Perceived social support in Chinese family caregivers of patients with dementia

Author(s):  
Jufang Li ◽  
Gexin Gao ◽  
Yawei Zeng ◽  
Yuping Wu ◽  
Xiaoling Zhu ◽  
...  
2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Yaqin Zhong ◽  
Jian Wang ◽  
Stephen Nicholas

Abstract Background To examine the relationship between social support and depressive symptoms of Chinese family caregivers of older people with disabilities, and to evaluate the role of caregiver burden as a potential mediator of that relationship. Methods A survey questionnaire was completed face-to-face by 567 primary family caregivers of older people with disabilities in four provinces in China. Covariates that may affect depressive symptoms, such as the characteristics of disabled people (socio-economic factors, functional and cognitive capacity) and caregivers (caregiver duration and self-rated health of caregivers) were collected. Social support was measured by the Multidimensional Scale of Perceived Social Support (MSPSS); depressive symptoms were assessed by the shortened 10 item version of Center for Epidemiological Studies Depression scale (CES-D); and the caregiver burden was assessed by the Zarit Burden Interview (ZBI). Results The prevalence of depressive symptoms among caregivers was 37.7%. Higher levels of social support was negatively associated with lower depressive symptoms. This relationship was partially mediated by the caregiver burden, where higher levels of the caregiver burden were negatively associated with depressive symptoms. Furthermore, caregivers who were women, spent extended time in caregiving and were in poor health, reported significantly higher depressive symptoms. Conclusions Our results indicated that social support was negatively associated with depressive symptoms in family caregivers and in the caregiver burden. The caregiver burden partially mediated the social support-depressive symptoms association. Interventions for family caregivers should include increasing social support, health monitoring and structured interventions to reduce the caregiver burden and attenuate family caregivers’ depressive symptoms.


2016 ◽  
Vol 18 (1) ◽  
pp. 102 ◽  
Author(s):  
Lucy Barrera Ortiz ◽  
María Stella Campos ◽  
Karina Gallardo Solarte ◽  
Rosa Del Carmen Coral Ibarra ◽  
Adriana Hernández Bustos

ResumenObjetivo: Describir y comparar el soporte social percibido por las personas con enfermedad crónica y sus cuidadores familiares. Materiales y métodos: Estudio de tipo descriptivo, comparativo, de corte transversal desarrollado con una muestra de 1.257 personas con enfermedad crónica y 1.184 cuidadores familiares en las cinco macro regiones geográficas de Colombia entre los años 2012 - 2014. Resultados: Las condiciones de las personas con enfermedad crónica y de los cuidadores familiares participantes en el estudio, reflejan predominio femenino con niveles de escolaridad medio-bajo, y con residencia en la zona urbana. La mitad de los participantes tienen pareja estable y trabajo remunerado. La situación de enfermedad crónica se presenta para la mayoría, por más de un año. La familia es la principal fuente de apoyo social y a pesar de ello, la cuarta parte de personas con enfermedad crónica perciben que son una carga para sus familias y la tercera parte de los cuidadores familiares, percibe sobrecarga intensa con el cuidado. Se reporta un nivel adecuado de soporte social, en especial en las regiones Amazonía y Orinoquía. Conclusiones: Las personas con enfermedad crónica y sus cuidadores familiares tienen niveles de soporte social percibido heterogéneos en las diferentes macro regiones geográficas de Colombia. El soporte social percibido es insuficiente para respaldar la experiencia del cuidado de la salud de estas personas. AbstractObjective: To describe and compare the social support perceived by people with chronic disease (CD) and their family caregivers (FC) in Colombia. Materials and methods: This is a descriptive, comparative cross-sectional study developed with a sample of 1257 people with CD and 1184 FC in the five macro geographical regions of Colombia between 2012 and 2014. Results: The conditions of participants with CD and their FC reflects female predominance with medium-low levels of schooling who live in the urban area. Half of the participants have a regular partner as well as a paid job. The situation of chronic disease occurs mostly for over a year. The family is the main source of social support and yet a quarter of people with CD perceive to be a burden to their families and the third of the FC perceived intense care overload. An adequate level of social support is reported, especially in the Amazon and Orinoco regions. Conclusions: People with chronic illness and their family caregivers have heterogeneous levels of perceived social support in the different macro geographical regions of Colombia. The perceived social support is insufficient to support the experience of health care of these people.


Author(s):  
José Manuel Hernández‐Padilla ◽  
María Dolores Ruiz‐Fernández ◽  
José Granero‐Molina ◽  
Rocío Ortíz‐Amo ◽  
María Mar López Rodríguez ◽  
...  

2019 ◽  
Vol 6 ◽  
pp. 2333794X1882300 ◽  
Author(s):  
Yoke Hwee Chan ◽  
Carmen Zhi-Ruo Lim ◽  
Dianne Bautista ◽  
Rahul Malhotra ◽  
Truls Østbye

Caregivers of technology-dependent children face considerable responsibilities. This study examined the association of 2 child-related stressors—functional status and use of mechanical ventilator—with 2 domains of family caregiver well-being—depressive symptoms (Center for Epidemiologic Studies Depression Scale [CES-D]) and health-related quality of life (HRQOL) and family function (PedsQL Family Impact Module). The secondary objective was to determine whether these associations were moderated by caregiver-perceived social support. Structured interviews were conducted with 88 primary family caregivers of technology-dependent children in Singapore. Hierarchical multiple regression was used to assess the primary and secondary objectives. A total of 44.3% of caregivers were at high risk of clinical depression. Moderately poor child functional status was associated with more caregiver depressive symptoms. Perceived social support moderated this association. Family caregivers of technology-dependent children have high levels of depressive symptoms and relatively poor HRQOL and family functioning. Enhancing caregivers’ social support is important for their well-being.


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