scholarly journals Challenges and Opportunities for Communication about the Role of Genomics in Public Health

2021 ◽  
pp. 1-7
Author(s):  
Caitlin G. Allen ◽  
Ridgely Fisk Green ◽  
Scott Bowen ◽  
W. David Dotson ◽  
Wei Yu ◽  
...  

Despite growing awareness about the potential for genomic information to improve population health, lingering communication challenges remain in describing the role of genomics in public health programs. Identifying and addressing these challenges provide an important opportunity for appropriate communication to ensure the translation of genomic discoveries for public health benefits. In this commentary, we describe 5 common communication challenges encountered by the Centers for Disease Control and Prevention’s Office of Genomics and Precision Public Health based on over 20 years of experience in the field. These include (1) communicating that using genomics to assess rare diseases can have an impact on public health; (2) providing evidence that genetic factors can add important information to environmental, behavioral, and social determinants of health; (3) communicating that although genetic factors are nonmodifiable, they can increase the impact of public health programs and communication strategies; (4) addressing the concern that genomics is not ready for clinical practice; and (5) communicating that genomics is valuable beyond the domain of health care and can be integrated as part of public health programs. We discuss opportunities for addressing these communication challenges and provide examples of ongoing approaches to communication about the role of genomics in public health to the public, researchers, and practitioners.

2018 ◽  
Vol 134 (1) ◽  
pp. 11-16 ◽  
Author(s):  
Anna B. Cope ◽  
Victoria L. Mobley ◽  
Erika Samoff ◽  
Kevin O’Connor ◽  
Thomas A. Peterman

2021 ◽  
Author(s):  
Romain LAN ◽  
Fabrice CAMPANA ◽  
Delphine TARDIVO ◽  
Jean-Hugues CATHERINE ◽  
Jean-Noel VERGNES ◽  
...  

Abstract Background: Tobacco and alcohol are the main risk factors for oral squamous cell carcinoma, the low survival rate of which is a public health problem. European-wide health policies (prevention campaign, tobacco packaging) have been put in place to inform the population of the risks associated with their consumption. Due to the increase in smoking among women and changes in sexual practices, the incidence of this disease is still too high. The identification of data from internet research on the population could make it possible to measure the impact and better orient these preventive measures.The objective was to analyse the data on interest shown in oral cancers from several online databases, and to cross-reference them with the data on the introduction of European public health programs.Methods: A search of data from Google ©, Wikipedia © and Twitter © users in 28 European countries relating to oral cancer between 2004 and 2019 was carried out. Bibliometric analysis of press and scientific articles over the same period was also analysed. The association between these data and the introduction of public health programs in Europe has been studied.Results: Changes in tobacco packaging correlated with a significant increase in internet research on oral cancer in 7 countries. Unlike national policies and campaigns, the European awareness program Make Sense has had no influence on internet research. There was an asymmetric correlation in internet searches between publications on oral cancer from scientific articles or "traditional" media (weak association) and those from internet media such as Twitter © or Wikipedia © (strong association).Conclusion: Our work highlights 7 areas of work around which oral cancer awareness in Europe could be refocused.


1998 ◽  
Vol 27 (4) ◽  
pp. 507-524 ◽  
Author(s):  
MARK DRAKEFORD

This article considers the current state of help with funeral expenses in Britain. It argues that assistance has been progressively and deliberately eroded to the point where the famous ‘from the cradle to the grave’ protection of the welfare state has been removed from increasing numbers of poor people. The article sets these developments within the context of the contemporary British funeral industry, with emphasis upon its treatment of less-well-off consumers. The changing nature of social security provision for funeral expenses is traced in detail, including the actions of the incoming 1997 Labour government. This article investigates the public health role of local authorities in the case of burials, concluding that such services are insufficiently robust to meet the new weight placed upon them. The article ends with a consideration of the impact which these different changes produce in the lives of individuals upon whom they have an effect.


2020 ◽  
Vol 135 (1_suppl) ◽  
pp. 75S-81S
Author(s):  
H. Dawn Fukuda ◽  
Liisa M. Randall ◽  
Thera Meehan ◽  
Kevin Cranston

Policies facilitating integration of public health programs can improve the public health response, but the literature on approaches to integration across multiple system levels is limited. We describe the efforts of the Massachusetts Department of Public Health to integrate its HIV, viral hepatitis, sexually transmitted infection (STI), and tuberculosis response through policies that mandated contracted organizations to submit specimens for testing to the Massachusetts State Public Health Laboratory; co-test blood specimens for HIV, hepatitis C virus (HCV), and syphilis; integrate HIV, viral hepatitis, and STI disease surveillance and case management in a single data system; and implement an integrated infectious disease drug assistance program. From 2014 through 2018, the number of tests performed by the Massachusetts State Public Health Laboratory increased from 16 321 to 33 674 for HIV, from 11 054 to 33 670 for HCV, and from 19 169 to 30 830 for syphilis. Service contracts enabled rapid response to outbreaks of HIV, hepatitis A, and hepatitis B. Key challenges included lack of a billing infrastructure at the Massachusetts State Public Health Laboratory; the need to complete negotiations with insurers and to establish a retained revenue account to receive health insurance reimbursements for testing services; and time to train testing providers in phlebotomy for required testing. Investing in laboratory infrastructure; creating billing mechanisms to maximize health insurance reimbursement; proactively engaging providers, community members, and other stakeholders; and building capacity to transform practices are needed. Using multilevel policy approaches to integrate the public health response to HIV, STI, viral hepatitis, and tuberculosis is feasible and adaptable to other public health programs.


2020 ◽  
Vol 6 (2) ◽  
pp. 205630512093041
Author(s):  
Julian M. Mueller-Herbst ◽  
Michael A. Xenos ◽  
Dietram A. Scheufele ◽  
Dominique Brossard

Spreading issue awareness about increasingly interdisciplinary scientific discoveries faces progressively larger communication challenges due to the complexity, innovation pace, and broad applicability of these innovations. Traditionally, the public relies on legacy media for information and discussion of science topics. In face of a changing information landscape, however, legacy media struggle with decreasing funding for their science desks, and science journalists turn to more specialized outlets, often online. Given these developments, it is important to understand which platforms besides legacy media serve as facilitators of science issue awareness. In this study, we analyzed the impact of social media on the awareness of gene editing. We used a representative survey administered by professional survey firm YouGov between December 2016 and January 2017, yielding a final sample of 1,600 US adults with a 41.7% response rate. The regression analysis findings suggest that social media is a significant avenue through which awareness of gene editing, and subsequently other scientific issues, is spread. Using the example of Facebook, we were able to demonstrate that how, rather than if, one uses social media is the determining factor in spreading issue awareness. Awareness was positively predicted by the length of social media sessions and network heterogeneity, while pure amount of sessions actually negatively predicted awareness. Legacy media remain an important predictor of gene editing awareness. These results demonstrate that social media functions as an important information space for science issues and should receive individual attention along with legacy media outlets when examining science communication.


Author(s):  
Adnan A. Hyder ◽  
David M. Bishai

An understanding of what influences policy decisions, what determines investments for specific public health interventions, and how agreements are made regarding new programs in public health is crucial for helping navigate the ethical implications of public health programs and interventions. This chapter provides an overview of the Public Health Policy and Politics section of The Oxford Handbook of Public Health Ethics. The section’s overall goal is to highlight ethical issues emerging from the work in, and study of, politics and policy development in public health, both within countries and globally. The chapters in this section analyze a set of ethical issues related to politics and public health policies, interventions, and programs, and emphasize the importance of communication among various disciplines, such as bioethics, political science, and development studies.


2020 ◽  
Vol 6 (2) ◽  
pp. 37
Author(s):  
Klara Dankova

In times of crisis, a government’s communication with the public is fundamental, as one of the government’s main tasks is to provide critical information to protect the population. In the current context of the COVID-19 pandemic, public health communication has been paramount because of the elevated risk of contagion. Moreover, in public health communication, experts play a pivotal role by providing reliable information on the basis of their technical expertise. The impact of the COVID-19 pandemic is often compared to that of the Spanish flu, a pandemic occurring in 1918-1919, whose global spread decimated tens of millions of people. This contribution aims to assess the role of experts in the two crises by highlighting the differences in France’s public health communication during the two events. Assuming that the objectives of public health communication during the two pandemics were more or less identical, i.e. to prevent the spread of disease and inform and protect the public, the paper inquires about the means used to achieve them, focusing on the contribution of experts. The main characteristics of public health communication during the Spanish flu will be investigated by analysing articles published in the period between 1918 and 1919 in two French newspapers Le Matin and Le Petit Parisien. In terms of the current COVID-19 pandemic, this paper will probe articles published since December 2019 in the newspaper Le Monde.


Sign in / Sign up

Export Citation Format

Share Document