Terminally Ill Patients and the “Right to Try” Experimental Drugs

2016 ◽  
Author(s):  
Rebecca Dresser
Keyword(s):  
Negative Impact ◽  
Terminally Ill ◽  
Terminally Ill Patients ◽  
Experimental Drugs ◽  
The Us ◽  
The Government ◽  
Government Rules ◽  
The Right ◽  
Access Policies ◽  
Gain Access

This chapter addresses access to unapproved drugs. Some terminally ill patients enroll in research as a way to gain access to experimental drugs. Other patients want to try the drugs without enrolling in research. The US Food and Drug Administration permits patients to do so under certain circumstances, but critics say the government rules are too restrictive. “Right to try” advocates campaign for laws permitting more liberal access, telling heart-wrenching stories about patients desperate to obtain experimental drugs. But the picture they present is one-sided. It disregards the negative impact that more liberal access policies may have on the drug trials that benefit society at large, and it ignores stories conveying the harm that can come from access to experimental drugs. These factors belong in the debate too.

ANALISIS YURIDIS NORMATIF PUTUSAN PERKARA MAHKAMAH AGUNG KONSTITUSI RI No. 004/PUU-II/2004

2013 ◽  
Vol 7 (1) ◽  
pp. 7
Author(s):  
Doni Budiono
Keyword(s):  
The Body ◽  
Supreme Courts ◽  
Military Justice ◽  
State Administration ◽  
The Supreme Court ◽  
Directorate General ◽  
The Government ◽  
Government Rules ◽  
The Right ◽  
Tax Court

The  authority  of justice in Indonesia  is executed by  the Supreme Courts and  the  justice  boards/body under the Supreme Courts, including  the general  justice, religious affairs justice, military justice,  state administration  justice,  and  the Constitution Court. According to  certainty in  the Act of  Tax Court, Article1, clause  (5),  tax  dispute   refers to the legal dispute arising in the  taxation  affairs between the  tax payer or the  body  responsible for the  tax with   the government   executives  ( Directorate General of Tax) as the consequence of   the issue of  the decree for the  appeal  to the Tax  Court in accordance with the  tax Act, including the  charge  against the  execution of collection   in accordance with the  Act of Tax Collection by force. The  formation of Tax Court is  designed by  the Executives, in this case, the  Department of Finance, specifically  the Directorate   General  of Tax  which has the right to issue  law  more technical about  tax accord to Article 14,  letter A,  President Decree  no. 44  year 1974,  concerning the  basic  organization of the Department.  Based on  it,  it  is clear that  in addition to execute the government  rules and policy,  this body  has to execute judicial   rules and policy. This is against the  principles of  Judicative  Power/Authority in Indonesia,  which   clearly states that this body  should be under the Supreme Court.   Therefore. It is suggested that   the Act  No UU no.14 Year 2012 concerning  Tax Court   be revised  in accordance with the system of  Power Division  of Justice  as  stated in 45 Constitutions.

scholarly journals Facing Death: Attitudes toward Physician-Assisted End of Life among Physicians Working at a Tertiary-Care-Hospital in Israel

2021 ◽  
Vol 18 (12) ◽  
pp. 6396
Author(s):  
Keren Dopelt ◽  
Dganit Cohen ◽  
Einat Amar-Krispel ◽  
Nadav Davidovitch ◽  
Paul Barach
Keyword(s):  
End Of Life ◽  
Tertiary Care Hospital ◽  
Human Life ◽  
Tertiary Care ◽  
Terminally Ill ◽  
Background Information ◽  
Care Hospital ◽  
Medical Assistance In Dying ◽  
Terminally Ill Patients ◽  
The Right

The demand for medical assistance in dying remains high and controversial with a large knowledge gap to support optimal patient care. The study aimed to explore physicians’ attitudes regarding euthanasia and examine the factors that related to these attitudes. We surveyed 135 physicians working at a tertiary-care hospital in Israel. The questionnaire was comprised of demographic and background information, DNR procedure information, encounters with terminally ill patients, familiarity with the law regarding end-of-life questions, and Attitudes toward Euthanasia. About 61% agreed that a person has the right to decide whether to expedite their own death, 54% agreed that euthanasia should be allowed, while 29% thought that physicians should preserve a patients’ life even when they expressed the wish to die. A negative statistically significant relationship was found between the level of religiosity and attitudes toward euthanasia. The physicians’ attitudes towards euthanasia are quite positive when compared to other countries. The data shows a conflict of values: the sacredness of human life versus the desire to alleviate patients’ suffering. The Coronavirus-19 outbreak reinforces the importance of supporting physicians’ efforts to provide ethical and empathic communication for terminally ill patients. Future studies should aim to improve our understanding and treatment of the specific types of suffering that lead to end-of-life requests.

scholarly journals Government Policy in Overcoming Religious Extremism in Indonesia: A Multidisciplinary Review between Public Administration and Psychology

2021 ◽  
Vol 8 (4) ◽  
pp. 423-433
Author(s):  
Dana R. Buana ◽  
Masayu N. Juwita
Keyword(s):  
Public Administration ◽  
Ethnic Groups ◽  
Government Policy ◽  
Research Method ◽  
Negative Impact ◽  
Positive Impact ◽  
Literature Study ◽  
Religious Extremism ◽  
The Government ◽  
The Right

The development of religious extremism in Indonesia continues to increase every year so that serious attention is needed by the government to deal with religious extremism in Indonesia. Indonesia is an archipelagic country where there are various ethnic groups and religions that coexist. However, the development of religious extremism sometimes becomes a serious problem for the Indonesian people because it can have a negative impact and damage the unity between nations and religions. This research uses literature study. This research method is carried out by reviewing various literatures, both books, newspapers, survey reports, academic journals related to religious extremism in Indonesia. The results show that not all religious extremism has an impact on the emergence of terrorism, but the government still must make the right policies in handling religious extremism that can cause division and affect peoples welfare. The policies that have been made by the government are considered appropriate and based on the laws that have been set by the government so that they can have a positive impact in maintaining the unity and integrity of the Indonesian nation.

scholarly journals The ‘French exception’: the right to continuous deep sedation at the end of life

2017 ◽  
Vol 44 (3) ◽  
pp. 204-205 ◽  
Author(s):  
Ruth Horn
Keyword(s):  
End Of Life ◽  
Social Values ◽  
Deep Sedation ◽  
Terminally Ill ◽  
Short Report ◽  
Terminally Ill Patients ◽  
Continuous Deep Sedation ◽  
The World ◽  
The Law ◽  
The Right

In 2016, a law came into force in France granting terminally ill patients the right to continuous deep sedation (CDS) until death. This right was proposed as an alternative to euthanasia and presented as the ‘French response’ to problems at the end of life. The law draws a distinction between CDS and euthanasia and other forms of sympton control at the end of life. France is the first country in the world to legislate on CDS . This short report describes the particular context and underlying social values that led to this piece of legislation, and explores its meaning in the wider French context.

Access to Experimental Drugs for Terminally Ill Patients

JAMA ◽  
2008 ◽  
Vol 300 (23) ◽  
pp. 2793 ◽  
Author(s):  
Benjamin P. Falit
Keyword(s):  
Terminally Ill ◽  
Terminally Ill Patients ◽  
Experimental Drugs

scholarly journals Creating Suspicion and Vigilance

Intersections ◽  
2017 ◽  
Vol 3 (3) ◽  
Author(s):  
Ákos Kopper ◽  
Pál Susánszky ◽  
Gergely Tóth ◽  
Márton Gerő
Keyword(s):  
Eastern Europe ◽  
Political System ◽  
Central And Eastern Europe ◽  
Right Wing ◽  
Liberal Democracies ◽  
Political Actors ◽  
Significant Case ◽  
The Government ◽  
Government Rules ◽  
The Right

In recent years, many theoretical and empirical analyses about the changing regimes of Central and Eastern Europe have been written, pointing out the authoritarian tendencies and radicalization in the region. Hungary is a significant case in the changing landscape of Central and Eastern Europe. The right-wing government rules the country with incontestable force, despising and disrespecting the norms of liberal democracies. Although the general impression is that the government has such a strong grip on power that resisting it is futile, in fact, it only enjoys only the support of 30 per cent of Hungarian citizens. Thus, it would be reasonable to expect the opposition to be able to effectively mobilize against the regime. In reality, no political opponent seems to stand a chance of defeating it. In order to explain why this is so, we focus on the way Orbán constantly creates images of ‘the enemy’ that keep alive an atmosphere of vigilance that blocks the efforts of critical actors to efficiently mobilize citizens. Since the political system in Hungary is highly centralized, the prime-minister’s speeches epitomize the logic and ideology of the regime. Our aim is to understand the mechanism through which the dominant political actors frame the enemy in a system of images, thereby creating an environment where critical actors are stripped of the resources needed to mobilize against them.

scholarly journals MENALAR URGENSI PENGHAPUSAN UJIAN NASIONAL DEMI KEADILAN SISWA, GURU DAN SEKOLAH PASCA PUTUSAN MAHKAMAH AGUNG NOMOR: 2596 K/PDT/2008

2020 ◽  
Vol 1 (2) ◽  
pp. 1-20
Author(s):  
Aufi Imaduddin
Keyword(s):  
Supreme Court ◽  
Negative Impact ◽  
National Level ◽  
Educational Thought ◽  
National Examination ◽  
Existing Problems ◽  
The Supreme Court ◽  
The Government ◽  
The Right ◽  
Laws And Regulations

The national exam is a form of national level learning evaluation that has been set by the government to determine student learning outcomes. However, in the implementation of the national exam has a negative impact on students, teachers and schools. So lately there has been a renewed discourse about the elimination of the national examination, it began with the policy of the Indonesian Minister of Education and Culture to abolish the national examination in 2021. Especially if we examine further that legal efforts to stop the implementation of the national examination have existed since 2006 and the peak in 2009 was the decision of the Supreme Court number: 2596 K / PDT / 2008 which in essence required the government to stop the implementation of the national examination before resolving various existing problems. Therefore, the writer is interested in asking logically to think about the urgency of abolishing the national exam after the decision of the Supreme Court. In this paper, the method used by the author is a qualitative method based on social facts that occur based on juridical reasons based on the laws and regulations related to research. The results of this study found that the implementation of the national exam has claimed justice for students in obtaining their human rights in obtaining education that has been mentioned in the 1945 Constitution and is not in accordance with educational thought according to Ki Hajar Dewantara, as well as causing various depressive pressures which have an impact on their minds stressed and suicidal students. The implementation of national exams has also revoked justice for teachers, where teachers in their teaching are supposed to educate students well and develop their students' thinking instincts, with the national examination the teacher only drills students to memorize and do exercises that lead to the national exam. Recalling also that the implementation of national examinations in a juridical manner in the decision of the Supreme Court has violated various laws and regulations regarding education in Indonesia. Therefore, the elimination of the national exam will give back the right to justice for students, teachers and schools according to their respective proportions.

scholarly journals Hostage Situation And Its Resolution In Ethiopia

2020 ◽  
Vol 2 (1) ◽  
pp. 07-13
Author(s):  
Negesse Asnake Ayalew
Keyword(s):  
Mentally Ill ◽  
Negative Impact ◽  
Analysis Data ◽  
Government Officials ◽  
Hostage Negotiation ◽  
Policy And Strategy ◽  
The Government ◽  
The Right ◽  
Document Review ◽  
Media Review

Purpose of the study: One of the modus operandi of criminals such as terrorist, emotional, mentally ill person to achieve their need is held person hostage, especially government officials, investors, and tourists. The police also used to force to secure peace and security, but now the police use the hostage negotiation team to save the life of hostage-taker and hostage. These hostage-takers take innocent hostage persons as means of negotiation, which may terrorize everybody, such as an investor, tourist, and vulnerable group, which have a negative impact on the development and peace of the country. Additionally, the right to life is the mother of other human rights. The purpose of this paper is to evaluate the practice of hostage situation and its resolution Methodology:  Data were collected through document review and interviews of police and victim, who were selected purposively since they have direct relation. This is desktop research and descriptive design. The data were collected through document review and media review. The collected data were analyzed thematically. Finding: The result of the analysis data shows that there is a hostage situation in Ethiopia, and the response of the police is the use of force than the negotiation team. Application: The police should establish a hostage negotiation department with professional negotiators. The governments also should enact negotiation policy and strategy in Ethiopia. Novelty/Originality: There is a hostage situation, and its resolution lacks clear guidelines in Ethiopia, and nobody studied it. Therefore, this study may use as reference material for students'; the government may use it as input for policy and lawmakers.

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