scholarly journals Conducting focus groups in neurodegenerative disease populations: ethical and methodological considerations

BMJ Open ◽  
2021 ◽  
Vol 11 (1) ◽  
pp. e041869
Author(s):  
Annabel Jones ◽  
Philippa Morgan-Jones ◽  
Monica Busse ◽  
Victoria Shepherd ◽  
Fiona Wood
Keyword(s):  
Data Collection ◽  
Focus Groups ◽  
Neurodegenerative Disease ◽  
Social Interactions ◽  
Qualitative Methodology ◽  
Focus Group Research ◽  
Group Research ◽  
Methodological Considerations ◽  
Impact Data ◽  
Based Medicine

BackgroundInvolvement of vulnerable populations in research is critical to inform the generalisability of evidence-based medicine to all groups of the population.ObjectiveIn this communication, we reflect on our previous research, and that of other authors, to identify and explore key ethical and methodological considerations.DiscussionFocus groups are a widely implemented qualitative methodology, but their use, particularly in vulnerable neurodegenerative disease populations, is not straightforward. Although the risk of harm is generally low in focus group research, neurodegenerative disease populations are particularly vulnerable to issues relating to comprehension and their capacity to consent. Physical and cognitive impairments may also affect social interactions among participants and therefore impact data collection and analyses.ConclusionWe offer a number of ethical and methodological recommendations to facilitate the processes of recruitment and data collection when conducting focus groups with neurodegenerative disease populations.

Accessing Habitus: Relating Structure and Agency through Focus Group Research

2005 ◽  
Vol 10 (3) ◽  
pp. 33-44 ◽  
Author(s):  
Gill Callaghan
Keyword(s):  
Focus Group ◽  
Focus Groups ◽  
Empirical Research ◽  
Empirical Work ◽  
Collective Agency ◽  
Focus Group Research ◽  
Structure And Agency ◽  
Group Research ◽  
The Relationship

The article focuses on the intersection of theory methodology and empirical research to argue that we can learn about habitus through certain types of focus groups. An account of the relationship between structure, individual and collective agency is developed to provide a grounding for the methodological argument. The article suggests, on the basis of this understanding, that focus groups can be constituted to give us access to interactions which draw upon the collective basis of habitus. Some empirical work is drawn upon for illustrative purposes.

scholarly journals Issues in the Analysis of Focus Groups: Generalisability, Quantifiability, Treatment of Context and Quotations

2014 ◽  
Author(s):  
Lilla Vicsek
Keyword(s):  
Focus Group ◽  
Focus Groups ◽  
Group Discussion ◽  
Concrete Situation ◽  
Focus Group Research ◽  
Group Research ◽  
Group Data ◽  
Focus Group Data ◽  
Quantifying In

In this paper I discuss some concerns related to the analysis of focus groups: (a) the issue of generalisation; (b) the problems of using numbers and quantifying in the analysis; (c) how the concrete situation of the focus groups could be included in the analysis, and (d) what formats can be used when quoting from focus groups. Problems with respect to generalisation are discussed; types of generalisation are presented which can be used in focus group research. Arguments are made against using a primarily quantitative perspective in the evaluation of focus group data. It is argued that the situation of the particular group discussion should be taken into account in the analysis. A scheme for analysis that has been developed by the author is presented. Suggestions are made for the characteristics of the quotations in the analyses.

scholarly journals Advantages, Disadvantages, and Lessons Learned in Conducting Telephone Focus Groups to Discuss Biospecimen Research Concerns of Individuals Genetically at Risk for Cancer

2014 ◽  
Author(s):  
Alexis Koskan ◽  
Janique Rice ◽  
Clement Gwede ◽  
Cathy Meade ◽  
Ivana Sehovic ◽  
...  
Keyword(s):  
At Risk ◽  
Focus Group ◽  
Focus Groups ◽  
Health Research ◽  
Lessons Learned ◽  
Perceived Benefits ◽  
Face To Face ◽  
Focus Group Research ◽  
Telecommunication Technology ◽  
Group Research

Advances in telecommunication technology allow biomedical researchers to explore new, inexpensive opportunities for conducting focus group research. This article reports our experiences using such technology to engage individuals genetically at risk for cancer about biospecimen research. Telephone-based focus groups were conducted with a total of 40 individuals, and participants were asked about their experiences and perceived benefits and limitations of participating in a telephone focus group about biospecimen research. The lessons learned can effectively be applied to other areas of health research. In particular, this method may be most useful to engage individuals who are less apt to speak in public, and/or when there are concerns over privacy if face-to-face discussions methods are used.

scholarly journals How I Learned to Conduct Focus Groups

2016 ◽  
Author(s):  
Maribel Del Rio-Roberts
Keyword(s):  
Qualitative Research ◽  
Focus Group ◽  
Focus Groups ◽  
Human Services ◽  
Group Interaction ◽  
Human Experience ◽  
Research Approach ◽  
Focus Group Research ◽  
Group Research ◽  
Research Questions

The use of focus groups may provide researchers with important insights into research questions via participant discussion and interaction. As a human services practitioner and researcher, I became interested in learning how to conduct focus groups in order to apply these steps to my research and gain valuable insights about the human experience that the focus group interaction aims to bring to light. In this review, I will highlight the steps that I took to learn to conduct focus group research and through my experience I hope that readers gain familiarity and clarity into this unique qualitative research approach.

scholarly journals Designing Generative Dialogue Spaces to Enhance Focus Group Research: A Case Study in the Context of COVID-19 Vaccination

2021 ◽  
Vol 20 ◽  
pp. 160940692110667
Author(s):  
Dimitra Dimitrakopoulou
Keyword(s):  
Qualitative Research ◽  
Focus Group ◽  
Focus Groups ◽  
Lived Experiences ◽  
Design Thinking ◽  
Personal Narratives ◽  
Deep Understanding ◽  
Focus Group Research ◽  
Group Research

Focus groups are a core method in qualitative research for bringing people together to discuss an issue of concern; however, it has been criticized for not enabling researchers to gain a deep understanding of the participants’ lived experiences or generating in-depth personal narratives that build on those experiences. In this article, the author builds on the shared epistemologies of qualitative research and journalism to introduce the Generative Dialogue Framework. The Generative Dialogue Framework is grounded in the intersection of inquiry, knowledge, and storytelling to design and facilitate remote and in-person focus groups. Informed by phenomenology, the philosophy of dialogue, and design thinking, along with a strong visual focus, the framework aims to surface participants’ lived experiences as a way of understanding their perceptions, thoughts, and perspectives, especially within the context of controversial or polarizing topics of concern. The Generative Dialogue Framework stimulates constructive dialogue by offering a focused framework and a structured yet flexible question guide. The result is intended to be a reflective learning dialogue in which participants jointly develop shared meanings and insights, rather than simply exchanging rationalized opinions. Drawing on insights from a case study that explores people’s perceptions of the COVID-19 vaccination, the article demonstrates the framework’s application and provides a toolkit to structure the design and implementation process. Finally, reflecting on methodological and epistemological perspectives, the author reviews the advantages and challenges of applying the framework in focus group research for both researchers and participants.

Senior leaders’ strategic role in leadership development

2018 ◽  
Vol 17 (3) ◽  
pp. 143-149
Author(s):  
Clinton Longenecker ◽  
Gary S. Insch
Keyword(s):  
Leadership Development ◽  
Focus Groups ◽  
Continuous Learning ◽  
Senior Leaders ◽  
Content Type ◽  
Focus Group Research ◽  
Senior Leader ◽  
Group Research ◽  
Strategic Role ◽  
Development Initiatives

Purpose The purpose of this paper is to identify the specific practices senior leaders need to engage in to best support their organization’s leadership development initiatives. All organizations invest billions of dollars around the world in leadership development, but there is surprisingly little attention given to the important role that senior leaders play in supporting these efforts. This paper draws upon focus group research with those responsible for designing and implementing leadership development initiatives to identify the strategic role senior leaders play in formal leadership development efforts. Design/methodology/approach To explore this issue, we conducted structured focus groups with over 250 executives, HR leaders and talent managers from over 30 different global organizations. Participants were responsible for leadership development in their respective organizations, averaged 44 years of age, 18 years of work experience, and were 54 per cent men and 46 per cent women. These focus groups were being used to solicit the input of those responsible for leadership development to identify the specific things senior leaders need to do to best support these leadership development efforts. The participants were asked to answer the following question, “Based on your experience, what specific things do senior leaders in your organization need to do to best support your efforts at developing high performance and strong leadership talent?” Findings Focus groups identified a series of key senior leader behaviors that are necessary to support an organization’s leadership development efforts. These findings, included the importance of senior leadership commitment to the process, the identification of specific leadership behaviors necessary to support these initiatives, the requirement of clearly understanding the organizations leadership development process, providing appropriate financial, staffing and technology resources to support these efforts, creating a climate of continuous learning and role modeling appropriate behaviors, among other findings. Research limitations/implications While the focus groups in this research and the subsequent qualitative and quantitative analysis of the findings were rigorous, the participants were not a randomly selected group and were by definition a convenience sample. At the same time, the implications of this research are significant on this important subject and provide a solid baseline for both practitioners and researchers alike to help explore, identify and build on best practices for senior leaders to support organizational leadership development initiatives. Practical implications Leadership is the key to success in any organization. To maintain that success, leadership development and continuous learning is imperative. This paper provides ten specific practices based on the focus group research that can help senior leaders create a more supportive environment for effective leadership development initiatives. The methodology used to identify these factors can be duplicated in other organizations to help them build an appropriate model for senior leader support for leadership development in their enterprise. Social implications The social implications for improving any organizations’ leadership is significant. It is known that effective leaders foster innovation, improve teamwork, create a more positive workplace, drive continuous improvement in quality, reduce turnover and improve the financial performance of most enterprises. With this backdrop, organizations can and must do everything in their power to accelerate leadership development and to engage in activities that do so. This paper will help pinpoint leaders and leadership development researchers and experts in that direction. Originality/value This manuscript offers a unique perspective on the role of senior leaders from the perspective of those who design leadership development programming in their organizations. And given both the readership and focus of this journal, this is an important perspective which takes into account the operational demands of leadership development in the strategic role senior leaders play in supporting these efforts.

scholarly journals A Scoping Review of Qualitative Research Methods Used With People in Prison

2018 ◽  
Vol 17 (1) ◽  
pp. 160940691880382 ◽  
Author(s):  
Penelope Abbott ◽  
Michelle DiGiacomo ◽  
Parker Magin ◽  
Wendy Hu
Keyword(s):  
Qualitative Research ◽  
Focus Group ◽  
Data Collection ◽  
Research Methods ◽  
Scoping Review ◽  
English Language ◽  
Qualitative Interview ◽  
Focus Group Research ◽  
Group Research ◽  
Barriers To Access

Researchers undertaking qualitative interview and focus group research with people in prison must consider the research methods they use, given the ethical and practical complexities of prison-based research. In particular, there are explicit and implicit coercion risks and barriers to access, privacy, and confidentiality. To examine how the challenges of conducting rigorous qualitative research with prisoners were handled, we undertook a scoping review of recruitment and data collection processes reported in qualitative research with prisoners. We searched for peer-reviewed articles of qualitative interview and focus group research with adult prisoners, published in the English language from 2005 to 2017, using MEDLINE, Embase, PsycINFO, and CINAHL databases. There were 142 articles reporting on 126 studies which met the review inclusion criteria. Challenges related to coercion risk, participant recruitment, sampling, confidentiality, privacy, and working with prison-based intermediaries should be explicitly addressed and reported. Our findings highlight key considerations and contextualized strategies for recruitment and data collection for researchers who seek to conduct rigorous and ethical qualitative research with prisoners.

Fostering excellence in business model management in arts and cultural organisations: insights from focus group research across Europe

2018 ◽  
Vol 22 (1) ◽  
pp. 14-30 ◽  
Author(s):  
Daniela Carlucci
Keyword(s):  
Focus Groups ◽  
Business Model ◽  
Value Creation ◽  
Design Methodology ◽  
Business Models ◽  
Model Management ◽  
Financial Health ◽  
Content Type ◽  
Focus Group Research ◽  
Group Research

PurposeIn today’s business landscape, arts and cultural organisations are challenged to search for excellence of their business model management to create and deliver value in a more sustainable way. This study develops exploratory focus groups aimed to capture insights into the practical challenges, wants and needs that arts and cultural organisations across Europe address and face in managing and developing their business models. Design/methodology/approachThe focus groups method has been applied. The methodology included seven focus groups involving arts and cultural organisations operating in different European countries. FindingsThe overall feeling emerging from focus groups is that there is an increasing pressure to prove the value of culture, e.g. economic, social and civic, progressively more in quantitative figures. Arts and cultural organisations are greatly concerned about their financial health, and their ability to continue creating and presenting great arts and cultural events. At the same time, there is an acceptance that gaining financial resilience and sustainability can no longer be put off. Organisations are conscious that it is crucial to rethink their way of operating and to improve their value creation mechanisms to get sustainability. Nevertheless, the challenges to face and issues of change to get a more effective business model management are numerous and various. Originality/valueThe study sheds more light on “business dimensions” perceived by arts and cultural organisations across Europe, as particularly crucial for their survival and requiring proper management attention. In doing this, it offers fresh and valuable knowledge about aspects, factors and dimensions to take into account in the managing business model.

Using Focus Groups to Identify Psychosocial Issues of Urban Black Individuals With Diabetes

1996 ◽  
Vol 22 (1) ◽  
pp. 28-33 ◽  
Author(s):  
ROBERT M. ANDERSON ◽  
PATRICIA A. BARR ◽  
GLORIA J. EDWARDS ◽  
MARTHA M. FUNNELL ◽  
JAMES T. FITZGERALD ◽  
...  
Keyword(s):  
Focus Groups ◽  
Minority Groups ◽  
Healthcare Providers ◽  
Depth Information ◽  
Psychosocial Issues ◽  
Focus Group Research ◽  
Group Research ◽  
Detroit Area ◽  
Educational Videos ◽  
Psychosocial Challenges

The purpose of this focus group research was to identify issues that could serve as topics for a series of educational videos portraying psychosocial issues of urban black individuals with diabetes. Four focus groups involving 34 black adults were conducted in the Detroit area. Psychosocial issues were identified and rated in order of priority by an expert panel. The major psychosocial issues identified were the importance of food and eating in the black culture, the necessity for learning more about diabetes and its complications, learning to interact effectively with healthcare providers and systems, and the need for help and support in managing psychosocial issues related to diabetes. Black individuals with diabetes face unique psychosocial challenges. Focus groups are an effective method for obtaining relevant, culturally specific, in-depth information about living with diabetes from patients who are members of minority groups.

scholarly journals How I Learned to Conduct Focus Groups

2014 ◽  
Author(s):  
Maribel Rio-Roberts
Keyword(s):  
Qualitative Research ◽  
Focus Group ◽  
Focus Groups ◽  
Human Services ◽  
Group Interaction ◽  
Human Experience ◽  
Research Approach ◽  
Focus Group Research ◽  
Group Research ◽  
Research Questions

The use of focus groups may provide researchers with important insights into research questions via participant discussion and interaction. As a human services practitioner and researcher, I became interested in learning how to conduct focus groups in order to apply these steps to my research and gain valuable insights about the human experience that the focus group interaction aims to bring to light. In this review, I will highlight the steps that I took to learn to conduct focus group research and through my experience I hope that readers gain familiarity and clarity into this unique qualitative research approach.

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