scholarly journals INTEREST GROUP SESSION—PATIENT/PERSON ENGAGEMENT IN RESEARCH INTEREST GROUP (PPER-IG): STRENGTH IN AGE: ENGAGING OLDER ADULTS AS HEALTH RESEARCHERS THROUGH COMMUNITY-BASED PARTNERSHIPS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S404-S404
Author(s):  
Silvia Sörensen ◽  
Rebecca S Allen ◽  
Reza Yousefi Nooraie

Abstract The lack of clear translation of health research to improving older under-served patients’ lives presents a serious problem. Studies of aging rarely include the older adults themselves in the process of conceptualizing questions, implementing the research, and applying and evaluating the results. Lack of input particularly from marginalized and minority older adults may compromise the relevance and accuracy of health research findings. In this symposium, we present the design and evaluation of two projects funded by the Patient-Centered Outcomes Research Institute (PCORI), in which older adults are trained to understand research language, culture, and methods, and are subsequently incorporated into research projects in a variety of roles. Silvia Sörensen will describe the “Engaging Older Adult Learners as Health Researchers” (ENGOAL) in Rochester, NY. This program provides six months of weekly classes and 4-6 months of research apprenticeships for older adults. Dorine Otieno and Kate Kondolf will describe evaluation results from both quantitative and qualitative analyses. Rebecca Allen will describe the design and implementation of “Sharing Opinions and Advice about Research (SOAR) in the Deep South,” a partnership of The University of Alabama with community stakeholders from Sumter and Holt County to recruit and train community members to assist in the formulation of research questions based on the needs of their communities. Allen and Dragan will present the evaluation results from this project with regard to implementation and graduate education. Reza Yousefi-Nooraie will synthesize the insights from these projects and add the perspective of a social network analyst.

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 552-552
Author(s):  
Melissa Cannon

Abstract A crucial first step in preparing to become an Age-Friendly University (AFU) is seeking endorsement from the campus community and leadership. This presentation describes the mapping of the AFU principles to the strategic plan and initiatives of Western Oregon University, leading to endorsement by its faculty senate, and highlights a study of the older community members’ use of the university, laying the groundwork for advancing age-friendliness on campus. Data were collected through surveys (N=46), interviews (N=9), and photovoice method (N=7) with older adults, and data were analyzed using SPSS, team coding, and intensive group discussion to develop categories and themes. Themes emerged related to how the college campus is used by older adults, the need to promote lifelong learning to the community, and the need to address accessibility issues in order to be more age-friendly, providing helpful insight to other institutions of higher education seeking to join the AFU network.


2012 ◽  
Vol 20 (1) ◽  
pp. 1-14 ◽  
Author(s):  
Mark W. Swanson ◽  
Eric Bodner ◽  
Patricia Sawyer ◽  
Richard M. Allman

Little is known about the effect of reduced vision on physical activity in older adults. This study evaluates the association of visual acuity level, self-reported vision, and ocular disease conditions with leisure-time physical activity and calculated caloric expenditure. A cross-sectional study of 911 subjects 65 yr and older from the University of Alabama at Birmingham Study of Aging (SOA) cohort was conducted evaluating the association of vision-related variables to weekly kilocalorie expenditure calculated from the 17-item Leisure Time Physical Activity Questionnaire. Ordinal logistic regression was used to evaluate possible associations while controlling for potential confounders. In multivariate analyses, each lower step in visual acuity below 20/50 was significantly associated with reduced odds of having a higher level of physical activity, OR 0.81, 95% CI 0.67, 0.97. Reduced visual acuity appears to be independently associated with lower levels of physical activity among community-dwelling adults.


Author(s):  
Gabriele I.E. Strohschen

This chapter corroborates competence-based and social-situational educational practices with the principles of Blended Shore Education (BSE) and Metagogy. These two theorems emerged from several action research projects that engaged Chicago community members, university students, and educators from around the world. The principles, tenets, and descriptions of applied instructional methods in the context of civic and social engagement projects demonstrate how teaching and learning praxes and curricula and program design can be achieved by and with the learners, by the university, and by the community stakeholders to result in relevant and meaningful education models in higher education.


2012 ◽  
Vol 17 (1) ◽  
pp. 19-25 ◽  
Author(s):  
Pao Ying Hsiao ◽  
D. C. Mitchell ◽  
D. L. Coffman ◽  
R. M. Allman ◽  
J. L. Locher ◽  
...  

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 100-100
Author(s):  
Maria Pisu ◽  
David Geldmacher

Abstract Residents of the US Deep South (Alabama, Georgia, Louisiana, Mississippi, and South Carolina) have a 20–30% higher risk of developing Alzheimer’s disease or related dementia (ADRD). Moreover, >20% of African Americans, who are at higher ADRD risk than whites, live in this region. Therefore, one important goals of the Deep South Alzheimer’s Disease Center (DS-ADC) of the University of Alabama at Birmingham is to spearhead research to address these disparities. This panel presents current DS-ADC research, with two presentations focusing on the local patient population and the last two on the Deep South population compared to the rest of the nation. Addressing the challenge of recruiting representative samples in clinical research, the first paper is part of a research program to understand difference that may exist between African American and white research participants. The second paper examines patients with multiple conditions, in particular dementia and cancer, showing a marked disadvantage in cognition outcomes for African Americans. The next two papers take a broader perspective to better understand the population of older adults with ADRD in the Deep South and in the rest of the US. The third paper examines socioeconomic and medical contexts of African American and white older Medicare beneficiaries with ADRD, and the fourth paper examines differences in utilization of specialists, ADRD drugs, and hospitalizations in the two regions taking these contexts into account. The discussant will close the session by placing these studies in the larger context of the disparities research at the DS-ADC.


2020 ◽  
Vol 4 (4) ◽  
pp. 323-330
Author(s):  
Deepthi S. Varma ◽  
Alvin H. Strelnick ◽  
Nancy Bennett ◽  
Patricia Piechowski ◽  
Sergio Aguilar-Gaxiola ◽  
...  

AbstractBackground:Research participation by members of racial or ethnic minority groups continues to be less than optimum resulting in difficulties to generalization of research findings. Community-engaged research that relies on a community health worker (CHW) model has been found effective in building trust in the community, thereby motivating people to participate in health research. The Sentinel Network study aimed at testing the feasibility of utilizing the CHW model to link community members to appropriate health research studies at each of the research sites.Methods:The study was conducted at six Clinical and Translational Science Award institutions (N = 2371) across the country; 733 (30.9%) of the participants were from the University of Florida, 525 (22.0%) were from Washington University in St. Louis, 421 (17.8%) were from the University of California, Davis, 288 (12.1%) were from the University of Michigan, Ann Arbor, 250 (10.5%) were from Rochester, and 154 (6.5%) from Albert Einstein College of Medicine. Trained CHWs from each of these sites conducted regular community outreach where they administered a Health Needs Assessment, provided medical and social referrals, and linked to eligible research studies at each of those sites. A 30-day follow-up assessment was developed to track utilization of services satisfaction with the services and research study participation.Results:A large majority of people, especially African Americans, expressed willingness to participate in research studies. The top two health concerns reported by participants were hypertension and diabetes.Conclusion:Findings on the rate of navigation and enrollment in research from this study indicate the effectiveness of a hybrid CHW service and research model of directly engaging community members to encourage people to participate in research.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 848-848
Author(s):  
Mark Brennan-Ing

Abstract I had the privilege of serving as Principal- and Co-Convener of the HIV, AIDS and Older Adults Special Interest Group (SIG) for four years (2012 through 2015). During this era, when the proportion of U.S. older adults with HIV was projected to surpass 50%, we witnessed a number of milestones including the NIH Office of AIDS Working Group on HIV and Aging recommendations for critical research focus publication (JAIDS, 2012), the first CDC Surveillance Report on people 50 and older with HIV (2013), and the first UNAIDS report on HIV and aging (2013). During this period, the SIG was very successful in raising awareness about HIV and aging through numerous GSA presentations. Topics covered ranged from sexual health, to cognitive function, psychological well-being, social isolation, successful aging, and resilience. These presentations highlighted research findings that have been critical in developing interventions and shaping policy initiatives to support this growing population. Part of a symposium sponsored by the HIV, AIDS and Older Adults Interest Group.


2016 ◽  
Vol 34 (7_suppl) ◽  
pp. 13-13
Author(s):  
Maria Pisu ◽  
Gabrielle Betty Rocque ◽  
Kelly Kenzik ◽  
Bradford E. Jackson ◽  
Yufeng Li ◽  
...  

13 Background: Under the Choosing Wisely (CW) Campaign, the American Society of Clinical Oncology (ASCO) and the American Society of Therapeutic Radiology and Oncology (ASTRO) recommend against non-evidence-based costly medications, tests, and procedures. CW recommendation adherence in the Deep South is largely unknown, and opportunities to reduce overuse and costs may exist. Methods: Analysis of administrative claims and tumor registry data from 12 cancer centers of the University of Alabama Health System Cancer Community Network, for Medicare beneficiaries ≥65 years old with cancer. Main outcome: percent of beneficiaries adhering to 9 CW recommendations. Results: 2012-2015 (Q1) adherence varied across CW recommendations and cancer centers, and increased over time for CW 2 and 7, decreased for 3, 5, and 6, and did not change for others. Conclusions: Opportunities to improve quality and value of cancer care exist in the Deep South. Research should understand how to minimize use of non-evidence based medications, tests, and procedures. [Table: see text]


2013 ◽  
Vol 5 (3) ◽  
pp. 468-475 ◽  
Author(s):  
Jeffrey D. Schlaudecker ◽  
Timothy J. Lewis ◽  
Irene Moore ◽  
Harini Pallerla ◽  
Anna M. Stecher ◽  
...  

Abstract Background Education for all physicians should include specialty-specific geriatrics-related and chronic disease-related topics. Objective We describe the development, implementation, and evaluation of a chronic disease/geriatric medicine curriculum designed to teach Accreditation Council for Graduate Medical Education core competencies and geriatric medicine competencies to residents by using longitudinal encounters with a standardized dementia patient and her caregiver daughter. Intervention Over 3 half-day sessions, the unfolding standardized patient (SP) case portrays the progressive course of dementia and simulates a 10-year longitudinal clinical experience between residents and a patient with dementia and her daughter. A total of 134 residents participated in the University of Cincinnati-based curriculum during 2007–2010, 72% of whom were from internal medicine (79) or family medicine (17) residency programs. Seventy-five percent of participants (100) said they intended to provide primary care to older adults in future practice, yet 54% (73) had little or no experience providing medical care to older adults with dementia. Results Significant improvements in resident proficiency were observed for all self-reported skill items. SPs' evaluations revealed that residents' use of patient-centered language and professionalism significantly improved over the 3 weekly visits. Nearly all participants agreed that the experience enhanced clinical competency in the care of older adults and rated the program as “excellent” or “above average” compared to other learning activities. Conclusions Residents found this SP-based curriculum using a longitudinal dementia case realistic and valuable. Residents improved in both self-perceived knowledge of dementia and the use of patient-centered language and professionalism.


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