94 Agreement Between Proxy- and Self-Report PROMIS Scores in Pediatric Burn Survivors

2021 ◽  
Vol 42 (Supplement_1) ◽  
pp. S65-S65
Author(s):  
Dagmar Amtmann ◽  
Alyssa M Bamer ◽  
Kara McMullen ◽  
Barclay T Stewart ◽  
Lewis E Kazis ◽  
...  
Keyword(s):  
Peer Relationships ◽  
Effect Size ◽  
Short Form ◽  
Intraclass Correlation ◽  
Self Report ◽  
Pain Interference ◽  
Proxy Report ◽  
Factors Associated ◽  
Small Effect Size ◽  
Burn Survivors

Abstract Introduction Reporting by proxy is necessary when patients are not able to report their own experience, such as young children or those too sick to respond. PROMIS pediatric proxy-report item banks are a set of generic measures that facilitate comparisons across populations and studies. Our objectives were to (1) examine agreement in pediatric burn survivors between child self- and caregiver proxy-report on multiple PROMIS domains and (2) examine factors associated with differences between self- and proxy-reports. Methods Data were collected from children 8–17 years with moderate to severe burn injury and their respective caregivers between 6 months and 15 years after injury. The PROMIS-25 and Anger v1.0 short form were completed by pediatric burn participants. Caregivers completed either custom (depression, pain interference) or standard (Physical Function (PF) 8a, Peer 7a, Anger 5a) PROMIS proxy short forms. Self- and proxy-report scores were compared using Wilcoxon sign rank test, Cohen’s effect size, and intraclass correlation coefficients (ICC(2,1)) and by agreement across severity of symptoms based on recommended cutoffs. Regression analyses examined child- (self-report score, age, gender, and ethnicity) and proxy-related (relationship to child) factors associated with score differences. Results A total of 274 child-caregiver pairs completed the PROMIS measures. Mean child age was 13.0 (SD:3) years. Caregivers reported significantly worse scores than the child on PF, pain, and anger (all p≤0.01). Cohen’s d ranged from 0.05 (depression) to 0.25 (PF), with all domains except PF in the small effect size range (< 0.2). Similarly, ICCs were all of moderate agreement and ranged from 0.51 (pain) to 0.69 (depression). The percentage of dyads in agreement by severity groups was high with only 5% (pain), 8% (PF, peer relationships), and 9% (depression, anger) of pairs discordant. Regression models indicated only higher self-report score was associated (all p< 0.05) with greater differences across all domains, though female gender was also associated with greater differences on depression only. Conclusions This study provides support for the use of pediatric proxy PROMIS depression, PF, peer relationships, pain interference, and anger scales in pediatric burn patients. Although agreement was moderate to good, proxy report should only be considered when self-report is not possible or practical. Caregivers typically report slightly worse severity of symptoms than children across all domains.

scholarly journals Cardiorespiratory fitness level influences the ventilatory threshold identification

1989 ◽  
Vol 32 ◽  
Author(s):  
Leticia Nascimento Santos Neves ◽  
◽  
Victor Hugo Gasparini Neto ◽  
Sabrina Pereira Alves ◽  
Richard Diego Leite ◽  
...  
Keyword(s):  
Cardiorespiratory Fitness ◽  
Effect Size ◽  
Ventilatory Threshold ◽  
Intraclass Correlation ◽  
Cardiopulmonary Exercise Test ◽  
Mean Difference ◽  
Fitness Level ◽  
Typical Error ◽  
Small Effect Size ◽  
Good Agreement

We aimed to analyze the influence of cardiorespiratory fitness (CRF) on ventilatory threshold identification (VT1) using the Ventilatory Equivalents (VEq) and V-slope methods. Twenty-two male runners (32.9 ± 9.4 years) were divided into two groups: G1 - group with less cardiorespiratory fitness (CRF: VO2max 40 to 51 ml·kg-1·min-1) and G2 - higher CRF (G1; VO2max £56,4 to 72 ml·kg-1·min-1) divided by the 50th percentile. An incremental cardiopulmonary exercise test was applied to identify VT1 using VEq and V-slope methods to compare heart rate (HR), oxygen consumption (VO2), and speed. Two-way ANOVA was used to compare HR, VO2, and speed (groups vs. methods). The Effect size was calculated using Cohen’s d. The intraclass correlation coefficient, variation coefficient, typical error, and Bland Altman were applied to verify reliability and agreement. No significant differences (p < 0.05) were found between methods for G1 (VO2, HR, and speed), and Bland Altman showed good agreement (mean difference: VO2 0.35ml·kg-1·min-1; HR 2.58bpm; speed 0.33km·h-1). However, G2 presented statistical differences between methods (VO2 and speed) and a more significant mean difference (VO2 2.68ml·kg-1·min-1; HR 6.87 bpm; speed 0.88km·h-1). The small effect size was found in G1 between methods (VO2: 0.06; speed: 0.20; HR: 0.14), and small and moderate effects were found in G2 between methods (VO2: 0.39; speed: 0.43; HR: 0.51). In conclusion, runners with lower CRF have a better agreement for the V-slope and VEq methods than those with a higher CRF.

Development of Proxy and Self-report Burn Model System Pediatric Itch Interference Scales: A National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System Study

2020 ◽  
Author(s):  
Dagmar Amtmann ◽  
Alyssa M Bamer ◽  
Kara McMullen ◽  
Karen Kowalske ◽  
Jeffrey C Schneider ◽  
...  
Keyword(s):  
Independent Living ◽  
Burn Injury ◽  
Reliability And Validity ◽  
Epidemiological Studies ◽  
Theory Model ◽  
Model System ◽  
Self Report ◽  
Proxy Report ◽  
Burn Survivors ◽  
The Mean

Abstract Pruritus is a commonly reported symptom after burn injury. Valid and reliable scales to measure itch in pediatric burn survivors are important for treatment and epidemiological studies. This study sought to develop psychometrically sound, publicly available self- and proxy-report measures of itch for use in pediatric burn survivors suitable for use in research and clinical practice. A panel of burn experts developed a definition of itch interference and a set of parallel self- and proxy-report candidate items that covered important activities affected by itch. Candidate items were evaluated in cognitive interviews with pediatric burn survivors (n = 4) and proxies (n = 2). Items were translated to Spanish and administered in both English and Spanish to a sample (N = 264) of pediatric burn survivors and/or their proxy enrolled in the Burn Model System (BMS) longitudinal database. The mean age of the pediatric sample was 13 years and average time since burn 5 years. The final itch interference measures each included 5 parallel items calibrated using a one-parameter graded response item response theory model, with a mean of 50 representing the average itch interference of the sample. Reliability of the scores is excellent between the mean and two standard deviations above. Initial analyses provide support for validity of the score. Concordance between the self- and proxy-report scores was moderate (ICC = 0.68). The results support the reliability and validity of the itch scale in children and youth with burn injury. The new BMS Pediatric Itch Interference scales are freely and publicly available at https://burndata.washington.edu/itch.

scholarly journals PROMIS Peer Relationships Short Form: How Well Does Self-Report Correlate With Data From Peers?

2018 ◽  
Vol 43 (9) ◽  
pp. 1059-1067 ◽  
Author(s):  
Katie A Devine ◽  
Victoria W Willard ◽  
Matthew C Hocking ◽  
Jerod L Stapleton ◽  
David Rotter ◽  
...  
Keyword(s):  
Peer Relationships ◽  
Short Form ◽  
Self Report

The effects of atomoxetine on emotional control in adults with ADHD: An integrated analysis of multicenter studies

2015 ◽  
Vol 30 (4) ◽  
pp. 511-520 ◽  
Author(s):  
P. Asherson ◽  
S. Stes ◽  
M. Nilsson Markhed ◽  
L. Berggren ◽  
P. Svanborg ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Effect Size ◽  
Adult Adhd ◽  
Self Report ◽  
Integrated Analysis ◽  
Emotional Control ◽  
Adhd Symptoms ◽  
Multicenter Studies ◽  
Small Effect Size

AbstractPurpose:To investigate the effects of atomoxetine on emotional control in adults with ADHD.Methods:We performed an integrated analysis using individual patient data pooled from three Eli Lilly-sponsored studies. An integrated analysis can be viewed as a meta-analysis of individual patient-level data, rather than study-level summary data.Results:Two populations were identified: a large sample of patients with pre-treatment baseline data (the “overall population”; n = 2846); and a subset of these patients with placebo-controlled efficacy data from baseline to 10 or 12 weeks after initiating treatment (the “placebo-controlled population”; n = 829). At baseline, in the overall population, ∼50% of ADHD patients had BRIEF-AS (Behavior Rating Inventory of Executive Function-Adult Version Self-Report) Emotional control subscores between 21 and 30, compared with ∼10% of normative subjects in the BRIEF-A manual. At endpoint, in the placebo-controlled population, atomoxetine led to a small (effect size 0.19) but significant (P = 0.013) treatment effect for emotional control. The effect size was 0.32 in patients with BRIEF-AS Emotional control scores > 20 at baseline. Improvements in emotional control correlated with improvements in the core ADHD symptoms and quality-of-life.Discussion:As deficient emotional control is associated with impaired social, educational and occupational functioning over and above that explained by core ADHD symptoms alone, improvements in emotional control may be clinically relevant.Conclusion:At baseline, adults with ADHD were more likely to have impaired emotional control than normative subjects. In the adult ADHD patients, atomoxetine treatment was associated with improvements in emotional control, as well as in core ADHD symptoms and quality-of-life.

scholarly journals Reproducibility of an extensive self-report questionnaire used in secondary coronary prevention

2017 ◽  
Vol 45 (3) ◽  
pp. 269-276 ◽  
Author(s):  
Kari Peersen ◽  
John Munkhaugen ◽  
Lars Gullestad ◽  
Toril Dammen ◽  
Torbjorn Moum ◽  
...  
Keyword(s):  
De Novo ◽  
Short Form ◽  
Intraclass Correlation ◽  
Epidemiological Studies ◽  
Sleep Apnoea ◽  
Self Report ◽  
Cross Sectional ◽  
Coronary Patients ◽  
Prevention Studies ◽  
Test Retest Reliability

Aims: Self-reported information from questionnaires is frequently used in clinical epidemiological studies, but few provide information on the reproducibility of instruments applied in secondary coronary prevention studies. This study aims to assess the test–retest reproducibility of the questionnaire applied in the cross-sectional NORwegian CORonary (NOR-COR) Prevention Study. Methods: In the NOR-COR study 1127 coronary heart disease (CHD) patients completed a self-report questionnaire consisting of 249 questions, of which there are both validated instruments and de novo questions. Test–retest reliability of the instrument was estimated after four weeks in 99 consecutive coronary patients. Intraclass Correlation Coefficient (ICC) and Kappa (κ) were calculated. Results: The mean interval between test and retest was 33 (±6.4) days. Reproducibility values for questions in the first part of the questionnaire did not differ from those in the latter. A good to very good reproducibility was found for lifestyle factors (smoking: κ = 1.0; exercise: ICC = 0.90), medical factors (drug adherence: ICC = 0.74; sleep apnoea: ICC = 0.87), and psychosocial factors (anxiety and depression: ICC = 0.95; quality of life 12-Item Short-Form Health Survey (SF12): ICC = 0.89), as well as for the majority of de-novo-created variables covering the patient’s perceptions, motivation, needs, and preferences. Conclusions: The present questionnaire demonstrates a highly acceptable reproducibility for all key items and instruments. It thus emerges as a valuable tool for evaluating patient factors associated with coronary risk factor control in CHD patients.

69 Defining Numerical Cutoff Values for Mild, Moderate, and Severe Pain in Adult Burn Survivors

2021 ◽  
Vol 42 (Supplement_1) ◽  
pp. S48-S49
Author(s):  
Gretchen J Carrougher ◽  
Alyssa M Bamer ◽  
Claudia Baker ◽  
Stephanie A Mason ◽  
Barclay T Stewart ◽  
...  
Keyword(s):  
Pain Intensity ◽  
Severe Pain ◽  
Burn Injury ◽  
Short Form ◽  
Information Criterion ◽  
Pain Interference ◽  
Cut Points ◽  
Burn Survivors ◽  
Average Pain ◽  
F Statistics

Abstract Introduction Pain is a common and often debilitating sequelae of a significant burn injury. Clinicians and researchers need clinically valid, reliable pain measures to guide treatment decisions and to provide evidence for study protocol development. Pain rating scores that represent mild, moderate, and severe pain in the burn survivor population have not been established. The aim of this study was to determine the numerical pain intensity rating scores that best represent mild, moderate, and severe pain in adult burn survivors. Methods Average pain intensity visual analog scale (VAS; 0–10) and customized PROMIS pain interference short form was administered to adult burn survivors (age ≥18) treated at a regional burn center at hospital discharge and at 6, 12, and 24-months postburn. To identify the optimal VAS scores for mild, moderate, and severe pain we computed F values and Bayesian Information Criterion (BIC) statistics associated with multiple ANOVA comparisons for mean pain interference scores by various VAS pain intensity cut points. Six possible cut points (CP) were compared: CP 3,6; CP 3,7; CP 4,6; CP 4,7; CP 2,5; and CP 3,5. For example, CP 3,6 refers to pain categorized as mild (0–3), moderate (4–6), and severe (7–10). Optimal cutoffs were those with the highest ANOVA F statistics. Models with similar F statistics were compared using changes in BIC. Results 178 participants (85% white, 65% male, mean age of 46 years) with pain intensity and interference scores at one or more timepoints comprised the study sample. The optimal classification for mild, moderate, and severe pain at baseline and 12-months was CP 2,5. Although CP 3,6 had the highest F value at 6-months, there was not strong evidence to support CP 3,6 over CP 2,5 (BIC difference: 2.9); similarly, CP 3,7 had the highest value at 24-months, but the BIC difference over CP 2,5 was minimal (2.2). Conclusions We recommend that visual analog pain intensity scores for adult burn survivors be categorized as mild (0–2), moderate (3–5), and severe (6–10). These findings advance our understanding regarding the meaning of pain intensity ratings following a burn injury and provide an objective definition for clinical management, quality improvement, and pain research.

Effect of Private Self-Awareness on Negative Affect and Self-Referent Attribution: A Quantitative Review

2000 ◽  
Vol 4 (2) ◽  
pp. 132-142 ◽  
Author(s):  
Michele C. Fejfar ◽  
Rick H. Hoyle
Keyword(s):  
Negative Affect ◽  
Effect Size ◽  
Meta Analysis ◽  
The Self ◽  
Self Report ◽  
Self Awareness ◽  
Quantitative Review ◽  
Attributions Of Responsibility ◽  
Small Effect Size

A meta-analysis was conducted to examine the effect of private self-awareness on negative affect and attributions of responsibility to the self. Results of studies manipulating self-awareness using stimuli such as a mirror and studies employing the private subscale of the Self-Consciousness Scale (Fenigstein, Scheier, & Buss, 1975) as a measure of self-consciousness were summarized and compared. A small effect size was found for the effect of private self-awareness for both negative affect and self-referent attribution; the effect was equivalent across mirror and self-report operationalizations of private self-awareness. Moderator analyses revealed that these effects were stronger for women, particularly for studies that used the self-report operationalization and those that investigated self-referent attribution.

Identification and Utility of a Short Form of the Pediatric Symptom Checklist-Youth Self-Report (PSC-17-Y)

2020 ◽  
Vol 36 (1) ◽  
pp. 56-64
Author(s):  
Paul Bergmann ◽  
Cara Lucke ◽  
Theresa Nguyen ◽  
Michael Jellinek ◽  
John Michael Murphy
Keyword(s):  
Psychosocial Functioning ◽  
Short Form ◽  
Parent Report ◽  
Self Report ◽  
Symptom Checklist ◽  
Factor Analyses ◽  
Youth Self Report ◽  
Confirmatory Factor Analyses ◽  
Pediatric Symptom Checklist ◽  
Exploratory Factor Analyses

Abstract. The Pediatric Symptom Checklist-Youth self-report (PSC-Y) is a 35-item measure of adolescent psychosocial functioning that uses the same items as the original parent report version of the PSC. Since a briefer (17-item) version of the parent PSC has been validated, this paper explored whether a subset of items could be used to create a brief form of the PSC-Y. Data were collected on more than 19,000 youth who completed the PSC-Y online as a self-screen offered by Mental Health America. Exploratory factor analyses (EFAs) were first conducted to identify and evaluate candidate solutions and their factor structures. Confirmatory factor analyses (CFAs) were then conducted to determine how well the data fit the candidate models. Tests of measurement invariance across gender were conducted on the selected solution. The EFAs and CFAs suggested that a three-factor short form with 17 items is a viable and most parsimonious solution and met criteria for scalar invariance across gender. Since the 17 items used on the parent PSC short form were close to the best fit found for any subsets of items on the PSC-Y, the same items used on the parent PSC-17 are recommended for the PSC-Y short form.

Pediatric Symptom Checklist-Youth Self-Report--Short Form

2018 ◽  
Author(s):  
Paul Bergmann ◽  
Cara Lucke ◽  
Theresa Nguyen ◽  
Michael Jellinek ◽  
John Michael Murphy
Keyword(s):  
Short Form ◽  
Self Report ◽  
Symptom Checklist ◽  
Youth Self Report ◽  
Pediatric Symptom Checklist

FACTORS ASSOCIATED WITH SCHOOL REFUSAL BEHAVIOUR IN PRIMARY SCHOOL STUDENTS

2019 ◽  
pp. 1-13
Keyword(s):  
Primary School ◽  
Primary Schools ◽  
Pearson Correlation ◽  
School Refusal ◽  
Self Report ◽  
Primary School Students ◽  
School Students ◽  
School Factors ◽  
School Refusal Behavior ◽  
Factors Associated

The aim of this study was to identify the factors associated with school refusal behavior in primary school students. Student’s self-report and teacher’s measures were implemented; and students were recruited from 20 primary schools in six districts in Selangor, Malaysia. The survey was conducted at the end of school term in 2016, with a total of 915 students from Year 4 and Year 5 participating. The sample of students had been absent from school for more than 15% of school days in the current year. Pearson correlation shows a significant relationship between academic achievement and school satisfaction toward school refusal behavior. The findings of this study suggest that academic difficulties and dissatisfaction towards school environment could be the important risk factors for school refusal behavior. The present study underscores the importance of early detection and intervention as measures to reduce school refusal. Finally, the findings imply that the role of school factors should always be taken into account in connection with school refusal behaviour.

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