scholarly journals Development of a culturally and linguistically sensitive virtual reality educational platform to improve vaccine acceptance within a refugee population: the SHIFA community engagement-public health innovation programme

BMJ Open ◽  
2021 ◽  
Vol 11 (9) ◽  
pp. e051184
Author(s):  
Samantha Streuli ◽  
Najla Ibrahim ◽  
Alia Mohamed ◽  
Manupriya Sharma ◽  
Markie Esmailian ◽  
...  
Keyword(s):  
Virtual Reality ◽  
Community Engagement ◽  
Technology Development ◽  
Community Based Participatory Research ◽  
Educational Programme ◽  
Community Members ◽  
Somali Refugees ◽  
Community Based ◽  
Research Technology ◽  
Refugee Community

ObjectivesTo combat misinformation, engender trust and increase health literacy, we developed a culturally and linguistically appropriate virtual reality (VR) vaccination education platform using community-engaged approaches within a Somali refugee community.DesignCommunity-based participatory research (CBPR) methods including focus group discussions, interviews, and surveys were conducted with Somali community members and expert advisors to design the educational content. Co-design approaches with community input were employed in a phased approach to develop the VR storyline.Participants60 adult Somali refugees and seven expert advisors who specialise in healthcare, autism research, technology development and community engagement.SettingSomali refugees participated at the offices of a community-based organisation, Somali Family Service, in San Diego, California and online. Expert advisors responded to surveys virtually.ResultsWe find that a CBPR approach can be effectively used for the co-design of a VR educational programme. Additionally, cultural and linguistic sensitivities can be incorporated within a VR educational programme and are essential factors for effective community engagement. Finally, effective VR utilisation requires flexibility so that it can be used among community members with varying levels of health and technology literacy.ConclusionWe describe using community co-design to create a culturally and linguistically sensitive VR experience promoting vaccination within a refugee community. Our approach to VR development incorporated community members at each step of the process. Our methodology is potentially applicable to other populations where cultural sensitivities and language are common health education barriers.

scholarly journals Aiming for Sustainability and Scalability: Community Engagement in Forest Payment Schemes

Forests ◽  
2020 ◽  
Vol 11 (4) ◽  
pp. 444
Author(s):  
Laura F. Kowler ◽  
Arun Kumar Pratihast ◽  
Alonso Pérez Ojeda del Arco ◽  
Anne M. Larson ◽  
Christelle Braun ◽  
...  
Keyword(s):  
Community Engagement ◽  
Indigenous Communities ◽  
Forest Degradation ◽  
Forest Monitoring ◽  
Climate Mitigation ◽  
Transfer Program ◽  
Community Members ◽  
Community Based ◽  
Community Monitoring ◽  
Payment Schemes

Community-based forest monitoring is seen as a way both to improve community engagement and participation in national environmental payment schemes and climate mitigation priorities and to implement reducing emissions from deforestation and forest degradation and foster conservation, sustainable management of forests and enhancement of forest carbon stocks in developing countries (REDD+). There is a strong assumption among community-based monitoring advocates that community monitoring is a desirable approach. However, it is unclear why community members would want to participate in their own surveillance or be involved in a program likely to limit livelihood uses of forest areas and possibly even sanction them based on the data provided. This paper explores these issues by examining three communities involved in Peru’s Conditional Direct Transfer Program, in which indigenous communities are compensated for protecting communal forests through various mechanisms, including forest monitoring. The case studies focus specifically on communities that received smartphones and were trained in their use for monitoring. The results affirm the importance that benefits outweigh the costs of local participation to sustain motivation. They also point to key factors supporting the legitimacy of the program, specifically to overcome historical tensions between the state and indigenous communities. These include the nature of engagement by program implementers and the importance of building trust over time.

Community-Based Participatory Research

2013 ◽  
Author(s):  
Tracey Marie Barnett
Keyword(s):  
Action Research ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Collaborative Action Research ◽  
Participatory Action ◽  
Community Members ◽  
Community Based ◽  
Community Based Research ◽  
Partnership Approach

Community-based participatory research (CBPR) embraces a partnership approach to research that equitably involves community members, organizational representatives, social workers, and researchers in all aspects of the research process. CBPR begins with a research topic of importance to the community and has the aim of combining knowledge with action and achieving social change. It is community based in the sense that community members become part of the research team and researchers become engaged in the activities of the community. Community–researcher partnerships allow for a blending of values and expertise, promoting co-learning and capacity building among all partners, and integrating and achieving a balance between research and action for the mutual benefit of all partners. Various terms have been used to describe this research, including participatory action research (PAR), action research (AR), community based research (CBR), collaborative action research (CAR), anti-oppressive research, and feminist research.

Grounded in Culture: Reflections on Sitting Outside the Circle in Community-Based Research With Indigenous Men

2020 ◽  
Vol 30 (14) ◽  
pp. 2343-2350
Author(s):  
Candice M. Waddell ◽  
Rachel V. Herron ◽  
Jason Gobeil ◽  
Frank Tacan ◽  
Margaret De Jager ◽  
...  
Keyword(s):  
Mental Health ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Power Dynamics ◽  
Indigenous Research ◽  
Community Members ◽  
Community Based ◽  
Community Based Research ◽  
Research Paradigms ◽  
Reflexive Practice

Research continues to be a dirty word for many Indigenous people. Community-based participatory research (CBPR) is a means to disrupt power dynamics by engaging community members within the research process. However, the majority of relationships between researcher and participants within CBPR are structured within Western research paradigms and they often reproduce imbalances of power. The purpose of this article is to reflect on the process of CBPR within a research project focused on Indigenous men’s masculinity and mental health. In doing so, we aim to contribute to reflexive practice in CBPR and flatten research hierarchies to facilitate more equitable knowledge sharing. Our reflections highlight the importance of prioritizing healing, centering cultural protocols, negotiating language, and creating space for Indigenous research partners to lead. These critical lessons challenge Western researchers to ground their practices in Indigenous culture while they “sit outside the circle” to facilitate more equitable and engaged partnerships.

scholarly journals TAPPING NATURAL NETWORKS TO ADDRESS DEMENTIA IN A LATINO COMMUNITY

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S583-S584
Author(s):  
Caroline Gelman ◽  
Nancy Giunta
Keyword(s):  
Older Adults ◽  
Community Based Participatory Research ◽  
Tailored Intervention ◽  
Community Members ◽  
Community Based ◽  
Marginalized Communities ◽  
East Harlem ◽  
Latino Community ◽  
Culturally Tailored ◽  
Lack Of Information

Abstract The need for health education regarding Alzheimer’s disease and related dementias (ADRD), specifically designed for Latinos, has been well-documented. Many Latino older adults and their families delay seeking formal help for ADRD symptoms due to lack of information and access to culturally sensitive services. This paper presents preliminary findings of community-based participatory research to develop El Barrio SHARE, a culturally-tailored intervention tapping natural helpers (NHs) to address a need identified by community members in East Harlem, NY. It trains people who often interact with elders in the course of their work (e.g., hairdressers, bodega clerks), and are well-positioned to observe and detect ADRD-related problems and potentially link elders to relevant services. Findings from a process evaluation developing the 10-module NH training suggest that (a) participants seek information that debunks myths and stigma surrounding ADRD, and (b) the need for culturally-tailored, participant-centered interventions in marginalized communities is critical.

When the R and the CBP Clash: Research in Schools

2007 ◽  
Vol 29 (3) ◽  
pp. 22-26
Author(s):  
Sara Curtin-Mosher ◽  
Elizabeth Leo
Keyword(s):  
High Schools ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Community Members ◽  
Community Based ◽  
University Of Arizona ◽  
Ambos Nogales ◽  
The University ◽  
The Relationship

This paper speaks to a potential dilemma between the R and the CBP of Community Based Participatory Research (CBPR) within the context of a partnership called the Asociación de Reforestación de Ambos Nogales (ARAN). We focus on the relationship between students and educators from the University of Arizona (UA) and two high schools from Nogales, Sonora, Mexico that constitute part of this organization. ARAN has been influenced by but not restricted to a framework of CBPR where community members and academics engage in all aspects of research.

scholarly journals Towards a Better Future for Canadians with Bipolar Disorder: Principles and Implementation of a Community-Based Participatory Research Model

2015 ◽  
Vol 1 (1) ◽  
Author(s):  
Erin E. Michalak ◽  
Kathleen Lane ◽  
Rachelle Hole ◽  
Steven J. Barnes ◽  
Nasreen Khatri ◽  
...  
Keyword(s):  
Bipolar Disorder ◽  
Participatory Research ◽  
Knowledge Exchange ◽  
Community Based Participatory Research ◽  
Psychosocial Interventions ◽  
Community Members ◽  
Community Based ◽  
Services And Supports ◽  
Health Field

The Collaborative RESearch Team to study psychosocial factors in bipolar disorder (CREST.BD) is a multidisciplinary network dedicated to advancing science and practice around psychosocial issues associated with bipolar disorder (BD), improving the care and wellness of people living with bipolar disorder, and strengthening services and supports for these individuals. CREST.BD specializes in community-based participatory research, in which research is conducted as a partnership between researchers and community members. This article describes the evolution of the CREST.BD network and CREST.BD’s commitment to community-based participatory research in bipolar disorder research. Examples of CREST.BD projects using community-based participatory research to study stigma, quality of life, psychosocial interventions, and creativity in bipolar disorder are highlighted, and opportunities and challenges of engaging in community-based participatory research in bipolar disorder specifically and the mental health field more broadly are discussed. This article demonstrates how CBPR can be used to enhance the relevance of research practices and products through community engagement, and how community-based participatory research can enrich knowledge exchange and mobilization. 

scholarly journals Catalyzing Action on First Nations Respiratory Health Using Community-based Participatory Research: Integrated Knowledge Translation through Strategic Symposia

2017 ◽  
Vol 2 (1) ◽  
pp. 57-70
Author(s):  
Tarun Reddy Katapally ◽  
Sylvia Abonyi ◽  
Jo-Ann Episkenew ◽  
Vivian Ramsden ◽  
Chandima Karunanayake ◽  
...  
Keyword(s):  
Knowledge Translation ◽  
First Nations ◽  
Participatory Research ◽  
Respiratory Health ◽  
Community Based Participatory Research ◽  
Integrated Knowledge Translation ◽  
Community Members ◽  
Community Based ◽  
Nations Community ◽  
Integrated Knowledge

 Assess, Redress, Re-assess: Addressing Disparities in Respiratory Health Among First Nations is an ongoing community-based participatory research initiative involving two First Nations communities in Saskatchewan. The initiative’s rationale is grounded in the ethos of transformative community-based participatory research and facilitated through integrated knowledge translation with the aim of building community capacity. The initiative’s goal was to engage community members to actively participate in all research phases, from the development of the research questions to dissemination of results and evaluation of community-chosen interventions that evolved from the results. After baseline assessment of predictors and indicators of respiratory health, a program of integrated knowledge translation was adopted. As part of this program, a community-researcher collaboration was put in place that produced two knowledge translation symposia. The two symposia have brought together First Nations community members, interdisciplinary researchers, federal and provincial policy makers, and multiple Aboriginal organizational stakeholders. The symposia provided a pathway for knowledge synthesis and sharing to ultimately integrate knowledge into practice and enable First Nations’ community capacity building in addressing and redressing critical respiratory health issues. This article delineates the processes involved in developing this model of integrated knowledge translation and highlights the continuing engagement with the participating communities supported by Knowledge Translation (KT) Symposia.

Overcoming Barriers: Practical Strategies to Assess Latinos Living in Low-Income Communities

2019 ◽  
Vol 21 (3) ◽  
pp. 355-362 ◽  
Author(s):  
Alejandra Calva ◽  
Rebecca A. Matthew ◽  
Pamela Orpinas
Keyword(s):  
Data Collection ◽  
Participatory Research ◽  
Low Income ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Community Members ◽  
Community Based ◽  
Leverage Points ◽  
Communities Of Interest ◽  
Health And Well Being

The value of community assessments depends on the researchers’ ability to reach a diverse and representative sample of participants. This process is particularly challenging when assessing the health and well-being of vulnerable populations that are reticent to participate in research because of demographic and sociopolitical factors. One such group is Latinxs (the gender-neutral version of Latinos or Latinas) of mixed immigration status who live in low-income, socially and geographically isolated enclaves in the Southeast. Framed by community-based participatory research and social marketing theories, this study describes practical strategies for health researchers, practitioners, and advocates seeking to engage and build trusting relationship within U.S. Latinx communities. First, identify and leverage points of entry to different segments of the communities of interest by engaging meaningful gatekeepers from different sections of the population and searching for places where potential participants gather. Second, reduce the burden of assessments by using incentives and creating intentional reciprocity. Third, establish critical, long-lasting trust with community members, leaders, and allies by adapting data collection procedures, ensuring confidentiality, engaging bilingual facilitators, and most important, being present with and for the community. Finally, presenting the findings back to the community can increase the ownership of the process.

Photovoice as a Pedagogical Tool to Increase Research Literacy Among Community Members

2017 ◽  
Vol 4 (2) ◽  
pp. 108-114 ◽  
Author(s):  
Goldie Komaie ◽  
Keon L. Gilbert ◽  
Cassandra Arroyo ◽  
Melody S. Goodman
Keyword(s):  
Qualitative Methods ◽  
Community Based Participatory Research ◽  
Community Research ◽  
Community Members ◽  
Community Based ◽  
Pedagogical Tool ◽  
Saint Louis ◽  
Research Literacy ◽  
Health Related Research ◽  
Session Evaluations

Photovoice is a community-based participatory research method that engages individuals to use photographs to reflect on the strengths and issues affecting their community as well as advocate for positive change. This article presents using photovoice as a pedagogical tool to introduce qualitative research methods to community members enrolled in the 15-week Community Research Fellows Training Program in Saint Louis, Missouri. Seventy-eight community members across two cohorts completed individual homework assignments examining social capital and health. Completed assignments were categorized into six general themes and participants took part in facilitated small group discussions by theme. Pre- and posttest surveys were completed; statistically significant improvements were seen in participants’ knowledge of qualitative methods. On a scale of 1 to 5, participants rated the qualitative methods session positively with an overall score of 4.48 (Cohort I) and 4.80 (Cohort II). Qualitative data from session evaluations and exit interviews illustrate completing a photovoice project served as a “powerful” and “insightful” experience that enhanced experiential learning and engaged participants in health-related research in their communities. Participants’ positive session evaluations and increased knowledge of qualitative methods suggest that photovoice is an effective pedagogical tool to increase research literacy among community members. Opportunities to broadly train community members, especially those that are not part of a single community-based organization, may help build broader community capacity and as such strengthen community–academic partnerships.

Interpartner Violence Among Latinos: Community Perceptions on Help Seeking and Needed Programs

Partner Abuse ◽  
2013 ◽  
Vol 4 (3) ◽  
pp. 356-379 ◽  
Author(s):  
Mariana K. Falconier ◽  
Eric McCollum ◽  
Jennifer Austin ◽  
Monica Wainbarg ◽  
Gianina Hasburn ◽  
...  
Keyword(s):  
Cultural Values ◽  
Partner Violence ◽  
Help Seeking ◽  
Community Based Participatory Research ◽  
Research Approach ◽  
Culturally Competent ◽  
Community Members ◽  
Community Based ◽  
Help Seeking Behaviors ◽  
Female Community

Applying a community-based participatory research approach and with the aim of developing a culturally competent program to reduce intimate partner violence (IPV) in the Latino population, 3 focus groups were conducted with Latino health promoters and male and female community members. Thematic analysis was used to analyze the qualitative data collected on help-seeking behaviors and needed programs for IPV. Results reflect the need for more prevention and intervention programs that are consistent with Latinos’ cultural values such as their strong family and spiritual orientations. Limitations of the study are also addressed.

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