The Whites

2018 ◽  
Author(s):  
David Wendell Moller
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
End Of Life ◽  
Life Experience ◽  
The Body ◽  
Illness Experience ◽  
Spiritual Needs ◽  
Human Spirit ◽  
Healing Power

The story of Annie declares the dignity and grace of the human spirit in the midst of extensive suffering. It shows how social support heals throughout the illness experience. Her narrative is an example of the healing power of spirituality throughout dying. From her end-of-life experience, we learn that dying is far less about matters of the body than it is about matters of the person. We also discern that when a person is well attended throughout the dying process—her emotional, social, and spiritual needs being fulfilled—her suffering is eased and she is deeply comforted. Exploration of the dimensions of quality of life (QOL) help us to plan care which addresses all dimensions of QOL.

Ettore’s song: The hero who had the courage to fight Achilles

2020 ◽  
pp. 135910532096814
Author(s):  
Filippo Giordano ◽  
Chiara Rutigliano ◽  
Paola Muggeo ◽  
Tommaso Fusaro ◽  
Nicola Santoro
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
Psychological Needs ◽  
Spiritual Needs ◽  
Complementary Approach ◽  
The Relationship ◽  
Multi Disciplinary Team

End-of-life accompaniment requires even greater care of the patient and their family by the multi-disciplinary team, which requires a clear, wellorganized interdisciplinary and interprofessional approach. Musictherapy (MT) is often use as a complementary approach to improve a person’s quality of life by helping to relieve symptoms, addressing psychological needs, offering support and comfort, facilitating communication, and meeting spiritual needs. Through songwriting, Ettore, a teenager was able to make choices and act on his own will. Songwriting represented a channel for effective and powerful communication and expression. The song became the means by which the relationship with the team was maintained and deepened; it became something tangible, a product with its own consistency, a further bond that unites Ettore to his family to this day.

scholarly journals The Impact of Symptoms, Coping Capacity, and Social Support on Quality of Life Experience Over Time in Patients with Lung Cancer

2007 ◽  
Vol 34 (4) ◽  
pp. 370-379 ◽  
Author(s):  
Ingela Henoch ◽  
Bengt Bergman ◽  
Marianne Gustafsson ◽  
Fannie Gaston-Johansson ◽  
Ella Danielson
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Social Support ◽  
Life Experience ◽  
Coping Capacity ◽  
The Impact ◽  
Over Time

Spirituality and end-of-life experiences: Meeting the spiritual needs of the dying

2021 ◽  
pp. 413-434
Author(s):  
Peter Fenwick ◽  
Bruno Paz Mosqueiro
Keyword(s):  
End Of Life ◽  
Spiritual Care ◽  
Life Experience ◽  
Scientific Evidence ◽  
Spiritual Needs ◽  
Spiritual Experiences ◽  
Life Care ◽  
Practical Guidance ◽  
To Receive

Most patients in palliative care report that it is very important to receive health care that is respectful, compassionate, and culturally sensitive to their spiritual needs. Providing spiritual care to people approaching the end of life and understanding that their mental and spiritual experiences constitutes a key aspect to providing a more effective treatment and quality of life at this moment. End-of-life experience (ELE) provide comfort, and represents a source of spirituality and meaning to the dying. Spiritual experiences also give hope, meaning, and strength to family members and healthcare professionals dealing with terminal conditions and suffering. This chapter reviews the scientific evidence about ELEs and discusses the potential clinical implications of these experiences to healthcare practice. Different patients’ vignettes are presented to illustrate and provide practical guidance to understanding and addressing ELE and spiritual care in end-of-life care settings.

Coping, psychopathology, and quality of life in cancer patients under palliative care

2014 ◽  
Vol 13 (3) ◽  
pp. 517-525 ◽  
Author(s):  
Daniela B. Sorato ◽  
Flávia L. Osório
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Palliative Care ◽  
Problem Solving ◽  
Coping Strategies ◽  
End Of Life ◽  
Cancer Patients ◽  
Palliative Treatment ◽  
Anxiety And Depression

AbstractObjective:To assess hopelessness, anxiety, depression, and quality of life in cancer patients undergoing palliative treatment by comparing their scores at the onset of treatment and one month later and by assessing possible correlations with coping strategies.Method:Participants included 85 patients of both genders (56.5% female) diagnosed with advanced cancer who did not have curative therapeutic options who were assessed with self-applied instruments (the Beck Hopelessness Scale, the European Organization for the Research and Treatment of Cancer Quality of Life Core Questionnaire–Cancer 30, the Hospital Anxiety and Depression Scale, and the Coping Strategies Inventory by Folkman and Lazarus) at two timepoints: first before their appointment with doctors and other professionals in their first visit to the palliative care outpatient clinic (PCOC) and then as soon as patients arrived at the PCOC for their first medical follow-up visit (approximately 30 days after the first appointment).Results:The scores for hopelessness, anxiety, and depression remained stable (p = 0.24). The results were the same for the quality-of-life (QoL) variables, except for the fatigue and pain scores, which decreased (p = 0.01), and social impairment, which increased (p = 0.03). Analysis of the correlations between the coping mechanisms used after the onset of palliative treatment showed that confronting coping, seeking social support, and positive reappraisal were inversely correlated with hopelessness. Seeking social support, planful problem solving, and positive reappraisal were inversely correlated with indicators of depression. In contrast, use of the escape–avoidance strategy and reduced use of the planful problem-solving strategy were associated with increased anxiety.Significance of results:The employment of problem-focused coping strategies exerted a positive impact on the end-of-life process and, above all, protected patients from the negative experiences associated with psychiatric symptoms, thus enabling them to look for alternative solutions for experiencing the end-of-life process in a more well-adjusted manner.

scholarly journals End-of-life experience and its toll on quality of life and spirituality: a cross-sectional study

2021 ◽  
Vol 27 (5) ◽  
pp. 263-273 ◽  
Author(s):  
Serlandia da Silva Sousa ◽  
Andréa Dias Reis ◽  
José Osvaldo Barbosa ◽  
João Batista Santos
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
Self Efficacy ◽  
Life Experience ◽  
Uterine Cancer ◽  
Length Of Hospital Stay ◽  
Spiritual Coping ◽  
Body Parts ◽  
Cross Sectional

Background: Breast and cervical/uterine cancer affect body parts that have symbolic meaning for women. Women with this diagnosis at the end-of-life often experience anxiety and depression that severely impacts their quality of life (QoL). Aims: This study aims to determine how the end-of-life experience impacts on the QoL and spirituality of women with advanced cancer. Methods: End-of-life patients and their caregivers were evaluated regarding religious and spiritual coping, depression and self-efficacy. Caregivers were interviewed regarding patients' QoL at the end-of-life. A spearman correlation test was used to evaluate correlation between variables. Findings: Several dimensions of positive religious and spiritual coping stood out for patients at the end of life. However, patients often experienced a negative revaluation of God. Patients reported experiencing low self-efficacy, depression and high levels of stress. The length of hospital stay, time spent in intensive care units and depression also correlated to the amount of worry and stress a patient experienced. Conclusions: The end-of-life patients had a poor quality of life, and experienced depression, but also used spiritual beliefs and religion as a means of coping with their end-of-life experience.

Spirituality, Quality of Life, and End of Life Among Indigenous Peoples: A Scoping Review

2020 ◽  
pp. 104365962095252
Author(s):  
Jodi Terpstra ◽  
Rebecca Lehto ◽  
Gwen Wyatt
Keyword(s):  
Quality Of Life ◽  
Native Americans ◽  
End Of Life ◽  
Indigenous People ◽  
Indigenous Peoples ◽  
Scoping Review ◽  
Holistic Health ◽  
Spiritual Needs ◽  
Essential Components

Introduction: While spirituality and quality of life (QOL) are essential components of end-of-life (EOL) care, limited studies have examined these constructs for indigenous peoples. Therefore, the purpose of this article was to examine the state of the science regarding spirituality and QOL at EOL for indigenous people, particularly Native Americans. Method: The Arksey and O’Malley (2005) framework guided this scoping review, which examined 30 articles that included qualitative and quantitative studies, commentary papers, and reviews. Results: The findings identified five spiritual dimensions: the life and death journey, a belief in spirits, tribally grounded traditions, dominant cultural religion influences, and a family focus. QOL indicators included survivorship, optimization of holistic health, communication, and access to appropriate resources. Death rituals were important EOL elements. Discussion: Given the importance of spirituality to QOL for indigenous people, clinicians must be knowledgeable and responsive to indigenous spiritual needs to promote QOL at EOL.

Psychological well-being in palliative care: A systematic review

2021 ◽  
pp. 003022282110192
Author(s):  
Tamara Redondo Elvira ◽  
Celia Ibáñez del Prado ◽  
Juan Antonio Cruzado
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Palliative Care ◽  
End Of Life ◽  
Well Being ◽  
Psychological Well Being ◽  
Predictive Variables ◽  
Spiritual Well Being ◽  
Relevant Variables

Objective To review which are the most influential variables in achieving levels of psychological well-being at the end of life and to verify whether, as certain studies suggest, spirituality, resilience and social support are the pillars on which the psychological well-being construct is based. Method A systematic search through the Scopus, Pubmed and PsycInfo electronic databases was carried out using keywords such as: “wellbeing” OR “psychological-well-being” AND “resilience” AND “spirituality” AND “social support” AND “palliative care” and their multiple combinations. Results Eleven studies were selected, in which terms such as spiritual well-being, absence of discomfort and quality of life were used in substitution of psychological well-being and a certain consensus was found regarding whether resilience, spirituality and social support are predictive variables of psychological well-being. Conclusions Resilience, social support and spirituality are highly relevant variables at the end of life and contribute decisively towards psychological well-being.

Advance Care Planning

2016 ◽  
Vol 34 (1) ◽  
pp. 26-33 ◽  
Author(s):  
Laurence Tan ◽  
Lai Kiow Sim ◽  
Lynnette Ng ◽  
Hui Jin Toh ◽  
James Alvin Low
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
Advance Care Planning ◽  
Treatment Options ◽  
Group Discussion ◽  
Spiritual Needs ◽  
Care Planning ◽  
Spiritual Community ◽  
Advance Care

There has been a growing trend in addressing spiritual needs in caring for the person, especially nearing the end of one’s life. Advance care planning (ACP) facilitates understanding of preferences and explores the spiritual and existential aspects of care. This study explores the views and preferences of a group of Catholic nuns in Singapore, specifically looking at what was meaningful and valuable to them when determining treatment options at the end of life. Twenty-three nuns were purposively recruited in July 2012. A focus group discussion was conducted after administration of a questionnaire and attendance at a 1-hour talk on ACP. Slightly more than half had heard of ACP prior to the talk. The majority agreed that ACP was not against their religious beliefs” and that quality of life was important to them. The themes that emerged from this study were autonomy and freedom, spirituality and quality of life, and the meaning of ACP. The findings of this study suggested that spirituality and faith define the way the participants lived their lives, including their views and preferences on end-of-life care. Integrating spirituality into an essential domain of care will help the spiritual community honor a crucial part of end-of-life discussions and afford a greater discernment of the deep meaning that ACP holds.

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