scholarly journals Bringing Art to Life: Measuring Engagement Through Art, Connection, and Dignity

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 834-834
Author(s):  
Candice Reel ◽  
Rebecca Allen ◽  
Bailey Lanai ◽  
Sami Sneed ◽  
Daniel Potts

Abstract The BATL program aims to improve the quality of life for community-dwelling people living with dementia (PWD) through art therapy, intergenerational contact, and life story preservation. This study utilized a modified ENGAGE measure (Hartmann et. al, 2017) to evaluate ethnographic transcripts recording activity and social engagement over time (N=100). A five-member analysis team independently coded the observation transcripts for engagement and qualitative themes. Results reveal average communication engagements (M=28.30, SD=13.36) significantly exceed the average art engagements (M=9.86, SD=5.56) over time t (98) = 20.85, p<0.001). Emergent themes included reminiscence, intergenerational communication, and creating art. These mixed method results suggest the intergenerational contact and reminiscence portions of BATL were fundamental features in comparison with art-making. More studies are needed to determine if the BATL intervention 1) has greater comparative effectiveness than typical programs in adult service centers, and 2) is scalable nationally to enhance the quality of life in PWD.

2017 ◽  
Vol 40 (6) ◽  
pp. 511-534 ◽  
Author(s):  
Amy Restorick Roberts ◽  
Kathryn Betts Adams

Quality of life (QoL) in the face of declining health, mobility, and social losses is a central issue for older adults. Our study examined changes in QoL over time for older adults residing in independent senior housing within continuing care retirement communities (CCRCs) and estimated how residents’ social engagement during their first year influenced QoL over the next 4 years. Data were drawn from a 5-year panel study of 267 older adults who moved into senior housing within four CCRCs. Although initial QoL varied between individuals, QoL declined for the group over time. One component of early social engagement—participating in a greater number of formal social activities organized by the CCRC—significantly slowed the rate of decline in QoL. Findings suggest that senior housing residents may benefit from early participation in organized social and leisure activities soon after move-in to forestall declines in QoL over the long term.


2021 ◽  
pp. 1-14
Author(s):  
Lutz Froelich ◽  
Albert Lladó ◽  
Rezaul K. Khandker ◽  
Montse Pedrós ◽  
Christopher M. Black ◽  
...  

Background: Alzheimer’s disease (AD) is a significant burden on patients and caregivers. How this burden increases as disease progresses has not been well researched. Objective: To assess the association of caregiver burden and quality of life with Alzheimer’s disease severity and disease progression in community-dwelling patients in Germany, Spain, and the UK. Methods: This was a prospective observational longitudinal study of mild-to-moderate AD patients (assessed by Mini-Mental State Examination, MMSE), and their caregivers. The humanistic burden was assessed using these instruments: [Rapid Assessment of Physical Activity (RAPA), EuroQoL-5-Dimension Level (EQ-5D-5L)] and caregiver-reported [Dependence Scale (DS), EQ-5D-5L, Zarit Burden Interview (ZBI)]. Caregiver-reported healthcare resource use was assessed using the Resource Use in Dementia (RUD) and ad-hoc questions. Results: Of 616 patients recruited, 338 and 99 were followed-up at 12 and 18 months, respectively. The caregiver-reported EQ-5D-5L scores of patients’ health-related quality of life (HRQoL) showed a negative trend over time (baseline: 0.76; 18 months: 0.67) while patient-reported HRQoL remained at 0.85. DS scores tended to worsen. Disease progression was an independent predictor of HRQoL and increased dependence. Mean ZBI score increased over time reflecting an increase in caregiver burden; MMSE being an independent predictor for caregiver burden. Patient resource utilization and caregiver time for caregiving tended to increase over time. Conclusion: We found significant association between disease progression and caregiver and patient burden. Independently, both disease-specific outcomes and disease burden measures increased over time, but as disease progresses, we also found incremental burden associated with it.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S409-S409
Author(s):  
Carrie Graham ◽  
Andrew Scharlach

Abstract Researchers at UC Berkeley will present some key findings of their research on Villages spanning the last decade. First, results of a longitudinal study of operational Village organizations in the US (conducted in 2009, 2012, and 2016) reveals that the Village model has expanded and developed over time, with some changes in organizational structure. A national survey of Village members (N=2000) shows that Village remain homogeneous, and impact different types of members in different ways, with older, more frail members perceiving more quality of life benefit, while younger, healthier members perceive more benefits in the areas of social engagement. Finally, two studies looking at Village retention/participation show that issues such as lack of diversity, focus on social engagement can be barriers to inclusion, retention and ultimately, scalability of the model.


2016 ◽  
Vol 25 (7) ◽  
pp. 1743-1750 ◽  
Author(s):  
Gotaro Kojima ◽  
Steve Iliffe ◽  
Richard W. Morris ◽  
Yu Taniguchi ◽  
Denise Kendrick ◽  
...  

2017 ◽  
Vol 22 (3) ◽  
pp. 159-166 ◽  
Author(s):  
Bastianina Contena ◽  
Stefano Taddei

Abstract. Borderline Intellectual Functioning (BIF) refers to a global IQ ranging from 71 to 84, and it represents a condition of clinical attention for its association with other disorders and its influence on the outcomes of treatments and, in general, quality of life and adaptation. Furthermore, its definition has changed over time causing a relevant clinical impact. For this reason, a systematic review of the literature on this topic can promote an understanding of what has been studied, and can differentiate what is currently attributable to BIF from that which cannot be associated with this kind of intellectual functioning. Using Preferred Reporting Items for Systematic Review and Meta-Analyses (PRISMA) criteria, we have conducted a review of the literature about BIF. The results suggest that this condition is still associated with mental retardation, and only a few studies have focused specifically on this condition.


2017 ◽  
Author(s):  
K Thöne ◽  
N Obi ◽  
A Jung ◽  
M Schmidt ◽  
J Chang-Claude ◽  
...  

Author(s):  
Phillippa Carnemolla ◽  
Catherine Bridge

The multi-dimensional relationship between housing and population health is now well recognised internationally, across both developing and developed nations. This paper examines a dimension within the housing and health relationship – accessibility – that to date has been considered difficult to measure. This paper reports on the mixed method results of larger mixed-method, exploratory study designed to measure the impact of home modifications on Health-Related Quality of Life, supported by qualitative data of recipients’ experiences of home modifications. Data was gathered from 157 Australian HACC clients, who had received home modifications. Measurements were taken for both before and after home modifications and reveal that home modifications were associated with an average 40% increase in Health-Related Quality of Life levels. The qualitative results revealed that participants positively associated home modifications across six effect themes: increased safety and confidence, improved mobility at home, increased independence, supported care-giving role, increased social participation, and ability to return home from hospital. This exploratory research gives an insight into the potential for accessible architecture to impact improvements in community health and wellbeing.


2018 ◽  
Vol 15 (8) ◽  
pp. 1109-1123
Author(s):  
Jonas da Silva Santos ◽  
Joel Jones Junior ◽  
Flavia M. da Silva

Background: We present here the synthesis of 1,3-thiazolidin-4-one (1) and its functionalised analogues, such as the classical isosteres, glitazone (1,3-thiazolidine-2,4-dione) (2), rhodanine (2-thioxo-1,3- thiazolidin-4-one) (3) and pseudothiohydantoin (2-imino-1,3-thiazolidin-4-one) (4) started in the midnineteenth century to the present day (1865-2018). Objective: The review focuses on the differences in the representation of the molecular structures discussed here over time since the first discussions about the structural theory by Kekulé, Couper and Butlerov. Moreover, advanced synthesis methodologies have been developed for obtaining these functional group, including green chemistry. We discuss about its structure and stability and we show the great biological potential. Conclusion: The 1,3-thiazolidin-4-one nucleus and functionalised analogues such as glitazones (1,3- thiazolidine-2,4-diones), rhodanines (2-thioxo-1,3-thiazolidin-4-ones) and pseudothiohydantoins (2-imino-1,3- thiazolidine-2-4-ones) have great pharmacological importance, and they are already found in commercial pharmaceuticals. Studies indicate a promising future in the area of medicinal chemistry with potential activities against different diseases. The synthesis of these nuclei started in the mid-nineteenth century (1865), with the first discussions about the structural theory by Kekulé, Couper and Butlerov. The present study has demonstrated the differences in the representations of the molecular structures discussed here over time. Since then, various synthetic methodologies have been developed for obtaining these nuclei, and several studies on their structural and biological properties have been performed. Different studies with regards to the green synthesis of these compounds were also presented here. This is the result of the process of environmental awareness. Additionally, the planet Earth is already showing clear signs of depletion, which is currently decreasing the quality of life.


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