similar journals related to a given journal. Authors need one effective and efficient way to find related journals on the topic of mobile health research. OBJECTIVE This study aims (1) to show the related journals for a given journal by both cited-by and similarity criteria; (2) to present the association between cited-by and similarity journals related to a given journal; (3) to inspect the patterns of network density indices among clusters classified by social network analysis (SNA); (4) to investigate the feature of Kendall's coefficient(W) of concordance. METHODS We obtained 676 abstracts since 2013 from Medline based on the keywords of ("JMIR mHealth and uHealth"[Journal]) on June 30, 2018, and plotted the clusters of related journals on Google Maps by using MS Excel modules. The features of network density indices were examined. The Kendall coefficient (W) was used to assess the concordance of clusters across indices. RESULTS This study found that (1) the journals related to JMIR mHealth and uHealth are easily presented on dashboards; (2) a mild association(=0.14) exists between cited-by and similar journals related to JMIR mHealth and uHealth; (3) the median Impact Factor were 3.37 and 2.183 based on the representatives of top ten clusters grouped by the cited-by and similar journals, respectively; (4) all Kendall’s coefficients(i.e., 0.82, 0.89, 0.92, and 0.75) for the four sets of density centrality have a statistically significant concordance (p < 0.05). CONCLUSIONS SNA provides deep insight into the relationships of related journals to a given journal. The results of this research can provide readers with a knowledge and concept diagram to use with future submissions to a given journal in the subject category of Mobile Health Research. CLINICALTRIAL Not available

scholarly journals Plant-Derived Extracellular Vesicles: Current Findings,Challenges, and Future Applications

Membranes ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. 411
Author(s):  
Nader Kameli ◽  
Anya Dragojlovic-Kerkache ◽  
Paul Savelkoul ◽  
Frank R. Stassen
Keyword(s):  
Human Health ◽  
Extracellular Vesicles ◽  
Preliminary Results ◽  
In Vivo Experiments ◽  
Health And Disease ◽  
Conducting Research ◽  
Protocol Standardization ◽  
Insight Into

In recent years, plant-derived extracellular vesicles (PDEVs) have gained the interest of many experts in fields such as microbiology and immunology, and research in this field has exponentially increased. These nano-sized particles have provided researchers with a number of interesting findings, making their application in human health and disease very promising. Both in vitro and in vivo experiments have shown that PDEVs can exhibit a multitude of effects, suggesting that these vesicles may have many potential future applications, including therapeutics and nano-delivery of compounds. While the preliminary results are promising, there are still some challenges to face, such as a lack of protocol standardization, as well as knowledge gaps that need to be filled. This review aims to discuss various aspects of PDEV knowledge, including their preliminary findings, challenges, and future uses, giving insight into the complexity of conducting research in this field.

scholarly journals 32.K. Skills building seminar: Using participatory health research to optimise psycho-oncological patient information material

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
◽  
Keyword(s):  
Patient Information ◽  
Health Research ◽  
Service Providers ◽  
Complex Interventions ◽  
User Participation ◽  
End Users ◽  
Vulnerable Groups ◽  
Participatory Health Research ◽  
Practical Instrument

Abstract Patient information material (PIM) is omnipresent in healthcare. It is used to convey information or to familiarize potential end-users to offers of support. PIM recaps or elaborates on relevant information and offers recommendation for action. However, the quality of available PIM varies. When the formal and content-related quality of PIM is suboptimal, it not only fails to be effective but can also lead to uncertainty, misunderstandings, resistance or ignorance (e.g. of a support offer). Highly complex information requires much attention on the quality of the PIM, especially with respect to end-users (e.g. vulnerable groups). Excellent communication through the use of PIM is thus essential within complex interventions. Checklists, such as 'Discern' or 'PEMAT', as well as criteria catalogues or evidence-based patient information standards, may assist in the development, quality assessment and optimization of PIM. The inclusion of the end-users is recommended but for various reasons does not often take place. The innovative “integrated, cross-sectional Psycho-Oncology” (isPO) programme, offers needs-driven, professional support to all adult, newly diagnosed cancer patients early in their sickness trajectory. IsPO was developed in 2018. It was implemented and a formative evaluated in 2019. When developing this programme, different PIM were created top-down by the programme designers. During implementation, it became evident that these PIM materials required further improvement. A testing and optimization process started using the participatory health research (PHR) approach and was completed in a five-month period. A PIM-optimisation team was founded, which included the project partners involved in the network support, self-help organisations and the external evaluation institute. A practical instrument (PIM-checklist) for optimising the isPO-PIM was designed, piloted and used for testing by end-users, isPO service providers, and experts. Based on the recommendations in the checklist, the material was revised accordingly. Additionally, the PIM was completed with the design of two new components. Four optimisation rounds were conducted. The optimized PIM was tested on its comprehensibility (for end-users) and its usability (for service providers). During the presentations, the audience is invited to comment on critical questions that may appear during optimization (e.g. timing). Afterwards, there will be a skill building part with a focus on collaborative learning (45 minutes). First, we will focus on the requirements for a practical instrument that is handy for end-users, service providers and experts (mind mapping exercise). Finally, participants will be able to explore the following topics “World Café” discussion: (1) how to plan, conduct and communicate the development of optimization of PIM in a CI program, (2) what needs to be considered for the optimization (e.g. team composition, resources), and (3) how to continuously achieve end-userś participation. Key messages Excellent PIM are essential for a complex interventiońs success in practice and must include information and foster actionability. the iterative PIM design processes benefits from high user participation.

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