scholarly journals Breast cancer and support group in the life of mastectomized women

2015 ◽  
Vol 28 (3) ◽  
pp. 597-602
Author(s):  
Elisa da Luz Adorna ◽  
Elhane Glass Morari-Cassol ◽  
Nara Maria Severo Ferraz
Keyword(s):  
Breast Cancer ◽  
Support Groups ◽  
Support Group ◽  
Descriptive Study ◽  
Group Data ◽  
Qualitative Descriptive

AbstractObjectives To identify the importance of participation in support groups for mastectomized women’s recovery and their knowledge about this type of cancer.Material and methods Qualitative descriptive study with ten mastectomized women participants of the “Reborn” (“Renascer”, in portuguese) support group. Data were collected by means of interviews, using a questionnaire prepared by the researcher as an instrument. The data collected were then qualitatively analyzed according to the systematization proposed by Minayo (4).Results Six categories were identified. This study addressed the knowledge of the participants on breast cancer and their participation in the support group.Conclusion A change of concepts and ideas about cancer in the interviewed women was identified, as well as the importance of information and explanation about this cancer, its treatment and consequences for the patient. The relevance of the support group in these women’s recovery is also noteworthy, due to the opportunity of socializing with other people with similar stories.

scholarly journals Participating in a support group: experience lived by women with breast cancer

2008 ◽  
Vol 16 (4) ◽  
pp. 733-738 ◽  
Author(s):  
Cleoneide Paulo Oliveira Pinheiro ◽  
Raimunda Magalhães da Silva ◽  
Marli Villela Mamede ◽  
Ana Fátima Carvalho Fernandes
Keyword(s):  
Breast Cancer ◽  
Breast Carcinoma ◽  
Support Groups ◽  
Support Group ◽  
Well Being ◽  
Self Esteem ◽  
Structured Interviews ◽  
The City ◽  
Group Experience ◽  
Differentiated Care

The goal of the study was to understand the meaning of support groups in the life of women with breast cancer. It is a qualitative study with 30 mastectomized women who belonged to six support groups in the city of Fortaleza, Ceará. Data were collected with semi-structured interviews, organized and analyzed based on the interactionism concept. The results characterized the support groups as a mechanism to cope with the situation and to overcome the suffering derived from the diagnosis and treatment of the breast carcinoma. The socialization of the experiences facilitated the search for assistance in the support groups, since sharing the problems with mastectomized women was a way to preserve a high self-esteem, have faith and overcome some difficulties. Participating in the group provided well-being and a differentiated care, since it was considered a way to know, accept and understand the disease and its cure, facilitating the socialization of ideas.

scholarly journals Unmet Supportive Care Needs among Breast Cancer Survivors of Community-Based Support Group in Kuching, Sarawak

2016 ◽  
Vol 2016 ◽  
pp. 1-9 ◽  
Author(s):  
Emmanuel Joseph Fong ◽  
Whye Lian Cheah
Keyword(s):  
Breast Cancer ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Support Groups ◽  
Support Group ◽  
Breast Cancer Survivors ◽  
Unmet Needs ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Community Based

Background.Recognizing the needs of cancer survivors is one of the important aspects in healthcare delivery. This study aimed to determine the prevalence of unmet supportive care needs and its associated factors among the breast cancer survivors of community-based support group in Kuching, Sarawak.Materials and Methods.This was a cross-sectional study using Supportive Care Needs Survey (SCNS-SF34). All the members of community-based breast cancer support groups in Kuching were invited. A total of 101 respondents were face-to-face interviewed after the consent was obtained. Data was entered and analyzed using SPSS version 20.Results.The respondents endorsedhealth system and informationdomain with the highest mean score (2.48; 95% CI: 2.32–2.64). Top 10 items with “moderate to high” level unmet needs had a prevalence of 14.9% to 34.7% of respondents indicating need. Significantly higher level of unmet needs was associated with survivors who were younger (less than 60 years old), had higher education attainment, were unemployed, had survival duration of up to 5 years, and were undergoing active treatment.Conclusion. Systematic delivery of health information which is targeted, culturally sensitive, and linguistically appropriate for addressing younger age, education level, employment status, length of survivorship, and treatment stage should be considered not only at hospital-based setting but also at the community-based support groups.

Experiences of Occupational Performance in Survivors of Stroke Attending Peer Support Groups

2020 ◽  
Vol 87 (3) ◽  
pp. 173-181
Author(s):  
Sachindri Wijekoon ◽  
Whitney Wilson ◽  
Nicolette Gowan ◽  
Ludmilla Ferreira ◽  
Chetan Phadke ◽  
...  
Keyword(s):  
Problem Solving ◽  
Peer Support ◽  
Support Groups ◽  
Support Group ◽  
Peer Groups ◽  
Occupational Performance ◽  
Structured Interviews ◽  
Peer Support Group ◽  
Group Data ◽  
Environmental Isolation

Background. Survivors of stroke often experience environmental isolation and decreased occupational performance after discharge from the hospital. Peer groups benefit psychological, social, and cognitive functioning, though few studies have examined their influence on occupational performance of survivors of stroke. Purpose. This study explores the experiences of occupational performance in survivors of stroke attending an outpatient peer support group. Method. An interpretive qualitative study using semi-structured interviews was conducted with seven survivors of stroke attending an outpatient peer support group. Data was thematically analyzed. Findings. Four themes related to the experience of peer support on occupational performance emerged: finding hope to return to meaningful occupation, a place for belonging, problem-solving occupational concerns, and finding purpose beyond oneself. Implications. This research adds to the existing literature that peer support groups help survivors of stroke reengage in meaningful occupations, manage their stroke experience, and move positively through recovery.

scholarly journals Transition to exclusive palliative care for women with breast cancer

2021 ◽  
Vol 74 (5) ◽  
Author(s):  
Audrei Castro Telles ◽  
Paulo Alexandre de Souza São Bento ◽  
Marléa Crescêncio Chagas ◽  
Ana Beatriz Azevedo de Queiroz ◽  
Nair Caroline Cavalcanti de Mendonça Bittencourt ◽  
...  
Keyword(s):  
Public Health ◽  
Breast Cancer ◽  
Palliative Care ◽  
Human Resources ◽  
Health Professionals ◽  
End Of Life Care ◽  
Descriptive Study ◽  
Physical Structure ◽  
Life Care ◽  
Qualitative Descriptive

ABSTRACT Objective: to analyze the perspectives that affect the transition to exclusive palliative care for women with breast cancer. Methods: qualitative, descriptive study, carried out in a public health institution in Rio de Janeiro, Brazil, between December 2018 and May 2019. 28 health professionals were interviewed. Content analysis was used in the thematic modality. Results: the operational difficulties were linked to the fragmented physical structure, the late and unplanned nature of the referral, the ineffective communication, and the deficit of human resources. In general, women and family members resist referral because they do not know palliative care. There is no consensus among oncologists on the most appropriate time to stop systemic therapy for disease control. Final considerations: the perceived difficulties configure an abrupt referral, accompanied by false hopes and, often, limited to end-of-life care.

Online video support group pilot: Connecting young women diagnosed with breast cancer.

2015 ◽  
Vol 33 (28_suppl) ◽  
pp. 113-113
Author(s):  
Nicole Anne Taylor ◽  
Michelle Esser ◽  
Lori Atkinson ◽  
Medha Sutliff ◽  
Christina Stephens ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Support Groups ◽  
Support Group ◽  
Young Women ◽  
Program Implementation ◽  
Breast Cancer Survivors ◽  
Text Message ◽  
Metastatic Breast ◽  
Online Video ◽  
Young Breast Cancer

113 Background: Young Survival Coalition (YSC) is the premier global organization dedicated to the critical issues unique to young women and breast cancer. Young breast cancer survivors (YBCS) have a strong desire to connect in-person with other young survivors although location, timing of meetings and illness can deter in-person meetings. YSC sought to create a programmatic initiative where YBCS can connect online through video to “see” and support each other as well as reduce a sense of isolation. Methods: YSC initiated an 8 month online video support group pilot, with six groups meeting monthly. Two groups focused on specific populations: under age 30; and YBCS with metastatic breast cancer. A YSC staff person provided technology support at the start of each meeting. A paid facilitator or a peer volunteer led each meeting. A variety of technology platforms were tested, with “GoToMeeting” being the most reliable and the most commonly used. Results: Approximately 29 YBCS participated regularly across the six groups. Post-meeting and post-pilot evaluations were strongly positive. Eighty percent felt their concerns were addressed during the meetings and being able to “see” other YBCS helped to build community and add to the support received. The top reason for participating in the support group was to connect with other YBCS (70%). The topics of most interest were sex and intimacy and anxiety (tied) followed by discussion of side effects. A little over half of the respondents (54%) reported wanting a facilitator to lead the groups instead of a peer. Seventy-three percent said they would participate in online video support groups again if offered. A text message reminder of the upcoming support group meeting, received a day prior to the meeting, was preferred over email. Conclusions: YSC’s online video support group program is a viable and innovative method of connecting YBCS, by providing the opportunity to give and receive support in the comfort of their own home. This pilot provided YSC the information needed to move into a second stage of program implementation and evaluation.

scholarly journals From Diagnosis to Survivorship: Using Cancer Support Group as an Advocacy and Support Tool for Cancer Care

2018 ◽  
Vol 4 (Supplement 3) ◽  
pp. 32s-32s
Author(s):  
Gloria M. Orji ◽  
Runcie C.W. Chidebe ◽  
Chuks Igbokwe ◽  
Khadijat Banwo-Fatai ◽  
Swatkasa Gimba ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Health Care ◽  
Peer Support ◽  
Support Groups ◽  
Support Group ◽  
Cancer Care ◽  
Patients With Cancer ◽  
Cancer Support ◽  
Cancer Support Groups ◽  
Cancer Support Group

Purpose Cancer diagnosis comes with many challenges. Diagnosis is a huge burden to the patient, family, and community that subjects them to financial crisis, emotional distress, a dearth of self-esteem, and physiologic deformations. From a patient’s perspective, the treatment of cancer is complex and complicated with a weak health care system, attitude of health care workers, lack of insurance, lack of trust in orthodox medicine, and stigmatization. Patients with cancer are constantly seeking solace, people to listen to them, and people who understand their state of mind and can be a source of inspiration. Studies have shown that peer cancer support groups result in psychological benefit and improve relationships. The 2016 World Cancer Congress patient’s pavilion inspired us to start cancer support group for patients with cancers, survivors, and caregivers, known as the Abuja Breast Cancer Support Group, through the Union for International Cancer Control SPARC Metastatic Breast Cancer Challenge project. The cancer support group was primarily founded for only patients with breast cancer, survivors, caregivers, and for peer support. As of today the group has transitioned from being a patient group to also being an advocacy group with a number of activities and programs that are aimed at guiding all patients with cancer from diagnosis to survivorship. Methods This study reviewed the 1 year activities of the Abuja Breast Cancer Support Group and surveyed the impact of peer support on the 36 members of the group using a mixed-methods approach. Results Cancer support groups have the potential to revolutionize cancer care in sub-Saharan Africa, as we have seen with HIV/AIDs support groups. Use of technological tools is helpful to build connectedness. Conclusion There was an improvement in the psychological states of patients as well as in their physiologic understanding of their diagnosis by meeting together, networking, and interacting through a WhatsApp group. Our qualitative findings also indicate that patients with cancer need platforms through which to speak out, to advocate, and to change the course of cancer care if provided with the necessary training and support. AUTHORS' DISCLOSURES OF POTENTIAL CONFLICTS OF INTEREST The following represents disclosure information provided by authors of this manuscript. All relationships are considered compensated. Relationships are self-held unless noted. I = Immediate Family Member, Inst = My Institution. Relationships may not relate to the subject matter of this manuscript. For more information about ASCO's conflict of interest policy, please refer to www.asco.org/rwc or ascopubs.org/jco/site/ifc . No COIs from the authors.

scholarly journals Use of therapeutic factors for the evaluation of results in support groups

2008 ◽  
Vol 21 (3) ◽  
pp. 432-438 ◽  
Author(s):  
Lizete Malagoni de Almeida Cavalcante Oliveira ◽  
Marcelo Medeiros ◽  
Virginia Visconde Brasil ◽  
Paula Malagoni Cavalcante Oliveira ◽  
Denize Bouttelet Munari
Keyword(s):  
Family Member ◽  
Family Support ◽  
Support Groups ◽  
Support Group ◽  
Descriptive Study ◽  
Check List ◽  
Therapeutic Factors ◽  
Group Methods ◽  
Digital Recorder

OBJECTIVE: To identifyg the evidence of Therapeutic Factors (TF) for the systematized evaluation of a support group. METHODS: Descriptive study developed in a hospital in Goiânia GO, in 2005/2006. Ten sessions of the Inpatient Family Support Group (GRAF) were registered with a digital recorder, field journal and a check list filled out by the coordinators in order to identify TF observed in the participation of each family member. Later, these records were cross-checked so as to analyze this participation. RESULTS: GRAF had an average of 6.9 participants per session. The following TF were identified: universality, imparting of information, cohesiveness, existential factors and instillation of hope. CONCLUSION: These TF were useful in the evaluation of the GRAF results, suggesting their convenience to evaluate results in other support groups.

Group Experiences and Individual Differences in Stuttering

2019 ◽  
Vol 62 (12) ◽  
pp. 4335-4350 ◽  
Author(s):  
Seth E. Tichenor ◽  
J. Scott Yaruss
Keyword(s):  
Individual Differences ◽  
Support Groups ◽  
Support Group ◽  
Affective States ◽  
Life Outcomes ◽  
Self Help ◽  
Wide Range ◽  
Group Experiences ◽  
History Of ◽  
Adults Who Stutter

Purpose This study explored group experiences and individual differences in the behaviors, thoughts, and feelings perceived by adults who stutter. Respondents' goals when speaking and prior participation in self-help/support groups were used to predict individual differences in reported behaviors, thoughts, and feelings. Method In this study, 502 adults who stutter completed a survey examining their behaviors, thoughts, and feelings in and around moments of stuttering. Data were analyzed to determine distributions of group and individual experiences. Results Speakers reported experiencing a wide range of both overt behaviors (e.g., repetitions) and covert behaviors (e.g., remaining silent, choosing not to speak). Having the goal of not stuttering when speaking was significantly associated with more covert behaviors and more negative cognitive and affective states, whereas a history of self-help/support group participation was significantly associated with a decreased probability of these behaviors and states. Conclusion Data from this survey suggest that participating in self-help/support groups and having a goal of communicating freely (as opposed to trying not to stutter) are associated with less negative life outcomes due to stuttering. Results further indicate that the behaviors, thoughts, and experiences most commonly reported by speakers may not be those that are most readily observed by listeners.

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