P4-14-03: Support Groups in Breast Cancer: An Evidence Based Assessment of 1606 Patients with Concerning Topics for Support Group Discussion and Presentation.

2011 ◽  
Author(s):  
RJ Gralla ◽  
KD Morse ◽  
CN Rittenberg ◽  
JA Petersen ◽  
LM Rosen ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Support Groups ◽  
Support Group ◽  
Group Discussion ◽  
Evidence Based

scholarly journals Participating in a support group: experience lived by women with breast cancer

2008 ◽  
Vol 16 (4) ◽  
pp. 733-738 ◽  
Author(s):  
Cleoneide Paulo Oliveira Pinheiro ◽  
Raimunda Magalhães da Silva ◽  
Marli Villela Mamede ◽  
Ana Fátima Carvalho Fernandes
Keyword(s):  
Breast Cancer ◽  
Breast Carcinoma ◽  
Support Groups ◽  
Support Group ◽  
Well Being ◽  
Self Esteem ◽  
Structured Interviews ◽  
The City ◽  
Group Experience ◽  
Differentiated Care

The goal of the study was to understand the meaning of support groups in the life of women with breast cancer. It is a qualitative study with 30 mastectomized women who belonged to six support groups in the city of Fortaleza, Ceará. Data were collected with semi-structured interviews, organized and analyzed based on the interactionism concept. The results characterized the support groups as a mechanism to cope with the situation and to overcome the suffering derived from the diagnosis and treatment of the breast carcinoma. The socialization of the experiences facilitated the search for assistance in the support groups, since sharing the problems with mastectomized women was a way to preserve a high self-esteem, have faith and overcome some difficulties. Participating in the group provided well-being and a differentiated care, since it was considered a way to know, accept and understand the disease and its cure, facilitating the socialization of ideas.

scholarly journals Unmet Supportive Care Needs among Breast Cancer Survivors of Community-Based Support Group in Kuching, Sarawak

2016 ◽  
Vol 2016 ◽  
pp. 1-9 ◽  
Author(s):  
Emmanuel Joseph Fong ◽  
Whye Lian Cheah
Keyword(s):  
Breast Cancer ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Support Groups ◽  
Support Group ◽  
Breast Cancer Survivors ◽  
Unmet Needs ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Community Based

Background.Recognizing the needs of cancer survivors is one of the important aspects in healthcare delivery. This study aimed to determine the prevalence of unmet supportive care needs and its associated factors among the breast cancer survivors of community-based support group in Kuching, Sarawak.Materials and Methods.This was a cross-sectional study using Supportive Care Needs Survey (SCNS-SF34). All the members of community-based breast cancer support groups in Kuching were invited. A total of 101 respondents were face-to-face interviewed after the consent was obtained. Data was entered and analyzed using SPSS version 20.Results.The respondents endorsedhealth system and informationdomain with the highest mean score (2.48; 95% CI: 2.32–2.64). Top 10 items with “moderate to high” level unmet needs had a prevalence of 14.9% to 34.7% of respondents indicating need. Significantly higher level of unmet needs was associated with survivors who were younger (less than 60 years old), had higher education attainment, were unemployed, had survival duration of up to 5 years, and were undergoing active treatment.Conclusion. Systematic delivery of health information which is targeted, culturally sensitive, and linguistically appropriate for addressing younger age, education level, employment status, length of survivorship, and treatment stage should be considered not only at hospital-based setting but also at the community-based support groups.

Mutual Support Groups With Parents of Leukemic Children

PEDIATRICS ◽  
1974 ◽  
Vol 54 (1) ◽  
pp. 117-118
Author(s):  
Jacqueline Lambi
Keyword(s):  
Los Angeles ◽  
Support Groups ◽  
Support Group ◽  
Group Discussion ◽  
University Hospital ◽  
Similar Group ◽  
Mutual Support ◽  
Pediatric Department ◽  
Mutual Support Groups ◽  
Excellent Article

Having read the article, "Group Discussion With the Parents of Leukemic Children," by Heffron et al. (Pediatrics, 52:831, 1973) with great interest, I would like to suggest that similar group meetings are being held at other centers. I draw to your attention the excellent article, "Helping the Parents of Children With Leukemia," by Knapp and Hansen, Children's Hospital of Los Angeles (Social Work, Vol. 18, No. 4, July 1973). Dr. Brian McSheffrey and I, through our contact with leukemic children in the Pediatric Department of University Hospital, Saskatoon, Saskatchewan, Canada, have been experimenting with mutual support group for parents of leukemic children since November 1971.

Analyzing Knowledge Construction in Online Health Group Discussion

2017 ◽  
Vol 16 (01) ◽  
pp. 1750009
Author(s):  
Achmad Ghazali ◽  
Alexei Tretiakov ◽  
Dematria Pringgabayu ◽  
Dany Muhammad Athory Ramdlany
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Knowledge Construction ◽  
Information Quality ◽  
Group Discussion ◽  
Active Role ◽  
Online Discussions ◽  
Health Related ◽  
Health Support ◽  
Information Integrity

The ongoing transition to the patient-centred healthcare paradigm suggests that patients adopt an active role in managing their health conditions. As a result, the Internet is becoming an important source of health-related information. Internet-based health support groups allow patients to access diverse information relevant to their particular situation by participating in online discussions. The quality of such information may have effects on the patients’ health outcomes. The purpose of the present study was to investigate the effects of knowledge construction in health support group online discussions on perceived information quality, information quality from the perspective of information consumers, and on information integrity, that is, validity from the point of view of the current state of scientific knowledge. It was hypothesised that knowledge construction results in better perceived information quality and in higher information integrity. A health support group online discussion site devoted to weight management was used as a source of data. Quantitative content analysis was used with a discussion thread as a unit of analysis. Based on the findings, the study suggested that moderators of health support group online discussions should promote explicitation or lower level knowledge construction by encouraging clarifications and refinements of health-related recommendations. Moreover, participation of qualified health practitioners is desirable to promote health-related behaviours based on evidence-based knowledge and to expose recommendations that have uncertain or even dangerous effects.

Online video support group pilot: Connecting young women diagnosed with breast cancer.

2015 ◽  
Vol 33 (28_suppl) ◽  
pp. 113-113
Author(s):  
Nicole Anne Taylor ◽  
Michelle Esser ◽  
Lori Atkinson ◽  
Medha Sutliff ◽  
Christina Stephens ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Support Groups ◽  
Support Group ◽  
Young Women ◽  
Program Implementation ◽  
Breast Cancer Survivors ◽  
Text Message ◽  
Metastatic Breast ◽  
Online Video ◽  
Young Breast Cancer

113 Background: Young Survival Coalition (YSC) is the premier global organization dedicated to the critical issues unique to young women and breast cancer. Young breast cancer survivors (YBCS) have a strong desire to connect in-person with other young survivors although location, timing of meetings and illness can deter in-person meetings. YSC sought to create a programmatic initiative where YBCS can connect online through video to “see” and support each other as well as reduce a sense of isolation. Methods: YSC initiated an 8 month online video support group pilot, with six groups meeting monthly. Two groups focused on specific populations: under age 30; and YBCS with metastatic breast cancer. A YSC staff person provided technology support at the start of each meeting. A paid facilitator or a peer volunteer led each meeting. A variety of technology platforms were tested, with “GoToMeeting” being the most reliable and the most commonly used. Results: Approximately 29 YBCS participated regularly across the six groups. Post-meeting and post-pilot evaluations were strongly positive. Eighty percent felt their concerns were addressed during the meetings and being able to “see” other YBCS helped to build community and add to the support received. The top reason for participating in the support group was to connect with other YBCS (70%). The topics of most interest were sex and intimacy and anxiety (tied) followed by discussion of side effects. A little over half of the respondents (54%) reported wanting a facilitator to lead the groups instead of a peer. Seventy-three percent said they would participate in online video support groups again if offered. A text message reminder of the upcoming support group meeting, received a day prior to the meeting, was preferred over email. Conclusions: YSC’s online video support group program is a viable and innovative method of connecting YBCS, by providing the opportunity to give and receive support in the comfort of their own home. This pilot provided YSC the information needed to move into a second stage of program implementation and evaluation.

scholarly journals From Diagnosis to Survivorship: Using Cancer Support Group as an Advocacy and Support Tool for Cancer Care

2018 ◽  
Vol 4 (Supplement 3) ◽  
pp. 32s-32s
Author(s):  
Gloria M. Orji ◽  
Runcie C.W. Chidebe ◽  
Chuks Igbokwe ◽  
Khadijat Banwo-Fatai ◽  
Swatkasa Gimba ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Health Care ◽  
Peer Support ◽  
Support Groups ◽  
Support Group ◽  
Cancer Care ◽  
Patients With Cancer ◽  
Cancer Support ◽  
Cancer Support Groups ◽  
Cancer Support Group

Purpose Cancer diagnosis comes with many challenges. Diagnosis is a huge burden to the patient, family, and community that subjects them to financial crisis, emotional distress, a dearth of self-esteem, and physiologic deformations. From a patient’s perspective, the treatment of cancer is complex and complicated with a weak health care system, attitude of health care workers, lack of insurance, lack of trust in orthodox medicine, and stigmatization. Patients with cancer are constantly seeking solace, people to listen to them, and people who understand their state of mind and can be a source of inspiration. Studies have shown that peer cancer support groups result in psychological benefit and improve relationships. The 2016 World Cancer Congress patient’s pavilion inspired us to start cancer support group for patients with cancers, survivors, and caregivers, known as the Abuja Breast Cancer Support Group, through the Union for International Cancer Control SPARC Metastatic Breast Cancer Challenge project. The cancer support group was primarily founded for only patients with breast cancer, survivors, caregivers, and for peer support. As of today the group has transitioned from being a patient group to also being an advocacy group with a number of activities and programs that are aimed at guiding all patients with cancer from diagnosis to survivorship. Methods This study reviewed the 1 year activities of the Abuja Breast Cancer Support Group and surveyed the impact of peer support on the 36 members of the group using a mixed-methods approach. Results Cancer support groups have the potential to revolutionize cancer care in sub-Saharan Africa, as we have seen with HIV/AIDs support groups. Use of technological tools is helpful to build connectedness. Conclusion There was an improvement in the psychological states of patients as well as in their physiologic understanding of their diagnosis by meeting together, networking, and interacting through a WhatsApp group. Our qualitative findings also indicate that patients with cancer need platforms through which to speak out, to advocate, and to change the course of cancer care if provided with the necessary training and support. AUTHORS' DISCLOSURES OF POTENTIAL CONFLICTS OF INTEREST The following represents disclosure information provided by authors of this manuscript. All relationships are considered compensated. Relationships are self-held unless noted. I = Immediate Family Member, Inst = My Institution. Relationships may not relate to the subject matter of this manuscript. For more information about ASCO's conflict of interest policy, please refer to www.asco.org/rwc or ascopubs.org/jco/site/ifc . No COIs from the authors.

scholarly journals Breast cancer and support group in the life of mastectomized women

2015 ◽  
Vol 28 (3) ◽  
pp. 597-602
Author(s):  
Elisa da Luz Adorna ◽  
Elhane Glass Morari-Cassol ◽  
Nara Maria Severo Ferraz
Keyword(s):  
Breast Cancer ◽  
Support Groups ◽  
Support Group ◽  
Descriptive Study ◽  
Group Data ◽  
Qualitative Descriptive

AbstractObjectives To identify the importance of participation in support groups for mastectomized women’s recovery and their knowledge about this type of cancer.Material and methods Qualitative descriptive study with ten mastectomized women participants of the “Reborn” (“Renascer”, in portuguese) support group. Data were collected by means of interviews, using a questionnaire prepared by the researcher as an instrument. The data collected were then qualitatively analyzed according to the systematization proposed by Minayo (4).Results Six categories were identified. This study addressed the knowledge of the participants on breast cancer and their participation in the support group.Conclusion A change of concepts and ideas about cancer in the interviewed women was identified, as well as the importance of information and explanation about this cancer, its treatment and consequences for the patient. The relevance of the support group in these women’s recovery is also noteworthy, due to the opportunity of socializing with other people with similar stories.

Group Experiences and Individual Differences in Stuttering

2019 ◽  
Vol 62 (12) ◽  
pp. 4335-4350 ◽  
Author(s):  
Seth E. Tichenor ◽  
J. Scott Yaruss
Keyword(s):  
Individual Differences ◽  
Support Groups ◽  
Support Group ◽  
Affective States ◽  
Life Outcomes ◽  
Self Help ◽  
Wide Range ◽  
Group Experiences ◽  
History Of ◽  
Adults Who Stutter

Purpose This study explored group experiences and individual differences in the behaviors, thoughts, and feelings perceived by adults who stutter. Respondents' goals when speaking and prior participation in self-help/support groups were used to predict individual differences in reported behaviors, thoughts, and feelings. Method In this study, 502 adults who stutter completed a survey examining their behaviors, thoughts, and feelings in and around moments of stuttering. Data were analyzed to determine distributions of group and individual experiences. Results Speakers reported experiencing a wide range of both overt behaviors (e.g., repetitions) and covert behaviors (e.g., remaining silent, choosing not to speak). Having the goal of not stuttering when speaking was significantly associated with more covert behaviors and more negative cognitive and affective states, whereas a history of self-help/support group participation was significantly associated with a decreased probability of these behaviors and states. Conclusion Data from this survey suggest that participating in self-help/support groups and having a goal of communicating freely (as opposed to trying not to stutter) are associated with less negative life outcomes due to stuttering. Results further indicate that the behaviors, thoughts, and experiences most commonly reported by speakers may not be those that are most readily observed by listeners.

Stuttering-Related Podcasts: Audio-Based Self-Help for People Who Stutter

2020 ◽  
Vol 5 (5) ◽  
pp. 1131-1138
Author(s):  
Lauren E. Dignazio ◽  
Megan M. Kenny ◽  
Erik X. Raj ◽  
Kyle D. Pelkey
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Online Survey ◽  
Multiple Choice ◽  
Speech Language Pathologists ◽  
Group Leaders ◽  
Self Help ◽  
Group Members

Purpose It is known that people who stutter (PWS) benefit from self-help experiences, such as attending support groups or conferences. However, limited research has been done to explore the listening of stuttering-related podcasts as a form of self-help for PWS. This study seeks to understand the reasons why PWS listen to stuttering-related podcasts and provide descriptions of their listening experiences. Method Thirty-three PWS who have listened to stuttering-related podcasts were recruited to participate in an online survey that included multiple-choice and open-ended questions. Responses were analyzed and grouped into descriptive themes. Results Participants reported listening to stuttering-related podcasts as a way to gain information and perspective. They also reported experiences that fit themes of empowerment and camaraderie, as a result of listening. Conclusions Stuttering-related podcasts seem to be a positive self-help tool for PWS. Stuttering support group leaders and/or speech-language pathologists may consider introducing their group members or clients who stutter to this type of audio-based self-help experience.

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