scholarly journals DIFFERENT PATHWAYS TO WELLBEING BETWEEN ADULT-CHILD AND SPOUSAL CAREGIVERS FOR PEOPLE WITH DEMENTIA

2016 ◽  
Vol 56 (Suppl_3) ◽  
pp. 19-19
Keyword(s):  
Adult Child ◽  
Spousal Caregivers ◽  
People With Dementia

An extended review of couple-centred interventions in dementia: Exploring the what and why — Part B

Dementia ◽  
2017 ◽  
Vol 18 (7-8) ◽  
pp. 2450-2473 ◽  
Author(s):  
Therése Bielsten ◽  
Ingrid Hellström
Keyword(s):  
Relationship Quality ◽  
Caregiver Burden ◽  
Web Of Science ◽  
Adult Child ◽  
Psychosocial Interventions ◽  
People With Dementia ◽  
Scoping Reviews ◽  
As Relationship ◽  
Academic Search ◽  
Extended Review

This scoping review is an extended version of a narrative review of couple-centred interventions in dementia shared in part A and the previous publication in this edition. The rationale for expanding study A emerged through the fact that most dyadic interventions have samples consisting of a majority of couples. The exclusion of interventions with samples of mixed relationships in part A therefore contributed to a narrow picture of joint dyadic interventions for couples in which one partner has a dementia. The aim of this second review is to explore the ‘what’ (types of interventions) and the ‘why’ (objectives and outcome measures) of dyadic interventions in which sample consists of a majority of couples/spouses and in which people with dementia and caregivers jointly participate. Method A five-step framework for scoping reviews guided the procedure. Searches were performed in Academic Search Premier, CINAHL, PsycINFO, PubMed, Scopus, and Web of Science. Results Twenty-one studies with various types of psychosocial interventions were included. The main outcome measure for people with dementia was related to cognitive function, respectively caregiver burden and depression for caregivers. Conclusions The findings of this extended review of joint dyadic interventions in dementia are in line with the findings of part A regarding the negative approach of outcomes, lack of a genuine dyadic approach, lack of tailored support, neglect of interpersonal issues and the overlook of the views of people with dementia. This review also recognises that measures of caregiver burden, as well as relationship quality should be considered in samples of mixed relationships due to the different significance of burden and relationship quality for a spouse as opposed to an adult child or friend.

scholarly journals Serving up mealtime strategies : how families experience dementia in the community

2021 ◽  
Author(s):  
Abigail Wickson
Keyword(s):  
Sense Of Self ◽  
Secondary Analysis ◽  
Well Being ◽  
Spousal Caregivers ◽  
Data Set ◽  
People With Dementia ◽  
Adult Caregivers ◽  
Late Stages ◽  
Existing Data

The mealtime experiences for people with dementia and their caregivers living in the community has not been extensively explored. An existing data set provided information on the mealtime strategies used to cope with changing dementia behaviours. A secondary analysis of data from 10 dyads of people with dementia and their caregivers were analyzed. Four categories were identified including: Strategies to facilitate eating; Strategies to promote a sense of self; Stategies to minimize risk; and Strategies to promote caregiver well-being. The dyads used a variety of strategies that were common to all stages of dementia; however by the late stages, the dyads used more specific strategies. In general, the mealtime strategies used by adult caregivers and spousal caregivers did not greatly differ but rather the context in which they engaged in mealtimes did. The results demonstrated that there are opportunities to educate families and professionals about potential mealtime strategies.

Factors emerging from the “Zarit Burden Interview” and predictive variables in a UK sample of caregivers for people with dementia

2018 ◽  
Vol 30 (11) ◽  
pp. 1671-1678 ◽  
Author(s):  
Kerry Johanna Smith ◽  
Catriona George ◽  
Nuno Ferreira
Keyword(s):  
Caregiver Burden ◽  
Experiential Avoidance ◽  
Protective Factor ◽  
Adult Child ◽  
Direct Impact ◽  
Zarit Burden Interview ◽  
People With Dementia ◽  
Health And Social Care ◽  
The Future ◽  
Positive Aspects Of Caregiving

ABSTRACTBackground:Caring for persons with dementia (PWD) can create “caregiver burden,” which is associated with negative outcomes for caregivers and PWD. The ZBI (Zarit Burden Interview) is a widely used unitary measure of caregiver burden. However, recent research has found caregiver burden to be multi-dimensional. The purpose of this study was to explore the factor structure of the ZBI within a sample of UK caregivers. A secondary aim was to identify variables that predicted burden dimensions found.Methods:A total of 110 unpaid community caregivers of PWD completed the ZBI. They also completed the EACQ (Experiential Avoidance in Caregiving Questionnaire), DEX (Dysexecutive Questionnaire), PACS (Positive Aspects of Caregiving Scale), and a demographic questionnaire. ZBI data were analyzed via exploratory factor analysis (principal axis factoring). Relationships between burden factors and other variables were studied using Pearson correlations and multiple regression.Results:Analysis identified three burden factors, namely direct impact of caregiving, uncertainty around the future, and frustration/embarrassment. A direct impact of caregiving and frustration/embarrassment has been found previously. Uncertainty over the future is a new factor, which was predicted by adult-child caregiver role, highlighting that spouses and adult children are likely to have different burden experiences. Additionally, uncertainty over the future and frustration/embarrassment were inversely predicted by PACS, suggesting that being mindful of positive aspects of caregiving may function as a protective factor for burden.Conclusions:This study found caregiver burden to be multi-dimensional and uncovered a novel factor in uncertainty over the future, which warrants further exploration. Burden factors were associated with a range of modifiable variables that could be targeted within health and social care interventions to improve outcomes for caregivers and PWD.

scholarly journals CHILDREN CAREGIVERS’ EXPERIENCES OF OLDER ADULTS WITH DEMENTIA IN CARE TRANSITION: A QUALITATIVE SYSTEMATIC REVIEW

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S841-S841
Author(s):  
Rungnapha Khiewchaum
Keyword(s):  
Systematic Review ◽  
Older Adults ◽  
Adult Children ◽  
Care Transitions ◽  
Adult Child ◽  
Well Being ◽  
Community Services ◽  
Care Transition ◽  
Thematic Synthesis ◽  
People With Dementia

Abstract Background/Purpose: Young and adult children have experienced caring for people who have been diagnosed with dementia. Caregiving needs affect family members who become the primary caregivers in care transition from hospital to home. This study aims to synthesize primary qualitative research on the experiences of children caregivers of older adults with dementia. Method: This is a systematic review describing young and adult child caregivers’ experiences in caring for patient with dementia in home-based care. Data sources were published literature written in English from CINAHL, Scopus, PubMed, and PsychoINFO (published from January 1976 to October 2018). The thematic synthesis approach was also applied to generate theory generating meta-synthesis research (TGMS). and to describe the process of caring for demented patients by caregivers. Result: Eight primary studies reporting 388 potential studies were included. Four themes emerged: 1) well-being which included encouraging and destructive well-being; 2) role transition which included positive or negative role transformations; 3) caregiver needs which included medical and nursing information or knowledges and health care services/community services; and 4) the challenge of dementia which included symptoms of dementia which were impairing. Conclusion The findings of this meta-synthesis study support evidence of well-being among adult children in caring for people with dementia in transition phases. We present thematic synthesis that could be useful to professionals working with caregivers and patients with dementia. We suggest that research importance should shift towards the development and evaluation of care transitions intervention, especially professionals preparing support after diagnosis.

scholarly journals CAREGIVERS OF OLDER VIETNAMESE REFUGEES: FINDINGS FROM THE VIETNAMESE AGING AND CARE SURVEY (VACS)

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S187-S187
Author(s):  
Christina E Miyawaki ◽  
Nai-Wei Chen ◽  
Oanh L Meyer ◽  
Mindy T Tran ◽  
Kyriakos S Markides
Keyword(s):  
Social Services ◽  
Healthcare Professionals ◽  
Financial Burden ◽  
Adult Child ◽  
Good Health ◽  
Spousal Caregivers ◽  
Vulnerable Group ◽  
Vietnamese Refugees ◽  
Excellent Health ◽  
Care Survey

Abstract Since the fall of Saigon, over 1.3 million Vietnamese immigrated to the U.S. making Vietnamese the 4th largest Asian ethnic but most vulnerable group to disparities. There is a paucity of knowledge on the health of elders and their caregivers. The Vietnamese Aging and Care Survey (VACS) was developed, and health data on 67 caregivers were collected in Houston, Texas. Adult-child caregivers (n=44) were on average, 45.3 years old, married (64%), working (91%), female (61%) in good/excellent health (90%). Spousal caregivers (n=23) were 70.6 years-old, retired (57%), female (78%) in fair/good health (73%). Adult-child received more help (43%) than spousal caregivers (29%), however, felt more caregiver burden (p=0.01) and perceived stress (p=0.05). Living in a multi-generation household, sharing caregiving, and working may alleviate their financial burden and provide psychological support. Findings suggest healthcare professionals to encourage caregivers to utilize available culturally-relevant social services to further ease their caregiving experiences.

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