scholarly journals The Relationship Between Place of Death and Immigrant Status

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 455-455
Author(s):  
Yujin Franco ◽  
Margarita Osuna ◽  
Jennifer Ailshire
Keyword(s):  
End Of Life ◽  
Family Caregiving ◽  
Life Experience ◽  
Life Experiences ◽  
The United States ◽  
Place Of Death ◽  
Foreign Born ◽  
Hospital Deaths ◽  
Nationally Representative ◽  
The Relationship

Abstract Increasing attention is being paid to improving care at the end-of-life, including developing a better understanding of where individuals die, and factors related to place of death. The older immigrant population in the United States is increasing rapidly, and while prior research suggests they may differ in their end-of-life experiences, we know relatively little about foreign-born differences in where people die. This study investigates how the place of death (home, hospital, and nursing home) differs between the U.S.-born and foreign-born. We used data on 9,180 U.S.-born and 969 foreign-born respondents from the nationally representative Health and Retirement Study (HRS) for who end-of-life surveys were conducted with a proxy between 2002 and 2016. Approximately one-third of deaths occurred in nursing homes in both groups. Hospital deaths were more common in US-Born decedents (31.9%) than foreign-born decedents (25.2%), while death at home was lower for US-born (35.5%) than foreign-born (40.2%). We used multinominal logistic regression analysis to determine whether sociodemographic characteristics, cause of death, or receipt of family caregiving explained the observed differences in place of death by foreign-born status. Results from fully adjusted multivariate models indicate the foreign-born differences in place of death cannot be explained by socioeconomic, health, or family factors. Our research shows key differences in the end-of-life experience between US-born and foreign-born older adults and highlights the importance of examining end-of-life experiences for this small, but rapidly growing segment of the older U.S. population.

scholarly journals Family caregiving and place of death: Insights from cross-national analysis of the Harmonized End of Life Data

2020 ◽  
Author(s):  
Jennifer Ailshire ◽  
Margarita Osuna ◽  
Jenny Wilkens ◽  
Jinkook Lee
Keyword(s):  
United States ◽  
Older Adults ◽  
Nursing Home ◽  
End Of Life ◽  
Family Caregiving ◽  
The United States ◽  
Place Of Death ◽  
Life Data ◽  
Cross National ◽  
At Home

Abstract Objectives Family is largely overlooked in research on factors associated with place of death among older adults. We determine if family caregiving at the end of life is associated with place of death in the United States and Europe. Methods We use the Harmonized End of Life data sets developed by the Gateway to Global Aging Data for the Survey of Health, Ageing and Retirement in Europe (SHARE) and the Health and Retirement Study (HRS). We conducted multinomial logistic regression on 7,113 decedents from 18 European countries and 3,031 decedents from the United States to determine if family caregiving, defined based on assistance with activities of daily living, was associated with death at home versus at a hospital or nursing home. Results Family caregiving was associated with reduced odds of dying in a hospital and nursing home, relative to dying at home in both the United States and Europe. Care from a spouse/partner or child/grandchild was both more common and more strongly associated with place of death than care from other relatives. Associations between family caregiving and place of death were generally consistent across European welfare regimes. Discussion This cross-national examination of family caregiving indicates that family-based support is universally important in determining where older adults die. In both the United States and in Europe, most care provided during a long-term illness or disability is provided by family caregivers, and it is clear families exert tremendous influence on place of death.

scholarly journals Last Place of Care and End-of-Life Quality of Life in the United States: Evidence From a National Representative Data Set

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 17-17
Author(s):  
Yifan Lou ◽  
Nan Jiang ◽  
Katherine Ornstein
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
End Of Life ◽  
End Of Life Care ◽  
The United States ◽  
Life Care ◽  
Person Centered Care ◽  
Centered Care ◽  
The Relationship

Abstract Background: Quality of life (QoL) during last stage of life has raised expanded interests as an important aspect of person-centered care. Last place of care (LPC), refer to the last place decedents received their formal end-of-life care (EOLC), has been identified as a key indicator of older adults’ end-of-life QoL, but the relationship was understudied. This study explores the association between LPC and end-of-life QoL among American older adults. Methods: Data used seven waves of Last Month of Life data with a total sample of 3068 Medicare decedents in NHATS. Outcome is end-of-life QoL assessed by eleven measures on four domains: pain and symptoms management (SP), quality of healthcare encounter (HE), person-centered care (PC), and overall quality of care (QC). LPC was categorized into home, hospital, nursing home, and residential hospice. Multivariate logistic regression analyses were used to examine the relationship with covariates. Results: LPC varied by most demographic characteristics, except immigration status and education. Older adults whose LPC is hospital, compared to those who had home-care, were less likely to have great experiences on HE, PC, and QC. People dying at nursing homes are more likely to receive care meeting their dyspnea and spiritual needs. Residential hospice is negatively related to respected care, clear coordination, and keeping family informed, but are more likely to provide PS and spiritual care. Discussion: Home-based end-of-life care has certain advantages but still has room to improve on SP and religious concerns. Hospitals should keep reforming their service delivery structure to improve patients’ QoL.

Gender and Marital Satisfaction: Data from the National Survey of Families and Households

1998 ◽  
Vol 83 (1) ◽  
pp. 319-327 ◽  
Author(s):  
Walter R. Schumm ◽  
Farrell J. Webb ◽  
Stephan R. Bollman
Keyword(s):  
United States ◽  
Marital Satisfaction ◽  
Representative Sample ◽  
The United States ◽  
Nationally Representative ◽  
Relationship Of ◽  
The Relationship ◽  
Satisfaction Relationship ◽  
Representative Samples ◽  
Small Support

In 1972, Bernard argued that marriage was good for men and bad for women. Subsequent research noted that wives, on average, reported lower marital satisfaction than husbands. Furthermore, when differences within couples existed on marital satisfaction, the wife was usually the less satisfied spouse; however, most previous studies of the gender/marital satisfaction relationship had not been based on nationally representative samples. A nationally representative sample from the 1988 Survey of Families and Households was used to assess the relationship of gender with marital satisfaction. Within-couple analyses indicated that wives were less satisfied with their marriages than husbands and that, when substantial within-couple differences occurred with respect to marital satisfaction, the wife was usually the less satisfied spouse. Results provide at least small support for feminist assertions about the relatively adverse nature of marriage for women in the United States.

scholarly journals Traumatic life experiences and religiosity in eight countries

2020 ◽  
Author(s):  
Jonathan Jong ◽  
Adam Baimel ◽  
Robert M Ross ◽  
Ryan McKay ◽  
Matthias Bluemke ◽  
...  
Keyword(s):  
United States ◽  
Life Satisfaction ◽  
Death Anxiety ◽  
Religious Beliefs ◽  
Life Experiences ◽  
The United States ◽  
Affective Traits ◽  
The Relationship

We present two datasets from a project about the relationship between traumatic life experiences and religiosity. These include data from 1,754 individuals in the United States (n = 322), Brazil (n = 205), China (n = 202), India (n = 205), Indonesia (n = 205), Russia (n = 205), Thailand (n = 205), and Turkey (n = 205). Surveys were consistent across samples: they include measures of traumatic life experiences, negative affective traits, existential security, life satisfaction, death anxiety, and various religious beliefs, attitudes, and behaviours. Psychometric evaluations of measures of supernatural belief and death anxiety were conducted.

scholarly journals ‘Til Death Do Us Part: End‐of‐Life Experiences of Married Couples in a Nationally Representative Survey

2018 ◽  
Vol 66 (12) ◽  
pp. 2360-2366 ◽  
Author(s):  
Ashwin A. Kotwal ◽  
Emily Abdoler ◽  
L. Grisell Diaz‐Ramirez ◽  
Amy S. Kelley ◽  
Katherine A. Ornstein ◽  
...  
Keyword(s):  
End Of Life ◽  
Life Experiences ◽  
Married Couples ◽  
Representative Survey ◽  
Nationally Representative

Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents

2020 ◽  
Vol 37 (12) ◽  
pp. 1009-1015
Author(s):  
Laura K. Sedig ◽  
Jessica L. Spruit ◽  
Trisha K. Paul ◽  
Melissa K. Cousino ◽  
Harlan McCaffery ◽  
...  
Keyword(s):  
Decision Making ◽  
End Of Life ◽  
Health Care Providers ◽  
Life Experiences ◽  
The United States ◽  
Parental Perception ◽  
Care Providers ◽  
Supportive Services ◽  
Bereaved Parents ◽  
Actual Decision

Background: Cancer remains the leading cause of death by disease for children in the United States. It is imperative to optimize measures to support patients and families facing the end of a child’s life. This study asked bereaved parents to reflect on their child’s end-of-life care to identify which components of decision-making, supportive services, and communication were helpful, not helpful, or lacking. Methods: An anonymous survey about end-of-life experiences was sent to families of children treated at a single institution who died of a malignancy between 2010 and 2017. Results: Twenty-eight surveys were returned for a 30.8% response rate. Most of the bereaved parents (61%) reported a desire for shared decision-making; this was described by 52% of families at the end of their child’s life. There was a statistically significant association between how well death went and whether the parental perception of actual decision-making aligned with desired decision-making ( P = .002). Families did not utilize many of the supportive services that are available including psychology and psychiatry (only 22% used). Respondents felt that additional services would have been helpful. Conclusions: Health care providers should strive to participate in decision-making models that align with the preferences of the patient and family and provide excellent communication. Additional resources to support families following the death of a child should be identified for families or developed and funded if a gap in available services is identified.

scholarly journals THE ECONOMIC VALUE OF FAMILY CAREGIVING: NEW NATIONAL ESTIMATES AND STATE VARIATION

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S748-S748
Author(s):  
Ari Houser ◽  
Ari Houser
Keyword(s):  
Family Caregiving ◽  
Meta Analysis ◽  
Economic Value ◽  
The United States ◽  
Virgin Islands ◽  
State Variation ◽  
National Estimates ◽  
Total Economic Value ◽  
Nationally Representative ◽  
Services And Supports

Abstract The economic value of family caregiving, by any measure, dwarfs actual expenditures on formal long-term services and supports (LTSS). This presentation discusses new estimates of the number of caregivers, intensity of caregiving, and the total economic value of family caregiving in 2017 in the United States, and in every state, the District of Columbia, Puerto Rico, and the Virgin Islands, based on a meta-analysis of recent nationally representative surveys of family caregivers. Previous analyses of this type have found that the total economic value of family caregiving has increased steadily from $350 billion in 2005 to $470 billion in 2013. State variation in the incidence, intensity, and economic value of caregiving will be discussed, and key predictors of this variation will be identified.

scholarly journals 2400 How have characteristics of end-of-life family caregiving changed from 1999 to 2015? Preliminary results from two waves of nationally representative data

2018 ◽  
Vol 2 (S1) ◽  
pp. 82-82
Author(s):  
Judith Vick ◽  
Jennifer Wolff
Keyword(s):  
Older Adults ◽  
End Of Life ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Physical Strain ◽  
Term Care ◽  
Care Survey ◽  
Nationally Representative ◽  
Over Time

OBJECTIVES/SPECIFIC AIMS: Family members are often critical in the delivery of hands-on care and decisions about care for persons approaching end-of-life (EOL). Prompted by concerns about the poor quality and high costs of care at the EOL, recent delivery reform efforts—such as the growth of hospice and palliative care—have been directed at improving EOL care for both patients and family. Trends of the characteristics of EOL family caregivers and care recipients over time have not been well described. The goal of this study is to evaluate changes in EOL family caregiving from 1999 to 2015. METHODS/STUDY POPULATION: This study uses reconciled data from two nationally representative surveys and their linked caregiver surveys: the 1999 wave of the National Long-Term Care Survey (NLTCS) and the Informal Care Survey (ICS), and the 2015 wave of the National Health and Aging Trends Study (NHATS) and the National Survey of Caregiving (NSOC). RESULTS/ANTICIPATED RESULTS: Crude analysis shows that older adults living in the community and receiving help from family caregivers in the last year of life were significantly better educated (72% with greater than 12 years of education vs. 46%), and more diverse (78% White vs. 89%) in 2015 compared with 1999. Family caregivers in the last year of life were less likely to be female in 2015 compared with 1999 (74% vs. 68%, NS) and significantly less likely to be spouses (45% vs. 38%) in 2015. In 2015, a significantly greater proportion of older adults received help with five or more activities of daily living (47% vs. 34%), but family caregivers reported significantly lower levels of caregiving-associated distress: financial strain (80% reporting none in 2015 vs. 53%), emotional (51% vs. 39%), and physical strain (70% vs. 45%). In addition, a significantly greater proportion of EOL family caregivers used respite care in 2015 compared to 1999 (15% vs. 4%). DISCUSSION/SIGNIFICANCE OF IMPACT: Changes in the experience of EOL family caregiving may be impossible to capture in studies of single interventions, but tracking nationally representative trends can be used as an indicator of broader changes that take place cumulatively over time. Although studies of this nature cannot identify causal mechanisms of change, they are important to monitor long-term impact of program implementation and to guide future research, policy, and resource allocation.

Using complementary methods to test whether marriage limits men's antisocial behavior

2013 ◽  
Vol 25 (1) ◽  
pp. 65-77 ◽  
Author(s):  
Sara R. Jaffee ◽  
Caitlin McPherran Lombardi ◽  
Rebekah Levine Coley
Keyword(s):  
United States ◽  
Antisocial Behavior ◽  
Representative Sample ◽  
Fixed Effects ◽  
Negative Binomial ◽  
The United States ◽  
Complementary Methods ◽  
Married Men ◽  
Nationally Representative ◽  
The Relationship

AbstractMarried men engage in significantly less antisocial behavior than unmarried men, but it is not clear whether this reflects a causal relationship. Instead, the relationship could reflect selection into marriage whereby the men who are most likely to marry (men in steady employment with high levels of education) are the least likely to engage in antisocial behavior. The relationship could also be the result of reverse causation, whereby high levels of antisocial behavior are a deterrent to marriage rather than the reverse. Both of these alternative processes are consistent with the possibility that some men have a genetically based proclivity to become married, known as an active genotype–environment correlation. Using four complementary methods, we tested the hypothesis that marriage limits men's antisocial behavior. These approaches have different strengths and weaknesses and collectively help to rule out alternative explanations, including active genotype–environment correlations, for a causal association between marriage and men's antisocial behavior. Data were drawn from the in-home interview sample of the National Longitudinal Study of Adolescent Health, a large, longitudinal survey study of a nationally representative sample of adolescents in the United States. Lagged negative binomial and logistic regression and propensity score matching models (n = 2,250), fixed-effects models of within-individual change (n = 3,061), and random-effects models of sibling differences (n = 618) all showed that married men engaged in significantly less antisocial behavior than unmarried men. Our findings replicate results from other quasiexperimental studies of marriage and men's antisocial behavior and extend the results to a nationally representative sample of young adults in the United States.

Elder Care as Family Labor

1991 ◽  
Vol 12 (2) ◽  
pp. 229-247 ◽  
Author(s):  
JEFFREY W. DWYER ◽  
KAREN SECCOMBE
Keyword(s):  
United States ◽  
Gender Differences ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Representative Sample ◽  
Elder Care ◽  
The United States ◽  
Family Labor ◽  
Frail Elders ◽  
Nationally Representative

This research indicates that gender differences in the performance of specific caregiving tasks and the amount of time spent providing care by family caregivers of frail elders should be considered in the context of family position-related norms and expectations. Using a nationally representative sample of noninstitutionalized impaired elderly people in the United States ( N = 813), the results show that husbands (when compared to wives) and daughters (when compared to sons) report spending more time and performing a greater number of caregiving tasks. The authors suggest that family position may confound interpretations regarding the association between gender and family caregiving.

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