scholarly journals A qualitative study of the label of personality disorder from the perspectives of people with lived experience and occupational experience

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Gary Lamph ◽  
Jake Dorothy ◽  
Tamar Jeynes ◽  
Alison Coak ◽  
Raeesa Jassat ◽  
...  

Purpose The label “Personality Disorder” continues to divide opinion. Challenges to the terminology of personality disorder led by people with lived experience and supported by critical practitioners and academics are tempered by acknowledgement of certain positive social consequences of obtaining a diagnosis. This study aims to engage service users and staff in a process of inquiry to better understand the complexities of views on the terminology of Personality Disorder. Design/methodology/approach This study set out to qualitatively explore the views of a range of people with lived, occupational and dual lived experience/occupational expertise, relating to the diagnostic label of Personality Disorder, via participatory and critical group debate. The World Café approach is an innovative methodology for participatory inquiry into subjective views suited to exploring the contested subject matter. Findings This study identified contrasting opinions towards the label of Personality Disorder and provides insight into the concerns described for both keeping and losing the label. Although many felt the words “personality” and “disorder” are not in themselves helpful, certain positive views were also revealed. Perspectives towards the label were influenced by the way in which diagnosis was explained and understood by patients and practitioners, alongside the extent to which service provision and evidence-based interventions were offered. Research limitations/implications The findings have the potential to contribute to the ongoing critical debate regarding the value of the Personality Disorder construct in the provision of care and support. Specific emphasis upon the relational framing of care provision offers a means to ameliorate some of the negative impacts of terminology. Perspectives are influenced in the way the label is understood, hence, attention is required to enhance these processes in clinical practice. There is much more study required to overcome stigmatisation, prejudice, and lack of knowledge and understanding. Further research identifying means for challenging stigma and the factors contributing to positive clinical interactions are required. Originality/value This study brings together a wide range of views and experiences of mental health professionals, individuals lived experiences and those who align to both lived and occupational expertise. A safe space was provided via the uniquely co-produced World Café research event to bring together discussion and debates from mixed perspectives makes this a novel study. The focus being on perspectives towards contested language, labelling and social impact adds to scholarship in this field.

2018 ◽  
Vol 13 (2) ◽  
pp. 124-134 ◽  
Author(s):  
Gary Lamph ◽  
Mark Sampson ◽  
Debra Smith ◽  
Gary Williamson ◽  
Mark Guyers

Purpose Personality disorder is reported to elicit strong emotional responses and negative attitudes in mental health staff (Bodner et al., 2015). The purpose of this paper is to provide an overview of the design and development of a co-produced e-learning training package for personality disorder awareness and an evaluation of its effectiveness. This study was carried out to explore if e-learning is an effective mode of training delivery for raising personality disorder awareness. Design/methodology/approach The e-learning was uniquely developed by subject matter experts working in co-production with people with lived experience. Self-reported measures were completed at three separate intervals to evaluate the effectiveness of the training: at pre-, post- and three-month follow up. Quantitative data were collected via these questionnaires. Findings The results from this evaluation show that e-learning is an effective mode of delivery for raising the awareness of personality disorder among mental health professionals, achieving similar outcomes to those reported following face-to-ace training. Research limitations/implications Attrition at follow-up phase was high which was consistent with other similar studies. The evaluation was led by the lead contributors and in the geographical area of its development. The study was relatively small and the participants were self-selected, therefore findings should be treated with caution. Practical implications E-learning can provide flexible training to compliment and act as an alternative to face-to-face personality disorder training. E-learning may provide an alternative refresher course to knowledge and understanding framework or other face-to-face methods. Co-produced training can be mirrored within an e-learning programme, careful planning to ensure the service user voice is heard and that their lived experience is embraced is required. Originality/value This is the first evaluation of a co-produced e-learning only personality disorder awareness training. It is also the first paper to carry out a review of the published evaluations of personality awareness training in the UK with comparisons explored across the studies.


2017 ◽  
Vol 21 (4) ◽  
pp. 213-221 ◽  
Author(s):  
Olivia Sagan

Purpose The purpose of this paper is to investigate the experience of loneliness amongst people who have been diagnosed with borderline personality disorder. Design/methodology/approach The research used a narrative phenomenological approach. Findings The study found that the loneliness experienced amongst this group of participants was perceived to have taken root in childhood and was not a transient state. Its endurance, however, had led participants to develop a number of strategies as means by which to manage what was felt to be a deep seated painful sense of emptiness; some of these strategies were, however, risky or harmful. Research limitations/implications Limitations of the study include the absence of longitudinal data which would have offered the opportunity for the close study of how people manage the experience over time. Practical implications The study has practical implications for mental health professionals wishing to better understand the difficulties faced by individuals with the characteristics described, but it also highlights the resilience of sufferers who, while living with acute loneliness continue to explore ways of managing it. Social implications The study brings to the attention that the connectivity and sociability required and expected in today’s society emphasise the lack of lonely individuals, further stigmatising loneliness as deficit and taboo. Originality/value The paper offers a welcome addition to loneliness studies in its adherence to the phenomenological experience and offers a small corrective to the bulk of existing loneliness studies which, while valuable have been more attentive to exploring the constituent elements of loneliness than the lived experience of it.


2020 ◽  
Vol 40 (1) ◽  
pp. 3-13
Author(s):  
Julie A. Gorenko ◽  
Chelsea Moran ◽  
Michelle Flynn ◽  
Keith Dobson ◽  
Candace Konnert

The COVID-19 pandemic is associated with several short- and long-term negative impacts on the well-being of older adults. Physical distancing recommendations to reduce transmission of the SARS-CoV2-19 virus increase the risk of social isolation and loneliness, which are associated with negative outcomes including anxiety, depression, cognitive decline, and mortality. Taken together, social isolation and additional psychological impacts of the pandemic (e.g., worry, grief) underscore the importance of intervention efforts to older adults. This narrative review draws upon a wide range of evidence to provide a comprehensive overview of appropriate remotely-delivered interventions for older adults that target loneliness and psychological symptoms. These include interventions delivered by a range of individuals (i.e., community members to mental health professionals), and interventions that vary by implementation (e.g., self-guided therapy, remotely-delivered interventions via telephone or video call). Recommendations to overcome barriers to implementation and delivery are provided, with consideration given to the different living situations.


Author(s):  
Rodney W. Caldicott ◽  
Tania von der Heidt ◽  
Pascal Scherrer ◽  
Sabine Muschter ◽  
Antonia Canosa

Purpose This paper aims to purposely place community and its stakeholders at the forefront of an investigation of positive and negative social, economic and environmental impacts of the sharing economy in the specific context of Airbnb by drawing upon the triple bottom line (TBL) framework of sustainability. Design/methodology/approach A qualitative enquiry through a “scoping approach” with the search of relevant electronic databases identified a range of conceptual and empirical studies in the period from 2008 to 2018 informing a profile focussed on the triple bottom line impacts. Findings The criteria limited search yielded 23 focal articles, which investigated or discussed Airbnb impacts on local communities. Analysis of these articles informed a three-pillar tabulation of positive and negative impacts, which are presented against four key stakeholder groupings. Research limitations/implications The study is exploratory, and further research, especially confirmatory research, is recommended. Practical implications The study’s value extends to praxis. Guided by findings, real-time planning and policy-making are already underway within the authors’ community. Additionally, an extension project, as requested by the community, is now investigating direct traditional accommodation provider impacts. Social implications Understanding of the social issues concerning Airbnb and indeed, the wider sharing economy, is broadened through identified need for further social impact research. Originality/value To the best of authors’ knowledge, this is one of the first studies to apply a “scoping approach” to holistically illuminate the positive and negative impacts of Airbnb at the micro-level in each of the three domains of sustainability. The research methodology is shown to be effective, with positive community impact, and will easily adapt to other destinations grappling with policy decisions.


2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Tiago Ribeiro ◽  
Abel Correia ◽  
Rui Biscaia

PurposeDespite the recognition that citizens' perceptions of mega sport events' social impact is critical for the sustainable development of these events and host cities, most previous studies have not taken into consideration how these perceptions may change over time. This study examines citizens' social impact perceptions of the 2016 Rio Olympic Games before and after the event.Design/methodology/approachData were collected amongst local residents of Rio de Janeiro pre- and post-event (n = 256). A confirmatory factor analysis (CFA) analysed the psychometric properties of the proposed social impact constructs. Subsequently, a multigroup analysis and latent mean comparisons were conducted to test social impact perceptions pre- and post-event.FindingsThe multigroup CFA showed factorial stability of the social impact model in both periods, while the latent mean comparisons revealed significant differences in the dimensions of social experiences, city image and community pride enhancement, public infrastructures and social conflicts. Results indicated that the perception of positive impacts tends to increase, while perceived negative impacts decrease from pre- to post-event.Social implicationsThe social effects of hosting sport mega events result in a short-term change in attitudes towards the local community, leading to a better comprehension on how communities perceive the event's impact on their lives.Originality/valueIn a highly complex mega event such as the Olympic Games, any change may influence residents' perceptions. The findings of this study demonstrate the importance of residents for determining support or opposition in hosting the event, allowing a better understanding of the exchange effects.


2014 ◽  
Vol 16 (3) ◽  
pp. 228-240 ◽  
Author(s):  
Lucy Jade Lovell ◽  
Gillian Hardy

Purpose – The purpose of this paper is to explore the lived experience of having a diagnosis of Borderline Personality Disorder (BPD) in a forensic setting. Design/methodology/approach – Semi-structured interviews were conducted with eight women with a diagnosis of BPD in private secure units. The interview data were analysed using interpretative phenomenological analysis (IPA). Findings – Four main themes emerged: identity, power, protection and containment, and confusion. The themes of identity, power and protection and containment represented polarised positions which in turn contributed to the theme of confusion. Research limitations/implications – There are limitations to this study mainly the heterogeneous nature of the sample. However, good quality control and the similarities with previous findings indicate that this study makes a valuable contribution to the understanding of BPD in a forensic setting. In addition it has implications for further research; exploring sense of self and the differences between a sample from a community and a sample from a forensic setting with a diagnosis of BPD. Practical implications – For practitioners to acknowledge power dynamics and to be able to formulate and address these with patients with a diagnosis of BPD. Originality/value – This is the first IPA study to ask women with a diagnosis of BPD in a forensic setting what their experience is. It is a qualitative study due to the need to genuinely explore the topic and to provide a basis for others to conduct further research.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
José María Martín Martín ◽  
Juan F. Prados-Castillo ◽  
Mónica de Castro-Pardo ◽  
Juan De Dios Jimenez Aguilera

Purpose The expansion of online platforms for renting tourist accommodations has given rise to a great deal of controversy in society. Likewise, the arrival of tourists in residential settings has led to a wide range of positive and negative impacts, resulting in conflicts between different stakeholders. The purpose of this paper is to analyze whether there is variation in the perception of the impacts associated with peer-to-peer accommodation platforms among different stakeholders? Additionally, it also seeks to investigate what kind of impacts generate the highest level of conflict among stakeholders? Design/methodology/approach Given the relative novelty of the problem, this paper proposes an exploratory study that sheds light on some of the main issues with the purpose of supporting further research in the future. The aim is to analyze which impacts are perceived as more positive or negative by each group and to create indexes of conflict for these groups regarding their perception of the impacts. This study is based on fieldwork carried out in April 2020, which consists of 600 online surveys of local residents in the city of Granada. This city, one of Spain’s main tourist spots, suffers the highest tourist pressure in the country. Findings The exploratory study suggests that the greatest consensus is generated in the assessment of economic impacts, either negative or positive. The greatest conflicts are related to the assessment of the effect of this activity on housing preservation. The group comprising accommodation owners of tourist flats is the one that shows a more dissenting opinion from the rest, confronting especially the group formed by citizens whose income depends on tourism. Originality/value There is a lack of studies on the perception of tourism impacts associated with online tourism rental platforms. This is the first study to analyze both, how the main stakeholders associated with this activity assess the different impacts derived from this form of tourist accommodation as a whole and the conflicts derived from such an assessment. An additional innovation is that the analysis investigates the potential fear of disease transmission caused by tourists. It would be interesting to continue this research by applying the same questionnaire in different environments, such as rural areas or societies with different structures from the one analyzed here. Likewise, future in-depth analysis of some of the conflicts is recommended so as to ascertain their origin.


2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Shimri Hadas Grundman ◽  
Neta Edri ◽  
Renana Stanger Elran

Purpose This paper aims to present a working model for using experiential knowledge in the work of lived experience practitioners within the mental health field. Design/methodology/approach The working model is constructed from three key elements, namely, components of lived experience, the Library of Life Experiences and the NISE technique for sharing experiential knowledge (NISE: need identification; inner identification; sharing experiential knowledge and interpersonal encounter). Findings The model will be described, followed by central themes that emerged from a pilot course that was taught in Israel in 2019 to a group of peers working in the mental health system. The central themes were: developing peer identity; sharing peer language; internalizing the working model; understanding the peer role; and awakening social consciousness. Originality/value The original working model and training course were co-produced and co-conducted by peer specialists and mental health professionals, for the use of lived experience practitioners.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Claire McDonald ◽  
Fiona Seaman-Thornton ◽  
Che Ling Michelle Mok ◽  
Hanne Jakobsen ◽  
Simon Riches

Purpose Negative attitudes towards “personality disorder” are common among mental health professionals. This study aims to design a psychoeducational training targeting attitudes to “personality disorder” for staff working in a London psychiatric hospital. Its impact on staff attitudes was evaluated. Design/methodology/approach Mental health clinicians were recruited from five acute psychiatric wards. Feasibility of implementing the training was measured. A free-association exercise explored baseline attitudes to “personality disorder” and visual analogue scales assessed staff attitudes pre- and post-training. Content analysis of staff feedback was carried out. Findings Psychoeducational training was found to be feasible, well-attended and highly valued by ward staff (N = 47). Baseline results revealed negative perceptions of “personality disorder”. Post-training, significant improvements in understanding, levels of compassion and attitudes to working with service users with a diagnosis of a “personality disorder” were observed. Staff feedback highlighted desire for further training and support. Research limitations/implications The sample size was relatively small and there was no control group, so findings should be interpreted with caution. Practical implications The findings highlight the need for support for staff working with service users with diagnoses of “personality disorder” on acute psychiatric wards. Providing regular training with interactive components may promote training as a resource for staff well-being. Planning to ensure service users’ and carers’ views are incorporated into the design of future training will be important. Originality/value This study is innovative in that it investigates the impact of a brief psychoeducational training on “personality disorder” designed for mental health staff on acute psychiatric wards.


2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Ruth Dixon

PurposeThis paper investigates how outcomes-based performance management (PM) regimes operate in the partnerships known as social impact bonds (SIBs), which bring together partners from the public, private and third sectors. The findings are analysed in the light of the different cultural world views of the partners.Design/methodology/approachPublished evaluations of 25 UK SIBs were analysed by a qualitative multiple case study approach. This study of secondary sources permitted the analysis of a wide range of SIB partnerships from near contemporary accounts.FindingsOutcomes frameworks led to rigorous PM regimes that brought the cultural differences between partners into focus. While partnerships benefitted from the variety of viewpoints and expertise, the differences in outlook simultaneously led to strains and tensions. In order to mitigate such tensions, some stakeholders conformed to the outlooks of others.Practical implicationsThe need to achieve a predefined set of payable outcomes embeds a “linear” view of intervention and effect on the SIB partners and a performance regime in which some partners dominate. In designing accountability systems for partnerships such as SIBs, commissioners should consider how the performance regime will affect the interests of all stakeholders.Originality/valueThis study adds to the cultural theory literature which has rarely considered three-way partnerships embodying hierarchical, individualist and egalitarian world views and how performance regimes operate in such partnerships. Three-way partnerships are thought to be rare and short-lived, but this empirical study shows that they can be successful albeit over a predefined lifespan.


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