scholarly journals Qualitative Study of Chinese Stroke Caregivers’ Caregiving Experience During the COVID-19 Pandemic

Stroke ◽  
2021 ◽  
Author(s):  
Jung Jae Lee ◽  
Wing Nga Tsang ◽  
Sook Ching Yang ◽  
Jojo Yan Yan Kwok ◽  
Vivian W.Q. Lou ◽  
...  
Keyword(s):  
Care Service ◽  
Health Care Service ◽  
Well Being ◽  
Stroke Survivor ◽  
Stroke Survivors ◽  
Psychological Well Being ◽  
Telephone Interviews ◽  
Chinese Adult ◽  
Difficult Time ◽  
Caregiving Roles

Background and Purpose: The coronavirus disease 2019 (COVID-19) outbreak has led to disruptions in health care service delivery worldwide, inevitably affecting stroke survivors requiring ongoing rehabilitation and chronic illness management. To date, no published research has been found on stroke caregiving during the COVID-19 pandemic. This study aimed to explore Hong Kong stroke caregivers’ caregiving experiences in the midst of this difficult time. Methods: Individual semistructured interviews were conducted with 25 Chinese adult primary stroke caregivers from May to June 2020 via telephone. Interviews were transcribed verbatim and analyzed using an interpretive description approach and constant comparison strategy. Results: Five themes of the stroke caregiving experience during the COVID-19 pandemic emerged: care service adversities, additional caregiving workload and strain, threatened relationship between caregiver and stroke survivors, threats to caregivers’ physical and psychological well-being, and needs for continuing caregiving roles. Our findings suggested that caregivers have worsened physical and psychological well-being because of increases in care burden with simultaneously reduced formal and informal support. The relationship between caregiver and stroke survivor was subsequently affected, placing some survivors at heightened risk of abuse. Conclusions: Our study provides valuable findings about stroke caregiving experiences and needs during the pandemic. Delivery of psychological support, telemedicine, and household hygiene resources would be useful to mitigate caregivers’ psychological distress during the COVID-19 pandemic.

Customer value cocreation activities

2019 ◽  
Vol 29 (3) ◽  
pp. 282-308 ◽  
Author(s):  
Tram-Anh N. Pham ◽  
Jillian C. Sweeney ◽  
Geoffrey N. Soutar
Keyword(s):  
Quality Of Life ◽  
Regulatory Focus ◽  
Customer Value ◽  
Care Service ◽  
Health Care Service ◽  
Well Being ◽  
Content Type ◽  
Value Cocreation ◽  
Expected Benefits

Purpose The purpose of this paper is to suggest a typology of customer value cocreation activities and explore the psychological drivers and quality of life outcomes of such activities in a complex health care service setting. Design/methodology/approach Focus groups with people with Type 2 diabetes and in-depth interviews with diabetes educators were conducted. Findings Four types of customer value cocreation activities were found (mandatory (customer), mandatory (customer or organization), voluntary in-role and voluntary extra-role activities). In addition, health locus of control, self-efficacy, optimism, regulatory focus and expected benefits are identified as key psychological factors underlying the customers’ motivation to be active resource integrators and resulting in physical, psychological, existential and social well-being. Originality/value The study highlights the various types of customer value cocreation activities and how these affect the various quality of life dimensions.

Abstract TP373: Advancing Stroke Recovery Through Social and Emotional Support

Stroke ◽  
2017 ◽  
Vol 48 (suppl_1) ◽  
Author(s):  
Mary Amatangelo ◽  
Janet Prvu Bettger ◽  
Karen J Collins ◽  
Barry Jackson ◽  
Elaine Miller ◽  
...  
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Well Being ◽  
Stroke Survivor ◽  
Support Needs ◽  
Stroke Survivors ◽  
Caregiver Depression ◽  
Post Stroke ◽  
Post Stroke Depression ◽  
Health And Well Being

Background: Post-stroke disability often disrupts family roles and responsibilities. Role reversal, in combination with the disabilities, is emotionally taxing and physically fatiguing for both the stroke survivor and the family caregiver. Depression can result and when left undermanaged can lead to poor health outcomes. Research has shown social support is an important factor in recovery, post-stroke and caregiver depression. Studies have indicated high levels of social support are associated with faster functional recovery and more extensive recovery in stroke survivors. Also, that social support is independently associated with the presence and severity of post stroke depression and that positive social interaction is a significant contributor to variance in initial post stroke depression. Purpose: The purpose of this critical review was to examine the research literature on the relationships of social support and coping strategies with health-related outcomes among stroke survivors and their family caregivers. Methods: Twenty-five articles published between 2000 and 2016, identified by key terms related to stroke survivor and caregiver emotional and adjustment support needs, social support, depression and effective interventions, were reviewed. Results: We found overwhelming evidence that attention to stroke survivor and caregiver social network can advance recovery and improve the health and well being of both stroke survivors and caregivers. Knowledge gaps and focus on emotional and adjustment support needs are not being adequately met by community-based health services. This points to an important need for changes in practice to acclimate stroke survivors and their family caregivers to their new life roles, but also the need for more rigorous studies. Conclusions: In addition to more research, there is a critical need for changes in facilitating transitions of care to meet the emotional and adjustment needs in the stroke population. Encouraging health professionals to screen for social network presence and size and promoting support-seeking behavior may help advance recovery and improve the health and well being of stroke survivors and family caregivers.

Abstract TMP49: Depressive Symptoms After Stroke are Linked Longitudinally between Stroke Survivors and Their Family Caregivers

Stroke ◽  
2017 ◽  
Vol 48 (suppl_1) ◽  
Author(s):  
David L Roth ◽  
Orla C Sheehan ◽  
Jin Huang ◽  
J. D Rhodes ◽  
Suzanne E Judd ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Depressive Symptoms ◽  
Family Caregivers ◽  
Short Form ◽  
Well Being ◽  
Stroke Survivor ◽  
Stroke Survivors ◽  
Post Stroke ◽  
Clinically Significant

Background: Multiple previous investigations have documented persistent elevations in depressive symptoms after stroke for stroke survivors and for family caregivers. However, relatively few studies have examined both groups simultaneously, and none have tested for possible predictive linkages in longitudinal analyses. Methods: We collected interview data from 248 stroke survivors and their primary family caregivers who were enrolled in the Caring for Adults Recovering from the Effects of Stroke (CARES) project. CARES is an ancillary study to the national REasons for Geographic and Racial Differences in Stroke (REGARDS) study. Stroke survivors and caregivers were interviewed at 9-, 18-, 27- and 36-months after an adjudicated stroke event. Measures administered to both groups included the 20-item Center for Epidemiological Studies Depression Scale (CESD) and the 12-item Short Form Health Survey (SF-12) of health-related quality of life. Cross-lagged panel analyses were used to investigate linkages between stroke survivors and caregivers over time on these measures. Results: Clinically significant levels of depressive symptoms, as defined by a score of 16 or more on the CESD, were found for 17.0% of the stroke survivors and 13.7% of the caregivers at 9-months after stroke. Longitudinal models revealed that high stroke survivor depressive symptoms at 9-months post-stroke predicted increases in caregiver depressive symptoms at 18-months post-stroke (standardized adjusted regression coefficient = 0.18, p = 0.003). No longitudinal predictive effects were found for caregiver depressive symptoms on stroke survivor outcomes or for the SF-12 measures. Conclusions: Clinically significant levels of depressive symptoms were relatively rare 9-months after stroke in this population-based sample of stroke survivors and family caregivers. Stroke survivor depressive symptoms longitudinally predict caregiver depressive symptoms, but caregiver well-being was not found to longitudinally predict stroke survivor depression or quality of life. Treating elevated depressive symptoms in stroke survivors may also improve caregiver well-being.

When co-creation pays off: the effect of co-creation on well-being, work performance and team resilience

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Judith Partouche-Sebban ◽  
Saeedeh Rezaee Vessal ◽  
Fabian Bernhard
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Work Performance ◽  
Service Sector ◽  
Care Service ◽  
Health Care Service ◽  
Mail Survey ◽  
Well Being ◽  
Content Type ◽  
Team Resilience

Purpose This study aims to explore the effect of value co-creation among health-care professionals and in a business-to-business (B2B) context on the involved individuals and the organization. More precisely, the effect of co-creation behaviors on the well-being of individuals, their work performance and team resilience are investigated. Design/methodology/approach A quantitative research design was adopted. The data collection was performed through a mail survey of a sample of 96 professionals at a cancer health-care institution in France in which several medical and paramedical providers work together to maximize service options. Linear regressions were conducted using SPSS to analyze the data. Findings The results highlight the positive outcomes of an active co-creation process on individual well-being, work performance and team resilience and emphasize its limits. Originality/value The originality of this study lies in studying co-creation in the context of the health-care service sector, among health-care professionals and from a B2B perspective. Adopting an inter-organizational frame, this study clarifies the positive and negative effects of co-creation from both personal and organizational aspects.

scholarly journals Young Women Stroke Survivors and Their Desire for Peer Support

ISRN Stroke ◽  
2014 ◽  
Vol 2014 ◽  
pp. 1-8
Author(s):  
Sharon-Dale Stone
Keyword(s):  
Peer Support ◽  
Young Women ◽  
Hemorrhagic Stroke ◽  
Well Being ◽  
Stroke Survivors ◽  
Psychological Well Being ◽  
Young Stroke ◽  
Widespread Access

The concerns of young stroke survivors are not well known. The aim of this paper is to draw on data from a larger study to show that young women who survived a hemorrhagic stroke desire access to peer support, but there is not widespread access to peer support. Open-ended interviews were conducted with an international sample of 28 women to learn about their poststroke experiences and were analyzed qualitatively for common issues and themes. A prominent theme across the interviews was the significance of age-similar peer support. Participants discussed feeling alone and misunderstood and wanting to have access to peer support. In conclusion, peer support may help to enhance psychological well-being, but the survivor’s own understanding of her peers must be centrally considered.

Linkages Between Women's Provider-Role Attitudes, Psychological Well-Being, and Family Relationships

1992 ◽  
Vol 16 (3) ◽  
pp. 311-329 ◽  
Author(s):  
Maureen Perry-Jenkins ◽  
Brenda Seery ◽  
Ann C. Crouter
Keyword(s):  
Marital Satisfaction ◽  
Division Of Labor ◽  
Family Relationships ◽  
Well Being ◽  
Daily Hassles ◽  
Psychological Well Being ◽  
Telephone Interviews ◽  
Two Measures ◽  
Role Responsibilities ◽  
Provider Role

The primary aim of this investigation was to examine the extent to which the meanings women attach to their provider-role responsibilities are differentially related to their psychological well-being and family relationships and to the division of labor in the home. The sample included 43 dual-earner and 50 single-earner families. In home interviews, wives reported on role overload, depression, satisfaction with the marriage, and attitudes regarding women's and men's roles. Their children completed two measures assessing daily hassles and their relationship with their mother. Reports of daily involvement in household work were obtained from wives and husbands during four telephone interviews. Discriminant function analyses indicated that aspects of women's psychological well-being and marital and parent-child relationships and of the division of labor discriminated women in four different provider groups: main/secondary providers, ambivalent coproviders, coproviders, and homemakers. Wives who were ambivalent about their provider responsibilities tended to report higher levels of depression and overload and significantly lower marital satisfaction. Wives who saw their employment as secondary to that of their husbands reported relatively higher levels of depression and overload but also the highest levels of marital satisfaction.

scholarly journals Time Utilisation Pattern of Front Line Health Workers in India – A Case Study from Mangalore District

2019 ◽  
Vol 4 (1) ◽  
Keyword(s):  
Health Workers ◽  
Care Service ◽  
Health Care Service ◽  
Well Being ◽  
World Health ◽  
Utilisation Pattern ◽  
Health Organization ◽  
Auxiliary Nurses ◽  
Organization Section

Sustainable development goal 3: Ensure healthy lives and promote well-being for all at all ages reports that most of populations are living healthier than before but there are many suffering from many disease and its prevalence and targets to achieve all them. Health workers are the core of the health care service system to deliver the care to the community. World Health Organization section of Nurse and Midwifery states that they comprised of more than 50% of the total health workforce, and there is a global shortage but the largest need based shortage in the Africa and South East Asia regions (https://www.who.int/news-room/fact-sheets/detail/nursing-andmidwifery). WHO statistics consists of Auxiliary nurses midwife (ANM, two years of training), registered nurses and midwifes (it varies from 3 -4 years of education).

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