scholarly journals Sharing and helping: predictors of adolescents’ willingness to share diabetes personal health information with peers

2017 ◽  
Vol 25 (2) ◽  
pp. 135-141 ◽  
Author(s):  
Sarah E Vaala ◽  
Joyce M Lee ◽  
Korey K Hood ◽  
Shelagh A Mulvaney
Keyword(s):  
Social Learning ◽  
Health Information ◽  
Glucose Control ◽  
Online Survey ◽  
Personal Information ◽  
Social Resources ◽  
Personal Health Information ◽  
Personal Health ◽  
Helping Others

Abstract Objective Sharing personal information about type 1 diabetes (T1D) can help adolescents obtain social support, enhance social learning, and improve self-care. Diabetes technologies, online communities, and health interventions increasingly feature data-sharing components. This study examines factors underlying adolescents’ willingness to share personal T1D information with peers. Materials and Methods Participants were 134 adolescents (12–17 years of age; 56% female) who completed an online survey regarding experiences helping others with T1D, perceived social resources, beliefs about the value of sharing information and helping others, and willingness to share T1D information. Hemoglobin A1c values were obtained from medical records. Results Adolescents were more willing to share how they accomplished T1D tasks than how often they completed them, and least willing to share glucose control status. In multivariate analyses, sharing/helping beliefs (β = 0.26, P < .01) and glucose control (HbA1c value; β = −0.26, P < .01) were related to greater willingness to share personal health information. Glucose control moderated relationships such that adolescents with worse A1c values had stronger relationships between sharing/helping beliefs and willingness to share (β = 0.18, P < .05) but weaker relationships between helping experience and willingness to share (β = −0.22, P = .07). Discussion Many adolescents with T1D are willing to share personal health information, particularly if they have better diabetes health status and a stronger belief in the benefits of sharing. Conclusion Social learning and social media components may improve intervention participation, engagement, and outcomes by boosting adolescents’ beliefs about the benefits of sharing information and helping others.

scholarly journals Locking it down

2016 ◽  
Vol 150 (1) ◽  
pp. 60-66 ◽  
Author(s):  
Kelly Grindrod ◽  
Jonathan Boersema ◽  
Khrystine Waked ◽  
Vivian Smith ◽  
Jilan Yang ◽  
...  
Keyword(s):  
Health Information ◽  
Personal Information ◽  
Medication Management ◽  
Kappa Statistic ◽  
Personal Health Information ◽  
Third Party ◽  
Personal Health ◽  
Privacy And Security ◽  
Standard Data ◽  
Android Apps

Objective: To explore the privacy and security of free medication applications (apps) available to Canadian consumers. Methods: The authors searched the Canadian iTunes store for iOS apps and the Canadian Google Play store for Android apps related to medication use and management. Using an Apple iPad Air 2 and a Google Nexus 7 tablet, 2 reviewers generated a list of apps that met the following inclusion criteria: free, available in English, intended for consumer use and related to medication management. Using a standard data collection form, 2 reviewers independently coded each app for the presence/absence of passwords, the storage of personal health information, a privacy statement, encryption, remote wipe and third-party sharing. A Cohen’s Kappa statistic was used to measure interrater agreement. Results: Of the 184 apps evaluated, 70.1% had no password protection or sign-in system. Personal information, including name, date of birth and gender, was requested by 41.8% (77/184) of apps. Contact information, such as address, phone number and email, was requested by 25% (46/184) of apps. Finally, personal health information, other than medication name, was requested by 89.1% (164/184) of apps. Only 34.2% (63/184) of apps had a privacy policy in place. Conclusion: Most free medication apps offer very limited authentication and privacy protocols. As a result, the onus currently falls on patients to input information in these apps selectively and to be aware of the potential privacy issues. Until more secure systems are built, health care practitioners cannot fully support patients wanting to use such apps.

Managing Your Health Online: Issues in the Selection, Curation, and Sharing of Digital Health Information

2018 ◽  
pp. 433-450
Author(s):  
Elizabeth Sillence ◽  
Pam Briggs
Keyword(s):  
Health Information ◽  
Personal Information ◽  
Digital Health ◽  
Personal Health Information ◽  
Future Research ◽  
Online Health Information ◽  
Personal Health ◽  
Self Disclosure ◽  
Complex Information ◽  
Personal Experiences

It is now easier than ever before to access digital health information. Individuals can monitor and record information about their own health, gather information online, and share personal experiences with those in a similar position. In fact, this shift towards peer-to-peer sharing sites represents a significant change in the way people think about online health information and raises a number of challenges around eHealth and personal information management, including issues of trust, privacy, and self-disclosure. This chapter examines two of those challenges in light of increased peer exchange around health: the sharing of personal health information, and the curation of such a large and complex information resource. It also discusses directions for future research in the field.

E-Health Knowledge Management by Australian University Students

2012 ◽  
pp. 938-953
Author(s):  
Wayne Usher ◽  
Lay San Too
Keyword(s):  
Knowledge Management ◽  
Health Services ◽  
University Students ◽  
Health Information ◽  
Online Survey ◽  
Health Knowledge ◽  
Random Search ◽  
Personal Health Information ◽  
Personal Health ◽  
Health Concerns

This study is the first research project to investigate Australian university students’ e-health knowledge management trends. An online survey was developed (http://www.limesurvey.org) to collect both quantitative and qualitative empirical data. The survey was promoted via Facebook and 2 broadcast emails to students’ email accounts who were attending Griffith University, Gold Coast, Australia (Arts, Education & Law). Two hundred and seventy-five (275) responses were included for analysis. A profile which emerged identifies that the majority of participants used the Internet to search for personal health information, used a random search engine, accessed online health information every few months, would mostly spend more than 1-15 minutes in reading it, with the majority accessing health topics concerning, 1) specific diseases, 2) medical treatment, and 3) health services. Australian university health services could benefit from understandings pertaining to students’ e-health knowledge management usage trends to meet their personal health concerns. It seems plausible to claim that reliable websites, designed and managed by university health services, should have a predominant position among interventions which are specifically aimed to address students’ health concerns.

scholarly journals P.105 Smartphone and mobile app use among Canadian Neurosurgery residents and fellows

2017 ◽  
Vol 44 (S2) ◽  
pp. S40-S40
Author(s):  
MM Kameda-Smith ◽  
C Iorio-Morin ◽  
SU Ahmed ◽  
M Bigder ◽  
A Dakson ◽  
...  
Keyword(s):  
Health Information ◽  
Online Survey ◽  
Response Rate ◽  
Mobile App ◽  
Personal Health Information ◽  
High Rate ◽  
Personal Health ◽  
Information Protection ◽  
Public Concern ◽  
Resident Physicians

Background: Communicating with senior neurosurgical colleagues during residency necessitates a reliable and versatile smartphone. Smartphones and their apps are commonplace. They enhance communication with colleagues, provide the ability to access patient information and results, and allow access to medical reference applications. Patient data safety and compliance with the Personal Health Information Protection Act (PHIPA, 2004) in Canada remain a public concern that can significantly impact the way in which mobile smartphones are utilized by resident physicians Methods: Through the Canadian Neurosurgery Research Collaborative (CNRC), an online survey characterizing smartphone ownership and utilization of apps among Canadian neurosurgery residents and fellows was completed in April 2016. Results: Our study had a 47% response rate (80 surveys completed out of 171 eligible residents and fellows). Smartphone ownership was almost universal with a high rate of app utilization for learning and facilitating the care of patients. Utilization of smartphones to communicate and transfer urgent imaging with senior colleagues was common. Conclusions: Smartphone and app utilization is an essential part of neurosurgery resident workflow. In this study we characterize the smartphone and app usage within a specialized cohort of residents and suggest potential solutions to facilitate greater PHIPA adherence

scholarly journals Analysis of College Students� Personal Health Information Activities: Online Survey (Preprint)

2017 ◽  
Author(s):  
Sujin Kim ◽  
Donghee Sinn ◽  
Sue Yeon Syn
Keyword(s):  
College Students ◽  
Health Care ◽  
Health Information ◽  
Information Management ◽  
Health Care Professionals ◽  
Online Survey ◽  
Age Distribution ◽  
Principal Component ◽  
Personal Health Information ◽  
Personal Health

BACKGROUND With abundant personal health information at hand, individuals are faced with a critical challenge in evaluating the informational value of health care records to keep useful information and discard that which is determined useless. Young, healthy college students who were previously dependents of adult parents or caregivers are less likely to be concerned with disease management. Personal health information management (PHIM) is a special case of personal information management (PIM) that is associated with multiple interactions among varying stakeholders and systems. However, there has been limited evidence to understand informational or behavioral underpinning of the college students’ PHIM activities, which can influence their health in general throughout their lifetime. OBJECTIVE This study aimed to investigate demographic and academic profiles of college students with relevance to PHIM activities. Next, we sought to construct major PHIM-related activity components and perceptions among college students. Finally, we sought to discover major factors predicting core PHIM activities among college students we sampled. METHODS A Web survey was administered to collect responses about PHIM behaviors and perceptions among college students from the University of Kentucky from January through March 2017. A total of 1408 college students were included in the analysis. PHIM perceptions, demographics, and academic variations were used as independent variables to predict diverse PHIM activities using a principal component analysis (PCA) and hierarchical regression analyses (SPSS v.24, IBM Corp, Armonk, NY, USA). RESULTS Majority of the participants were female (956/1408, 67.90%), and the age distribution of this population included an adequate representation of college students of all ages. The most preferred health information resources were family (612/1408, 43.47%), health care professionals (366/1408, 26.00%), friends (27/1408, 1.91%), and the internet (157/1408, 11.15%). Organizational or curatorial activities such as Arranging, Labeling, Categorizing, and Discarding were rated low (average=3.21, average=3.02, average=2.52, and average=2.42, respectively). The PCA results suggested 3 components from perception factors labeled as follows: Assistance (alpha=.85), Awareness (alpha=.716), and Difficulty (alpha=.558). Overall, the Demographics and Academics variables were not significant in predicting dependent variables such as Labeling, Categorizing, Health Education Materials, and Discarding, whereas they were significant for other outcome variables such as Sharing, Collecting, Knowing, Insurance Information, Using, and Owning. CONCLUSIONS College years are a significant time for students to learn decision-making skills for maintaining information, a key aspect of health records, as well as for educators to provide appropriate educational and decision aids in the environment of learning as independent adults. Our study will contribute to better understand knowledge about specific skills and perceptions for college students’ practice of effective PHIM throughout their lives.

scholarly journals Data protection, data management, and data sharing: Stakeholder perspectives on the protection of personal health information in South Africa

PLoS ONE ◽  
2021 ◽  
Vol 16 (12) ◽  
pp. e0260341
Author(s):  
Ciara Staunton ◽  
Kathrina Tschigg ◽  
Gayle Sherman
Keyword(s):  
South Africa ◽  
Health Information ◽  
Data Protection ◽  
Personal Information ◽  
Data Use ◽  
Personal Health Information ◽  
Personal Health ◽  
Structured Interviews ◽  
Laboratory Service ◽  
The Impact

The Protection of Personal Information Act (POPIA) 2013 came into force in South Africa on 1 July 2020. It seeks to strengthen the processing of personal information, including health information. While POPIA is to be welcomed, there are concerns about the impact it will have on the processing of health information. To ensure that the National Health Laboratory Service [NHLS] is compliant with these new strict processing requirements and that compliance does not negatively impact upon its current screening, treatment, surveillance and research mandate, it was decided to consider the development of a NHLS POPIA Code of Conduct for Personal Health. As part of the process of developing such a Code and better understand the challenges faced in the processing of personal health information in South Africa, 19 semi-structured interviews with stakeholders were conducted between June and September 2020. Overall, respondents welcomed the introduction of POPIA. However, they felt that there are tensions between the strengthening of data protection and the use of personal information for individual patient care, treatment programmes, and research. Respondents reported a need to rethink the management of personal health information in South Africa and identified 5 issues needing to be addressed at a national and an institutional level: an understanding of the importance of personal information; an understanding of POPIA and data protection; improve data quality; improve transparency in data use; and improve accountability in data use. The application of POPIA to the processing of personal health information is challenging, complex, and likely costly. However, personal health information must be appropriately managed to ensure the privacy of the data subject is protected, but equally that it is used as a resource in the individual’s and wider public interest.

E-Health Knowledge Management by Australian University Students

2012 ◽  
Vol 1 (3) ◽  
pp. 43-58 ◽  
Author(s):  
Wayne Usher ◽  
Lay San Too
Keyword(s):  
Knowledge Management ◽  
Health Services ◽  
University Students ◽  
Health Information ◽  
Online Survey ◽  
Health Knowledge ◽  
Random Search ◽  
Personal Health Information ◽  
Personal Health ◽  
Health Concerns

This study is the first research project to investigate Australian university students’ e-health knowledge management trends. An online survey was developed (http://www.limesurvey.org) to collect both quantitative and qualitative empirical data. The survey was promoted via Facebook and 2 broadcast emails to students’ email accounts who were attending Griffith University, Gold Coast, Australia (Arts, Education & Law). Two hundred and seventy-five (275) responses were included for analysis. A profile which emerged identifies that the majority of participants used the Internet to search for personal health information, used a random search engine, accessed online health information every few months, would mostly spend more than 1-15 minutes in reading it, with the majority accessing health topics concerning, 1) specific diseases, 2) medical treatment, and 3) health services. Australian university health services could benefit from understandings pertaining to students’ e-health knowledge management usage trends to meet their personal health concerns. It seems plausible to claim that reliable websites, designed and managed by university health services, should have a predominant position among interventions which are specifically aimed to address students’ health concerns.

scholarly journals Willingness to share personal health information: impact of attitudes, trust and control

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Jari Juga ◽  
Jouni Juntunen ◽  
Timo Koivumäki
Keyword(s):  
Health Care ◽  
Information Sharing ◽  
Health Information ◽  
Structural Equation ◽  
Personal Information ◽  
Personal Health Information ◽  
Equation Modeling ◽  
Personal Health ◽  
Content Type ◽  
And Control

Purpose This study aims to explicate the behavioral factors that determine willingness to share personal health data for secondary uses. Design/methodology/approach A theoretical model is developed and tested with structural equation modeling using survey data from Finland. Findings It is shown that attitude toward information sharing is the strongest factor contributing to the willingness to share personal health information (PHI). Trust and control serve as mediating factors between the attitude and willingness to share PHI. Research limitations/implications The measures of the model need further refinement to cover the various aspects of the behavioral concepts. Practical implications The model provides useful insights into the factors that affect the willingness for information sharing in health care and in other areas where personal information is distributed. Social implications Sharing of PHI for secondary purposes can offer social benefits through improvements in health-care performance. Originality/value A broad-scale empirical data gives a unique view of attitudes toward sharing of PHI in one national setting.

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