scholarly journals AVOIDANT FILIAL PIETY IN KOREAN IMMIGRANT FAMILIES: WHEN DO WE TALK ABOUT MOM AND DAD?

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S266-S266
Author(s):  
Joonsik Yoon
Keyword(s):  
Parental Care ◽  
Social Services ◽  
Filial Piety ◽  
Family Members ◽  
Korean Immigrant ◽  
Care Needs ◽  
Parental Caregiving ◽  
Migrant Families ◽  
Future Care ◽  
The Many

Abstract Parental caregiving for older adults is a challenge to most families, not only because of intangible factors such as role-reversals in family dynamics, but due to the many practical difficulties involved. At the same time, family members are important sources of support and care even in wealthy countries with established and relatively efficient social services for the older population. For migrant families from East Asia, where adult children have emigrated while their parents have remained in the country of origin, the distance and the transnational nature of the family ties present additional complications to the challenge of providing parental care within a highly filial culture. In this qualitative study, first-generation Korean Americans were interviewed in open-ended, in-depth interviews about their experiences and concerns surrounding transnational parental caregiving. The results show that none of the study participants or their families plan for parental care. Although most respondents expressed concerns over potential future care needs of their parents, none of them had taken steps to address those concerns or discussed the matter with other family members, who were equally reticent to discuss it. This was even though many stated that they were specifically worried about how to care for their parents in times of need given that they lived far away in another country. The discussion explores why migrant families consistently avoid what they themselves acknowledge to be an important, even necessary, discussion their families ought to have.

scholarly journals Palliative care for older South Asian migrants: A systematic review

2019 ◽  
Vol 18 (3) ◽  
pp. 346-358 ◽  
Author(s):  
Jahan Shabnam ◽  
Helle Timm ◽  
Dorthe S. Nielsen ◽  
Mette Raunkiaer
Keyword(s):  
Systematic Review ◽  
Decision Making ◽  
Palliative Care ◽  
South Asian ◽  
Family Members ◽  
Care Practice ◽  
Care Needs ◽  
International Evidence ◽  
Migrant Families ◽  
Care Decision

AbstractObjectiveSouth Asian migrants have a higher burden of life-threatening diseases and chronic diseases compared to other ethnic groups. Yet, knowledge gaps remain around their palliative care needs in the host countries. The aim of the review was to present results from a systematic literature review of available international evidence on experiences with and perspectives on palliative care among older South Asian migrants, relatives, and healthcare providers.MethodsA systematic review in accordance with PRISMA guidelines was conducted in February 2018, searching PubMed, CINAHL, PsychINFO, and EMBASE databases. PROSPERO #CRD42018093464. Studies included empirical research, providing international evidence on experiences and perspectives on palliative care of South Asian migrants and were published between 2000 and 2018. Thematic synthesis was used to analyze data.ResultsA total of 30 articles were included: qualitative (24), quantitative (5), and mixed methods (1). Three main themes were discovered: 1) palliative care practice within the family, 2) trust as a precondition of palliative care, and 3) the importance of knowledge and cultural competency. All the themes, to a greater or lesser extent, are related to access to and use of palliative care services by South Asian migrant families.Significance of resultsInvolvement of family members in palliative care decision making could improve the satisfaction of South Asian migrant families toward the service. For example, Advanced Care Planning involving family members could be a possible way to engage family members in palliative care decision making. Supportive interventions, e.g. providing knowledge, aimed at patients and their family members might improve knowledge and increase awareness among South Asian migrant families of palliative care. Knowledge gained from this review could be implemented with other ethnic minority groups.

Social media and peer-to-peer support for individuals with health care needs and their caregivers: a scoping review (Preprint)

2019 ◽  
Author(s):  
Katherine Kelly ◽  
Shelley Doucet ◽  
Alison Luke ◽  
Rima Azar ◽  
William Montelpare
Keyword(s):  
Health Care ◽  
Social Media ◽  
Peer Support ◽  
Scoping Review ◽  
Emotional Support ◽  
Peer To Peer ◽  
Health Care Needs ◽  
Care Providers ◽  
Care Needs ◽  
The Many

BACKGROUND Individuals with health care needs and their caregivers require substantial informational and emotional support. Providing this support is a major challenge for care providers, who are often not able to adequately address barriers and may not be aware of available services and programs. Online P2P support offers an accessible and inexpensive source of support; however, the breadth of these supports on social media has not been previously documented. OBJECTIVE This study was a scoping review of research examining the use of peer-to-peer support on social media by individuals with health care needs and their caregivers. METHODS This review used the PRISMA-SR method to search for articles from 1997 to 2019. RESULTS A total of 94 articles were included. Patients and caregivers use many social media websites for P2P interaction, including: Facebook (n = 19), Twitter (n = 7), and YouTube (n = 6). Providing and receiving informational and emotional support were important uses of social media for P2P support; however, the specific needs and experiences of patients and caregivers appeared to change as knowledge regarding the condition(s) improved. Despite the many benefits associated with participating in online P2P groups, concerns related to ethics, privacy, and the potential to spread misinformation are outlined as risks associated with its use. CONCLUSIONS This study revealed that patients and caregivers engage in P2P support on social media to receive informational and emotional support from peers, despite known risks and limitations. Social networking websites were revealed to be particularly suited for P2P support communication.

Parenting in migration: Critical aspects and challenges of “doing family” of refugee families and social workers

2021 ◽  
pp. 146801732110146
Author(s):  
Nadia Rania ◽  
Laura Pinna ◽  
Ilaria Coppola
Keyword(s):  
Social Workers ◽  
Social Services ◽  
Host Community ◽  
Cultural Barriers ◽  
Family Identity ◽  
Helping Relationship ◽  
Refugee Families ◽  
Job Opportunities ◽  
Migrant Families ◽  
Italian Context

Summary Although migrant families comprise a small number of immigrants, they present a significant challenge for the host community. In the Italian context, social services support migrant families through paths to autonomy and integration in the community. The purpose of this study was to investigate perceptions that families and social workers have of “parenting” and “doing family” (training and management of family identity, roles and daily practices) in the complexity of migration. The study involved 15 immigrant parental couples, using family interview techniques and 12 social workers in 3 mini-focus groups. The collected materials were transcribed verbatim and analyzed using grounded theory. Findings The main results are identified and discussed as strengths, critical points and challenges. Some of the themes such as “willingness to work” or “lack of job opportunities” are common to both family members and social workers. Other themes are relevant to one group only. Among these, “availability and support of social workers” only emerged among families, whereas “education and respecting the rules” only emerged among social workers. Applications The results indicate that it is necessary for social workers to engage in a meaningful helping relationship with families, build networks of inclusion services, and also with the support of mediators overcome linguistic and cultural barriers. Social workers should involve families throughout he integration process. Furthermore, social services must also consider how families experience the difficulty of relating to social workers, which represents an obstacle to support for social integration.

scholarly journals Support received by family members before, at and after an ill person’s death

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Anna O’Sullivan ◽  
Anette Alvariza ◽  
Joakim Öhlén ◽  
Cecilia Larsdotter
Keyword(s):  
Survey Design ◽  
Family Members ◽  
Time Of Death ◽  
Healthcare Staff ◽  
Care Needs ◽  
Advanced Illness ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Bereaved Family

Abstract Background It is widely recognised, that family members are central to care of people with advanced illness, and that support should be provided to all family members in need thereof. The aim of this study was to investigate family members’ experiences of support received during the last three months of life, at the time of death and after the death of a person with advanced illness. Methods A retrospective cross-sectional survey design was employed, using the VOICES(SF) questionnaire and multiple methods for data analyses. The sample consisted of 485 bereaved family members (aged: 20–90 years old, 70% women) of people who died in hospital between August 2016-April 2017. Results Of the family members, 58,8% reported they had received enough help and support during the illness, whereas 30,2% had not. Family members’ comments about support during the illness were mainly related to care the ill person had or had not received, rather than about support they themselves received. Of all family members, 52,8% reported having had enough support at the time of the ill person’s death. Related to support at death, 14,6% reported that the imminence of death was not clear, which was described as having affected their opportunity to be with the dying person at the time of death. Of all, 25,2% had a follow-up conversation after the death, 48% did not and did not want to, and 21% had no follow-up conversation, but would have liked one. A follow-up conversation was described as helpful for the bereavement process, and disappointment was expressed when not receiving support after the death. Conclusions Family members’ experiences of support were partly related to whether the ill person’s care needs were fulfilled. Healthcare staff expressing empathy and respect in the care of dying people and their family members were important for family members’ experiences of support. Family members’ difficulty recognising that death was imminent and the importance of healthcare staff providing them with clear information were expressed in connection with support at death. Follow-up conversations were valued by family members, especially if with a healthcare professional who was present at the time of death.

scholarly journals LifePlanning: A Better Retirement Planning Option for Our Times

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 111-112
Author(s):  
Rajiv Nagaich ◽  
Carol Redfield ◽  
Ben Harvill
Keyword(s):  
Institutional Care ◽  
Integrated Approach ◽  
Retirement Planning ◽  
Practice Research ◽  
Care Needs ◽  
Term Care ◽  
Investment Returns ◽  
The Many ◽  
In The Beginning

Abstract Ten thousand turn 65 daily. Majority look forward to retiring in the beginning and then become afraid of outcomes they often hear about- dealing with institutional care, becoming a burden, or running out of money. This is not because retirees do not plan, but despite of having planned their entire life for retirement. Many employers provide financial retirement planning such as a 401K plan. Individuals have relied on employee benefit plans to ready themselves, yet few are “very confident” about it. Two-thirds of retirees say their most recent employers did “nothing” to help them transition into retirement; 16% are “not sure” what their employers did. Many may be overlooking important factors in their strategies. Among retirees who currently have a retirement strategy, 85% have factored Social Security and Medicare benefits into their strategy. Most have included on-going living expenses (79%), total savings and income needs (57%) into their plan. Fewer than half have considered other critical factors (e.g., investment returns, ongoing healthcare costs, inflation, long-term care needs, tax planning, etc.). Only 9% have contingency plans for retiring sooner than expected and/or savings shortfalls. The truth is that education offered by employers tends to be traditional planning advice, which may not be enough to address the concerns retirees will have in retirement. To this, we introduce a multi-disciplinary LifePlanning Framework which takes a wholistic, integrated approach in addressing the many complex issues of retirement found in health, housing, finance, legal, and family. Our results may impact future practice, research, and policy.

基於儒家家庭本位思想的知情同意原則的思考

2013 ◽  
Vol 11 (1) ◽  
pp. 33-44
Author(s):  
Xiangjin KONG ◽  
Mingjie ZHAO
Keyword(s):  
Decision Making ◽  
Filial Piety ◽  
Moral Virtue ◽  
Family Members ◽  
Confucian Ethics ◽  
Medical Decision ◽  
Individual Autonomy ◽  
The Family ◽  
Family Decision ◽  
Opinion Polls

LANGUAGE NOTE | Document text in Chinese; abstract also in English.在具有家庭主義特徵的中國社會文化語境下，儒家家庭本位思想對病人知情同意權的影響是客觀實在。以自由主義和個人主義為理論基礎的個人自主知情同意原則要想在中國本土的醫療實踐中發揮應有作用，突顯家庭在知情同意過程中的主導地位是重要前提。在中國的醫療實踐中，知情同意的模式必須融入中國儒家家庭本位思想，才能更好地發揮其作用。Opinion polls released recently show that the majority of people in China today think that informed consent in medical practice is necessary, with more than half favoring family decision making over individual, autonomous patient decision making. Based on these opinion polls, this essay argues that the liberalism and liberal individualism that emphasize individual autonomy do not square with the Confucian tradition.The essay submits that the “family decision” model is designed to embody Confucian family ethics and maximize the benefit of family involvement in medical decision making. The family model includes both the patient and his or her close family members in the decision making process. The Confucian ethics of humanness (ren) – the highest moral virtue – and filial piety (xiao) – the foundation of all moral virtue – support family as the most appropriate authority for medical decisions. Further, the essay explores how the family as a unit is better positioned to work with the physician at critical moments to protect the interests of the patient. This means that the family, not the patient, is in authority, and that in some cases, it is acceptable for family members to hide “medical information” from the patient with the cooperation of the physician. The essay concludes that the family is, and should be treated as, a significant moral participant in medical decision making.DOWNLOAD HISTORY | This article has been downloaded 99 times in Digital Commons before migrating into this platform.

Friendship and Filial Piety: Relational Ethics in Aristotle and Early Confucianism

2012 ◽  
Vol 39 (1) ◽  
pp. 71-88
Author(s):  
Tim Connolly
Keyword(s):  
Filial Piety ◽  
Family Members ◽  
Relational Ethics

This article examines the origins of and philosophical justifications for Aristotelian friendship (philia) and early Confucian filial piety (xiao ).What underlying assumptions about bonds between friends and family members do the philosophies share or uniquely possess? Is the Aristotelian emphasis on relationships between equals incompatible with the Confucian regard for filiality? As I argue, the Aristotelian and early Confucian accounts, while different in focus, share many of the same tensions in the attempt to balance hierarchical and familial associations with those between friends who are on the same footing.

Older Adults in Rural Appalachia

2017 ◽  
Vol 86 (4) ◽  
pp. 364-381 ◽  
Author(s):  
Raven H. Weaver ◽  
Karen A. Roberto ◽  
Rosemary Blieszner
Keyword(s):  
Older Adults ◽  
Mixed Method ◽  
Structural Equation ◽  
Community Services ◽  
Equation Modeling ◽  
Care Needs ◽  
Formal Services ◽  
Future Care ◽  
Rural Appalachia ◽  
Informal Help

Little is known about how rural-dwelling older adults anticipate and plan for future care needs. Using a mixed-method explanatory design, structural equation modeling ( n = 535) revealed significant associations between concerns about using services on preference for type of help; preference was associated with likelihood of using future services. Content analysis of interview data from 19 older adults who needed but were not receiving help revealed how they conceptualize their need for assistance and anticipated future care arrangements. Nine older adults were not thinking about future care needs. While most older adults articulated preferences for informal help, they indicated some openness to formal assistance. Preferences did not always align with expectations for the future. Rather, concerns about burdening family and friends outweighed concerns about community services and influenced expectations of using formal services. Understanding rural older adults’ expectations for future care arrangements is necessary for advancing policy and implementing successful services options.

scholarly journals Maternity Care Preferences for Future Pregnancies Among United States Childbearers: The Impacts of COVID-19

2021 ◽  
Vol 6 ◽  
Author(s):  
Theresa E. Gildner ◽  
Zaneta M. Thayer
Keyword(s):  
United States ◽  
Maternity Care ◽  
Community Care ◽  
Insurance Coverage ◽  
The United States ◽  
Care Needs ◽  
Perceived Safety ◽  
Predominately White ◽  
Centered Care ◽  
Future Care

The COVID-19 pandemic has impacted maternity care decisions, including plans to change providers or delivery location due to pandemic-related restrictions and fears. A relatively unexplored question, however, is how the pandemic may shape future maternity care preferences post-pandemic. Here, we use data collected from an online convenience survey of 980 women living in the United States to evaluate how and why the pandemic has affected women’s future care preferences. We hypothesize that while the majority of women will express a continued interest in hospital birth and OB/GYN care due to perceived safety of medicalized birth, a subset of women will express a new interest in out-of-hospital or “community” care in future pregnancies. However, factors such as local provider and facility availability, insurance coverage, and out-of-pocket cost could limit access to such future preferred care options. Among our predominately white, educated, and high-income sample, a total of 58 participants (5.9% of the sample) reported a novel preference for community care during future pregnancies. While the pandemic prompted the exploration of non-hospital options, the reasons women preferred community care were mostly consistent with factors described in pre-pandemic studies, (e.g. a preference for a natural birth model and a desire for more person-centered care). However, a relatively high percentage (34.5%) of participants with novel preference for community care indicated that they expected limitations in their ability to access these services. These findings highlight how the pandemic has potentially influenced maternity care preferences, with implications for how providers and policy makers should anticipate and respond to future care needs.

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