scholarly journals Soporte social percibido por las personas con enfermedad crónica y sus cuidadores familiares en cinco macro regiones geográficas de Colombia

2016 ◽  
Vol 18 (1) ◽  
pp. 102 ◽  
Author(s):  
Lucy Barrera Ortiz ◽  
María Stella Campos ◽  
Karina Gallardo Solarte ◽  
Rosa Del Carmen Coral Ibarra ◽  
Adriana Hernández Bustos

ResumenObjetivo: Describir y comparar el soporte social percibido por las personas con enfermedad crónica y sus cuidadores familiares. Materiales y métodos: Estudio de tipo descriptivo, comparativo, de corte transversal desarrollado con una muestra de 1.257 personas con enfermedad crónica y 1.184 cuidadores familiares en las cinco macro regiones geográficas de Colombia entre los años 2012 - 2014. Resultados: Las condiciones de las personas con enfermedad crónica y de los cuidadores familiares participantes en el estudio, reflejan predominio femenino con niveles de escolaridad medio-bajo, y con residencia en la zona urbana. La mitad de los participantes tienen pareja estable y trabajo remunerado. La situación de enfermedad crónica se presenta para la mayoría, por más de un año. La familia es la principal fuente de apoyo social y a pesar de ello, la cuarta parte de personas con enfermedad crónica perciben que son una carga para sus familias y la tercera parte de los cuidadores familiares, percibe sobrecarga intensa con el cuidado. Se reporta un nivel adecuado de soporte social, en especial en las regiones Amazonía y Orinoquía. Conclusiones: Las personas con enfermedad crónica y sus cuidadores familiares tienen niveles de soporte social percibido heterogéneos en las diferentes macro regiones geográficas de Colombia. El soporte social percibido es insuficiente para respaldar la experiencia del cuidado de la salud de estas personas. AbstractObjective: To describe and compare the social support perceived by people with chronic disease (CD) and their family caregivers (FC) in Colombia. Materials and methods: This is a descriptive, comparative cross-sectional study developed with a sample of 1257 people with CD and 1184 FC in the five macro geographical regions of Colombia between 2012 and 2014. Results: The conditions of participants with CD and their FC reflects female predominance with medium-low levels of schooling who live in the urban area. Half of the participants have a regular partner as well as a paid job. The situation of chronic disease occurs mostly for over a year. The family is the main source of social support and yet a quarter of people with CD perceive to be a burden to their families and the third of the FC perceived intense care overload. An adequate level of social support is reported, especially in the Amazon and Orinoco regions. Conclusions: People with chronic illness and their family caregivers have heterogeneous levels of perceived social support in the different macro geographical regions of Colombia. The perceived social support is insufficient to support the experience of health care of these people.

2017 ◽  
Vol 8 (1) ◽  
pp. 10
Author(s):  
Narendra Kumar Singh ◽  
Nishant Goyal

Background: Schizophrenia is associated with a high familial, social and economic burden. Schizophrenia is also associated with a high level of disability which may create impediments on the social and economic areas of the patients as well as on their respective family networks. Families with schizophrenia may encounter problems such as impairment of health and well being of other family members, restriction of social activities of the family members and shrinking of support from the social network. Aims: The present study examined the difference in perceived social support and burden of care between the male and female caregivers of patients with schizophrenia. Methods: This was a cross-sectional study examining the difference in perceived social support and burden of care between the male and female caregivers of patients with schizophrenia. The sample consisted of 60 (30 male and 30 female) caregivers of the patients with the diagnosis of schizophrenia as per ICD-10-DCR. Results and Conclusion: This study revealed that male caregivers perceived more social support and less burden of care as compared to female caregivers. Key words: Gender, social support, burden


2020 ◽  
Vol 9 (2) ◽  
pp. 56
Author(s):  
A Fahmil Haq Aplizuddin ◽  
Harmayetty Harmayetty ◽  
Elida Ulfiana

Introduction: Hemodialysis is a life-long treatment for end-stage renal disease (ESRD). ESRD has physical and psychosocial challenges to experience stress which not only affects but patients but also family members who care for them or also called family caregivers. Analyzing the relationship of social support and resilience to the level of stress in the family caregiver of hemodialysis patients at Haji Hospital Surabaya.Methods: A cross-sectional study with a population of family caregiver members of hemodialysis patients at RSU Haji Surabaya. The sample size was 92 respondents with criteria, namely families who treat hemodialysis patients at RSU Haji Surabaya, live in one house with patients, aged > 18 years, and can read and write. The variables of this study are social support, resilience, and stress levels. Data collection was performed using a questionnaire and analyzed using Spearman’s Rho test. Results : There was a significant negative relationship between social support and stress levels (p = 0.004 and r = -0.296) and resiliency with stress levels (p = 0.003 and r = -0.311).Discussion: The level of stress in a family caregiver hemodialysis patient can be influenced by the social support received and the level of resilience they have. The social support has an important role for family caregivers obtained from the family and significant other.


2019 ◽  
Vol 13 (2) ◽  
pp. 546
Author(s):  
Monica Guimarães Klemig Gomes de Melo Britto ◽  
Hedyanne Guerra Pereira ◽  
Rodrigo Da Silva Maia ◽  
Bruna Caroline Fernandes Andria ◽  
Eulália Maria Chaves Maia

RESUMO Objetivo: investigar a existência da relação entre as necessidades e o apoio social percebidos pelos familiares de pacientes em cuidados paliativos na UTI. Método: tratar-se de um estudo quantitativo, de caráter transversal. Realizar-se-á a pesquisa com 52 familiares de pacientes que estejam em cuidados paliativos na UTI, em um hospital privado referência. Propor-se-ão os seguintes instrumentos para a realização desta pesquisa: questionário clínico e sociodemográfico, Escala de Apoio Social e Inventário de Necessidades e Estressores de Familiares em Terapia Intensiva. Basear-se-á a análise dos dados nas estatísticas descritiva e inferencial. Resultados esperados: esperar-se-á contribuir para o avanço na temática e para o desenvolvimento de práticas profissionais que venham ao encontro das demandas desta clientela, para que possam ser supridas. Descritores: Família; Cuidados Paliativos; Cuidados Críticos; Hospitalização; Unidade de Terapia Intensiva; Apoio Social.ABSTRACT Objective: to investigate the existence of the relationship between the needs and the social support perceived by the relatives of patients in palliative care in the ICU. Method: this is a quantitative, cross-sectional study. The research will be done with 52 relatives of patients who are in palliative care in the ICU, in a private referral hospital. The following instruments will be proposed for this research: clinical and sociodemographic questionnaire, Social Support Scale and Inventory of Needs and Stressors of Families in Intensive Care. Data analysis will be based on descriptive and inferential statistics. Expected results: it will be hoped to contribute to the advancement in the thematic and to the development of professional practices that meet the demands of this clientele, so that they can be supplied. Descriptors: Family; Palliative Care; Critical Care; Hospitalization; Intensive Care Unit; Social Support.RESUMEN Objetivo: investigar la existencia de la relación entre las necesidades y el apoyo social percibidos por los familiares de pacientes en cuidados paliativos en la UTI. Método: se tratar de un estudio cuantitativo, de carácter transversal. Se realizará la investigación con 52 familiares de pacientes que estén en cuidados paliativos en la UTI, en un hospital privado referencia. Se propondrán los siguientes instrumentos para la realización de esta investigación: cuestionario clínico y sociodemográfico, Escala de Apoyo Social e Inventario de Necesidades y Estresores de Familiares en Terapia Intensiva. Se basará el análisis de los datos en las estadísticas descriptivas e inferencial. Resultados esperados: se esperará contribuir al avance en la temática y al desarrollo de prácticas profesionales que vengan al encuentro de las demandas de esta clientela, para que puedan ser suplidas. Descriptores: Familia; Cuidados Paliativos; Cuidados Críticos; Hospitalización; Unidades de Cuidados Intensivos; Apoyo Social.


GeroPsych ◽  
2017 ◽  
Vol 30 (2) ◽  
pp. 61-70 ◽  
Author(s):  
Lia Oberhauser ◽  
Andreas B. Neubauer ◽  
Eva-Marie Kessler

Abstract. Conflict avoidance increases across the adult lifespan. This cross-sectional study looks at conflict avoidance as part of a mechanism to regulate belongingness needs ( Sheldon, 2011 ). We assumed that older adults perceive more threats to their belongingness when they contemplate their future, and that they preventively react with avoidance coping. We set up a model predicting conflict avoidance that included perceptions of future nonbelonging, termed anticipated loneliness, and other predictors including sociodemographics, indicators of subjective well-being and perceived social support (N = 331, aged 40–87). Anticipated loneliness predicted conflict avoidance above all other predictors and partially mediated the age-association of conflict avoidance. Results suggest that belongingness regulation accounts may deepen our understanding of conflict avoidance in the second half of life.


2021 ◽  
Vol 18 (1) ◽  
Author(s):  
Jie Li ◽  
Syeda Zerin Imam ◽  
Zhengyue Jing ◽  
Yi Wang ◽  
Chengchao Zhou

Abstract Background Adolescent pregnancy is a risk factor for suicide. We aimed to assess the prevalence of suicide attempts among young women with adolescent pregnancy in Bangladesh and to explore its associated factors. Methods In this cross-sectional study, we surveyed young women with adolescent pregnancy in urban and rural areas in Bangladesh to assess suicide attempts, socio-demographic and pregnancy-related characteristics, perceived health status, and perceived social support. Binary logistic regression analysis was conducted to explore the relationship between potentially related factors and suicide attempts. Results Of the participants, 6.5% (61/940) reported suicide attempts in the past 12 months, and the majority (88.5%) of the attempts happened within one year after the pregnancy. Participants with more years after first pregnancy (odds ratio (OR) = 0.47, 95% CI: 0.37–0.61) and more perceived social support from friends (OR = 0.69, 95% CI: 0.55–0.86) were less likely to have suicide attempts, and those perceived bad health status compared with good/fair health status (OR = 8.38, 95% CI: 3.08–22.76) were more likely to attempt suicide. Conclusions Women with adolescent pregnancy were at high risk of suicide attempts, especially those during the first postnatal year. The risk of suicide attempts attenuated with the time after pregnancy, and perceived social support from friends was a protective factor and perceived bad health status was a risk factor for suicide attempts among young women who have experienced adolescent pregnancy.


2021 ◽  
pp. 002076402110018
Author(s):  
Yeliz Karaçar ◽  
Kerime Bademli

Background: The study was conducted to determine the relationship between self-stigmatization and perceived social support in caregivers of schizophrenia with patient. Methods: A cross-sectional study design was used. The study sample consisted of 84 participants who cared for schizophrenic patients registered in a community mental health center. In the data collection, the ‘Self-stigmatizing Scale for Families’ and ‘Multidimensional Perceived Social Support Scale’ were used. The data were analyzed via frequency, mean, standard deviation, Cronbach’s alpha analysis, linear regression, Pearson correlation analysis, independent samples t-test, and ANOVA test. Results: Self-stigmatization (32.48 ± 15.15) and perceived social support (44.36 ± 22.88) were found to be moderate in caregivers. Self-stigmatization was found to be higher in caregivers who do not work; have a spouse, mother, or father; have a disease; do not receive support from their family and have not received any education about schizophrenia ( p < .05). It was determined that, with increasing age, perceived social support decreases, and the perception of social support increases in caregivers who are high school graduates, working, having children, have no illness, and are educated about schizophrenia ( p < .05). It was determined that, as the level of perceived social support increases in caregivers, self-stigmatization decreases ( p < .05). Conclusion: It was determined that, as the perceived social support increases in caregivers, self-stigmatization decreases. We recommend providing informative support about schizophrenia, to increase hope and social-skill training, and to implement interventions that include caregivers in the fight against stigma.


2015 ◽  
Vol 20 (5) ◽  
pp. 1321-1330 ◽  
Author(s):  
Karla Ferraz dos Anjos ◽  
Rita Narriman Silva de Oliveira Boery ◽  
Rafael Pereira ◽  
Larissa Chaves Pedreira ◽  
Alba Benemérita Alves Vilela ◽  
...  

Objective: to ascertain the association between the social support and the quality of life of relative caregivers of elderly dependents at home.Method: a cross-sectional study conducted with 58 relative caregivers of elderly dependents, registered in the Family Health Strategy. Data were collected from the Katz instrument, sociodemographic, Zarit Burden Interview, WHOQOL-bref, and analyzed using descriptive statistics and multiple linear regression.Results: the majority of caregivers were women, who took care full-time and presented moderate to severe burden. Most caregivers are satisfied with their social relationships and the social support received. It is found that the burden and the time of care correlated with the social relationships domain, which is associated with social support, and consequently, reduced quality of life.Conclusion: social support for caregivers is important to prevent health implications, burden, biopsychosocial stress, and provide favorable conditions for quality of life, by allowing greater freedom to develop their daily activities.


2016 ◽  
Vol 32 (12) ◽  
Author(s):  
Flávia Batista Portugal ◽  
Mônica Rodrigues Campos ◽  
Celina Ragoni Correia ◽  
Daniel Almeida Gonçalves ◽  
Dinarte Ballester ◽  
...  

The objective of this study was to identify the association between emotional distress and social support networks with quality of life in primary care patients. This was a cross-sectional study involving 1,466 patients in the cities of São Paulo and Rio de Janeiro, Brazil, in 2009/2010. The General Health Questionnaire, the Hospital Anxiety and Depression Scale and the brief version of the World Health Organization Quality of Life Instrument were used. The Social Support Network Index classified patients with the highest and lowest index as socially integrated or isolated. A bivariate analysis and four multiple linear regressions were conducted for each quality of life outcome. The means scores for the physical, psychological, social relations, and environment domains were, respectively, 64.7; 64.2; 68.5 and 49.1. In the multivariate analysis, the psychological domain was negatively associated with isolation, whereas the social relations and environment domains were positively associated with integration. Integration and isolation proved to be important factors for those in emotional distress as they minimize or maximize negative effects on quality of life.


2020 ◽  
Author(s):  
Xinxin Zhao ◽  
Ming Sun ◽  
Ye Yang

Abstract Background The prevalence of depression symptoms and related modifiable factors in prostate cancer (PCa) are not well evaluated. We aimed to assess the effects of perceived social support, hope and resilience on depressive symptoms in newly diagnosed PCa patients, and to evaluate the role of hope and resilience as mediators of that relationship. Method A cross-sectional study was analyzed in consecutive inpatients with PCa during the months of January 2018 and August 2019. A questionnaire was administered to 667 patients. All registered patients were all volunteers and anonymous. Depressive symptoms, perceived social support, hope and resilience were measured anonymously. Out of 667 patients, a total of 564 effective respondents became our subjects. Hierarchical linear regression was used to identify the factors associated with depressive symptoms. Asymptotic and resampling strategies were used to conduct the mediating effects of hope and resilience Results The prevalence of depressive symptoms was 65.9% in PCa patients . Hierarchical regression analyses indicated that perceived social support, hope, and resilience together accounted for 27.5% variance of depressive symptoms. Support from family, hope, and resilience significantly associated with depressive symptoms, respectively. Hope (a*b = -0.0783, BCa95% CI:–0.134 to–0.0319, p < 0.05), and resilience (a*b = -0.1315, BCa95% CI:–0.1894 to–0.0783, p < 0.05) significantly mediated the association between perceived social support and depressive symptoms. Conclusions The high prevalence of depressive symptoms among newly diagnosed PCa patients should receive more attention. Perceived social support, hope and resilience could be positive resources for combating depressive symptoms, and hope and resilience mediated the association between perceived social support and depressive symptoms. Enhancing social support, particularly the support form family, and improving patients’ outlook and resilience may be potential targets for future psychosocial interventions aimed at reducing depressive symptoms.


Sign in / Sign up

Export Citation Format

Share Document