Quality of Life in Children and Adolescents With Learning Problems: Development and Validation of the LD/QOL15 Scale

2018 ◽  
Vol 52 (2) ◽  
pp. 146-157 ◽  
Author(s):  
Deborah P. Waber ◽  
Ellen C. Boiselle ◽  
Peter W. Forbes ◽  
Jonathan M. Girard ◽  
Georgios D. Sideridis
Keyword(s):  
Quality Of Life ◽  
Factor Analysis ◽  
General Education ◽  
Children And Adolescents ◽  
Psychosocial Functioning ◽  
Factor Model ◽  
Community Sample ◽  
Learning Problems ◽  
Three Factor

Learning problems (LP) can have wider implications than the academic deficits per se. The goal of the present series of studies was to develop a reliable and valid quality-of-life measure targeted to children and adolescents with LP. In Study 1, using a 35-item questionnaire, we surveyed 151 parents/guardians of children referred for assessment of learning disorders. Exploratory factor analysis identified a three-factor model: Academic Performance, School Understanding, and Child/Family Psychological. These factors were validated against standardized measures of academic achievement and psychosocial functioning. The questionnaire was then reduced to 15 items—the LD/QOL15 —and administered to a community sample of 325 parents/guardians of children in Grades 1 to 8 (Study 2). The three-factor model was verified with confirmatory factor analysis. Comparison of general education ( n = 232) and LP ( n = 93) groups within the community sample documented substantial group differences ( p < .0001), with the LP group having higher mean scores. These differences were larger for older students (Grades 5–8) than younger students (Grades 1–4; p < .01). The LD/QOL15 is a brief and reliable measure that is valid to assess quality of life and, potentially, outcomes in children and adolescents with LP.

scholarly journals Perception of quality of life by children and adolescents with cleft lip/palate after orthodontic and surgical treatment: gender and age analysis

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Ana Ruiz-Guillén ◽  
Carlos Suso-Ribera ◽  
Martín Romero-Maroto ◽  
Carmen Gallardo ◽  
Cecilia Peñacoba
Keyword(s):  
Quality Of Life ◽  
Surgical Treatment ◽  
Children And Adolescents ◽  
Psychosocial Functioning ◽  
Cleft Lip ◽  
Social Function ◽  
Self Perception ◽  
Gender And Age ◽  
Cleft Lip Palate

Abstract Background The quality of life (QoL) of children and adolescents with cleft lip/palate (CL/P) has been shown to be a predictor of good psychosocial functioning in this population group. This study aimed to measure QoL, from the patient´s perception of change produced by the different surgical and orthodontic treatments carried out since early childhood, and if gender and age are modulating the outcome variables results. Materials and methods A cross-sectional research study was carried out. The study included 60 patients with cleft lip, cleft palate, or cleft lip/palate, aged between 8 and 18, who were in orthodontic treatment and had undergone at least one surgery. They were asked to complete the Quality-of-Life Adolescent Cleft Questionnaire (QoLAdoCleft), which allows the assessment of the QoL through self-perception of improvement after surgical and orthodontic interventions. In particular, this questionnaire (administered only once), allows the evaluation of self-perception of QoL at the present time and before orthodontic and surgical treatment. This double assessment was carried out for the domains of physical, psychological, and social health. The results were analysed by looking at the interaction of gender and age. Results Statistically significant differences were found in the perception of the current QoL in comparison to the retrospective perception in all the dimensions considered. The perception of QoL improved in all cases. The results also showed a moderation of gender in the relation between perception of previous behaviour and social function and actual behaviour and social function. Conclusion The results indicated that patients perceived their quality of life had improved as a result of the treatments received, with the highest effect sizes found in the physical health domain. Specifically, the improvement in QoL in behaviour and social function tended to be influenced to a greater extent by perception of previous QoL. In this sense, personalized preventative measures from holistic and biopsychosocial approaches are necessary.

scholarly journals Predictors of Long-Term Psychosocial Functioning and Health-Related Quality of Life in Children and Adolescents With Prior Concussions

2018 ◽  
Vol 24 (6) ◽  
pp. 540-548 ◽  
Author(s):  
Vickie Plourde ◽  
Keith Owen Yeates ◽  
Brian L. Brooks
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Psychosocial Functioning ◽  
Attention Problems ◽  
Assessment System ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

AbstractObjectives: Individual differences in long-term psychosocial functioning after concussions in children and adolescents are poorly understood. The aim of the study was to investigate potential predictors of long-term psychosocial functioning and health-related quality of life in youth after prior concussion. Methods: Participants (N=75; mean age=14.3 years old; 52% girls) with one prior concussion (n=24), multiple prior concussions (n=24), or a prior orthopedic injury and no concussion (n=27) were seen on average 2.7 years after their most recent injury. Psychosocial functioning was assessed using the self-report versions of the Behavior Assessment System for Children (BASC-2; Anxiety and Depression scales only), the Strengths and Difficulties Questionnaire, and the Pediatric Quality of Life Inventory TM 4.0. Pre-existing conditions (attention problems, learning difficulties, mood concerns, anxiety concerns, and migraines) were reported by parents using a checklist and examined as predictors of long-term functioning. Other potential predictors included age at testing, sex, time between most recent injury and testing, and number of prior concussions. Results: The groups did not differ significantly on long-term psychosocial functioning. Moreover, only pre-existing mood concerns or attention problems significantly predicted psychosocial adjustment. Conclusions: Children’s functioning before a concussion is critical to understanding outcome. Pre-injury attention and mood concerns should be assessed in clinical settings to prevent and treat long-term psychosocial problems after concussion. (JINS, 2018, 24, 540–548)

scholarly journals Reliability and Validity of the Pediatric Quality of Life Inventory With Individuals With Intellectual and Developmental Disabilities

2015 ◽  
Vol 120 (4) ◽  
pp. 289-301 ◽  
Author(s):  
Michelle A. Viecili ◽  
Jonathan A. Weiss
Keyword(s):  
Quality Of Life ◽  
Developmental Disabilities ◽  
Psychosocial Functioning ◽  
Factor Model ◽  
Reliability And Validity ◽  
Autism Spectrum ◽  
Intellectual And Developmental Disabilities ◽  
Quality Of Life Inventory ◽  
Life Inventory

Abstract The Pediatric Quality of Life Inventory (PedsQL) measures health-related quality of life, a growing area of research, particularly among individuals with disabilities. This research is necessary to fully understand the varied needs of the population and, ultimately, ensure that those needs are being met. The current study assessed the reliability and validity of the PedsQL in individuals with intellectual and developmental disabilities, including individuals with autism spectrum disorder. Participants included 359 caregivers of children, youth, and young adults with IDD. Caregivers completed the PedsQL 4.0 Generic Core Scales questions regarding the individual's physical health and the Strengths and Difficulties Questionnaire. The PedsQL achieved excellent reliability across scales, and distinguished healthy individuals from those with chronic health conditions, as well as individuals with ASD from those without. Factor analysis confirmed a 5-factor model, with moderate to high criterion validity. The PedsQL shows sound psychometric properties and may be a useful tool to measure psychosocial functioning in this population.

scholarly journals Psychometric properties of the geriatric quality of life-dementia in older adults with dementia or mild cognitive impairment living in nursing homes

2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Eun-Young Park ◽  
Seon-Min Park ◽  
Jung-Hee Kim
Keyword(s):  
Quality Of Life ◽  
Factor Analysis ◽  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Nursing Homes ◽  
Factor Structure ◽  
Factor Model ◽  
Dementia Patients ◽  
People With Dementia

Abstract Background Given the theoretical and methodological limitations, there is insufficient knowledge about the psychometric properties and internal structure of quality of life (QOL) measurements for patients with dementia living in nursing homes. The present study aimed to confirm the validity and reliability of the Geriatric Quality of Life-Dementia scale (GQOL-D) to measure the QOL of patients with dementia in nursing homes and analyze their QOL based on the validated GQOL-D factor structure. Methods The GQOL-D was used to assess QOL. A convenience sampling method was used to recruit patients with dementia or mild cognitive impairment from six nursing homes in two cities. In order to confirm the validity and factor structure of the scale, both exploratory factor analysis and confirmatory factor analysis were employed. An independent t-test and a one-way analysis of variance were performed to examine the difference in the QOL across general characteristics. Results The original factor model was not appropriate to assess the QOL of dementia patients living in nursing homes because the models did not show adequate fit indices. The results support a two-factor structure: environmental and personal factors. Our findings suggest that the internal consistency and construct validity of the proposed two-factor model are adequate, and the GQOL-D is a useful tool for assessing the QOL of dementia patients living in nursing homes. Conclusions This factor structure model of environmental and personal aspects is a useful theoretical framework for designing and evaluating interventions for people with dementia and providing integrated person-centered care for people with dementia in nursing homes.

Participation and Quality of Life in Children and Adolescents with Congenital Limb Deficiencies: A Narrative Review

2010 ◽  
Vol 34 (4) ◽  
pp. 351-361 ◽  
Author(s):  
Anka Michielsen ◽  
Iris Van Wijk ◽  
Marjolijn Ketelaar
Keyword(s):  
Quality Of Life ◽  
At Risk ◽  
Children And Adolescents ◽  
Health Care Providers ◽  
Psychosocial Functioning ◽  
Narrative Review ◽  
Care Providers ◽  
Congenital Limb ◽  
Limb Deficiencies

Children and adolescents with congenital limb deficiencies are visibly and physically different from their peers. They present limitations in activities, depending on the severity of deficiency. Therefore they are at risk for lower participation in social and leisure activities. This might negatively influence the perception on their quality of life. The aim of this narrative review is to describe participation and quality of life in children with congenital limb deficiencies. Participation and quality of life are relatively new concepts. Psychosocial functioning, being closely related to the concept of quality of life, is described as well. A comprehensive review of the literature was conducted on participation, quality of life and psychosocial functioning in children and adolescents with congenital limb deficiencies. The review involved a systematic search using multiple data sources. Fifteen cross-sectional studies were included in this review. The literature to date provides limited knowledge on how children and adolescents with congenital limb deficiencies participate and how they perceive their quality of life. The psychosocial functioning, although described as at risk, appears to be comparable to healthy peers. In conclusion, more research is needed on how children and adolescents with congenital limb deficiencies participate and how they perceive their quality of life. A broader perspective will not only help parents in making the right choices for their children, but can also have implications for health care providers, teachers and agencies funding rehabilitation services.

Improving the quality of life of children and adolescents with autism spectrum disorders through athletic-based therapy programs

2019 ◽  
Vol 36 (2) ◽  
pp. 68-74 ◽  
Author(s):  
Michelle Jimeno
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Peer Relationships ◽  
Psychosocial Functioning ◽  
Autism Spectrum ◽  
Motor Dysfunction ◽  
Complex Motor ◽  
Motor Movements ◽  
Adolescents With Asd

AbstractAutism spectrum disorder (ASD) is a multifaceted disorder that is pervasive across sensory, behavioural, emotional, social and motor dysfunction. Research suggests up to 50% of children diagnosed with ASD demonstrate motor difficulties. An inability to perform complex motor movements often leads to preference for simple and sedentary activities. Furthermore, social communication difficulties significantly impair the ability to engage in group activities and form peer relationships. The Sports and Recreation Group is a fee-based athletic program that aims to provide a structured environment to engage children and adolescents with ASD in a small therapeutic group program. Resistance training, plyometric, and balance and coordination are examples of some of the complex motor movements implemented. The group consisted of four participants diagnosed with ASD, aged 9–16 years. Duration involved two blocks of 8 consecutive weeks across three terms. Baseline data was collected from participant self-reports and parent reports using the PedsQL™ and again at 6-months follow-up. Results from this case study highlighted an increase in motor abilities and quality of life by enhancing the individual’s functional movements and psychosocial functioning. This article argues for the inclusion of athletic programs to be integrated as part of the therapeutic planning for children and adolescents with ASD.

scholarly journals Cross-cultural adaptation and measurement properties of Youth Quality of Life Instrument-Short Form (YQOL-SF) in a developing South-East Asian country

PLoS ONE ◽  
2021 ◽  
Vol 16 (6) ◽  
pp. e0253075
Author(s):  
Men Thi Hoang ◽  
Ha Ngoc Do ◽  
Trang Quynh Dang ◽  
Hoa Thi Do ◽  
Tham Thi Nguyen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Factor Analysis ◽  
Factor Model ◽  
Short Form ◽  
Reliability And Validity ◽  
Asian Country ◽  
Measurement Properties ◽  
East Asian Country ◽  
Cross Sectional

This study was performed to evaluate the measurement properties of Youth Quality of Life–Short Form (YQOL-SF) in assessing the quality of life (QOL) among general youths in Vietnam. An online cross-sectional study was conducted to validate the YQOL-SF. Factor analysis (including exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) was utilized to determine the factorial structure of this tool. The psychometric properties (reliability and validity) of the new factorial model were assessed. The factor analysis revealed the two-factor model of YQOL-SF including factor 1 “Belief in self and family”, and factor 2 “Environment and relationships”. Cronbach’s alpha value showed excellent internal consistency in both factors (0.911 and 0.910, respectively). Results also indicated good convergent, divergent, concurrent, and know-group validity of the two-factor model. Our study provided a promising model with different domains that were proved to be essential for the assessment of quality of life among Vietnamese youth aged 16–24. Our two-factor model affirmed that a balance between detail and length of the assessment is important to consider when selecting YQOL-SF for youths’ QOL assessment. It helped reduce the risk of redundancy and encourages high survey completion rates among participants.

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