American Cancer Society’s Delivery of Support to Caregivers in the Community

2019 ◽  
pp. 272-287
Author(s):  
Rachel S. Cannady ◽  
Katherine Sharpe

The American Cancer Society (ACS) is committed to addressing the needs of cancer caregivers. Many caregivers are unexpectedly thrust into their role as a caregiver with little or no preparation. A wide range of support services and caregiver resources is needed to help cancer caregivers. Consistent with the ACS’s mission and goals to measurably improve the quality of life of all cancer survivors and their caregivers from the time of diagnosis through the balance of life, the ACS has developed a program of work to meet the specific needs of family members and friends providing care for those diagnosed. This chapter describes the ACS Caregiver Support Program, including specific initiatives aimed at optimally supporting cancer caregivers across the care trajectory.

Nutrients ◽  
2019 ◽  
Vol 11 (12) ◽  
pp. 2924 ◽  
Author(s):  
Dahye Koh ◽  
Sihan Song ◽  
Sang-Eun Moon ◽  
So-Youn Jung ◽  
Eun Sook Lee ◽  
...  

The development and validation of guidelines for breast cancer survivors are of importance due to the increased survival rate for breast cancer. In this cross-sectional study, we aimed to examine the association between adherence to the American Cancer Society (ACS) guidelines for cancer survivors and health-related quality of life (HRQoL). A total of 618 breast cancer survivors aged 30 to 81 years who had been diagnosed with stage I to III primary breast cancer and had surgery at least a year before enrollment were included. The participants completed the 36 Item Short-Form Health Survey (SF-36) to evaluate HRQoL, and adherence scores were calculated based on the Nutrition and Physical Activity Guidelines for Cancer Survivors, which were released by the ACS. Increasing adherence scores were associated with increasing scores on the physical component summary (PCS) and the physical functioning (PF), bodily pain (BP), and vitality (VT) domains (p for trend <0.001 for PCS and PF, 0.01 for BP, and 0.02 for VT); these scores were mainly driven by the associations among survivors with stage II–III cancer. Further prospective studies are needed to evaluate whether adherence to these guidelines improves HRQoL scores among breast cancer survivors.


2018 ◽  
Vol 36 (34_suppl) ◽  
pp. 17-17 ◽  
Author(s):  
Martha Raymond ◽  
Margaret-Ann Simonetta

17 Background: 2018 data from the National Cancer Institute’s Surveillance, Epidemiology & End Results (SEER) Program estimates there are 15.5 million cancer survivors in the U.S. Throughout the care continuum, cancer caregivers provide invaluable support which greatly impacts and improves patient quality of life. In the palliative care setting caregiver support is vitally important, but many caregivers struggle to take care of their own needs and are not aware of supportive services. Our study explores the unmet needs of cancer caregivers in the palliative care setting. Methods: Over a two-year time period (2015-2017), our professional facilitator met with cancer caregivers in 32 states hosting nationwide focus groups. Primary goals were reaching caregivers in rural, urban, medically underserved, and community oncology settings to gain perspective from diverse populations. Focus groups were held in person and online via facetime conferencing. Results: 778 caregivers (42% male, 58% female) participated. 92% of caregivers did not feel comfortable defining palliative care nor did they realize the various supportive elements palliative care provides. 76% were extremely anxious during care transitions; 71% feel overwhelmed with daily caregiving tasks; 69% want to help make end of life decisions including advance directives in partnership with their loved one, but did not feel equipped to make tough decisions; 64% report lack of patient/caregiver centered communication with their healthcare team, including guidance on adverse effects and training for medical hands-on tasks. Conclusions: Caregivers in the palliative care setting need additional supportive services, effective interventions, and educational programs to meet their unmet needs. With additional support and awareness, enhanced quality of life for both caregiver and patient is possible. Our conversations with caregivers will continue as we increase palliative care awareness, collaborate with partners, develop meaningful programs, and expand our outreach to help meet the needs of caregivers in the palliative care setting.


1991 ◽  
Vol 7 (2) ◽  
pp. 209-219 ◽  
Author(s):  
Michael F. Drummond ◽  
E. Ann Mohide ◽  
Michelle Tew ◽  
David L. Streiner ◽  
Dorothy M. Pringle ◽  
...  

AbstractAn economic evaluation was undertaken concurrently with a randomized trial comparing a Caregiver Support Program (CSP) with existing conventional community nursing care for those caring for elderly relatives at home. The differences in resource consumption were compared with changes in caregiver quality of life, as measured by the Caregiver Quality of Life Instrument (CQLI). A 20% difference from baseline in the CQLI favored the experimental (CSP) group, although this did not reach conventional levels of statistical significance. A comparison of improvement in quality of life with costs implies an incremental cost per quality-adjusted life year gained of Canadian $20,000 for the CSP, which compares favorably with other health care interventions. Further, larger studies are required to confirm this result.


Author(s):  
Francine Lima Gonçalves

Na região de cabeça e pescoço (CCP), o câncer de boca é o de maior incidência, com 170.900 novos casos no mundo, segundo dados de 2008 (American Cancer Society, 2011). Nos Estados Unidos, em 2013, foram registrados 41.380 novos casos de câncer de boca e faringe, os sítios primários em câncer de cabeça e pescoço (CCP) mais frequentemente acometidos no país (American Cancer Society, 2013).No Brasil, segundo as estimativas do INCA (Instituto Nacional do Câncer) para o ano de 2014, são esperados 576.000 novos casos de câncer. Seguindo-se o panorama mundial, na região de CP destacam-se os de cavidade oral, com 11.280 casos novos, ocupando o quinto lugar geral na população masculina. Em mulheres, são estimados 4.010 novos casos de cavidade oral, ocupando o 12º lugar (Brasil, 2013).Nas regiões Nordeste e Sudeste do Brasil, o câncer de boca apresenta uma incidência ainda maior na população masculina, ocupando o quarto lugar geral, com 7,16 casos novos por 100.000 habitantes (BRASIL, 2013). Durante os últimos anos, a avaliação da qualidade de vida foi reconhecida como um importante medidor de sobrevida em medicina, sobretudo em oncologia. Tais avaliações tem sido feitas com certa regularidade nos tumores malignos da região de cabeça e pescoço, uma vez que nessa localização a ocorrência de neoplasias malignas pode levar ao comprometimento de funções vitais (Abendstein et al, 2005; Vartanian et al, 2006). Nesse sentido, em 1993, o World Health Organization – Quality of Life Group (WHOQOL), definiu qualidade de vida como: percepção individual da posição do indivíduo na vida, no contexto de sua cultura e sistema de valores nos quais ele está inserido e em relação aos seus objetivos, expectativas, padrões e preocupações. O componente emocional tem um papel preponderante na percepção da dor. A avaliação da qualidade de vida pode ser feita por meio de questionários, havendo diversos deles validados na literatura. Dentre eles, um dos mais utilizados é o questionário da University of Washington – Quality of Life Questionnaire (UW-QOL), traduzido como Questionário de Avaliação de Qualidade de Vida da Universidade de Washington (UW-QOL), versão atual (versão 4), por Vartanian et al, 2007.


2017 ◽  
Author(s):  
K Thöne ◽  
N Obi ◽  
A Jung ◽  
M Schmidt ◽  
J Chang-Claude ◽  
...  

Sign in / Sign up

Export Citation Format

Share Document