scholarly journals Research with Older Asian American Family Caregivers Pre- and During the Pandemic: Challenges and Lessons Learned

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 844-844
Author(s):  
Jung-Ah Lee ◽  
Hannah Nguyen
Keyword(s):  
Family Caregivers ◽  
Asian American ◽  
Research Process ◽  
Lessons Learned ◽  
Future Research ◽  
American Family ◽  
Pilot Studies ◽  
Additional Layer ◽  
Daily Schedule ◽  
Study Implementation

Abstract Research with hard-to-reach, monolingual adults from ethnic minority communities can present a multitude of challenges throughout the research process. This presentation will highlight challenges and lessons learned from two pilot studies with Vietnamese-, Cambodian-, and Korean-American family caregivers aged 50 and older. The first study (n=9) implemented a one-on-one, telephone-based psychosocial intervention before the COVID-19 pandemic; the second is an ongoing study (n=12) consisting of a group-based intervention via Zoom. Throughout recruitment, the following challenges arose: addressing the lack of familiarity with research among caregivers, earning the trust of caregivers, and identifying creative ways to recruit caregivers to participate. During study implementation, common challenges included: caregivers’ unpredictable daily schedule that made it difficult to participate in the scheduled classes, caregivers feeling apprehensive about technology and Zoom, access to reliable internet, and facilitating participation and engaging the voices of caregivers over the phone or via Zoom. Strategies were identified to address these barriers: engaging the support and collaboration of trusted, bilingual and bicultural community-based providers, building culturally-responsive rapport with caregivers, and seeking continuous feedback from caregivers to improve the appeal of the project implementation. The COVID-19 pandemic added an additional layer of difficulty to the research, requiring creativity and flexibility in implementation that took into consideration caregivers’ heightened anxiety, distress, lack of participation due to around-the-clock care, and loss and grief. The challenges and lessons learned from these studies could guide the development of future research efforts and strategies to effectively engage older hard-to-reach, monolingual Asian American caregivers.

Negotiating Participatory Research Processes With Domestic Violence Program Staff to Obtain Ecologically Valid Data

2019 ◽  
Vol 34 (23-24) ◽  
pp. 4817-4837 ◽  
Author(s):  
Nkiru Nnawulezi ◽  
Cris M. Sullivan ◽  
Suzanne Marcus ◽  
Latoya Young ◽  
Margaret Hacskaylo
Keyword(s):  
Participatory Research ◽  
Partner Violence ◽  
Ecological Validity ◽  
Research Process ◽  
Lessons Learned ◽  
Future Research ◽  
Community Partner ◽  
Community Partners ◽  
Team Members ◽  
Staff Members

The choice of research design affects not only internal and external validity but ecological validity as well. Ecological validity refers to the extent to which data are based in and relevant to real-world settings. One way for researchers to maximize the likelihood of achieving ecological validity is to design studies with community partners that use participatory approaches. Engaging deeply with community partners in determining what to study, how to measure constructs of interest, interpreting results, and using findings to create change is one means of conducting research that is likely to produce findings that are meaningful to communities. Conducting in-depth, participatory research within agencies providing crisis supports to individuals who have experienced trauma creates an additional level of complexity in the research process. This article presents a case example of how academic researchers and staff members of a nonprofit organization working with survivors of intimate partner violence collaborated on an evaluation of the community partner agency. As part of this process, the team members had to be continually aware of and responsive to the nature of crisis-focused work. We provide a reflexive account of the lessons learned and recommendations for future research.

scholarly journals Usages of Computers and Smartphones to Develop Dementia Care Education Program for Asian American Family Caregivers

2017 ◽  
Vol 23 (4) ◽  
pp. 338 ◽  
Author(s):  
Jung-Ah Lee ◽  
Hannah Nguyen ◽  
Joan Park ◽  
Linh Tran ◽  
Trang Nguyen ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Asian American ◽  
Education Program ◽  
Dementia Care ◽  
American Family ◽  
Care Education

How African American and Hispanic Adults Perceive the Benefits of mHealth Co-design: Multi-method Formative Research for a Health Information App (Preprint)

2020 ◽  
Author(s):  
Devlon N. Jackson ◽  
Neil Sehgal ◽  
Cynthia Baur
Keyword(s):  
African American ◽  
Health Information ◽  
Participatory Research ◽  
Health Disparity ◽  
Information Seeking ◽  
Smartphone Application ◽  
Research Process ◽  
Lessons Learned ◽  
Future Research ◽  
Hispanic Adults

UNSTRUCTURED Participatory research methods are used in several disciplines, including mHealth, and have been shown to mitigate many adverse effects when the intended beneficiaries or users are not involved in the development and testing process. These methodologies provide insights into the challenges that health disparity populations such as African Americans and Hispanics may have with mHealth app use, cultural preferences and/or needs, and health literacy, specifically when seeking health information to manage their health. This paper describes a one-year multi-method participatory research process that directly engaged English-speaking African American and bilingual/Spanish-speaking Hispanic adults in developing a prevention-focused personalized mHealth information seeking smartphone application. This paper describes 1) the participatory approach, 2) the design session process, 3) participant reported experiences of the design sessions, and 4) recommendations (or lessons learned) for future research in mHealth app design for health disparity populations.

scholarly journals Recruiting Racially and Ethnically Diverse Dementia Family Caregivers for Survey Research

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 353-353
Author(s):  
Kyra Mendez ◽  
Hae-Ra Han
Keyword(s):  
Native American ◽  
Family Caregivers ◽  
Survey Research ◽  
Technology Use ◽  
Ethnically Diverse ◽  
Lessons Learned ◽  
Treatment Center ◽  
Future Research ◽  
Source Population ◽  
Recruitment Methods

Abstract Recruiting racially and ethnically diverse dementia family caregivers (FCGs) for research can be challenging. The purposes of this presentation are to describe methods of successfully recruiting racially and ethnically diverse dementia FCGs for survey research and to share lessons learned. This study aimed to recruit dementia FCGs who have a chronic health condition and access to a mobile device. FCGs were primarily recruited from the Baltimore-Washington Metropolitan area to complete an online or phone survey about their technology use. A variety of recruitment methods were used including: posting ads in a local newspaper targeting older adults, partnering with a local Alzheimer’s research center and memory treatment center, attending community events, using online research registries, and posting online advertisements. The most successful method of recruiting minorities was by attending community events for caregivers and talking directly with community members about the research study. Online recruitment methods were less successful, but yielded the greatest diversity of participants, including Asian, Native American, mixed race, and African American FCGs. Some challenges associated with recruiting minority FCGs were working with primarily immigrant communities; recruiting FCGs who do not speak English; and building trust among communities that have been negatively impacted by research. Suggestions for future research include using recruitment strategies that enable researchers to build rapport with FCGs, engaging community stakeholders to understand your source population, and using a variety of recruitment methods. Also, online recruiting through credible sources appears to be a somewhat feasible method of recruiting diverse FCGs for survey research.

Projecting a European Diploma in Psychology

2002 ◽  
Vol 7 (3) ◽  
pp. 221-224 ◽  
Author(s):  
Bernhard Wilpert
Keyword(s):  
Research Process ◽  
Project Team ◽  
Future Research ◽  
Research Results ◽  
External Constraints ◽  
Internal Procedures ◽  
The Eu

The paper presents an inside evaluation of the EuroPsyT project, funded by the EU Leonardo Program in 1999-2001. While standard research usually neglects to reflect on the internal and external constraints and opportunities under which research results are achieved, the paper stresses exactly those aspects: starting from a brief description of the overall objectives of the 11 countries project, the paper proceeds to describe the macro-context and the internal strengths and weaknesses of the project team, the internal procedures of cooperation,. and obstacles encountered during the research process. It winds up in noting some of the project's achievements and with a look towards future research.

A Literature Review of “ Parenting Styles and Emotional Intelligence of X Class Students”

2017 ◽  
Vol 4 (36) ◽  
Author(s):  
P. Bhavani ◽  
T. G. Amuthavally
Keyword(s):  
Emotional Intelligence ◽  
Literature Review ◽  
Parenting Styles ◽  
Research Programme ◽  
Research Process ◽  
Future Research ◽  
Review Of Literature ◽  
Related Literature

The research for the review of literature is one of the first and foremost important steps in the research process. The search for related literature is a time consuming but fruitful phase of any research programme. In this article, the researcher was made an attempt to present findings from the collected related literature on parenting styles and emotional intelligence of adolescents. The main motto behind this article is to review of related literature from 1990 to till date. The paper also summarizes the findings of the studies on Emotional Intelligence and Parenting Styles giving a direction for future research.

The Socialization of Unpaid Family Caregivers: A Scoping Review

2021 ◽  
pp. 016402752110050
Author(s):  
Kirstie McAllum ◽  
Mary Louisa Simpson ◽  
Christine Unson ◽  
Stephanie Fox ◽  
Kelley Kilpatrick
Keyword(s):  
Older Adults ◽  
Family Caregivers ◽  
Scoping Review ◽  
Family Caregiving ◽  
Family Processes ◽  
Future Research ◽  
Socialization Process ◽  
Role Negotiation ◽  
Role Learning ◽  
Socialization Agents

As unpaid family caregiving of older adults becomes increasingly prevalent, it is imperative to understand how family caregivers are socialized and how they understand the caregiving role. This PRISMA-ScR-based scoping review examines the published literature between 1995–2019 on the socialization of potential and current unpaid family caregivers of older adults. Of 4,599 publications identified, 47 were included. Three perspectives of socialization were identified: (1) role acculturation; (2) role negotiation and identification; and (3) specialized role learning. The findings show how socialization involves different contexts (e.g., cultures), imperatives for action (e.g., circumstances), socialization agents (e.g., family), processes (e.g., modeling), and internal (e.g., normalization) and external (e.g., identification) consequences for caregivers. Future research could fruitfully explore how caregivers manage key turning points within the socialization process, disengage from the caregiving role, and negotiate the socialization and individualization processes within diverse cultural and funding contexts.

Sub-Ethnicity and Survivorship Experience: Asian American Breast Cancer Survivors

2021 ◽  
pp. 019394592110319
Author(s):  
Wonshik Chee ◽  
Eun-Ok Im
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Asian American ◽  
Breast Cancer Survivors ◽  
Short Form ◽  
Secondary Analysis ◽  
Future Research ◽  
Japanese American ◽  
Personal Resource ◽  
Cancer Data

The purpose of the study was to explore the associations of sub-ethnicity to the survivorship experience of Asian American breast cancer survivors and identify the multiple factors that influenced their survivorship experience. This was a secondary analysis of the data among 94 Asian American breast cancer survivors from a larger ongoing study. Instruments included: questions on background characteristics, the perceived isolation scale, the Personal Resource Questionnaire, the Memorial Symptom Assessment Scale-Short Form, and the Functional Assessment of Cancer Therapy-Breast Cancer. Data were analyzed using hierarchical logistic and multiple regression analyses. After controlling for other factors, being a Japanese American (ref. = being a Chinese American) was significantly associated with pain scores (odds ratio [OR] = −0.32, p < .01), symptom distress scores ( β = −0.27, p < .01), and the quality of life scores ( β = 0.22, p = .03). Sub-ethnic variations in cultural attitudes, values, and beliefs need to be considered in future research/practice with Asian American breast cancer survivors.

scholarly journals Wastewater Surveillance for SARS-CoV-2 on College Campuses: Initial Efforts, Lessons Learned, and Research Needs

2021 ◽  
Vol 18 (9) ◽  
pp. 4455
Author(s):  
Sasha Harris-Lovett ◽  
Kara L. Nelson ◽  
Paloma Beamer ◽  
Heather N. Bischel ◽  
Aaron Bivins ◽  
...  
Keyword(s):  
Information Needs ◽  
Community Dynamics ◽  
The United States ◽  
Lessons Learned ◽  
Future Research ◽  
Private Institutions ◽  
Community Members ◽  
Public And Private ◽  
College And University ◽  
University Systems

Wastewater surveillance for the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) is an emerging approach to help identify the risk of a coronavirus disease (COVID-19) outbreak. This tool can contribute to public health surveillance at both community (wastewater treatment system) and institutional (e.g., colleges, prisons, and nursing homes) scales. This paper explores the successes, challenges, and lessons learned from initial wastewater surveillance efforts at colleges and university systems to inform future research, development and implementation. We present the experiences of 25 college and university systems in the United States that monitored campus wastewater for SARS-CoV-2 during the fall 2020 academic period. We describe the broad range of approaches, findings, resources, and impacts from these initial efforts. These institutions range in size, social and political geographies, and include both public and private institutions. Our analysis suggests that wastewater monitoring at colleges requires consideration of local information needs, sewage infrastructure, resources for sampling and analysis, college and community dynamics, approaches to interpretation and communication of results, and follow-up actions. Most colleges reported that a learning process of experimentation, evaluation, and adaptation was key to progress. This process requires ongoing collaboration among diverse stakeholders including decision-makers, researchers, faculty, facilities staff, students, and community members.

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